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    SupermansJustice

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Popular Content

Showing most liked content since 05/28/2017 in all areas

  1. 29 likes
    Rational Vaxxer

    The passing of a friend, Dr Halford

    The world has lost a true human being and a pioneer yesterday. It's with much regret to learn of the passing of a friend, Dr. William Halford. The man who wanted to save the world but couldn't even save himself, has finally lost the battle to cancer. A person with a deep altruistic view on medicine and a vision to help those who suffer from HSV, regardless of any negative feedback or people who continue to mark his work "unsafe." Dr Bills work will soon be vindicated. I remember sitting with him during the conference and interviews at SUI and even now I still remember it as if it was yesterday. Here was a man that was clearly in pain from the tumor pressing on his brain, yet he spoke with the elegance of a young professor. It was If he had never left the classroom. Even while knowing his predicted survival time was less than inspiring, ( the past 5 years ) he carried on. I found that to be quite inspiring. I'm glad to have know him and to have been a part of his research. I will continue to have his back and support his family and his family @Rational Vaccines. RIP
  2. 21 likes
    I've been informed Bill Halford passed early this morning (6/22). Thoughts and prayers to his family during this sad time. Among his contributions, from his first papers exploring how HSV possibly reactivated to later identifying what he believed to be a key ingredient in HSV prophylactic vaccines (antigenic breadth) using ICP0 interferon mutants, he came to use the live virus vaccine in humans. Despite previous attempts in people he tended to credit himself as the first. Nonetheless Halford's pride in his work remained intact and he pressed forward co-founding Rational Vaccines Inc. (RVx) in 2015. He is survived by his wife and two children. RIP William P Halford.
  3. 16 likes
    RVX Patient and Investor

    PayPal CEO signs on with Rational Vaccines!

    this was my last chat with Bill. i sent it after i had heard he had taken a turn for the worse. i realized it might be my last opportunity to speak with him. so glad i got to do so. no trace of self pity. truly a great guy, showing tremendous bravery in both science and life!
  4. 15 likes
    A heartfelt Letter from CEO of Rational Vaccines, Agustin Fernandez III Shareholders of Rational Vaccines, It is with a heavy heart that I write this letter to the friends and family of RVx. As you all know, my Co-founder, and our Chief Science Officer Dr. William Halford had courageously been battling cancer for the past five years. Despite being terminally diagnosed, Bill never wavered in his commitments; not to his family, his University, his company or his mission to eradicate the HSV virus. He worked tirelessly to bring relief to the hundreds of millions that suffer with this debilitating disease and he made me promise to do the same. Those who knew Dr. Halford best, know there was no room for self-pity in his lab, zero tolerance for excuses, and never a second to entertain the thought of failure. The only thing Bill’s diagnosis did was reinforce the need to work harder and faster to get his vaccine to the people that so desperately require it; Nothing could ever keep Bill from achieving his mission. As you may have already heard. Dr William Halford has recently left this earth, but to be clear, he has not lost his battle to cancer. In typical Bill fashion, he faced the eventuality of his death with bold frankness and calm pragmatism. He knew that we all have a finite amount of time on this earth, and he made sure that every second of his allotment was used to its fullest. Not more than a month before his passing, we sat together and took stock of his work, of the steps he and I had been taking with the company for the past 2 years. We asked ourselves if we were ready to continue without him. I never wanted to talk about Rational Vaccines without Bill, but he was adamant. As he always did, he pushed me to be better than myself. He made me face the reality of our task and the fact that soon he would no longer be there to help me see it through. We asked ourselves “is RVX ready?” The answer was a resounding “YES.” Bill Halford had made sure of that. His loss is nothing short of tragic for me, and for all of you that count him as a friend and family member. There will never be another DR. William Halford. Yet, the reality is that Bill had the vision to prepare the company for any, and all eventualities that may arise. He and I have been working to position RVx so that its success is guaranteed. Its Mission is bigger than any one person, myself included. Dr. Halford put together an amazing Science Advisory Board that includes. DR. Edward Gershburg, Dr. Daniel Carr, Dr. Joshua Geltz, and Dr. Todd Margolis. This group has been working alongside Dr. Halford for many years. They are qualified to continue pushing his work forward and they have pledged to do so. June 26th, 2017 Dr. Gershburg has stepped up as our Chief Technical Officer and bravely accepted the daunting task of running the Halford Lab at Rational Vaccines. Dr. Gershburg has been working with Bill for the past 10 years. They have authored many papers together in the field and as a virologist and an HSV specialist in his own right Dr Gershburg is uniquely positioned to continue the work that Dr Halford pioneered. We are lucky to have him, although he had no choice in the matter. As he himself told me. Dr Halford walked into his lab one day and said “ED, when I die, you will continue this work for RVx...” It wasn’t a question, it wasn’t a request, it was fait accompli. Bill has handed picked Dr. Gershburg to carry on the science, because he knew, as I know that Dr. Gershburg can and will rise to this challenge. On the business end, RVx has made tremendous strides. On March 1st We closed out one million dollars in Bridge Financing. Which took us into a $7 million Dollar seed round that we officially opened on May 1st 2017. A week later that seed round was already oversubscribed and we are currently drafting documents to close on this money. The round is being led by Thiel Capital, with Founders Fund, Ironbridge Capital Management, and Velorum Capital also joining to fill up the raise. It is an exciting time for our young company. We are achieving the impossible dream of eradicating the HSV virus one step at a time. Bill and I never doubted it. We always knew the science worked, that people could be treated and that this disease would be stopped. You, the early investors, the friends and family who gave us the wind in our sails when we needed it most, you were always believers. You deserve the most thanks. Dr. Halford gave his entire life to the science that is making RVx’s success possible. He is still with us, pushing us to be better. To not settle for the status quo, to not accept that 4 billion plus people must live with a condition that is vaccine preventable. Every day, every thought I put into our science, is an echo of the things Bill taught me. He made me promise to continue driving his mission forward, and this is what I will do. I gave him my word and I give it to you all now; Nothing Will ever keep Bill from achieving his mission. God works in mysterious ways. If you have spent any time on this earth, you know this to be true regardless of what religious beliefs you hold. I do not understand the wisdom that decides the grand questions of our existence. The why and the when of it all is entirely beyond me. I don’t know why destiny chose that Bill’s time had to come sooner than any of us would have liked. The only solace I can find in this “mystery,” is the knowledge that through RVx, his legacy will last forever. In no small way, you are all responsible for this. We forge on. Incredibly Grateful. Agustin Fernandez III Chief Executive Officer Rational Vaccines Inc. Link to the letter can be seen here. https://www.facebook.com/MakeHerpesGoAway/posts/1563096133754277
  5. 15 likes
    This is truly a sad day. We have lost a champion of our cause. I dont know who will take up the mantel for Dr Halford but I can say who ever it is has big shoes to fill. Thank you Dr Halford for your life of service to those of us afflicted by this virus our prayers are with you and your family. I pray that others will build on your work and see it to completion. You will be missed. Rest in Peace you warrior of science. God Bless your soul!
  6. 15 likes
    I have been admitted to this study. Next Friday physical exam and blood test. I have to apply Viblok twice a day, and take swabs twice a day, for 31 days. Viblok is a colourless, odourless, waterresistant ointment. During the research month I have to stop taking Valtrex. If I get an outbreak I am allowed to take it again. A nice extra, they pay my expenses, about 270 Euro. That is great because I will invest this in the building of a nice little house for my homeless friend in Nicaragua. So HSV2 is actually doing something good in this case. (would have preferred not to get it however).
  7. 12 likes
    Below from SIU's Facebook.
  8. 11 likes
    Put everything together to do it; a CRISPR class II type V with a modified capsid on a serotype of AAV. The CRISPR I'm thinking of has very few off-targets for the human genome and the mutations in vivo are so low that its either a matter of short term editing with reactivating the virus for editing/HDACs/ or having long term expression and spending months inside the cell to be safe enough and effective to use. The next hurdle will be validating the PAM sites I'm looking at to disable protein expression.
  9. 11 likes
    I don't care where I receive the treatment from, my ass will be on the first plane to get my life back!!! I can see it now, I will be crying the whole flight, lol.
  10. 11 likes
    if anything hopefully this puts some real heat on the USA drug companies as they hopefully will soon be loosing out on making billions in antiviral sales. Healthy competition can drive positive change
  11. 10 likes
    Freddy Fender

    Live Vaccine Trailblazer Passes

    This is sad news for everyone connected with HSV. It's a shame that Dr. Halford wont be able to see the outcome of his efforts in designing an effective vaccine for HSV. He even risked his own personal safety. It doesn't seem fair for both Dr. Halford and sufferers longing for a cure. The reason I became a member of this forum was because of Dr. Halford and the hope that his vaccine would be the answer. God bless you Dr. Halford.
  12. 10 likes
    Hi all, A number of people have been asking about the social media plan or are a bit confused about what to do, this post is here to explain it all. We want to start a movement. Right now @SupermansJustice is tweeting out through @TheHopeisNear on Twitter. Our hope is that we get people to see them and for our voices to be heard. What we want · To tweet at people in the medical/science field/CDC/government/news sources. · To tweet out that we want our voices heard and we want a change in testing at the CDC and better education on HSV · To raise awareness that this affects more than just someone’s skin – it affects their life. · To end the stigma. · To establish relationships with the people already out there working on a cure. We are hoping to have the CDC implement routine testing, this will help slow down the spread. For many of us, having HSV changes our sexual behaviour (although the CDC seems to not think so), you’re extra careful and you’re giving people the choice you may not have had by telling someone you have HSV. If we have routine testing it ends the stigma as more people will realize they have it too - this increases research. With more people aware, more people will want a cure which will in turn pressure the FDA to finally approve something for us. What you can do · Sign up for an account on Twitter – you can make it anonymous. Change your privacy settings so you can’t be found through your email address or phone number. · Follow all the people following @TheHopeIsNear and @Led401 and the people those accounts are following. · Follow doctors / virologists etc – the more people you follow the more followers you get in return. · Retweet/Like – yes, at the beginning you will have 0 followers but every single time you RT/Like the people tagged in those tweets will get a notification and see it. · Start your own tweets asking for a change in testing at the CDC – tag your local MP/Senator/Secretary/Minister of Health Stand up and fight – no one else is going to do it for us. We have to help ourselves. It’s already been proven that by tweeting out we can change minds, @SupermansJustice was able to do this to a specialist in infectious diseases the other day. We can make a difference. Our objective for now is to raise awareness and fight for a change at the CDC, this will help the longer term goals. We will be putting together a petition for HSV awareness and research. The more people care – the more they are willing to donate and the more they are willing to spend. We can’t just blanket out tweets asking for money for something people don’t care about because they don’t think twice about it and have been told that Herpes is not a big deal by their doctor/the CDC or they’ve been told it’s gross by the amount of jokes they are hearing about it. As proven by the fundraising done for DRACO even people here don’t care that much as the $ raised from here was low, so how can we expect others to care and to donate for us – by educating them, by standing up for ourselves, by fighting for help! We need to educate people, even some people with cold sores don’t even realize that they have herpes and that it can be spread genitally – by raising awareness in the hopes of better education we also get all those people now hoping for a cure and willing to donate. Other ways you can help · Write a letter to Bill and Melinda gates asking for funding for a cure. · Write a letter to your Minister of Health asking for changes within the CDC. · Write a letter to news sources – point them in our direction (HC or Twitter) have them see that there are plenty of people on here struggling and we are finally standing up for ourselves. · Donate when / where you can when you see fundraising for a cure. The reason we are asking you to do this under an anonymous account is because we know 99.9% of us are too afraid to use our real accounts (which is exactly why we need to raise awareness), just know that on Twitter numbers matter. It’s the amount of likes/retweets something gets that will be noticed in a person's/companies notifications/timeline – not the user who is doing so. We all know what a blow this diagnosis is to our well-being, instead of wallowing become a warrior! Stand up and help spread awareness. If we all stand together we CAN make a difference. This scene from A Bugs Life comes to mind: (cheesy, I know) There is hope coming: https://tonic.vice.com/en_us/article/why-we-dont-have-a-herpes-vaccine-yet http://www.popsci.com/herpes-vaccine-study http://blogs.einstein.yu.edu/developing-a-herpes-vaccine-a-new-approach/ http://ir.genocea.com/releasedetail.cfm?releaseid=1006561 Tagging you for visibility of post and that's it- @123kid @1aday @Abdullah Mu @Ajuda @Ale530 @Almostcertain @archer1 @Atrapasueños @Beach4me @Beachguy @bens @Blue goat @BriAmazed @brookeb300 @brownsugg @Bubba77 @CallMeJay @cantdoit @C. Leake @Cas9 @catdancer @ConfusedandHurt @cowpoke02 @crisper @Dafodil @Dan S H @Dorito3 @DuckDuckGoose @Emilop @Emma R @Evaluate
  13. 9 likes
    Hi all, Last night @SupermansJustice stood up and fought for all of us, I thought you all should see this chain of tweets (pictures attached - you can also go on Twitter to view the full thread). This is the reason we need more people standing up and helping us fight. A specialist of infectious diseases spoke out against the tweets being posted about routine testing. I will say that again - a specialist of infectious diseases said that there is no need for routine testing. At one point even asking how you would test people who don't show symptoms. @SupermansJustice went into a debate with this doctor and was able to point out the facts, showcase studies and eventually led the doctor to change his thinking and the doctor saying "It's important and underscores a lot of uncertainty we have." The uncertainty is clear, if even a doctor that specializes in diseases doesn't know the facts - how are we ever going to see a change in our lifetime? By changing one persons mind at a time, by reaching out to as many people as possible, by stating facts with logical and reasonable communication, we can make a serious difference. We need more research, better testing, and routine testing! Stand up with us - we (people with HSV) are being placed on the back burner. I know of no other disease where I'm being told that what's happening to me isn't a big deal, and it doesn't matter. It's because it's constantly being swept under the rug and we are being ignored. Sign up - create an anon account on Twitter and help spread the word!! Follow @TheHopeIsNear he is fighting for all of us. @OhFuckMyDickHurts @Lisajd @Hansje @Owningit @GlitterDx @Rational Vaxxer
  14. 9 likes
    https://www.nih.gov/news-events/news-releases/nih-study-glutamine-suppresses-herpes-mice-guinea-pigs
  15. 9 likes
    Radio

    Shedding technology

    Can they at least work on a realistic device that can detect shedding. They have microscopes that can see things further then the naked eye. This being the technology era I would think they could have a machine that can track your shedding before they find a cure. For God's sake they have hoverboards that can put you 200 feet in the air. Why can't they make something beneficial technology wise that can track your shedding so we can realistically avoid transmission without it being Russian roulette
  16. 9 likes
    RVX Patient and Investor

    PayPal CEO signs on with Rational Vaccines!

    RVx has one mission, to treat and eliminate hsv! The work will go on until that goal is accomplished!
  17. 9 likes
    No matter how you feel about him there has never been a greater champion for us herpes sufferers. He dedicated his life to finding a treatment and even in his darkest hours as his body was being ravaged by cancer and the treatments for cancer he pressed on. I don't know if we'll ever see such a dedicated warrior again. His work is his legacy and it will live on. He will be missed more than he'll ever know. Rest in Peace Dr. Halford. You've lived a life worth living and a blessing to us all.
  18. 9 likes
    Sad sad news RIP Dr halford , he will never be forgotten. What a great man he was and his attempt at selflessly helping others was amazing. thoughts go to his family
  19. 9 likes
    According to this article, its the first CRISPR trial attempt inside the human body, this one will be a good trial to follow as it may give indication of potential success/challenges for HSV. it looks like China is leading the way with the advancement. https://futurism.com/3-this-crispr-trial-will-be-the-first-to-try-editing-cells-inside-the-body/
  20. 9 likes
    The most amazing thing just happened! @Chip Clark re-tweeted all of these tweets (https://twitter.com/TheChipClark). I have never seen an CEO so involved in helping a community like this. He really wants change for us and wants to see the HSV community get better treatments. Today is a great opportunity for all of us to make a big impact. I don't mean to spam anyone, but I want people to see this! A lot of people know other people with the disease. There's a lot of support out there. @crisper @GlitterDx @Norwegian123 @dont quit!17 @Sean123 @OhFuckMyDickHurts @Whyyyyy @SD777 @MoniqueLow @jreemi @eva13 @EyeOpener @Untouchable1 @Constant Diplomat @jpg @silverdream @LiveLife100 @LucyLevi @Elle22 @HC-Support-Team @LillianPanos @Ajuda @Malcolm @Mackie82 @Atrapasueños @JJ2017 @Rational Vaxxer @RVX Patient and Investor @Theblues @Smart_1 Please post here and get the attention of other users with the "@" sign with their username on HC so they can see what we are doing and how they can contribute! We may have had differences in our views on some things, but we can all get on board for this!
  21. 8 likes
    @SupermansJustice not that I don't a appreciate your question as I do. I would like as much info as possible. I don't think is shows good form to ask it on this thread. This is about memorializing Dr. Halford and to re-assure those who believed in Dr Halfords life work. There will be plenty of time and better places to ask the hard questions of RVx. This is akin to reading the will at the funeral to see if Halford left me something.
  22. 8 likes
    MoniqueLow

    Live Vaccine Trailblazer Passes

    Such a sad news, makes me cry... At least he doesn't suffer anymore. Life sucks if great people like him leave this world too early. I'm afraid nobody can replace him. He was a real hero fighting for us. He gave me hope when I needed while I was so depressed after diagnose. So sad....
  23. 8 likes
    Oh my heart, Southern Man. Very sad. Sending love to his wife and kids.
  24. 8 likes
    Heartbreaking news. I had the pleasure of meeting him in October, such a great and caring man. RIP Dr Bill
  25. 8 likes
    Lurker_No_More

    THERAVAX

    Theravax is, so far, my biggest and best hope.
  26. 8 likes
    RIP Dr.Halford :(. Fuck cancer . Im so sad. Really .
  27. 8 likes
    Hansje

    GENOCEA

    Thank you Chip for your hard work, and for being here now and then! I and many here appreciate it a lot.
  28. 8 likes
    RVX Patient and Investor

    THERAVAX

    RVx doesn't not make it available out of perniciousness, RVx isn't some all powerful being either... It's a small startup doing everything it can, which as far as I can tell is a lot more than anyone else. The man behind it all is literally dying, that obviously slows things down. I'm as anxious as anyone to get sales going, but things can't be rushed and right now Bill's health has taken priority while business deals have sucked up the remaining oxygen. Agustin has said it will be soon, I believe that. No amount of HC posts tho will change what happens when.
  29. 8 likes
    Itsminor

    Gen 003

    Gen 003: Start of August: they will release data on efficiency of Gen 003 Vaccine and Valtrex. This is for me the crux. If they work well together we could have a very effective combo. (eg 90+% reduction in shedding. Either way Phase 3 trials start Nov / Dec 2017 and if they go well we're looking at a 2021 release date. Fingers crossed. Still 4 damn years. Herpes. Who would have thought.
  30. 8 likes
    RVX Patient and Investor

    Will there be a cure in the near future?

    Thx for the kind words. I do get annoyed with some on here, but I hear from a lot of nice folks and as long as RVx continues to operate I plan to be contactable on HC. I also realize what RVx is doing is controversial and there are conflicting accounts of the vax on here. I don't discount those accounts. I want whatever they are going thru to be examined. However I am also aware of my and others excellent results. Call me biased or call me a religious fanatic or what have you, but I am a true believer. My health is paramount to me and if I was having an adverse exp, the last thing I would want is to inflict that on another. It doesn't make moral, ethical, or business sense. Hopefully the trials result in any necessary changes if needed. I do want others to have the choice and opportunity I have had, to get the vax if they want. Hopefully that happens soon. The data I have seen says the vax is very effective vs neuralgia, and so far for me, lower back pain that I intermittently yet fairly routinely would get has vanished. I didn't even think it was from HSV until after the vax and I noticed the difference. I hope everyone can improve dramatically as I have, and i hope it's RVx that does it, but it's MORE important to feel better than it is for RVx to be the reason. Please stay hopeful. This is the most exciting time EVER in HSV research.
  31. 7 likes
    Good results or not so good results, the positive thing that RVx is doing is making awareness that hsv needs to be addressed and putting a spotlight on a condition that horribly affects so many (physically and/or emotionally) but yet simply dismissed. Trust me, I live this secret hell every day and just want it to end. My hope is that RVx will encourage other companies to focus more on this virus as well and they will all be 'racing' to the finish line for a functional cure or better yet...a cure. Kudos to Dr. Bill for bringing attention to the virus for sure. RIP
  32. 7 likes
    When I was 24 I found that that I had contracted genital herpes. I remember crying with my legs spread. My best friend’s dad, aka, my obgyn, was the bearer of bad news. But this just wasn’t bad new to me. This felt like a death sentence. He took his blue gloves off and threw them in the trash. Then he washed his hands and told me that he was sorry that I contracted this and that there is no cure, only treatment. I dazed out as he continued to talk. I remember looking at the trashcan and thinking, “I’m trash.” I felt so guilty for getting it. I felt like I was dirty and that I was the only one in the world diagnosed with this. I didn’t know anyone who had it. None of my friends or family had it. I had just heard negative connotations about in movies and TV shows. I also didn’t understand how I got it since I was in a monogamous relationship with my boyfriend. Did he cheat on me? Did I have it before him? Has the virus been hibernating and now my sores are manifesting? The sores hurt like a bitch. I felt like I had to pee all the time but nothing would come out. The pressure made me feel like my bladder was going to explode. My pussy ached and my stomach was in knots. I felt like I had the flu, my body tingled and I was so tired. Every time I peed it would burn and bring tears to my eyes. It was a never ending nightmare. It was nothing like having a UTI or yeast infection, which before this I was prone to. I was so stressed out so I started to drink to calm my nerves. The drinking lowered my immune system and consequently lead to more and more breakouts and even yeast infections due all the sugar content in the alcohol. I didn’t know how to deal with my diagnosis or even accept it. I was so upset. I thought sex is never going to be the same. It’s always going to hurt and these sores are going to take forever to heal. I am gross. No one is ever going to love me, and if they do I am going to give them this painful disease and then they are going to be miserable. There goes our sex life. I felt that I was being punished because I was participating in premarital sex. Growing up Christian I was taught to save myself until marriage, and to be honest that was my plan. But as all adults know, life gets messy and unfair at times. To back thing up a bit, my last year in college I was raped. I was 22 years old. I felt like my innocence was taken from me because I was a virgin and prided myself on it. It sounds stupid, but being a virgin was a big part of my identity. It was the one thing in my life that I could truly control. I was in control by body. I decided who I let in. I remember being locked in this stranger’s room until the sun came up. After that night, I drove home paralyzed with fear. I was exhausted, confused and numb. I never told anyone. I felt like it was all my fault. I spent the whole next year trying to feel something. I went from a naïve girl to whore-!*@* status. I honestly can’t remember how many men I slept with. I would walk around half naked to get attention. I would fuck men or they would fuck me, but I didn’t even want to be having sex. I would hold back tears as many beds rocked. Why was I doing this to myself? Over and over again? I felt so lost and extremely confused. It was like I was doing the exact opposite of what I wanted to do. I was extremely promiscuous and I didn’t even know why. After my year of sexcapades, I was left with a broken heart and a burning vagina. My therapist told me that I was trying to make sense of the rape so I would unintentionally put myself in situations to reenact the rape. For a long time, I blamed the guy who raped for my herpes. I thought if I was never raped, I wouldn’t have it. I lived in my own word filled with constant anxiety. Anxiety about sex, anxiety about when my next breakout was going to be. Anxiety about who I was going to marry or if I would get married. Anxiety if I could get pregnant. Herpes left untreated can make a woman sterile. And if I got pregnant would I pass it to my baby? Basically every bad thing or negative outcome I could think about was running around in my head like a crazy man on fire. Then came the shame and embarrassment. The jokes about herpes, in the media, and in real life. I remember people talking about it like it was the grossest thing ever and it made me super self-conscious. I felt like I had this huge secret that I could never tell. I ended up breaking up with my boyfriend about a year after being diagnosed with herpes. I got a new boyfriend a month or so after being single. I slept with him, and the sex was amazing even though I was still healing from past sexual trauma. I wasn’t having outbreaks as often, but I was so ashamed that I had it I couldn’t bring myself to tell him. Long story short. We fell in love. We were obsessed with each other. I thought about telling him all the time, but I always chickened out. It was like the moment to tell had passed and was so far gone. So, sure enough, after a year of dating, he got it. At first he was furious. He told me that he never would have been with me if he knew I had this in the first place. After his rage came his denial, acceptance and sadness. Our relationship suffered because trust was broken and he couldn’t understand why I wasn’t honest. My advice to fellow herpsters is…be strong and be honest, as hard as it is. There is nothing wrong with you. You may be surprised to find out that when you tell people they might have it too or know someone else who has it. If someone tells a joke about it, maybe just surprise them and say, “Actually, I have that.” Trust me, they will not know what to do or what to say. They may apologize or even admit that they have it and are insecure so they joke about it. Most importantly, love yourself. Self-love will heal you. Take care of your body, mind and soul. Take herbal supplements or get on daily Valtrex if you want. Try to eat healthy and get enough sleep. Don’t lose sleep over worrying like I did. Worrying does nothing but make you stressed out. Remember that you are so blessed and that you are not alone. I think it’s like one out of six people have this and some people don’t know they have it because they show no symptoms. This is not a Trump statistic either. I am not making this up. Herpes is common. Look at the CDC website, even google it. In my opinion the stigma that comes along with it should be broken. I don’t know any other disease that is made fun of the way herpes is…would you make fun of someone who has diabetes, endometriosis, high blood pressure, cancer, hepatitis, AIDs? You get my point. If you are religious, try to remember that God knows you and can take away your hurt and pain. I used to feel like He couldn’t take away all my pain, but my friend once told me, “If you don’t believe He can take all your pain away then your God isn’t big enough. God literally created the world we live in. And he created you, so doing something as simple as healing your pain would be easy for Him.” Remember you are a beautiful son or daughter of God. He literally created you. And if you didn’t know this already, someone isn’t going to love you for your perfection, they are going to love you for your imperfections. So be confident and learn to love your imperfections, whatever they may be. Because imperfections are what make you beautiful, special and unique. Until next time. xoxo – Blair
  33. 7 likes
    Thank you for that sentiment. I can only hope in the future we have enough to accomplish something. I have considered crowdfunding to move it forward. However for that I would want to include a human element. Yet to be safe, effective, and relatively low cost I would contract with the labs to make a self limiting vector which may reduce its effectiveness and requires co-administration of another vector to awaken latent HSV tilting safety back to towards being reckless - I have yet to design a vector to do it all in one. I foresee I may seek crowdfunding to make step forward so we have a possible cure - albeit I would use a safer approach because of human use, and it would likewise allow skipping the validating the riskier method. If the safer method is not effective then it would be practical to do testing with the long term expression. Then maybe try again.
  34. 7 likes
    I heard there will be no funeral service. According I created a eulogy to praise him and to sketch what I knew of him. BTW contrary to RVx cheerleaders I have no issue with his character or mission. https://www.facebook.com/permalink.php?story_fbid=281941792279407&id=100013907659709 . Bye Bill.
  35. 7 likes
    Franticheart

    Live Vaccine Trailblazer Passes

    RIP Dr Halford. Your legacy will go on. What a truly inspirational person. He wasn't motivated by greed or wealth, but only through his desire to help those that are suffering.
  36. 7 likes
    Herpes go away

    Live Vaccine Trailblazer Passes

    he was indeed a great man and a champion in all sense
  37. 7 likes
    Very sad news. Can't find words for this. He fought so hard for us. I pray for his family and loved ones and thank God for Halford, his life and his work.
  38. 7 likes
    dont quit!17

    Live Vaccine Trailblazer Passes

    R.I.P Dr. Halford. It is sad to see, someone who actually cared about HSV sufferers pass away (nobody cares). It seems unfair to us and ESPECIALLY to his family. Prayers out for the good Doctor and his family! So sad.
  39. 7 likes
  40. 7 likes
    Hansje

    THERAVAX

    OK everybody had made his point. Some think theravax is/will be great, others say you shouldn't take it. Both parties don't agree and will never do. Time will tell. End of discussion. No more drama.
  41. 7 likes
    RVX Patient and Investor

    THERAVAX

    I wish everyone would knock it off. None of this helps anything. I believe in the vax and I have my own exp and I know of others. In addition Thiel and his people aren't fools, if this was so obviously bad they wouldn't be investing. But of course I am open to any and all criticism and feedback. I would never discount someone's feedback simply b/c it is negative. But negative feedback is not in and of itself proof of anything! For one thing, we're on an anonymous forum, and for another it's not vetted scientifically, it's purely anecdotal, (just as the good results I'm aware of, including my own, are). In other words I'm happy to take feedback on face value, (b/c its a nonstarter to convo not to, and eliminates the opportunity to improve the product if the feedback is solid) but it makes no sense to blindly accept any conclusions that however well informed they may be are just glorified speculation. So yes, I actually appreciate pure scientific hypothesis and conjecture, but I reject the snarky BS and broadcasting of "knowledge" and conclusions with ZERO actual examination, testing, research, peer review, or anything more than mere proclamation! If RVx is right, they will have to prove it, ok? Give them some room to do that. Stop declaring the race over after the first three steps. And if the vax is causing negative side effects for some people, that too needs to be explained and proven. It is not enough to simply float some different theories and declare it decided! That's not scientific in any way. There is no new ground being broken here. Until RVx puts out some more info, and the onus is on them to do so, let's just stop the back n forth. It's pointless at this point. And if I could add just one last thing: even if RVx doesn't have a viable product (and I believe they do), but even if they don't, the absolutely shitty attitude some here hurl at RVx is beyond the pale. These are well intentioned people actually doing something to try to help. That deserves respect. And even if someone had a negative reaction and the vax is to blame, everyone, including me, was aware this is an experimental vax and was in the SAFETY trial phase. That obvious fact implicates clearly that you are assuming the risk when you agree to be injected. I knew things could get worse b/c that was plainly an obvious possibility. I am glad that for me things have gotten better. For anyone that the vax didn't work for, or that the vax MIGHT be responsible for making worse, as an investor I want RVx to get to the bottom of that as well, b/c that's only in the best interests of RVx, as well as the patients.
  42. 7 likes
    Lurker_No_More

    Theravax article in Women's Health Magazine

    Thank YOU, anyone related to RV, trying to help us and put an end to this nightmare.
  43. 7 likes
    Tagging for visibility and that's all - @Felina88 @fitzjust1 @fixme1 @Flyingcows @Footprints @Franticheart @freedmanz @GB79 @Gee170 @GlitterDx @gonnamakeit @Goran123 @Grey0214 @HarryAUS @hellohello111 @HelpMePlease4444 @Herpes go away @hitkid @Hopeful4Cure @Hopetohelp @HopingfortheBest @hopingforthebest08 @hurryup @howardsmith8888 @Imaginaryexit @info12345 @Itsminor @IVYivyivyo1 @J4444 @jam123 @Jayson49 @JeffH @Jemel09 @JHenry @Jill71 @JJ2017 @Joci @John Apples @John Doey @jpg @JTM @justanothersufferer @jzsmalls @KayBallard @Kayjay @l95 @Lauren125638 @lcp @lenox @LillianPanos @Mackie82 @Mad_20 @Malcolm @Marcus123 @mcmich @medicalanonymo @Mehhh @Memba @Miha @MikeNYC @moialbalushi @mr10 @Neema @Never Surrender @New anonymous @Newtothisandscared @Nick t @NotGood @notjejune @Numnum @Oddone @OhFuckMyDickHurts @oneday @Pandoraa @Penumbra @phil UK 1972 @Positivelybummed @Purple kisses @Rae723 @ravana @realscience77 @Roberto Z @Sally89 @Sanguine108 @ScaredBean @SCG @ScrabbleChallenge @Second_chance @Sillybrain2 @SinStorm32 @snippy43 @SOH1987 @SoManyEmotions @STILL_HOPEFUL_MAYBE @StayingPositive17 @Stan11 @TCBH @Teller @Terrell @The Voyager @Theblues @Trin1993 @Ughhhh @undertsun @Untouchable1 @UprisingMadness @vzhe @W324 @WarriorKing @WaterfallGirl @Whyyyyy @zoro
  44. 7 likes
    JHenry

    GENOCEA

    Count your blessings, I will be 68, but can't wait---better late than never!
  45. 7 likes
    Don't despair. We will be ok. Something else will come along. Stay positive and healthy. We wait together...
  46. 7 likes
    SnowAngel

    Suicide

    This hurts my heart to read this you're hopefulness was very inspiring to me and to hear you're giving up is just heartbreaking. I really do hope you reconsider. I've heard that at the moment you sat "I give up" "I'm throwing in the towel" is when things start to turn around. Why don't you stick around for awhile longer and see if things get better... Please.
  47. 7 likes
    Goran123

    Suicide

    Dear thehopeisnear, I have been in the exact position as you. There is to much going on in this field right now. Hang in there a bit longer. I do not respond to Valtrex & Co also. I have had constant OB's for 4 years, non stop. I have tried every thing, and I mean everything all holistic treatment you have ever heard of, ordered all kind of stuff on the internet, I mean I literally have spent thousands of dollars on trying everything. The only thing that gave some relief for me was Oregano oil mixed with coconut oil, but it was only a slight relief....but better than nothing. The last thing I started to try about 45 days ago was eating 30 grams of Wakame seaweed twice a day and taking Bovine Colostrum supplements. BINGO!!!! I dont have OB's anymore and my skin is healing super fast from earlier outbreaks. Give it a try.......it is very cheap.
  48. 7 likes
    Cas9

    Suicide

    I'm curious; are you male or female; and how old are you? I'm interested in your lifestyle; i.e. Your relationships, your eating habits etc,,, All of us on this forum have the same problem, so you're not alone. You started this thread because you wanted to let people know how you feel. That's good! So let's continue the conversation. I can tell you that I am a long sufferer of the disease (35 years). I'm also rather excited about the new research. What I don't do is over manage. What I mean is I don't keep checking everyday what a particular lab is doing. I know that we are a few years out, and that's OK. What happens on this site is people get excited and then depressed. Some of that is because their expectations are too high. Then when they hear something negative, they fall into a pit of despair. Keep a level head. Follow the research intellectually, not emotionally. None of the most current research has failed so far. Personally, I think the vaccines coming down the pike in the next few years will have some positive affects. But that's simply my opinion. Let's give it a chance and see what actually happens. I think there are some major improvements coming down the road over the next decade. Some may come in the next few years while others will take a little longer. There are two areas I'm personally excited about. One is the prophylactic vaccines; especially the one at Einstein College. These are new and promising developments and we all need to be patient. Hell, if anyone should be impatient, it's me. After all, I'm 63 years old. So if I can be patient, so can you. Of course for the symptoms that we who already have the virus, suffer from, gene editing is likely the solution. I've seen nothing from Excision Biotherapeutics that suggests that their progress has been stymied in any way. And even it something negative does happen, it doesn't mean it can't be worked out. Remember, it doesn't have to be a complete cure. In fact, it doesn't even have to be a total functional cure. If the virus is reduced by a moderate to high percentage, the symptoms and physical issues will be negligible. In the meantime, there are labs working on removal of the latent virus; i.e. a complete cure. There's simply too much hope and excitement to throw it all away. So please do talk to us here on HC, and also consider talking to someone professionally as Lauren401 suggests. You may find that a change in lifestyle and a healthier outlook on the virus may positively affect your physical symptoms over time. P.S. My OBs and pain are much less now compared to when I first got the virus. It took a while but it did improve.
  49. 7 likes
    That's what I am asking especially today when I am so unwell I couldn't almost come to work... Some threads look more like fighting arena then research discussion. Maybe I am so naive, but I hope science cares the most to help us, patients, than for money and fame. If I could, I would recommend: Please cooperate, we're suffering! And hurry up! Personally I'm looking forward Japanese pill (soon to come) mainly for transmission reason and then vaccines (theravax or genocea, later I hope for Einstein College vax) although not sure if they can help me as my immune system is a mess! Praying for gene editing research anywhere in the world... Otherwise thinking about some nice painless death. Sorry! But that's my last option. I don't know if this is helpful.
  50. 6 likes
    Rational Vaxxer

    THERAVAX

    Plans are still in place. Dr Bill health is a priority at this second in time.