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  1. Learningtolivewithhsv

    Advice for GHSV-1

    So I made it to month four without a visible sign of an outbreak. I had a really bad outbreak in the ending of April and was diagnosed with GHSV1. My initial outbreak took about a month to heal and left scars (a lighter pigmentation from my overall complexion on my genitals). Sadly I have been ridiculously paranoid to the point I have taken two 7 day treatments of Valtrex. More than likely it was probably just yeast infections (I get them way more than I should, even before getting hsv). I also take lysine twice a day and three times a day when I feel like an outbreak is coming on. I’ve been applying tea tree to my genitals everyday since getting diagnosed to dry out any potential outbreaks that are present that I possibly mistake for an ingrown hair. When does the worrying stop? How often have anyone on this forum with GHSV1 get outbreaks? What’s are some good tips and tricks?
  2. Hi, As expressed in the title, I am Dr. Todd Rider and I invented promising broad spectrum antiviral candidates that I have called DRACOs. I look forward to meeting you all here and hope my presence is helpful. I am here to answer any questions you may have for me --- Ask Me Anything you like. Please post your questions here and I will be online to respond during the following days and times. Oct 29th, 6-8 pm ETNov 1st, 1-3 pm ETI will also join the live chat during these times. Thank you, Todd Proof I am Who I Say I Am: http://imgur.com/PhF99cj Journal of PLOS ONE Scientific Results: http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0022572 IndieGoGo Campaign: https://www.indiegogo.com/projects/dracos-may-be-effective-against-all-viruses/x/6148198#/ Press Release: http://www.prweb.com/releases/2015/10/prweb13018147.htm Some Media Coverage: My Bio: Dr. Todd H. Rider studied both biomedicine and engineering at MIT, including coursework at Harvard Medical School, and has spent his career inventing novel biotechnology projects by combining molecular and cellular biology tools with a systems engineering approach. After receiving his Ph.D. from MIT, he worked at Aeiveos Corporation on in vitro experiments to test and potentially intervene in the molecular mechanisms of human aging. In 1997 he joined MIT Lincoln Laboratory and the MIT Center for Cancer Research and invented the CANARY biosensor, which uses genetically engineered lymphocytes to identify pathogens within seconds with very high accuracy and sensitivity. He engineered and demonstrated the first CANARY cell lines, as reported in his widely publicized 2003 Science paper. Dr. Rider invented the DRACO antiviral approach, designed the therapeutics and experiments, personally conducted many of the in vitro and in vivo experiments, and recruited and supervised a team in carrying out the rest. His DRACO research has been called “visionary” by the White House (National Bioeconomy Blueprint, April 2012, p. 9), named one of the best inventions of the year by Time magazine (November 28, 2011, pp. 58, 78), and featured on the BBC Horizons TV program (2013). He has also invented additional PANACEA anti-pathogen therapeutics, novel high-energy biofuel cells, and other projects. Along the way, Dr. Rider founded and runs the Science on Saturday program and other K-12 science outreach programs at MIT.
  3. Hi. We all know that in theory it usually takes 12-16 weeks (sometimes up to 24 weeks) to get positive IGG blood test for HSV2. What are your personal experiences of testing positive for HSV2, i.e. time since exposure? And IGG score? Can you also state if you had HSV1 (oral or genital) and took any Antivirals prior to IGG testing? TQ
  4. Alwayssmile_

    Hsv 2 oral/face

    Has anyone experienced hsv2 on the face/lip/cheek? I know everyone is different but does it look the same as hsv1?
  5. alsalam aliykom sisters and brothers im looking for 7alal inshaAllah .. i have been diagnosed hsv2 since 5 years ago .. my ex wife passed it to me .. i was 32 years old virgin man .. she was my first but ..alhamdulillah i believe that every thing happens for reason .. anyway im here seeking 7alal so we can complete and love each other .. may Allah make it easy for us to find our ways E mail: mohammed_tempe@hotmail.com
  6. Hi all I had an unprotected exposure 14 months ago after 4 months after the encounter i saw a wart on my glans penis my doctor said its HPV and removed the wart with RF. He also said i have candida blantitis and asked to apply antibiotic cream for it ..After this i start getting some small red dots on my glan penis along with painful urination and tingling pain inside my urethra my doctor said i have NGU and asked me to get HSV IGG,IGM sero done ..The results were HSV 1&2 IGG 0.18<, he said its not herpes ..This was after 5 months after exposure ..These red dots used to appear on the glans penis and tip of urethra and disappear after few days ..In septmber 2017 again i had sex with someone using protection before having sex i had these small red spots on the glans and after sex next day they urethra become raw and reddish and when i touched it with tissue it was bleeding and my doctor said to do HSV1&2 again this was almost 12 months after last unprotected exposure this time the result came negative but with higher range 0.64 HSV1 IGG and 0.62 HSV2 IGG My doctor said it is not herpes but we don t have swab options in my country its only the blood test ..Now its been two months since the last test the red dots are appearing all around the glans penis in more numbers plus i also have very bad urethritis burning sensation on urination and sometimes tingling pain ..i am attaching the pictures here can someone tell me is it herpes or something else ..As i am totaly confused is it herpes or something related to the HPV i already have and if its herpes i just don t want to delay my treatment and i will restrain from having sex with anyone as i cannot take the guilty of giving this to anyone ..I don t even wish my enemy get this Herpes ..It just destroys your inner peace of mind ..Can someone here really help me looking at these pictures .. plzzzzz
  7. Learningtolivewithhsv

    When should I disclose?

    So I just found out that I have herpes a little over two weeks ago. I am pretty sure I know who I contracted it from, but that is neither here nor there. I was dating two people (only sexually active with one). I no longer converse with the guy who I’ve contracted this from, but kept in contact with the other guy, let’s call him PT and we’ve been hitting it off really well. Sex isn’t really on the table for us because we both said that we wanted to wait for sex until we get to know one another better because we don’t want to rush anything. I can see something more forming between the two of us even though it’s still new. I want to tell him now, but I also want to get to know him better before disclosing this to him. We have a couple of dates lined up. What should I do? Please help
  8. Hi there, Long time lurker, first time poster, and I'll keep it simple and condensed. I've only signed up because I realize the depths of suffering some people are in, trying all sorts of desperate treatments, and I've basically been sitting on something that has taken me to near 0 outbreaks (hsv1 genital). When I first got infected some years back, I had an atypical presentation--no pain or itching, but permanently there. Bumps going up and down within the same day even, but pretty much permanently covering the head of my penis. Doctor swabbed it--came back hsv 1; he said it looked like it to him too. Now to the meat of it--rubbing alcohol. Its simple, and I'm pretty surprised that I've only seen it mentioned once here--a woman was talking about it, so I assume it works for girls too. I apply once daily, to once every 3 days, and that keeps me pretty much permanently outbreak free. It quite literally went from every day broken out for me to just about nothing. Anyway, to the what and where of it all... I use 99% isopropyl. 70% seems good too. I now have a spray bottle, but used to just dump it on the head and roll my foreskin up over it for like 20ish seconds--whatever process is actually happening, I like to think I'm facilitating absorption into the soft tissue by doing this and wreaking havoc on the virus. Obviously, you may have to do it a bit differently, genital depending. I've been doing this treatment for a few years now, so it has staying power. I read once that herpes is shreded by alcohol, so if true, I guess that explains it? However, iterupting regular treatment seems to have anecdotally, but not with great surety, made the herpes a bit less suceptible to the alcohol upon resumption. Yes, it burns terribly at first. Over time it gets better. Some days it still really burns, and in those cases I advise listening to your body and cutting the countdown short. Other than that, it feels really damn good to basically tell herpes to eff off. I don't know what kind of health risks there are. Or whether using a high % grain (drinking) alcohol would work / be healthier. I advise asking your doctor--afterall, alchohol is implicated in throat cancer. Who knows if 20-30 seconds daily on your junk can do something too. But for those who struggle constantly, I truly hope this can help someone other than just me. I also hope that this finds its way to the right forum. I wanted it in a place where casual, straight from Google, viewers would see it when they came here, and I'm hoping--and asking, please--that if I didn't get it in the right place, a moderator can instead. And, should it help as I suggest, perhaps even stickying it one day. I'm sorry in advance, I'm not a big forum person and don't come here crazy often. It just felt like something I should do for everyone else's sake. Hopefully you can excuse me if I'm an absentee topic starter. Thanks for reading, - Taylor Edit: I forgot to add in any negative effects I've experienced. Sometimes, if its burning more than usual and I leave it too long, it does make the skin pinker than it should be, and sore. The big question, what about loss of sensitivity? I worried that may happen, and its possible actually that I've lost some amount. But if I have, it wasn't even enough to remember when posting this originally, hahaha. Still every body is different, so I can only speak for me. But yes, for me, my sensitivity down there is still in great shape. Over the last few years I've on average had less stiff erections, and dysfunction, which I never had before. However, I've also been less physically healthy, I've been mentally disengaged and highly anxious around sex and sexuality (and when I'm not anxious, it often improves quite a bit), I read once that herpes itself can actually cause forms of ED, and I'm also now out of my 20's, so... Possibly related? But also very possibly unrelated to the alcohol. I'm biased though, both in mentality and my words here. So, perhaps consult a doctor if you're concerned. Cheers!
  9. Learningtolivewithhsv

    Traveling with initial outbreak. HELP!!

    So I have recently been diagnosed with ghsv-1. I am traveling to Mexico soon tomorrow and my outbreak hasn’t completely healed as of yet. It’s been a week since taking the medicine and about a week and a half before noticing the outbreak. Even though it’s not painful to pass urine anymore but I’ve been pooping a lot and feel like I’m getting another outbreak inside of my anus. Are there any essentials that I should pack in order to subside the pain? Whilst home I’ve been taking epsom salt baths and adding tea tree oil to my sores.
  10. Learningtolivewithhsv

    Fairly new to this world

    Hey guys and girls, Yesterday I was diagnosed with genital hsv-1. I’ve been taking medicine for this since Tuesday though. Last week Saturday I had my first outbreak, I realized it on Friday, but thought it was an ingrown hair until the guy I was dating staring moving funny on Saturday morning (I haven’t received oral or penetration from him in like two weeks though). I went to urgent care on Saturday morning. When initially went to the DR he said it just looked as if my skin was irritated and gave me some cream to put on it. I know my body though so I failed to believe it was just irritated skin. He drew blood because he felt as if I didn’t have enough for the culture (he still performed one though). Anyway, I started researching to figure out how I could soothe my pain and decided to go to the free clinic where I lived. The obgyn looked at my outbreak and told me it was herpes. She also took a culture, but put me on medicine right away. I’ve been taking the medicine twice a day, have been using Dermoplast to numb my vag so I can use the bathroom (I haven’t used it in a couple of days though because it’s easier to use it without having to deal with it burning), taking epsom salt baths multiple times a day, using tea tree oil, and placing an ice pack on it at night. When i first thought I had HSV I wanted to die...like literally wanted to end it all because 9/10 I used condoms during sex and can literally count how many times I’ve had sex. But then I decided to just educate myself. Yesterday, dr #1 called me back for my results and told me it was genital hsv1. I feel like a lot of us forgets the danger of having unprotected oral. I’ve contacted all the partners I’ve ever had and told them to get checked for hsv 1 and 2 so they won’t infect an innocent girl. How do you guys deal with gHSV1? How often do you have recurrences? Are any of you on suppressive therapy?
  11. Hey any help would be great. I’ve been losing my mind of this and I’ve been procrastinating on going to get tested because I’m scared of the results and also I have no insurance or anything to consult with a doctor. so I got tested may of 2018 and I was positive for hsv1 which I feel like I may have gotten as a kid not sure, but since that test I’ve received unprotected oral sex twice and every since I’ve slowly been growing bumps on the meatus. I’m uncircumcised as well. Could this be herpes, warts, chlamydia? My girlfriend (I cheated on her and don’t know how to explain to her I might’ve caught something) has had a bit of blood discharge on her underwear in between periods. I work a lot and wear sort of tight clothing and I get smegma under the head as well. Smells bad too. Help!!! I’ve had this for months.
  12. Alice28

    Kissing Concerns

    Hi, I’ve had HSV1g for 4 years and only ever had my first and only breakout. I’m super thankful for that. I still hate disclosing as it sets off alarms. Finally met a guy I really really like and disclosed last night to be clear about why I’ve been hesitant to be intimate. We have for sure kissed and after telling he was in a panick about us having kissed. I’ve never ever had cold sores and have never passed it to anyone. Again in 4 years only my first and only genital HsV1 breakout. I’ve always been told kissing for me was fine....Can anyone help clarify? I’m resllt struggling as I like this guy a lot and hoping he can look past it.
  13. Nett

    First HSV crypto

    www.community-labs.eu First of let me tell you the intention and why this can be a great project, good investment and eventually something we could all benefit from. A unique way of effort for funding our mutual problem with the ETH ERC20 Token. Labcash is my idea born by our mutual friend HSV. Just by looking at this forum I have noticed how much people complain about HSV funding (justified reason) and the institutions ignoring us at every possible step of the way. When I need a doctor I never use public health because it would take me 6 months to get in line, instead I go to a private doctor and get all done in 30 minutes. The same principle applies when we want something to be done such as HSV research, we can order a private laboratory that would conduct studies on our behalf without restrictions. Raising funds to start/continue and eventually complete a study is difficult especially when we know that repeated funding is necessary. The solution is offered by the blockchain and crypto assets. You may or may not be familiar with cryptocurrency however it has massive advantages such as competing against other cryptocurrencies on an exchange that directly benefits us as the value of the Token goes up gives us more investment power and not only that but we are able to make our own acyclovir product that will not feed the big pharma but our chosen investment lab and our token. The possible side effect is the volatility in the crypto market that would make the token more valuable than the initial purchase price making some extra profit for token holders (not the goal but a good one). Simplified: 1. Tokens sold to HSV sufferers. 2. Signing the contract with the laboratory for drug development (Pivot park in the Netherlands is the chosen default). 3. Research begins. 4. Production and packaging of acyclovir on the lowest possible price for packaging, shipping, and reinvestment to the blockchain. 5. Sales and returns in the blockchain for future research. 6. Eventual new drugs will be discovered thanks to passive funding/market exploitation. TECH Token name: Labcash Platform: ERC20 Ticker: LCH If you are interested in participating in the project visit www.community-labs.eu or send an email on info@community-labs.eu for future clarification. If you are interested in buying the Token you will need a chrome extension called Metamask (all explained on the website) then you can buy the Token on this link: Buy Token As always doing something is always better than nothing :) If you have any questions ask here or send it to the info email. Cheers
  14. JoJo083

    Dating sites

    So what sites are you guys considering? I've been on PS for a few months with no luck. I've also been on OKCupid and Bumble but I find myself stalling to actually meet up for fear of " the talk". What are your experiences?
  15. If you’ve followed this ASP2151 thread, you may know that I’ve been taking amenamevir (Amenalief) for about two months. In these two months, I have had absolutely no symptoms and no side effects to speak of. I’m ordering blood work soon to confirm that there are no major changes in important biomarkers (kidney, liver, heart, etc.) but I haven’t experienced any side effects that I could observe myself (headaches, diarrhea, insomnia, mood changes etc.) However, there is no data about the effectiveness of valacyclovir + amenamevir on reducing HSV recurrences. Two months of being on this combination is not enough to tell how well it works. As a community, what we need is a functional cure. There’s a lot of excitement surrounding pritelivir in this regard. Pritelivir, like amenamevir, is a new drug inhibits the HSV helicase-primase complex. This is a different target than valacyclovir, which is why combining the two has major potential to be a functional cure. If you’ve read Josh Bloom’s article on the possibility of using pritelivir and valacyclovir together as a sort of HIV-like cocktail, then you’ve probably realized this combo is the only way in the foreseeable future that we will have a functional cure. Here’s the reality of the situation. There will not be a vaccine in the foreseeable future (barring a miracle that allows GEN-003 to continue. I wouldn’t count on that). There will not be a CRISPR treatment in the foreseeable future. The only HSV drug that is going through clinical trials (past pre-clinical) is pritelivir. That means that aside from amenamevir and pritelivir, there will not be any new drugs on the market for at least ten years. You are not getting much help from the pharmaceutical companies. It’s the truth. Many people here are already aware of this. Look at the HSV pipeline. Other than the helicase-primase inhibitors, there is little to no progress being made, and the failure rate is incredibly high. If you want, you can wait ten years hoping that the pharmaceutical companies come out with something. The only alternative is to conduct our own trials and gather some data. There are plenty of drugs/supplements with studies that have some evidence to support their use in preventing HSV recurrences, but there’s not much consensus on whether they actually improve anything. A lot of them have been tested in animals, but not in humans for the purpose of reducing HSV recurrences. Others have been tested in early-stage trials with very small sample sizes and don’t achieve statistical significance, even if the results are promising: L-Glutamine Propranolol Aspirin & other COX-2 inhibitors Another link Lithium Lactoferrin and plenty more. Some people have also speculated that diet changes (ketogenic diet, intermittent fasting, etc.) also lead to dramatic improvement in symptoms. There is plenty of reason to be skeptical about these claims, especially when they only come from a small number of people. The sample size simply isn’t large enough. And, of course, there’s a new drug that we know to be a strong inhibitor of HSV replication: amenamevir. Just as famciclovir has the same effect on HSV as valacyclovir, amenamevir has the same effect on HSV as pritelivir. And, as some of you know, amenamevir is approved in Japan and can be purchased online. In many cases, valacyclovir by itself is not enough to stop all symptoms/recurrences. Additionally, valacyclovir doesn’t reduce shedding as much as it should. But research has found a strong correlation between number of recurrences and shedding. If we get recurrences down to zero, chances are that shedding is close to zero. At the very least, it means with very high probability that shedding has been significantly reduced. Clearly, to achieve a functional cure, valacyclovir is not enough. But when combined it with other drugs/supplements/diets, it could achieve a functional cure or at least eliminate all outbreaks (which all but guarantees a very low level of shedding). Hypothetically, valacyclovir might reduce the average number of outbreaks per year from 3 to 1. Taking amenamevir in combination with valacyclovir might reduce that number to .5. Taking glutamine with amenamevir and valacyclovir might reduce that number to .2 (this is just a hypothetical example). Many of these combos may have a synergistic effect, meaning that using both drugs together would have a stronger effect than the effects of each individual drug combined. And how will we actually figure this out? By doing our own clinical trial. We need a significant amount of participants. A trial will have at least sixty participants (more is better, but sixty is doable) for a three month period. I’ve created to gather some basic information about people (nothing personal or potentially identifying. Just things like age, time of diagnosis, frequency of outbreaks in the past year, whether or not they currently take medication. This data will help group the study participants properly) and a spreadsheet for a trial participant to record when they get an outbreak and to briefly describe the symptoms. The group will be split in half, with thirty participants taking only valacyclovir and the other half taking valacyclovir along with whatever we want to study in combination with valacyclovir. Other standard study procedures such as randomization of the groups will be incorporated into the trial. All the participants have to do is take the pills and record any outbreaks they have, briefly describe the symptoms, and write down when they are fully healed from the outbreak. At the end of the trial, we will have three months of data for sixty participants. That’s ninety months, or seven and a half years of data, in each group. If the valacyclovir group had a total of ten outbreaks, then the average number of recurrences per year would be about 1.3. If the combo group had a total of five outbreaks, then the average number of recurrences would be about .7. Finally, we test to see if the combo led to a statistically significant reduction in outbreaks compared to the valacyclovir only group. The larger the study group, the more statistically significant the findings will be, which is why a large number of participants is crucial. Finally, we finalize the trial by performing any other important data analysis. For example, we could see if there is any correlation between age and efficacy of the treatment. We generate graphs and charts and write a brief “paper” presenting the findings. The only one of these trials that would actually “cost” a lot of money would be an amenamevir trial (amenamevir, although available, is pretty expensive). However, if enough people are willing to participate in one, we could get data on what looks to be the most effective treatment that is currently available. A trial to assess the effect of any other drug, supplement, or diet would practically cost nothing. Aspirin, glutamine, lactoferrin, and propranolol are widely available and inexpensive, as are many of the other possible treatments, and these trials assume that participants are already taking valacyclovir whether it is covered by their insurance or not. And these trials do not require a major time commitment. The participant will have to verify at the beginning of the trial that they have the study drugs/supplements in their possession (just send a picture and blur out any personal info if there’s a prescription bottle). They take one or two pills a day and record any recurrences. In trials with potential side effects (e.g. lithium), the participant records any side effects. At the end of the study, the participant sends the spreadsheet over. That’s it. These studies and data may not be as high quality as that of many clinical trials, but they are certainly useful. By obtaining this data, we give ourselves the ability to treat this disease better than ever before. Instead of shooting fish in a barrel and hoping some supplement works because one person on the internet said it did or because a supplement had an effect in an animal study, you’ll be able to rely on real data from humans. Not only that, but that data will be on a combination of valacyclovir and whatever else is being taken, which there are very few if any human studies on. TL;DR: Doing crowdsourced trials on different combinations of valacyclovir and other compounds, we can see which compounds are effective for improving HSV. You can participate, and it is minimally time-consuming and costs next to nothing (unless you want to do an amenamevir trial). Participating will help us gather data to improve our conditions dramatically. If you’re interested in participating, please fill out this form: https://goo.gl/forms/Q50PKY8I11tVMsLh2 I am not interested in anyone’s personal data. These studies are to remain anonymous and I will never ask for or attempt to collect any personal data. The only reason I ask for age in the form is because is a potential variable to account for in data analysis. You do not need to provide your age if you don't want to. All communications should be done through this website’s messaging system or using an email that does not link to your identity. You can reach me at honeycombstudy at gmail.com or message me on this site. Any questions and/or skepticism are more than welcome. Finally, if anyone would like to contribute to this project please contact me! Let’s start taking action.
  16. Bhbr2018

    A poem: Death To My Giver

    Since I am having such a hard time dealing with my GHSV diagnosis, I thought it would be beneficial to express my emotions via a poem. I welcome all feedback, and thank you for reading: "Death To My Giver " My giver was a male, and his penis looked clean I looked and searched around, but no bumps were seen We had sex on the couch, and sex in his room He had an open invitation, as a guest in my womb My vagina let him in, with a hug and a squeeze His penis returned the favor, with an incurable disease Six days later, feeling symptoms in my bed Taking selfies of my vagina, of bumps that turned red My worst nightmare in the world, unfolding before my eyes With no one to talk to, to comfort my cries Having to go to work, with blisters and in pain Losing sleep and my mind, isolated and insane Doctors visits, drugs, and crying for days Drinking myself to sleep, in an ambien haze Reading stats and blogs, to make it all seem okay Feeling worse about my life, with each passing day A fever, a headache, swollen glands, and the chills Looking back on meeting you, I should have run for the hills You infected me, and left me, to deal with it alone You showed no remorse, no answer from your phone Now my choice is gone, and the freedom to have sex Replaced with insecurity, fear, and hiding bottles of Valtrex The stigma and the pain for the rest of my life Will I become a mother, a girlfriend, or become somebody's wife? Will I be accepted, loved, and made whole again? Or will I be rejected, sad, a lonely old hen? Hearing jokes about herpes, now it hurts all the more Having to tell myself I'm not dirty, repeat, I am not a whore I was tested before, for HSV and all It always came back negative, never once received a call I want to sue you and scream, the most repulsive guy It gives me pleasure to think about every way you may die Every ounce of anger I have, directed at you So DEATH TO MY GIVER, you probably knew
  17. Hello, Have any one is diagnosed by sharing foods or drinks?It is possible or just a myth.On google mixed information is available.Anyone have inputs regarding this topic.
  18. AiCuris and Pritelivir have been mentioned in a few threads. Read it all or skip to the last paragraph for the relevance to hsv. https://labiotech.eu/hcmv-antiviral-fda-approved-aicuris/
  19. hpv and hsv are very similar viruses. And the drug for hpv can easily be a drug for hsv. But it is easier to seek a drug for HPV because the efficacy results of the drug can immediately be seen by the naked eye on the warts. The conclusion is: There are many more studies that have more precise conclusions about the hpv virus that we also can use for hsv. https://www.mdedge.com/pediatricnews/article/102139/infectious-diseases/expert-shares-treatment-tips-molluscum-contagiosum/page/0/1
  20. Current situation I am in. (It is so long, but I feel like all the details need to be explained, THANK YOU all so much for your time in advance.) (I don’t know what else to do.) Dec 2015 – noticed a mark on the left side of my penile shaft that I thought at the time looked like rug burn. Had protected sex, brief unprotected oral two weeks’ prior with female. Fast forward another 5 ½ months, this would have been Early June of 2016. I noticed this time that TWO marks showed up on the left side of my penile shaft. One being in the same spot as the first mark in December of 2015 and a second mark that sat a little above it on the base left side of my penile head. I did not know much about herpes at this time, so when I got back to my home state I went to the doctor to have him look at it. These growths/spots (for lack of a better word) were almost healed at this time, and we decided to get the whole set of STD Blood Tests. The herpes tests were type specific, CLIA, IGG’s. I tested NEGATIVE for everything. So I just put it all behind me. Fast forward to literally one year later, around the middle of May of 2017. I noticed a very little sore/mark/ break in the skin/ (hard to explain) that sat at basically the same spot on the base of my penile head that one of the spots from June of 2016 sat. This is when I really starting to think how strange that was that those spots sat so similar. I did have heavy condom usage around all three of these incidents, so I thought it could be a contact dermatitis or eczema type issue, but I wanted to get another set of blood tests done to make sure. So I retested through the same doctor with LabCorp again. Full set of STD blood tests, Herpes tests were CLIA, type specific IGG’s. I tested NEGATIVE again for everything. 18 plus months since December of 2015. I tried to put this all behind me again but I found myself still trying to figure out what this could possibly be. So that is when I got in touch with Terri Warren and got the Western Blot done as well for greater clarity. My results all came back negative. I was so excited. Then low and behold, AGAIN in late May of 2018, (so weird that these symptoms keep coming back once a year during the same few months of each year, MAY/JUNE,) I experienced some itching and redness in the same area on the left side of the penile shaft. This time I experienced red linage and markings that looked like an oval surrounding a prior spot that had previous sores/breaks in the skin years ago. So I had an infectious disease specialist in the area on call to help with a PCR Swab right away. Had the red areas swabbed very aggressively. Got good amount of skin off and results AGAIN came back negative. Did another IGG for amusement and again all negative. I do want to make this side note —NONE of my sores/breaks/marks have ever been blisters with fluid. I just thought it’s important to mention. With all that said, I have had 5 totals test done which include 3 IGGS/full STD panel, 1 Western Blot and 1 PCR and all have come back negative. I have worked with Terri Warren, an Infectious Disease Specialist here in my city, and a dermatologist, and they all keep telling me that I’m negative and to move on. I have gotten answers ranging from possible dermatitis to Fixed Drug Eruption as well possible penile psoriasis. I’m in limbo land. I believe my test results but also feel like my symptoms has some similarity to GHSV1. It is just so frustrating to not get a definitive answer on these symptoms. Maybe I’m too focused on HSV but i just don’t know a lot about other causes to explore. I know they are out there though. Skin is skin after all. Anyways, I just thought I’d share my story in hopes of some additional insight from others experiences to see what else this could be and to get greater clarity! I have a great team of specialists that I’m working with and wanted to add some additional help and knowledge from this great support team as well! :) Thanks again! All the best to you all!
  21. Dontknowanymoreagain

    Pics attached.. Need help

    I have this rash that is getting worse and worse.. Has anyone seen this?? It's in my inner thigh on both sides
  22. Dontknowanymoreagain

    Not sure pic including of rash

    I have this weird rash in my inner thigh. I have burning tailbone and nerve pain.. Been to several specialist including, dermatologist, infectious diseases Dr, primary Dr.. Have been tested for hsv 1 and 2.. Positive for hsv 1, but have cold sores since I was young.. Picture attached.. Anybody seen this before? Or have this? Inputs appreciated except for Wilso
  23. cracked

    Neuralgia

    Hey everyone. I’ve read a lot of posts and have talked to some people from the forums who suffer in various ways from this virus. I’ve also heard the term ‘neuralgia’ being thrown around in posts, but have yet to figure out what kind of pain and its origin is for all the people that said they experience it. Please do me a favor and comment below about your experience with it and where it causes you problems and what kind of pain is it exactly? This might help some other newer members also understand. Thanks.
  24. Especially after Ascendance’s herpes injection we started to see news dont panic herpes is going down in population :)) Now i better understand how people dont care us. http://time.com/5136481/herpes-simplex-virus/ I think what they say is a bullshit, there are alot of people who are not aware of they have virus and spreading it.
  25. I just had what seems like a good idea in my head. Billboards are expensive, a march for HSV is hard to organize, and most other methods are difficult to make happen because people don't want their identities to be exposed. I'm sure most of you have seen vehicles such as cars or trucks with ads on them, right? What about raising money to have a message or slogan placed on trucks and other vehicles which would be willing to be paid for that? Those vehicles travel long distances and more people would see the message every day without us having to do anything extra and they wouldn't be stationary like a billboard, right? I'm not sure how much this would cost per vehicle, but I think it would be negotiable and not as much as a billboard? If we raised enough money on a crowdfunding website for this, would anyone be interested in donating or willing to ask in your area how much it would cost? I think this is one of the best ways to remain anonymous while still doing something that allows us to get the message in front of people. We could include the stats for how many people have HSV, how people should get tested, or anything else that's short but to the point. You can message me if you'd like if you don't want to post here. Thanks.
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