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  1. Ribbon35

    Herpes in a pill to heal?

    Has anyone ever heard of capturing the secretions of your herpes breakout in tiny medical jar so that the virus can be collected and put into pills so that you can take them on the daily as a way to prevent recurring outbreaks? I had a naturopath suggest this option to me as a way to decrease outbreaks. He even gave me the jar to capture and bring back to him whenever I have my next outbreak. Something about reintroducing your own herpes virus into your body helps build your immune system? Anyway someone there testified to it working for them for the past 6 months so I'm actually considering it. What do you guys think?
  2. https://www.archyworldys.com/in-russia-developed-a-dna-vaccine-for-herpes/
  3. https://www.change.org/p/give-rational-vaccines-a-moment-to-speak-to-congress-about-the-burden-of-herpetic-disease?recruiter=659087102&utm_source=share_petition&utm_medium=twitter&utm_campaign=share_petition
  4. https://www.change.org/p/give-rational-vaccines-a-moment-to-speak-to-congress-about-the-burden-of-herpetic-disease?recruiter=659087102&utm_source=share_petition&utm_medium=twitter&utm_campaign=share_petition
  5. Piyush

    Hope

    Who else have had a hope that our scientist ll bring the cure within 7-10 yrs from now..!!!!
  6. The cold stark reality, I hate to say, is there will likely never be a full “cure” in our life times or beyond for sure. It impossible to remove from the body, it is in your nerve cross scattered about. you can’t fix a shattered glass. The best infected people can ever hope for is a treatment that fully stops viral activity and replication in an already infected body. A preventative vaccine for all 8 herpes viruses may come about in the next 50 years and then the global populace will, for the most part, be free of herpes and no hell for people (too bad that wasn’t already a reality). in the mean time I believe education the public about herpes is key, just like AIDS. It just doesn’t get the attention it should do people have no clue. Just reading the forums online about how much suffering it causes should be enough to show people need to get educated. People are generally clueless until they get infected. Also, the fact that it is not on the standard STI panel is a disgrace. Most doctors do not seem fully educated about herpes.
  7. This is why we can't have nice things/cures, because of greed read this: https://www.cnbc.com/2018/04/11/goldman-asks-is-curing-patients-a-sustainable-business-model.html
  8. Hello all! I often times feel bipolar regarding herpes. One day I'm highly optimistic and the next I am ready to have a King Kong moment and destroy everything (figuratively) of course. Today, I was thinking and daydreaming. I could imagine everyone in their homes waiting for the a press conference about the hsv cure. OMG! We would all cheer as if our favorite football team won the Super Bowl. News channel after news channel reporting the breakthrough. Happy tears and chocolate cake!!! Maybe we are not that far off from this breakthrough. At least, that is my hope. For those of us who are in our 30's, it is my hope that we are still in our 30's when we receive the news. Start saving now....I'm sure the insurance companies will not fund it. Well, Trump is president...I guess anything is possible. Here's to our 5 year wait....may it bring Crispr or whatever cure! Cheers!
  9. How close are we to get atleast potential cure?! I know this question has been asked multiple times but still curious mind would love to hear from you all.
  10. Hey everyone I just wanted to know your views on whether the complacency of the herpes community and its inability to mobilize is part of the reason why we have slowed progress on the cure front? Has the “skin disease” moniker actually lulled us into complacency and prevented us from asking for better drugs? or did the science just never catch up?
  11. Piyush

    Fed up..!!!

    can anyone explain me, what is stopping our scientist to find a cure soon...!!!
  12. If you haven't seen the video yet, check it out. Let me preface this by saying this team of bio-hackers leaves MUCH to be desired in terms of presentation. But, who cares about presentation if they get the science right? Or, maybe they get the science wrong, but in their efforts they discover something that leads to an eventual vaccine or cure? The FDA in it's efforts to protect the population slows all efforts to a crawl. Any vaccine or cure would be more than a decade away realistically when you consider the cumbersome and EXPENSIVE process of taking clinical trials through Phase III. Let's face the reality of the situation: Very few people that could use their knowledge to find a cure for herpes care about finding a cure for herpes. Very few companies are doing real research about curing herpes. Of the companies doing research we don't have access to their progress, funding, findings, or anything else. My body, my choice. The CEO of this company has taken matters into his own hands. He believes in his research enough to put himself at risk. For that, he is a hero and a pioneer, regardless of the outcome. He has chosen to take the risk with his body, and that's his choice. In the name of science and progress, he has put himself at risk. We are stuck in an endless cycle of no money, no research. No research, no money. Nobody cares about Herpes because it's not life-threatening. People live their whole lives and die with this virus and see nothing change. So it's abundantly clear we should appreciate anything we can get. And this company and companies like this are precisely our best option to find a cure or vaccine quickly. We need people to go rogue and try to solve this problem because doing so within the system is a recipe for failure. Here in this video you see there is a panel of fairly knowledgeable researchers, who have access to a laboratory, and an understanding of the virus and it's potential vulnerabilities. Beyond that, they are willing to "put their money where their mouth is" and do this in front of a live audience. They have access to their own lab where they can run labs and PCRs before and after. We actually get to see a company being transparent and taking some risks. We get to see the test results and data. PCR swabs, blood tests, etc. If more companies did this, more cures would be found a higher rate. How many millions of diseases have mice been cured of? Ultimately it doesn't matter if it doesn't work in humans. If a researcher is willing to put his own life on the line because he believes in what he's trying do, I whole-heartedly support the cause. And if you want a cure in your lifetime, you should too. We can only hope there are more people like him.
  13. ManagingIllness

    Reality of New Vaccines

    I want this to be a real, straight up, informative dialogue about the timeline of new vaccine's and what their impact will be on the lives of those with HSV. I will try my best to impart my knowledge of the process and the current state of affairs. Please correct me where I am wrong, and present further developments. I want people who are newly infected to read this forum and get a thorough understanding of the state of upcoming therapies for HSV, specifically therapeutic vaccines. Firstly, please read this page in full: https://en.wikipedia.org/wiki/Herpes_simplex_research. It covers all the current developments in an easy to understand way. If you're interested in this topic, it's a MUST READ. Secondly, if you found this useful/informative, please up-vote, share in other discussions, and reply! Clinical study terminology and timelines Animal studies: Can this therapy provide some benefit to animals while not being toxic to them? Spend several years conducting these studies just to get the interest of academic comities that provide grants, and big pharma. If successful, proceed. Phase I studies: The therapy proved well-tolerated in animals and provided some notable benefit. Let's test if ~20 people can safely tolerate this therapy, and document any results, with a specific focus on adverse side-effects as opposed to medical benefit. Phase IIa studies: The phase 1 study implied that the vaccine is well-tolerated in humans and provides some notable – and profitable - benefit. Let's get a pool of ~100 to ~200 people, give some of them fake injections (placebos) and others various amounts of the injection. Goal: reaffirm that the vaccine is safe, and try to find an optimal dosing for further studies. Spend over a year conducting the study and a year collecting results after. Phase IIb studies: We have invested years and millions into studies already. Let’s take ~300 to ~600 people and inject them with the two most promising injection routines from Phase IIa. Goal: reaffirm safety (once again!), and find the optimal dosing routine to take into Phase III trials. Goal: get investors super excited about the results of our optimal dosing strategy in order to secure funds for the upcoming, massive phase III trials. Spend over a year conducting the study and a year collecting results after. Phase III: Conduct a massive, multi-city, and sometimes multi-continental, study involving > 1000 participants. Test on different population groups (e.g. different ethnicity) to ensure the therapy is effective in the widest range or recipients. Spend over a year conducting the study and a year collecting results after. Final phase: Request acceptance from regulatory body (e.g. FDA) Timeline from animal studies to your doctor’s office: over 10 years! Basic mechanisms of action All therapeutic vaccines currently in the work simply bolster your immune system. That’s it. They attempt to continually present foreign viral markers – known as antigens – to your body. The desired result is immune system stimulation such that your body is constantly prioritizing those antigens for production of cells that can target, kill, and deactivate other cells presenting those antigens. The analogy would be like providing night vision to your immune system. The effect is that it will never lose track of the HSV virus, and will squelch it during any replication, before symptoms can develop. None of these will “cure” HSV, as the virus a) remains undetectable to the immune system while latent, and b) never uniformly comes out of latency all at the same time. The current state of affairs We are unlikely to see any new therapies for HSV within the next few years. The soonest is likely ~2021. It's likely that the newest therapy will be a vaccine that will cut the rates of outbreaks by about 80%, and shedding (your ability to pass on the virus even without symptoms) by 50-60%. There are two vaccines that promise to do this, so even if one is discontinued, we'll likely have 1 proceed to production: Genocea's GEN-003 & Admedus' HSV 2 vaccine. Both of these vaccines recently finished Phase II studies. GEN-003 is currently done Phase IIb studies, and is preparing for commencement of Phase III. Overall these are great developments, and we’re much farther along than we were 10 year sago. Theravax Although I am a huge fan of using live-attenuated viruses, the current uninformed & ignorant political/cultural view about the dangers of live vaccines is a huge impediment to any live-attenuated virus vaccine. Two very real incidences in the USA caused great concern over the safety of live vaccines. Follow this link and read "2. Historical Events" for details: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4599698/ Today’s live-attenuated vaccines are genetically & intelligently modified through modern advances in biotechnology (you know, the kind of advances you’d expect to have been made between the 1950s-1970s and 2017). Computers & the internet are pretty nifty technological advances for instance. Gene editing technology is also a pretty dope advancement, as is the ability to sequence genomes. Yet, despite the tremendous aforementioned leaps in scientific knowledge, live-attenuated vaccines are still seen as sub-optimal therapies – and perhaps more importantly as sub-optimal monetary investments. (Interestingly, they have been deployed successfully and safely for the chicken pox and shingles, which are within the herpes family of viruses.) What does this all mean? It means that live-attenuated viruses have a good chance of providing an effective therapy for HSV suffers, (some event talk of a “functional cure”) but there has been very little progress, as no HSV live-attenuated vaccine is advanced passed Phase I trials at present. Your doctor won’t have one of these on hand for at least 5 years. Unfortunately, when it comes to public deployment of live-attenuated viruses, think ~2025, if at all. What this means for you - for us You can Google “herpes vaccine” everyday the next few years, and all you’ll learn about is incremental progress on the aforementioned therapies. Checking in every 3 months is sound, but more frequently than that will do you no good. This process is slow, thorny, and unwieldly. Be excited when Phase III studies commence, and follow them when they conclude. Just know that we are years away from a notable advancement that will be available at your local doctor’s office with partial coverage from your health insurance (e.g., Gardasil) Optimistic, unproven aside No matter the efficacy of therapeutic vaccines, if they are approved by regulators it will be because they are first-and-foremost safe. I imagine that they can then be used off-label by discordant couples. In other words, HSV-negative partners can take the vaccine to possible reduce their risk, so if both partners take it, it's absolutely possible that the risk of spreading the virus will be further lowered. Please understand that there is no evidence for this last possibility. However, from my understanding of how these vaccines work - invoking the immune system to have a response to HSV for at least 2 years - I think it to be highly likely that off-label use will be, well, useful. At it's worse, such use of the therapeutic vaccine's will limit the severity and extensiveness of a partner's initial outbreak.
  14. We all know and have followed the downward spiral of RVX over the past year or so, and now they are nowhere to be seen or heard. Thiel seems like a very smart guy and I'm guessing he wouldn't have parted with a few million very easily. Do we think he is just cutting his losses, or staying quiet while they actually work on something? If he really invested $5 million I would have to think he's doing his damnedest to get it back.
  15. Looks like new STEM CELL Research is paving ways to cure all viruses, I know this is a long ways off and if it is used on humans it will be used on people with the most severe disease. As most of you should know, there will be no cure for herpes in more than 20 years, even if they found the cure today as otehr more serious diseases take priority and the drug and/or procedure must be safe, therefore it is tested on very sick people. and herpes is very low on the list. Check out this reading below: https://www.thedailybeast.com/this-doctors-revolutionary-stem-cell-treatments-could-eradicate-hiv
  16. Hey, Does anyone have any additional information about Vical's VCL-HB01 HSV-2 Therapeutic Vaccine? I haven't seen that much about it on here, but highly possible I just missed it. They are in Phase 2 trials, which seems to be further along than anyone else searching for a cure. Is this a cure? or does it just reduce outbreaks? Here is a link to their Q3 press release: https://globenewswire.com/news-release/2017/10/23/1151411/0/en/Vical-Reports-Third-Quarter-2017-Financial-and-Operational-Results.html Would love some good news!
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  18. Hey i have been using something for a while now and I'm convinced it works. I don't want to be greedy so I'll share my recipe and I'd be interested to know how u get on. Can be used as a daily ointment on the area effected or 3 x a day when u sense an outbreak coming on applied with cotton wool. 25 ml fractioned coconut oil 25 ml virgin olive oil 12 drops Tea Tree oil 20 drops origano oil 8 drops propolis liquid Mix well before use and if any irritation increase olive/coconut oils Good luck I also want to keep u up to date with my progress. I use the above to treat/stop an outbreak and have recently started the following to work on ridding myself of the virus altogether. Morning and evening 5 drops of an oregano oil mixed with unrefined olive oil under the tongue. Mix 8-10 drops of oregano oil to every ounce of olive oil. Shake well before use. I will rub 4 drops of oregano oil mixed with pure coconut oil at the base of my spine. Only recently added dmso to this. Well it's been 3 weeks so far and no hint of an ob. Ill keep u posted
  19. What do think will end up being a workable cure for those already infected with HSV-1 and HSV-2? 1. CRISPR/Cas9 2. CRISPR method discovered by Salk team with no cutting. Thus would likely put the HSV virus into a permanent latent state. 3. HCV virus peptide. This may be Abe to remove the virus without harming the cell (?). 4. One of the few vaccines in the works. 5. Vaccine from HHMI using a mutant HSV virus with gD deleted. No news for 2 years but apparently they are working on it. What’s going on? 5. Forcing the virus to stay awake and detectable by the immune system so it can fight it off. 6. Forcing it stay latent so it cannot shed/replicate. 7. Some as of yet unknown entity working on a cure.
  20. For all the vaccine, CRISPR and other work we know is being done for HSV1/2 do you believe there is likely also just as much work being done off the radar that the general public is it not even aware of?
  21. How many years away do you imagine a workable therapeutic cure will be?
  22. https://www.wired.com/story/crispr-therapeutics-plans-its-first-clinical-trial-for-genetic-disease/amp Not for HSV, but it shows the competition between companies to use CRISPR for curing diseases. “I think it’s a momentous occasion for us, but also for the field in general,” says Kulkarni. “Just three years ago we were talking about Crispr-based treatments as sci-fi fantasy, but here we are.” - Sam Kulkarni (CEO of CRISPR Therapeutics) “It's true that Crispr has a bit of an “off-target” problem, though the extent of that problem is still up for debate.” Just on Monday, a new study published in the Proceedings of the National Academy of Sciencessuggested that genetic variation between patients may affect the efficacy and safety of Crispr-based treatments enough to warrant custom treatments. All of that means Crispr companies will have to work that much harder to prove to regulators that their treatments are safe enough to put in real people—and to prove to patients that participating in trials is worth the risk. Kulkarni says they looked at 6,000 sites in the genome and saw zero off-target effects.
  23. There are so many wealthy people in the world afflicted by herpes 1 and/or 2. Celebrities and rich and powerful people suffer from these diseases the same as the rest of us. If there was concerted effort and money applied to it this could certainly be solved in the nearer term but alas there is no such movement or focus. This needs to change.
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