Jump to content
Connect Anonymously for Herpes Support.

Leaderboard

  1. moialbalushi

    moialbalushi

    Member


    • Points

      116

    • Content count

      478


  2. fixme1

    fixme1

    Member


    • Points

      105

    • Content count

      819


  3. RVX Patient and Investor

    RVX Patient and Investor

    Member


    • Points

      89

    • Content count

      808


  4. Evaluate

    Evaluate

    Moderator


    • Points

      79

    • Content count

      836



Popular Content

Showing most liked content since 07/17/2017 in all areas

  1. 19 points
    RVX Patient and Investor

    My Theravax exp

    hello all, thx for clicking this link. i will attempt to give my 100% honest, as i see it, review of my experience. back when i joined this forum, i made a decision to reveal both my status as a patient, and as an investor of RVx. i did that b/c i wanted people to know where i was coming from, and be able to account for any bias in anything i may say, take my feedback with a grain of salt. i thought that disclosure was important ethically, and i'm starting with it now before i go into my account. i joined b/c i wanted people to know good things were happening, that there was something to be hopeful about. so many posts by others back then were just wildly wrong and negative about RVx, and by profiles, lets be honest: many were fake or multiple accts, who knew nothing and had no connection or actual knowledge of RVx at all. i realize my account here is strictly anecdotal, as is R.Vaxxers, Sweet7s, etc. i realize some others here have posted (their anecdotal) negative experiences to whatever degree. i have never said they aren't true, but what i have done is tried to help them. i have offered to privately contact them to verify they are vax recipients, and to ask them about their situations, their symptoms b4 and after, how many shots and did they take valtrex, what followup testing have they done like PCR swabs and so forth, and to make sure that RVx is doing everything it can for them, and helping them in any way possible. i am willing to be an "ombudsman" if u like. so far, not one profile has taken me up on my offer. i have asked Dr.Veloz, who all the trial recipients know and would have the contact info for, if she is aware of anyone contacting her with these terrible negative accounts, and she is not. ergo, i can not confirm any of these accounts as valid or credible. doesn't mean they aren't, i simply can't confirm it. ok, on to the matter at hand. i might be vague on certain things like dates and so on, b/c they aren't that germane and i still wish to remain anonymous: BACKGROUND: i got gHSV2 over 10 years ago, (and i'm male btw). the first year or two were pretty bad, but in the "typical way." fairly frequent OBs, clusters of blisters appearing here then there, etc. i only ever took generic AVs, for the first and maybe second OB. i then quit AVs, b/c i wanted my immune system to get a hold of this thing. i did not change what i ate or drink or any other habits really and i only occasionally would take lysine, pretty infrequently actually, but i do think it could help. eventually over the years my body seemed to get a hold of the HSV as many others do with time, and my OBs and freq and so on became less severe and extreme. i became very used to the cycle of events regarding an OB. some prodrome a day or two prior, an OB lasting a week or 10 days or so, what the blisters were like, size/scope/etc, the redness, the 2 weeks of scabs, healing. some episodes better than others, some not. eventually i got to where i knew a blister would get no larger, and at that point i just started popping them to kind of speed along the scabbing and healing, and expel the virus in the blister fluid from my body, since it can infect nearby skin cells, a sort of shower based auto inoculation if u like. in any given year i could have 0-6 OBs. 0 was fairly uncommon, as was 6, altho sometimes its kinda hard to tell when one OB ends vs a new one beginning. however, the basic trajectory has been a general downward trend. over the years, i started researching vax on the net. i eventually found Bill Halford (on his blog prior to the current one actually) and i really liked his POV, his willingness to go against conventional wisdom, to do a live vax when others were doing subunits, to going against the FDA. this kind of subversive approach appeals to me. i didn't think though anything would come of it. CONTACT: So i was surprised and excited to see that Bill had actually formed a company and was going to run trials. i attempted to get into them, but my symptoms, as described above, did not qualify. having said that, Bill and I hit it off and we had several enlightening video chats and we wished each other the best. we stayed in touch and i eventually caught up with him in person, around Halloween 2016, and he was gracious enough to first take blood for an ABVIC, and then give me a Theravax shot. My ABVIC later revealed i only had HSV2, which was mildly surprising to me. 2016 had been a bad year for me HSVwise, personally/stresswise, and i had several major surgeries, (none of which were related to HSV in any way). I also got the Hep A/B vax around Aug/Sept, with the third shot to come around Feb/Mar 2017. Def get this vax if you haven't already. Anyway, 2016 was a bad year for OBs. I had one after another, pretty much nonstop from early May til late Sept. This was by far my worst year since the intial few, at least 6 OBs. FIRST SHOT: So as I just mentioned, i got my first shot around Halloween in 2016. That was a happy day. I felt ok that day, but by the next day i def had what i would describe as one of those day or 2 bad head colds u get when seasons change, etc. Light fever, clammy, cold, sweaty, kinda like the flu but not as severe. That part was over in 2 days basically. My calf looked like someone hit it with a bat, and for a good 7 or 10 days hurt enough to make me practically limp. It was dark angry red and raised up, like an oval welt, maybe 2.5 inches by 5 inches roughly, and i couldn't be happier. That tingle let you know it was working! I had no OB or outward symptoms at the time of the shot. I was completely healed afaik. about a week or two later after the shot, I had what felt like a single large swelling in my lip, which I thought was going to be a cold sore. it was like a large mass (or at least it felt like that), and I was preparing for it to outwardly break even tho there was barely any visible sign of it. it didn't, and after a few days, this swelling subsided and went away. it was in my right-side top lip. right around the same time, I had a very sore kind of muscle pain where my right-side jaw connects to my head. the kind of thing that you might get when u pop your jaw out of place from a candy or meat or just overuse. it was very sore, and lasted longer. I suspect that it might, MIGHT have been an infection of the ganglia in that area, but again this is all just pure speculation. it could easily be unrelated to HSV or the shot at all. i never had an oral OB in my life. SECOND SHOT: I got this around mid December. Injected the same point. Similar reaction to the first shot, although not nearly as severe. The fact that each subsequent shot provoked less of a reaction, is evidence that the immune system had learned and was reacting stronger and better and faster than pre-vax. THIRD SHOT: I got this around the end of January 2017. I was already sick with a headcold and this didn't help, but i was happy to get it anyway. i got my third Hep A/B shot around mid Feb, and i was pretty sick after that. not sure how much of any of that was getting all these shots close to each other or being sick or how much, if at all, one impacted the other. my advice tho, would be to try not to overlap these shots with any other shots, if possible. my legs reaction was maybe half what the first shot was. the first two were injected at the same point on the calf, this one was about an inch and a half away. those two points look like lil dark spots to this day, around a centimeter in size. regardless, i had my three shots and i hadn't had ANY HSV events that i noticed or could confirm since the last OB healed sometime in Sept 2016. WANNABE: around March, i woke up one day and noticed a swelling. it was about the size of a dime, raised up but flat, like mount conner. i admit i briefly panicked, b/c this was completely different to what i was used to for years, and it was just unexpected, i didn't know something like this could happen. no blisters, and no pain though, but some pinkish redness. whatever was going on, was happening UNDER the skin, which made it kinda weird frankly. but it was there and gone within 3 days max. afterwards, i did have 3 tiny scabs, but if they were from blisters, they were blisters i couldn't see. the redness was there for about 2 weeks, but pretty mild. RVx calls incidents like this a "wannabe" and to me it was a def sign the vax had done SOMETHING, (fairly amazing actually), b/c i was otherwise used to the very familiar and routine cycle of events regarding OBs. I mentioned this recently. JULY: So i was flying high until tuesday of this week. i woke up to what was a small, yet traditional looking OB, (as opposed to a wannabe). very little pain, but around 8-10 small to tiny blisters, (maybe 2 to 3 small ones, the rest tiny). obviously, personally discouraging, but i wanted to wait and see what would happen next. as of right now today, the blisters are almost gone. (i didn't pop any). so i am healing much faster than i otherwise normally would have, and having a much smaller OB than i otherwise normally would have. there is very little redness so far as well. while i am not happy to see actual blisters again, it has been nearly a year since my last actual blister, and this is NOT unexpected. more on that in a bit. but again should this trajectory continue, it means the vax is doing something right, b/c i have years of exp with previous OBs, and they were rarely this small, and never started to heal and go away so fast before. not at this quick rate. MEANING? so thats my description of whats happened. but what does it mean? well, first of all, it means the vax is altering my immune system such to better handle my OBs, b/c otherwise i wouldn't be having things happen to me like this, in this way. RVx / Bill both told me that it was actually very common for someone to have an OB after the first or second shot, that the vax sometimes jolts things and that happens. So i was kinda unusual in having that not happen. The wannabes are also apparently fairly common post shots. Something else that has been said, is that they think people getting the shots will fall into one of these categories: 1. get 3 shots, go into remission, never need another. probably not most people imo, but some. 2. get 3 shots, eventually need one to a few boosters, go into remission, never need another. 3. get 3 shots, always need boosters, but with boosters stay in remission. 4. get 1 to infinite shots, and for whatever reason, don't go into remission. probably a small minority of people imo. i am using the term remission loosely. no shedding studies are yet done, but the idea is no OBs or pain or visible anything. remember, the point of the vax is to establish a secondary infection, that primes the immune system by constantly exposing all the HSV proteins, so that whenever the primary infection reactivates, it can be suppressed quickly. for some people, it might take more than just 3 shots to get their immune systems to that suppression level. will i need just a few more shots, or shots every 6 months or once a year? i have no idea. but i will be going to St.Kitts to get a booster, you can count on that. i am still really happy with the experience, current situation not withstanding. and remember, this isn't just about treatment, its also about prevention. the vax should it prove to be safe therapeutically, has a much better chance at being trialed as a preventative. NEURALGIA / PAIN: so prior to the shots, i never considered that i had HSV caused pain. for years i would intermittently get lower back pain, esp if i stood in one place for too long, but I attributed this to other things. after the first shot, i haven't had this happen ONCE. so i now have come to believe, that the lower back pain was HSV related. Bill told me often, that he thought the people that Theravax would help the most, were those with neuralgia. my exp seems to bolster that sentiment so far. Whats next? well for me, like I said, at least one booster. i don't plan on getting boosters unless its after an OB. i will report them here. RVx is trying to get into more markets and run more trials. Def sign up for a trial, probably a lot cheaper if u get in. Doses will be expensive via compassionate sales once Bill's last ones run out. Prices hopefully come down as more markets open, and volume increases. Who to contact? RVx is merely a supplier. to get doses, you have to get them via a Dr. i know both Dr.Veloz and Dr.Hanley. They are good people, but they are like any doctors, and expect to be paid for a consultation. You can get a consultation via Minerva Labs. afaik at the time i write this, u can only get shots on St.Kitts. Final thoughts: do NOT flame me. i have been 100% honest since i joined this forum. 100%! i am just like all of you with HSV. i invested b/c i saw how great this was for me! i believe in it! i am trying to spread hope! i want all the rest of you to feel as good as i do. if you do NOT believe in it, thats fine, and any rational person who just wants more results or papers, etc, i get it, np, completely reasonable on your part. but don't give me crap just b/c i don't agree, and don't crap on others who don't agree, and / or on RVx who is trying to do something to help others! a lot of you have no idea how many people come to RVx who are suicidal (typically with neuralgia), and just need something to keep them going. i won't go into details, but someone we know did in fact go on to kill themselves. compassionate sales even at this early point, before all results or things are known, is a better solution than death, ok? again, DON'T FLAME ME. it is not fair or right to do so. i welcome all questions, but if you must criticize anything, please do so in another thread. thanks. i will post updates and edits as warranted. -- Apologies if u already saw this, but i just wanted to link my friends to the post in case they missed it: @@lw@ys @+vibes @abcdefgh @About Blank @Ajuda @alitels @Amye @AngelicHeart @Anglique @AusHopeful @Beachguy @BeeBusy @blondiefromeastcoast @brightstar @Brokenforever @BrRJ @Burdenofpain @Chin up31 @Clearme @Condomsdon'tprotect @crisper @Cureme @doh! @Drunk_Smurf @Ehhhhhhh @Fadela @FireMountain @fixme1 @Free73 @FUFDA @Goran123 @GreatHope @Hansje @Happydude2003 @hatecoldsor @HazelQuinn @Helpus @higgs @HopeComing @hopeful Rylee @Hopeful4Cure @hurryup @Islandguernsey @January @JeffH @Jemel09 @Jen7ny91 @jessica1990 @Jesus Chuy @Joseph_Esp @Juggalo @Just want to move on. @Kayjay @kiss @Lauren401 @LillianPanos @LiveLife100 @LucyLevi @Lurker_No_More @luvurself16 @Malcolm @Marmalade71 @mcmich @Mellz @Miley @Mixed852 @moialbalushi @MoniqueLow @Never Surrender @Newtothis92 @NotGood @notjejune @optimistic2509 @PathtoMD @Peacepleez @Raj001 @Rational Vaxxer @ravana @readytostart @realscience77 @RSL888 @Sally89 @Sanguine108 @Second_chance @Seeker1960 @Shanen @ShhGirl @SillyNoob @silverdream @slotsubop @snippy43 @SnowAngel @Soconfused2 @SOH1987 @SoSurrealNow @StayingPositive17 @StayingReallyHopeful @Stbb @steel_panther @STILL_HOPEFUL_MAYBE @TCBH @thatsmycat @Theblues @throwawaynyc @Triger @Unrequited @Untouchable1 @UprisingMadness @useless @valleynovascotia @vzhe @WannaCry @West end gal @Whyyyyy @wildman @WorstPersonAlive @xptz @zzzqzzz if ur in this list below, please accept my friend req! @Because I care @Bukx @cantdoit @CokSucker @Devasher @Felina88 @Freddy Fender @fredro12 @fugazi1 @JHenry @jude @justmyluck27 @Lab11 @Mackie82 @Memba @Minerva Laboratories @new person @obiously @Overwhelmed23 @Redballoon @RVX TRIAL #1 MEMBER @SD777 @staypositivelivelife @suductive4u @Sunnyday3 @The song remains the same @ttsp @Vaccine4love @VaccineHopeful @villa12 @Wayward @Sweet7
  2. 15 points
    Piper

    Theravax now for purchase in St. Kitts

    Hello all I had a long conversation with Dr. Veloz today. We spoke for probably an hour to an hour and 1/2. she indicated that I am a very good candidate for the vaccine, I plan on going down in the next month from my first vaccination treatment. I would also like to note if you're a possible candidate for the vaccine she indicated that they also work on the weekends so flying down on a Friday morning to receive your first treatment and leaving Sunday she said is very realistic to all you people with regular jobs. I am self-employed and that is not an issue for me but I wanted to note that on this forum. My last and final question for her was why do you think I'm a good candidate for the vaccine? She indicated because I've been HSV-2 positive for over 17 years and that I really understand the virus. I'm in constant nerve pain every 7 to 10 days and people with similar symptoms as I have are very good candidates for this vaccine as the vaccine has been successful in subsiding this pain with patients. That was inspiring to hear her coming out of her mouth because my biggest complaint this virus is the constant pain, I typically only have between one and three actual lesion outbreaks per year. I plan on scheduling my first treatment in the next week. I will keep the forum completely updated with everything that has transpired, I'm looking forward to a hope functional cure, I'm really hoping this helps me.
  3. 15 points
    Chip Clark

    GENOCEA

    Let's not jump to conclusions about GEN-003 shedding. It has consistently demonstrated an impact on clinical disease (i.e. genital lesions). The only way to do this is to reduce shedding. We also know placebo cannot reduce shedding. And we know that in previous trials GEN-003 has reduced shedding (out to 24 months after dosing!), and that GEN-003 reduced shedding vs. baseline in this study too. So, what happened here -why do placebo patients report less shedding? And, how can we avoid this seemingly perplexing reduction in the placebo arm in the future? Remember that we collected viral shedding for 28-day measurement periods (before dosing, right after shot 3, 6 months after dosing and 12 months after dosing). Remember also that shedding happens intermittently. Because of these two factors, small patient N can skew the results, and note that we only had 30-32 patients provide 12 month viral shedding swabs. So we think with a larger study, placebo will not change over time while patients on GEN-003 will continue to see reduced shedding. And remember that the FDA will only approve GEN-003 (or any therapy) on clinical disease measures such as genital lesion rate reductions, our primary endpoint. Hope this helps.
  4. 10 points
    silverdream

    How I view stigma as HSV- and my relationship

    I have spoken to many on here before mostly via chat. For anyone not familiar with me, I will give my brief introduction: My BF has HSV2 and I Negative. He fully disclosed to me before we had sex. I feel that brought us closer if anything, we can talk about anything and opened up the lines of communication for an honest relationship. We have been together for over a year. Many people share the same opinion that most Doctor's that diagnose, don't know what they are talking about. I was told after a few months into my relationship when I requested blood testing that I was HSV+(Jan 2017) and to go ahead and "bareback" my boyfriend from a medical professional. I knew we were being safe, safe as we could and knew the risk, so wasn't impossible that I could have contracted. I pretty much went into acceptance and put off telling my boyfriend because I knew it was going to tear him more than I was if he passed it to me. I found this site and the chat room, met some very cool people who asked about my testing. My IMG was Positive both my IGG were negative. I have had Chicken Pox so not a huge surprise on my IMG I learned from the people at HC. With encouragement who I met virtually here, I got a second opinion and indeed I didn't formally have HSV 1 or 2. It was suggested that I retest a few months later because IMG can detect also early infection SOMETIMES, I retested IMG (because I didn't have a choice and both IGG again. All my levels were negative. (june 2017) I understand that there is a risk in dating someone with HSV2, I feel the risk is lower than dating Joe Jerk who has no idea he has a form of HSV or doesn't care that he has it and doesn't want to disclose for whatever reason. With the high percentage of people that have HSV, most not even knowing they do, I feel secure that my boyfriend disclosed, that means he is aware, he is taking care of it and he isn't like Joe Jerk. In the US, HSV testing isn't part of routine STD testing, you have to request it. The CDC doesn't recommend testing for it due to basically the hysteria it can cause. Some insurance won't even cover the cost of the test. That brings into the stigma, I have met many through here who suffer so much pain but that is not the majority. The majority of people take care and know. Their worse side effect is the stigma. I like to think or hope we are an advanced culture in larger cities in the US, but media, movies, peers still make herpes jokes that feed into the stigma that oh, you must have done something bad to get herpes. Sure, mainly HSV2 is sex related HSV1 is different sometimes but....oh sex..what a terrible thing. The people who make the jokes have sex too. Granted HSV is not something easy but it is a virus, have you ever heard someone say "what a !*@* that person is for getting chicken pox" or "OMG she got the flu what a skank" Both are viruses, HSV does not define who a person is regardless of their past, it is a virus...we can all get a virus. We are only human, having HSV doesn't make you a bad person or undateable. As I mentioned I am still HSV-. I get my risk and won't be shocked if I do indeed contract it one day. I was given the choice to take the risk like most were not. What we do is he takes daily anti virals to reduce having and OB and shedding. I take Lysine, there is nothing saying that Lysine is a help in preventing non HSV, but hell an immune booster won't kill me. We use condoms, I can send anyone a great link on Amazon to but good ones in bulk. Sure we have got lost in the heat of the moment and not used a condom, it is not a regular occurrence but we are sexual beings that are lucky enough to be in love. We don't proactively try to not use a condom, but if in a healthy long term relationship...it happens. Just don't make a habit. Since my BF has HSV2 the chance to spread it oral is slim to known. He doesn't have HSV1 so oral sex with each other is a non-issue. HSV is rarely ever even spoken about now between us, sex can be good with a condom..we can agree to disagree on that. I love this man with all my heart and soul. HSV is not going to keep from happiness nor is it letting him. We are your normal couple who can't figure out what to eat for dinner if the house is too cold or too hot. My end point is that entering into something with someone HSV- can be scary, most are so afraid of spreading. With education, communication and being proactive the chances are greatly brought down. If anyone ever feels down and out....reach out to me. I get I am not in most the peoples the same situation in regards to being HSV+. I can't understand your trek, but I can tell you how it is to support someone on the trek. All my love, Silver
  5. 9 points
    Evaluate

    Concerned about Theravax and compassionate sales.

    How is asking for more proof of safety a biased question? Sean hasn't taken the vaccine, isn't an investor or staff member of the vaccine, and doesn't seem to gain from the vaccine's failure (unless he's secretly working for Genocea ). I think when you say people can choose to take a risk, the issue with that is people don't know what risk it is they're taking. Is the risk that they're out x amount of dollars for something that did nothing (but perhaps had a nice vacation out of it) or is it that the virus might come back stronger in force than ever (more frequent and/or severe outbreaks)? Sean is right on the money when he says some people are desperate for a better treatment. What would be a pitty is that if the experimental treatment they sought to ease their symptoms turned out to do the complete opposite. Yes, people can take a risk. The difference between a blind risk and a calculated risk is stark. I don't think there is any harm in asking for more information. In fact, if more information on safety is given it might increase interest. Good on those who do their homework.
  6. 8 points
    MoniqueLow

    New treatment option

    https://www.sciencedaily.com/releases/2017/08/170815111010.htm I have just found today. I didn't have time to read it as cautiously, but looks like good news :-)
  7. 8 points
    Untouchable1

    GEN-003 is useless for shedding.

    How about we show a little respect for a man that is taking time out of his personal life to keep us informed about a potential option and they are not done yet. He could be spending time with his family or even golfing, but he pops in every now and then to let us know what's going on and how they are doing. I haven't seen any other CEO's of a company taking time out and checking in on this forum. The tables could turn at any moment, so let's not count any company out. Btw, Theravax hasn't proven that they reduce shedding either, it's a potential treatment with no concrete data. I get that it is frustrating, but you need to be patient as nothing is happening tomorrow. I am not sure why this thread was even started.
  8. 7 points
    Agustin Fernandez III

    RVX READY TO CONTINUE DR. HALFORD's LEGACY

    Hi ALL, Please excuse the long absence. As you can imagine it has been incredibly difficult to deal with the passing our our founder and my very close friend Dr William Halford. Before his death he tasked me with carrying on his vision. We have been working diligently to make that a reality. I am happy to be back and share with you the progress and answer your questions.
  9. 7 points
    MoniqueLow

    Vical

    Hi all, FYI one more vax to hope for: http://www.vical.com/investors/news-releases/News-Release-Details/2017/Vical-Reports-Second-Quarter-2017-Financial-and-Operational-Results/default.aspx Phase 2 is going on right now, patients have been vaccineted and are going to be tested and observed for 12 months. Results should be released 2nd quarter of 2018. Fingers crossed.
  10. 7 points
    Rational Vaxxer

    Theravax now for purchase in St. Kitts

    I am not a company representative. I am just a recipient of the vaccine that has changed my life.
  11. 7 points
    STILL_HOPEFUL_MAYBE

    Selected for Theravax HSV1 Trial - Would you do it?

    I think if you can afford the therapeutic vaccine, the entire process, you will be happy that you got it as opposed to not getting it. There still appear to be some people on this board who are extremely negative on the vaccine without any real proof. I think that the Vaxxer guy who is the investor too has had an open mind about things and even gave a reasonable breakdown of what might be the situation with those who get the vaccine. Only on either end of the bell curve, normal distribution, will people not get helped. I do not think that any, if only a very tiny amount, will be negatively impacted. The science does not support people getting hurt by the vaccine. I think it may more likely, although still very unlikely, that some would just not be helped. Yes, i do not pay attention to this website like some others BUT from the OUTSIDE, sort of speak, it is clear that there are indeed TROLLS on here who are just trying to stir up negativity. They cannot accept just not getting the vaccine if they do not believe in it. ON THE CONTRARY, they could be working for the COMPETITION and are trying to bring THERAVAX down because they were not astute enough to THINK OUTSIDE THE BOX in their approach to getting their product to the market. There are lots of weirdos ot there with different motivations. Certainly, those who are SO EXTREME in their thinking might be suspect of the ultimate motivation. I don't give a rat's A$$ if you get the vaccine BUT I do hope that you get better from your pai and suffering and this therapeutic vaccine might just help you. If I were selected and I could afford the process, I would most definitely get the vaccine. Good luck with your choice!
  12. 7 points
    Chip Clark

    GENOCEA

    Hey everyone. Please see a link to our press release from this morning, below. We're thrilled. Hopefully you'll be pleased with our progress as well. FYI we hope to start 2 trials later this year: a Phase 3 study of GEN-003 vs placebo (essentially a larger scale version of this just-completed Phase 2b trial) and a large study of GEN-003 + daily Valtrex vs. daily Valtrex only. For now these both will only enroll in the US. I welcome your questions. http://bit.ly/2tDdcT2
  13. 6 points
    Fighter27

    Newly diagnosed? Please read....

    Okay so I'm trying this new thing where I transform my thoughts. For the next few months I've decided to do away with social media (if I see one more usher meme with thousands of mean comments I'm going to lose it). I'm going to try to pray everyday and listen to my body. And transform my own thoughts throughout this diagnosis. Let's be real. Sitting in my house wallowing in self pity is not gonna make it go away. Granted positivity won't either however........i can't feel worthless over this anymore. We have no choice but to fight for our lives and health. Some of is are literally crying our eyes out as if the damn doctor told us we have 3 months to live. Depression gets me nowhere. I have goals and dreams too. Not only that....i hold on the fact that we are so close to eradicating this disease. Very close....im over society saying this is gross, when half the people talking either have it and they're not saying anything or they have it AND DON'T KNOW IT. Society's thoughts don't pay my bills, they have no right to judge me or you.....I'm seriously over it and you should be too. What is the statistic? 3.7billion or million people? We're not alone in this. If the person you date or about to date or have sex with, remember this if you're scared to disclose..... Number 1: your significant other shouldn't see you as a damn virus but as a person. A one of a kind person. If they don't wanna go the extra mile they ain't shit. Number 2: you can't come at them negative because if you come out all scared and negative and whatnot...you might get a negative response Number 3: if they have a problem, with YOU trying to protect THEM...you can best believe they can find someone else who may not be nice enough to disclose their condition. Or find someone who has something and doesn't know.....what are the odds of them contracting herpes without knowledge if their partner doesn't bring it up?? Pretty darn high... (hint, hint we are in this boat because of misinformation and distrust) We're just trying to prevent passing it on because WE WEREN'T THAT LUCKY. If you need to vent, come here and we'll tackle this problem together. We not be able to change the diagnosis, but we can change how we live Feel better, live well. Have faith that we can eradicate this thing. Remember Hepatitis C....was once a virus that couldn't be cured. Now it's curable. P.s. I'm thinking of getting a Google number so folks can contact me for reassurance and HSV + thinking only.
  14. 6 points
    Lookingforhelp916

    Cullen at Duke University Officially Announces Termination of Research using CRISPR for HSV

    honestly, and with all due respect, this post was worthless, and brings nothing positive to the site. telling us one more company, university, or institution gave up or lost funding is another slap in the face and takes away more hope from people who are suffering. sorry, i know your a moderator, however, i myself, and many other would rather not read that another one bites the dust. Im trying to hold onto hope, and even my rant now is also useless, but no more useless than saying we lost yet another avenue to find a cure for us suffers. FDA is a piece of sh**, and big pharma, also piece of sh**. i dont understand why this is so hard to fix, or why they neglect it like its not a big deal.. someone with H should sleep with a high ranking fda official, and see how fast they fix things then.. i bet it would be overnight
  15. 6 points
    hellohello111

    I will never be okay with this

    Sorry to hear you're going through this. Let me tell you something you may not want to hear. This affliction is all how you look at it. Yes, it's stigmatic and at times painful. But your attitude will make the difference in the end. You are not abnormal. You caught a virus that causes these symptoms. Ok. Now what? Know they are so close to ending this disease. Within a few years. Imagine having this your whole life and never receiving relief. It will be here soon in some capacity. You are no different physiologically then before. You just have an ailment now. You are like the billions of other people in the world all whom have something. Change the way you think. Throw your hands up and say the heck with it. Go get a good workout in, be productive and active, and live your life. What's the alternative? Nothing. Empower yourself to be better than this affliction. By the way, soooooo many people have this already and don't know it. Change your attitude and your perception will change. Laugh about it even. I'll try to remember to pray for you. Hang in there.
  16. 6 points
    SillyNoob

    minerva Laboratory

    I'll keep you guys updated on the experience and on any progress made towards lessening/eliminating symptoms
  17. 6 points
    fixme1

    minerva Laboratory

    lifes sketchy, just ring the numbers and find out for yourself. halford wasnt some scumbag scammer, he set up rvx to help people not take money.
  18. 6 points
    Minerva Laboratories

    minerva Laboratory

    We are sorry to hear that some people are having issues trying to contact us, we have checked our lines and they are working perfectly. Our working time is 9 am- 6pm, Eastern Time. Please contact us if you want more information about the consultations with Dr. Veloz. Out telephones are: 1-917-546-0973 1-844-726-5408 Or you can also contact us via e-mail: info@minervalaboratories.com Thanks.
  19. 5 points
    tayelle

    New treatment option

    https://www.sciencedaily.com/releases/2017/08/170815124949.htm I found this to be a better read. We just need something to eliminate obs AND transmission, dear god.
  20. 5 points
    Westendgal

    I miss OFMDH...

    Hoping he's working on a cure!
  21. 5 points
    Agustin Fernandez III

    RVX READY TO CONTINUE DR. HALFORD's LEGACY

    I understand. I would love to speak to these individuals making these claims... not on some anonymous account. they can call me. Everyone in the trial has my private personal number. Nobody GOT WORSE. a couple of patients report that they did NOT get better. If you had HSV symptoms before the trial and you had HSV symptoms after the trial that really sucks... but it does not mean you got worse, no data shows anyone getting worse. I wish those patients could have been part of the 85 percent that got relief... I am sure boosters would help them. Remember the trial was a safety trial... and safety was proven 100 percent. Also, those people who didn't do so well... had hsv1, and they got an hsv2 vaccine... it makes sense they would need therapy with our hsv1 candidate. Which strain and what dosing each individual patient may need for their individual condition was not measured in the trial. It was miraculous to see so much therapeutic efficacy in a safety trial. As we move forward with Phase II we will answer all of those questions.
  22. 5 points
    SillyNoob

    minerva Laboratory

    Not yet, waiting on Minerva to contact me about scheduling and pricing. As long as the pricing is affordable, I'll make the trip. If the pricing is astronomically high (in the 10's of thousands of dollars) then I'm going to have to back off until I can raise that amount. I'll update as soon as they send me pricing and dates.
  23. 5 points
    Agustin Fernandez III

    RVX READY TO CONTINUE DR. HALFORD's LEGACY

    BE BLIND TO THE HATERS, DEAF TO THE NEGATIVITY. MISS ME WITH ALL OF THAT. WE HAVE REAL WORK TO DO! PEOPLE ARE BETTER BECAUSE OF DR. WILLIAM HALFORD'S WORK... WE ARE PUSHING FORWARD.
  24. 5 points
    Rational Vaxxer

    What happened to all the theravax talk?

    Hi @Lookingforhelp916 Let me start off by saying thank you for following but the reason for my absence is because of all the nonsense that has been going on in here and in public forums for the past couple of months. The accusations and insults are tiring. Plus it is very frustrating when some people claim to be in the trial but there's no way to prove it and they complain about adverse effects, when in fact, having herpes is not an adverse effect, it is just herpes. That's If the stories are true. Regardless of my silence, RVx and so many people are very working and trying to make things happen, they are just simply too busy to deal with ranting on social media. Perhaps Innoway it was my fault for coming on here and telling everyone my story but I had to do it because I thought it was important for people to know and have some hope. I guess some will see that differently. So be it For the most part, I've been volunteering my time speaking with people who are distraught, suicidal or just want someone to verify it's true and real. I'm strictly an advocate for the vaccine because the science proves its solid and it works. I am not a paid spokesman for rational vaccines and they have never paid me...ever. So it is very difficult to have a full-time job and volunteer at the same time, so I have not been on honeycomb in quite a while. I will continue to give updates on Facebook and Twitter, So if you need me I will be on there. My apologies but I just do not need the negativity anymore. It seems the conversations and arguments on here ( people with multiple accounts ) actually go nowhere but real conversations with real people do. I have been ostracized and called enough names over the past 8 months to realize what's important and what is not. I hope that answers your question... https://m.facebook.com/MakeHerpesGoAway/
  25. 5 points
    silverdream

    Life with HSV2 partner. I'm negative

    To speak off my title it is no different than any relationship. Normally I chat with others, chat is down and I wanted to open this up to anyone with questions. I chat with so many people that tell me that they fear dating, disclosing and giving HSV to someone else. I don't know where to begin, I lay here unable to sleep with this wonderful man next to me sleeping so peaceful and I am so thankful for him and the love he gives me. I wondered through the kitchen checked the fridge to make sure our leftover dinner was sealed proper so he will have a good lunch tomorrow at work. I noticed he changed the strings on my guitar while I was in the shower, this may seem trivial to some but it is what people who care for each other do, He has HSV2 and I am negative, we are no different than any other couple in love. Love is possible after you get diagnosed with HSV, sure it may decrease your dating pool, decrease it to people who don't want to do the little things for you to show they care and accept you for who you are no matter what. HSV does not define you, it does not make you low class, unworthy, gross or off the dating market. I understand people all date different and I don't judge or look down on anyone looking for something casual, everything I said applies to you too. Sh*t happens to us all. How could I let this wonderful person not be apart of my life because he has a skin disorder? No way, I deserve this happiness as does he. He did disclose to me before we had sex, that is a question I get a lot. I got a blood test for HSV after we had protected sex as well as other STDs because who knows where I have been. I am in no way above him because I am negative. My IGGs were both were negative. I did test positive on IGM which is how I found this community, a OBGYN told me I was positive for HSV due to IGM which I learned was because I had chicken pox in the past The people I met here encouraged me to get a second opinion. I still test negative for IGG. I have learned so much about HSV and feel have become an advocate even though negative. Please anyone who feels down about this and thinks that love is not possible, I hope just my short bit helps you to know that there are people who are negative that will love you, look beyond the stigma, take an interest into wanting to know more because they care about YOU!
  26. 5 points
    Mackie82

    Vitaherpavac- Russian Vaccine?

    Hey guys, if anyone is still following this thread I have already started my vitaherpavac shots and today I am getting the second shot. Thanks
  27. 5 points
    astro

    Theravax Vaccine price

    http://www.sj-r.com/news/20170703/herpes-vaccine-trials-to-continue-after-siu-med-school-scientists-death
  28. 5 points
    astro

    Theravax Vaccine price

    RVX's primary mission is to run clinical trials and verify the efficacy and safety of Profavax, the preventative live attenuated vaccine which resulted from Bill's lab research over the course of many years. Those trials will begin in 2018 in Austrailia, which holds trial data reciprocity with the US and therefore much of the world. A globally accepted preventative vaccine is a lot bigger of a deal in terms of big picture impact for the entire population and for the company than Theravax. The purpose of compassionate sales is not a money grab, given that Profavax stands to generate 1000x what Theravax sales from St. Kitts will ever make. The purpose is to provide an option to those who need it most desperately. Everyone here has the right to wait for further information to better gauge a decision. From what I've read and heard, OB frequency decreases in singularly positive patients (HSV-1 + or HSV-2 +, not both) to a significant degree more so than those who are both HSV-1 and HSV-2 positive. ABVIC diagnostics will likely be important down the line to further clarify where patients stand and what treatments could work best for them. I'm also getting the impression from patient anecdotes that OB frequency is best suppressed following the 2nd/3rd shots, with the need for further boosters to maintain the reduced frequency of OBs. The reality is that the relatively isolated location of administration (St. Kitts) is a much more limiting factor than the potential need for boosters. Availability in the US (or other heavily populated areas) would completely change the pricing (its high due to low volume to cover initial overhead costs). A side note: the variability in pricing is likely attributed to booster shots past the initial 3 shots.
  29. 5 points
    Ehhhhhhh

    Theravax Vaccine price

    What happened to $2500? If results were published and we were guaranteed a functional cure then spending that kind of money wouldn't be a problem. I'm a little hesitant to pay $5000 plus travel expenses to basically participate in a trial which some participants may or may not have experienced adverse reactions. I want this to succeed just as much as anyone. Just a little worried..
  30. 5 points
    SillyNoob

    minerva Laboratory

    I spoke to Dr. Veloz, she was very understanding and knowledgable regarding the vaccine. After discussing my symptoms, she said I was eligible for the vaccine and that Minerva Labs will give me further instructions on pricing & scheduling & how to purchase, etc... I'll update after discussing with Minerva Labs regarding pricing & anything else I find relevant.
  31. 5 points
    SillyNoob

    minerva Laboratory

    I haven't spoken to Dr. Veloz yet, my scheduled consultation is coming up real soon, so don't know what to say, at the end of the day, it's up to her. But if she decides to help me, then yes I have already decided that I will do everything I can (on my end) to end the neuralgia. Part of this problem with having H+ is that it puts your love life on hold, can't date, can't get intimate, can't marry. I don't want to continue waking up to a constantly aching groin and no prospect of a normal future. Who knows? With more publicity, all the celebrities/wealthy/elites of the world will want to fly down to the Caribbean and take the vaccine, that will make it alot harder for the average joe to afford and/or be scheduled to receive the vax. I think it's best to take advantage of it here and now.
  32. 5 points
    SillyNoob

    minerva Laboratory

    They cost of the consultation is $100 + dollars, Dr.'s don't work for free, especially those providing leading edge vaccine tech. The cost of the vaccine according to others on this board is $2500, and the round trip flights to St.Kitts from US/Canada start at around $1000, considering 3 trips for the entire series of vaccinations, total cost for vaccination is somewhere above $5500 without adding in cost of hotel/food/transportation. Please don't bitch about this being shady, if it's not worth the expense to you, move along. There are plenty of people on the border of suicide due to neuralgia that need and are willing to pay top dollar for medicine that works
  33. 5 points
    Chip Clark

    GENOCEA

    We do plan to enroll people whose genital herpes is caused by HSV-1 in the Phase 3 trial. Like all trial participants, such people need to have a confirmed diagnosis, a documented history of 3 or more outbreaks in a year, and at least 1 outbreak in the past 6 months.
  34. 5 points
    fixme1

    GEN-003 is useless for shedding.

    I fully respect @Chip Clark , he actually gives a shit about us. thanks chip
  35. 5 points
    Theblues

    Selected for Theravax HSV1 Trial - Would you do it?

    The way I see it RVX isn't holding a gun to anyone's head, they are just extending a caring hand to those whose lives are very badly affected by this virus. I can understand the reticence of those who still manage to function on a day to day level but for some of us, this virus has been extremely cruel to the point of giving up. We each have to evaluate our own situations and make our decisions accordingly but let's not fall into the trap of judging others until we've walked a mile in their shoes.
  36. 5 points
    moialbalushi

    GEN-003 is useless for shedding.

    In addition to that, it is not only about the shedding. The issue also is about the recurrences. What @Chip Clark said in his last post is logical. Go and check it.
  37. 5 points
    RVX Patient and Investor

    Concerned about Theravax and compassionate sales.

    for the record i fully support crispr, i just think it has a really long way to go, but i also hope i'm wrong on that point. the FDA is the road to hell, and by that, i mean its paved with good intentions. its everything thats wrong with gov't. consider that the agency gets 75% of its funding from the industry its supposed to regulate, and what more do you need to know? having said all this, i will be making a new thread tomorrow, detailing my vax exp, and i think even Sean might be surprised at what i have to say. i said i would be 100% honest when i joined HC, and that i would post a detailed accounting of my experience once c.sales started. i will do so tomorrow. there are many reasons to wait. if i had wanted the trial results, yes, i would have waited. if costs had been an issue for me, yes, i would have waited, etc. they are all good reasons to wait. there's little doubt that more information needs to known, and prices need to come down, and more markets need to be opened. all true, all valid criticisms. but having said all that, i applaud RVx for having the courage to make something available, right now, TODAY. keep in mind that keeping a vax, any vax, in a lab for years and years on end is also a choice, but one YOU, the patient, don't get to make. and that choice means that millions more get infected, and / or suffer, in some cases unbearably. RVx made a choice. its fine to say, 'i'm not ready yet,' there's good solid arguments for that POV. but for those who are ready, like myself, why bash them, or RVx for making it available? why?? i will never understand that.
  38. 5 points
    Voyager2

    So many vaccines

    If they could just speed things up. The Albert Einstein vaccine, the tri-valent vaccine, and the CRISPR (potential) cure all sound so promising. My fear is that when it becomes available I'll be in a nursing home.
  39. 5 points
    Whyyyyy

    So many vaccines

    I'm tired of it as well. I'm struggling to cope with this honestly. And the thought of never having a functional or real cure has me so depressed.
  40. 5 points
    eitak90

    Let's talk about a way to cure ourselves

    My doctor told me I had HSV II and said it's treatable, not curable. He told me that pregnancy will be tricky, and sent me on my way. Gave me zero information on what triggers outbreaks, prodrome, medication, vitamins, nothing. Everything I've learned, has been from my own research and from this website. It's not right, we should be given more. If they can fix shingles and chicken pox, why can't they fix us?
  41. 4 points
    Forest

    RVX READY TO CONTINUE DR. HALFORD's LEGACY

    Hi Agustin - Welcome back ... Our condolences and all the very best.. Congratulations also for the major milestones with the Thiel investment and the additional work your team is doing. I have a request - could you please ensure that Dr Halford's blog remain vibrant and that Dr Gershberg receives all the gratitude and appreciation from the entire community ... Dr Gershberg, has been brilliant in his responses on Halford's blog. However, it seems that some haters and some negativity may have pushed him to the brink of stopping to contribute to the Halford blog. Could you please, express to him our great appreciation and strong support and ensure that Dr Halford's blog is not closed. May I quote you and state that Dr Gershberg may need to BE BLIND TO THE HATERS, DEAF TO THE NEGATIVITY and continue to engage in Halford's blog which is an awesome tribute to Dr Halford's legacy of unparalleled engagement with all of us. This Halford blog is an innovation in itself. No other scientist in this industry has provided this level of engagement and transparency with the community. Agustin, please ensure that Dr Halford's blog remain vibrant. Below is a set of messages from Dr Halford Blog that will provide you with additional context. Herpes Vaccine Research August 1, 2017 at 2:54 pm Reply You know what, I think you are right, it was a wrong idea for me to try to continue this blog. It was Bill’s blog and perhaps it should have been closed when Bill passed… My bad… Juan August 3, 2017 at 9:03 am Dr. Gershberg, Please understand that not everyone in this blog may appreciate the 20 plus years of Professor Halford dedication to get where we are now in finding this herpes cure… I did start following professor Halford for more than 10 years.. and seen people from all different paths… some were rude, others were ignorants and others just without knowledge of sacrifice and challenges.. PLEAE DONT CLOSE THIS BLOG, this probably the avenue for millions to get the best info, to get the vaccine when the time comes…. this blog is the light at the end of the Tunnel and the hope of many of us..please ignore those whom don’t know what it takes to maintain us informed… thank you for the time to answer our questions and to keep Dr Halford Legacy..: don’t give up. Even in the hardest moments of his life and at the pretty end… Dr Halford always dedicated time to answer or provide info in this Blog!!!! Thank you, thank you Like Invisible August 1, 2017 at 6:30 pm Hi Ed, Please dont stop posting. The rest of us need this blog, you are doing a good job! I was wondering if theravax is recomended for asymptomatic carriers or people with very little symptons.Thanks for your time ! Like Starboy August 1, 2017 at 9:16 pm Mr. Gershberg, I think I speak for the vast majority of readers when I say we are extremely thankful that you have continued Dr. Halford’s blog. Any information that you provide to us is appreciated. I am sure that you are spending your free time on this blog to help provide people with information and to continue Dr. Halford’s legacy. Please continue to post on here, whatever information you can provide. Other readers should be aware that you may not have perfect information on all aspects of the development and distribution of the vaccine and they should also be thankful for any information you provide voluntarily and on your own free time. So I thank you sir for your continuing contribution and I hope you continue to contribute. It means a lot.
  42. 4 points
    Sean123

    Synergy Pharmaceuticals (cure4herpes) scam

    Oh put a sock in it you scammer. You know damn well this doesnt work. This is a fucking crime. You should be ashamed of yourself I dont know how you sleep at night. You are no different than the criminals locked up. Stop fucking scamming people or I will hack your website and shut it down by force. You peice of shit - taking advantage of desperate people who are begging for help.
  43. 4 points
    Clearme

    Synergy Pharmaceuticals (cure4herpes) scam

    What testing do you utilize to prove eradication of the virus? No asymptomatic anecdotal proclamations please!
  44. 4 points
    nogoodnameforzack

    Long time herpster, first time poster!

    Hi everyone. Had my first outbreak and got diagnosed in 2009 (ish) while I was married. My wife took the news well and it was barely a blip on the screen of life so I never really looked for any support. Never took meds, changed diet or did anything other than to consciously mind and release stress in my life. A year after my my divorce I joined an STI dating site (2014) and started seeing a woman who was also positive. I find myself single after she broke up with me - and not looking to get into another relationship. I have found myself lonely at times as I seek to genuinely enjoy my own company - so here I am! Looking for fellowship and the opportunity to support and elevate my Herpsters. Thanks for reading!!
  45. 4 points
    Goran123

    Theravax Vaccine price

    You guys arguing here are the worst lot. The simple thing is this: Can I get Theravax or not? Yes you can. But for now you got to pay and be a guinea pig , because people involved need's to get paid, they have families to take care of. They are not supported by any government. If you have the funds and desire to get the vaccine, go get it! If not, you have to wait. Simple as that. If you still want to post a negative angled post about Theravax...I suggest you move on....life goes on. There are many other candidates for HSV treatment you can cheer on.
  46. 4 points
    Sean123

    Theravax Vaccine price

    Its completely crazy. Not only are you risking your health youre risking thousands of dollars. You are really paying thousands to be in a Phase 1 trial because the results have not been published yet. You're going in blindfolded. Call me a pessimist all you want, but all I am asking for are damn results. Until then, I will continue being the pessimist. Our mistake we cant change brought us here, dont make another huge mistake. No results, no trip - be smart. Dont base your decisions off a few anecdotes.
  47. 4 points
    SillyNoob

    minerva Laboratory

    I have one scheduled soon, I'll keep you guys posted on developments.
  48. 4 points
    fixme1

    Selected for Theravax HSV1 Trial - Would you do it?

    We all hope for a fix to this, the world needs it. a fair few companys are fighting to help hsv but medical boards wont help enough hopefully rvx can perfect it and help everyone . I just wanna see all the pain shown on here go away for everyone.
  49. 4 points
    Minerva Laboratories

    minerva Laboratory

    We´re working on it, as soon as we have it available we´ll let you know. Please write or call us so we can give you more information. Thanks, Minerva Laboratories
  50. 4 points
    JJ2017

    First HPV CRISPR trial attempt inside the human body

    according to this article todays marks the 1st crispr trial in the human body, lets pray this goes well as success and learnings here could lead to a complete cure for HSV not to mention any other STI.
×