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  1. Has anyone tried Longdanxiegan (LDXGFG) as a treatment? There seems to be scientific evidence of great results in animal trials. This is the link to the study https://www.sciencedirect.com/science/article/pii/S1028455916000322. It is a Traditional Chinese Medicine formula that now has won some scientific attention. I have previous experience using Traditional Chinese Medicine for improving symptoms of another rare diseases I suffer and, seeing this has been backed by some research, I am considering giving it a try. Thanks to all contributors to this forum for all the valuable information shared.
  2. Sheena C

    Confused ?

    Im hsv2 and 1. its been like 18 months since i had a painful outbreak down there. Whyy dont i have sores down there or on my lips ? Is it because i have a healthy immune system that i could only have outbreaks long periods at a time?? And with hsv1 can i still be contagious without a cold sore.. And how?
  3. Hello world! I had my first HSV2 outbreak 8 years ago. The first one is the worst -- the actual outbreak hurts like hell. The outbreak itself was very tiny and localized in a small genital area. However It came with side effects I didn't expect like an acute and intense tingling sensation in my lower back, buttocks, and spread down to my feet/toes. Fast forward years. I rarely get actual outbreaks if ever. But I do experience that intense nerve pain I remember that comes before an outbreak manifests as a skin lesion. So now the outbreaks don't happen, but the prodrome pre-tingles happen often. Except now those piercing sharp tingles aren't just perceptible in the aforementioned areas. I feel it all over my body intermittently - neck, shoulders, arm, yes leg and lower back, foot, etc.. To emphasize, I never experienced any chronic pain remotely similar to "herpes tingles" pre- first HSV 2 outbreak. Several Questions: Does this pain sound familiar to you? Has it migrated outside of where it was when you first had an outbreak? When I bring this up to multiple doctors, I'm baffled that they have no idea what I'm talking about. Or don't see the connection between the nerve(?) /lymph node (?) pain / neuralgia/ paresthesia and HSV. Every time I see a "Lyrica" commercial for fibromyalgia I think to myself, "well this is fucking it. this is what I'm feeling/experiencing in my body." Is there a link between fibromyalgia and herpes? I wonder how many patients diagnosed with fibromyalgia have either HSV 1/ HSV 2/ shingles/ varicella-zoster viruses or something related? It seems to me there is a there there. But I also feel I'm being gas lit by the world and that in general researchers / HCPs are too "embarrassed" to even commit to research around the "not talked about" symptoms of HSV; or even HSV in general. How can herpes be so "common" and yet not a single medical professional is conversant in the totality of the disease or specializing in it? >_< Not related, but where can I purchase acyclovir cream? That stuff is like contraband in the USA lol. ugh this country sucks in this arena.
  4. This week my pregnancy ended after an ultrasound showed no heartbeat at 8.5 weeks. I had an outbreak just the week before. Naturally I believe that this caused my miscarriage. Everything was progressing perfectly up until that point. This is now my 5th loss and with every miscarriage I had an outbreak within days before. I can’t help but think that this is the underlying cause of it all. All of my doctors have said that the likelihood of the HSV being connected to my losses is rare. But I have also read mixed things online and feel like the medical community is generally uninformed when it comes to this. Can anyone share their experiences with this? It would really help me to hear any stories of successful pregnancies with outbreaks in the first trimester ... or alternatively stories like mine.
  5. Hi all I had an unprotected exposure 14 months ago after 4 months after the encounter i saw a wart on my glans penis my doctor said its HPV and removed the wart with RF. He also said i have candida blantitis and asked to apply antibiotic cream for it ..After this i start getting some small red dots on my glan penis along with painful urination and tingling pain inside my urethra my doctor said i have NGU and asked me to get HSV IGG,IGM sero done ..The results were HSV 1&2 IGG 0.18<, he said its not herpes ..This was after 5 months after exposure ..These red dots used to appear on the glans penis and tip of urethra and disappear after few days ..In septmber 2017 again i had sex with someone using protection before having sex i had these small red spots on the glans and after sex next day they urethra become raw and reddish and when i touched it with tissue it was bleeding and my doctor said to do HSV1&2 again this was almost 12 months after last unprotected exposure this time the result came negative but with higher range 0.64 HSV1 IGG and 0.62 HSV2 IGG My doctor said it is not herpes but we don t have swab options in my country its only the blood test ..Now its been two months since the last test the red dots are appearing all around the glans penis in more numbers plus i also have very bad urethritis burning sensation on urination and sometimes tingling pain ..i am attaching the pictures here can someone tell me is it herpes or something else ..As i am totaly confused is it herpes or something related to the HPV i already have and if its herpes i just don t want to delay my treatment and i will restrain from having sex with anyone as i cannot take the guilty of giving this to anyone ..I don t even wish my enemy get this Herpes ..It just destroys your inner peace of mind ..Can someone here really help me looking at these pictures .. plzzzzz
  6. Alwayssmile_

    Hsv2 reoccurrances

    Hi Wanted to find out people's reoccurrence with hsv2 -How long you've had hsv2 -How your first outbreak was -How many outbreaks you've had since the first and how the severity is of the reoccurring outbreaks Hoping to get some positive success stories with hsv2 Any success with only herbal supplements -
  7. I’m so fucking upset. I found out I had HSV2 this last June and I was so sick in hospital (before I knew) with fever chills my whole body felt like it got hit by a truck. They thought I had meningitis. Then I realized I had sores and got tested for herpes and came back positive. So since then I keep having outbreaks! I have a healthy diet I don’t drink I live a normal life. I even got vitamin C powder and L-lysine to take. My doctor ended up putting me on Valtrex to take every day since I kept getting outbreaks. But nope! Still Happening. I swear I get them every other week and it makes me SO ANGRY I’ve never had so much rage I seriously hate my life now. I can’t even exercise anymore and I’m afraid to even have sex with my boyfriend who surprisingly doesn’t have it. Does anyone else get them all the time? I’ve never talked to anyone about it besides my doctor and boyfriend so figured I’d join this thing and at least talk to someone who has been through it. UGH
  8. Hi everyone. I never thought I'd see the day that I would be posting in an online forum, let alone for this topic. I also never thought in a million years that I would get this. Im not really sure what to say on here, I just needed to say something. I was recently diagnosed positive for GHSV2... like "4 hours ago" newly diagnosed. I am still just in complete shock. It hasn't settled with me yet that I will be dealing with this for the rest of my life. I already picked up my medication, Valtrex, and it took me a solid 3 minutes to even bring myself to swallow the pill, cause I had this deep sinking feeling, like "once I do this, it's for real... this is actually happening... this is actually my life now.. this isnt some terrible nightmare that Im going to wake up from." Ive already called my (new) boyfriend and broke the news to him. He was much more understanding than I had expected and is actually going tonight to get himself tested, so we can decide where to go from there. So I had my doctors appointment yesterday with a new gyno who upon immediately examining me came to the conclusion that what I had was herpes. I didnt want to accept it and continuously reassured her that it couldn't be that because I had just gotten tested in June and those results came back NEGATIVE. Or so I had thought... Apparently, my results in June did NOT come back negative, and in fact came back positive for HSV2, yet NO ONE called me to review these results or follow up with a care plan for me. I don't remember much from that time, but considering the fact that I have been living for almost 5 months now, unknowingly with this virus, tells me that IF/WHEN I had spoken to someone at that particular doctors office, than they must have told me that I showed negative for everything, because I went on living my life like I had nothing. Im not sure what the protocol is in different states, but for VA (where I live) the doctor usually calls you and states that "they received your results and then they proceed to read off said results for each test" over the phone. I know for a FACT, that I would have remembered being told that I was positive for ANYTHING back in June.. especially considering I usually get myself tested often at and take testing very seriously, since I always dreaded the thought of ever catching something. And now.... look where I am left!!! I feel incredibly hurt and angry that this office failed to discuss these results with me! I never received a paper copy of my results, no email, nothing. The only thing I ever received from that visit was a bill stating the amount of money I had left to pay after insurance, and what tests the charges were for. Had I known that I tested positive back in June, I would have NEVER exposed my boyfriend who I very much care about and saw a new future with. I will feel incredibly guilty if his results come back positive and come to find out that I AM the reason for his diagnosis. Im sorry this is so long, I just have so much inside me that I need to let out. Clearly, you can see I am incredibly angry at this. I feel immensely isolated. I feel dirty. I feel like no one will ever love me again. I feel like even if I find a new partner, how can someone willingly choose to be with a person who has herpes, when they are not infected themselves? Why would they subject themselves to that exposure when there are plenty of other people they can be with who aren't exposed? I have always had a poor self image, I'm incredibly self-conscious. I consistently, on a daily basis struggle with self esteem issues and self-worth... and now, to have this psychological trauma and burden to add on top of all of that?! I don't know how to live with myself and I feel like my world is falling apart and I would be better off dead, than have to deal with a lifetime of loneliness and misery that comes from this psychological pain I am going through. I know I keep reading that "this isn't the end of the world", and "things will get better", etc etc. but being as this is DAY ONE for me.... and I feel like this... I can't imagine having to feel this way EVERY DAY, for who knows how long... until I just feel completely numb from it. I guess when that day finally comes, it'll also be the day that I start getting over it and dealing with this. But from this point A until that point B... the thought of that time in between just feels like so MUCH to deal with. So much pain, and hurt, and sorrow, that I just don't want to feel. not right now, not for a few months, not ever. I can't be the only one who has felt this way. I am trying to be positive and divert my energy into researching this illness and finding support groups and forums like this, but I just need to know that I am not alone in this. I know for right now, that in my physical, every day life, the relationships/friendships I deal with in-person on a daily basis, I will be alone for the time being... but I really just need to know that I can, at least, find some support online... from others who understand me or have felt similar to what I am feeling right now.
  9. Around 3 years I go I contracted HSV2 from my now ex boyfriend. At first it started off as a small tear..straight after sex. I assumed it was just due to the Brazilian wax I had gotten earlier that day. (I now know that that is probably what aided in me contracting HSV2) the next day, the year turned into a blister, then more appeared in the coming days. It was horrible. I had a funny colour discharge and it burned. I would sit in the bath just to pee. I went to a sexual health clinic in london where they took swans and examined me. They gave me meds to take and told me that it did indeed look like herpes. But that I should wait for my results to come back,and take meds in the mean time. I got a call a few days later saying that I tested postive. I asked her if it was for HSV1 or HSV2.. as I had done a lot of research by then to know the distinct difference. She confirmed that it was HSV2.. to this day I have not had a blood test. As swans are usually most accurate at detecting HSV. at first I was in denial. I didn’t get out breaks that often luckily.. and if I did it was just a. Small blister on my labia to the right of my clitorous. I would occasionally get some nerve tingling in my legs which I put down to asymtomatic shedding. I have never been on antivirals as my symptoms were barely noticeable I started dating someone a year later and I told them about my HSV2. He took about an hour to read up on it.. and never mentioned it again. We carried on our relationship. I never took antivirals and we did not ever use condoms. To this day he has not contracted HSV. For a long time I somehow managed to forget that i had this horrible disease. I lived normally and happily..outbreaks were barely even noticeable. I guess this is because I had no reason to think about it. He treated me no different. Sadly our relationship has ended, however we are still friends. He has never ever mentioned my HSV to me since the day I told him. But now 3 years on I am dating a new guy that I really really care about. I see us getting married and having kids. Buy one day We were talking about his sexual partners and he informed me that he always uses protection as he has had a herpes scare in the past and that it was the worst time of his life. Luckily he tested negative. Because of this I don’t know if he will ever accept me. And I am heartbroken. I cry all the time and am very very depressed...to the point of thinking about suicide. I don’t want to live my life like this. I look at females and envy them for being normal and for being able to have such carefree sex, never having to worry about this. Even if this guy isn’t the one for me. I wonder if I will ever be able to find someone without feeling like this. This world is cruel. And evil. And unfair. I don’t deserve this and neither do any of us. Life sucks im pretty sure these companies have a cure but are feeding us useless antivirals in order to make money. Our lives mean nothing to them. We mean nothing To them. emotionally I a ruined. I don’t see my body the same. And I hate my vagina. The thought of having to take pills for the rest of my life just because of my stupid ex boyfriend tears my heart apart. Why me? I was good.. Now I am tainted and undesirable. I’ve been looking online for natural remedies/cures. Although I’m not gullible enough to believe in paying money for a natural cure. I’m in going to try Dr Sebi’s cell food diet. They say it is an intracellular cleanse that can rid the body of any disease. But it is a lifestyle..not a quick fix. I do believe he was really onto something.. that’s why they killed him in custody. He proved in court that he had cured people of HIV AIDS, blindness, herpes and other illnesses. He brought 77 paitients to court with him to prove this. I’ve also read scientific research stating that oregano oil is very affective at killing the herpes virus. the trouble is getting it to the virus in our nerve cells in the ganglion. I understand why pharmaceutical companies would not promote this method of self healing as it does not benefit them. But I am also aware that there are no people in this forum that have been able to sucessfullu rid themselves of the virus. And even if the tests do come back negative and outbreaks stop... the virus could still be in there hiding. But im trying to save my life. So I am willing to try. This is long. And if you’ve made it to the end.. congrats. This may be the last post I make. As if this doesn’t work. I can’t stay on this earth living with the pain of what could have been if I had not been with one person.
  10. Hi. We all know that in theory it usually takes 12-16 weeks (sometimes up to 24 weeks) to get positive IGG blood test for HSV2. What are your personal experiences of testing positive for HSV2, i.e. time since exposure? And IGG score? Can you also state if you had HSV1 (oral or genital) and took any Antivirals prior to IGG testing? TQ
  11. Approximately 5 years ago a girl gave me a peck on the lips, I wiped my lips off. The next morning I woke up with a painful rash all over my top lip that dried up and resulted in chapped lips, where the skin died and regenerated. No pus or obvious cold sore. I have had this same outbreak approximately once a year in the same place except for this year where I have had it almost continuously, I have been very stressed. I went to the doctor who says it isn't cold sores (I have to wait 2 weeks for a blood test), however I have found someone ( To those with oral HSV2 only by Penumbra,) who tested positive for HSV2 by blood test with my EXACT symptoms. Before an outbreak, my lip/nose area is tingling a lot and I feel a strong twitching in my lip. Is it possible that I have mild cold sores? I would greatly appreciate any help
  12. I had 4 blood tests for IGG so far. They went from negative (0.50) to POSITIVE (without value) but the fourth test I took said 0.9 (who is the minimun of the warning area), I also got a 1 (my maximum besides the "positive" one without numbers). (For the records I do had positive 1.3 IGM with the first one). Didn't have another ob like the initial one in 10 months (it was glans full of little pimples). I do have different symptoms however: now my glans skin seems different, feels more sensitive and get random quick tingling feel (very rare in a week). Also I can see like sort of microscopic goosebumps on glans that don't remember ever had. They sometimes are more noticeable. There are many of you with more consistent outbreaks but low IGG numbers like 0.9/1.1? Thanks.
  13. Hey everyone! I've seen a various posts across various forums regarding disclosing (or not) and have seen a bit of a trend in people thinking that it's 'hard to pass' with one encounter (lol) condoms make it impossible to pass, blah blah blah. So let's just try to compile some short & sweet answers to some basic H transmissions stories and questions...Could be helpful in many ways to lots of people! 1. Did your giver: show symptoms / asymptomatic / disclose H to you? 2. Protected or unprotected? Oral/vaginal/anal? 3. How many encountrs with giver? (time frame of encounters ie. one weekend of several months?) 4. How were you diagnosed? (swab or blood test) 5. Are you a symptomatic carrier (showed signs ie. outbreak) or asymptomatic (never showed signs, diagnosed by blood work) 6. How long from sexual exposure did you start to show symptoms? 7. How long did your primary outbreak last? How frequent have your recurrences been? (ie. one a month/year?) 8. How long have you been H+? 9. Are you on antivirals only during outbreak or suppressive therapy? Or have you gone the natural route? 10. Words or wisdom/support for newbies? ********** I'll go first... 1. No visible signs of H. Asymptomatic carrier not diagnosed with at the time so no disclosure. 2. Unprotected vaginal/oral. 3. 2x in a weekend (Friday night and Sunday morning) 4. Positive swab test during terrify primary outbreak. 5. Symptomatic HSV2+ 6. Friday/Sunday sex; initial first symptoms started Tuesday and quickly got aggressive. (in hospital by next Sunday) 7. OB lasted a few weeks. Cleared up, then I had a couple minor recurrences due to alcohol in following weeks but MINOR in comparison (just more annoying not excruciatingly painful) still working through this ATM. 8. I was infected Mar9/18 - diagnosed with Mar23/18. 9. Antivirals during primary OB; lots of supplements and vitamins every day now and have changed my diet. 10. It does get better. Not back to normal better, but better. Take care of yourself and do whatever it needs for you to heal physically and emotionally. Find a good friend/family member/counsellor to confide in to help lessen the burden you are carrying. Get wine drunk with a friend and cry all night. Go to the top of a mountain and scream at the top of your lungs. Amazon shop till you max out your credit card buying things that make you happy. Hope this can help some peope! Love & light everyone! x
  14. Has anyone found a way of stopping menstrual-triggered outbreaks/viral activity? This is the main trigger for me now after three years of having hsv2 but I don't know if there is anything that can be done without having a hysterectomy or using a contraceptive that stops it. Not keen on this or taking antivirals during my period so, are there any non medicinal solutions?
  15. How do you strike a balance between remaining unemotional in delivering a disclosure speak and any subsequent questions and being honest about how it has affected you emotionally? For me, the emotional fallout of dealing with HSV has had a huge impact and I find it hard to rationally think about how I would deal with this and all the stress of worrying about transmission without letting on how much I am thinking about it – to not scare the other person away and make them think HSV is something to worry about. I would want to inform a partner yet enable them to think about it with as little negativity as possible, and yet how could I do this if I was being honest about how I really feel about it? And if I couldn't be honest about my journey with it, would that in itself cause more resentment, anger and bitterness? This time directed at the virus itself not the person that gave it to me? In essence, for me, dealing with HSV on an emotional level wouldn’t end after a successful disclosure where someone wanted to be in a relationship with me. It’s not the end of the story. I've always had an anxiety and I've been seeing a counseller for two years now, as a result of getting HSV. It's not helping.
  16. Since May I have been taking Valtrex. At first it was 500mg once a day then it increased to 1000mg once a day in June after frequent outbreaks persisted. I've had a total of 9 outbreaks since May and was diagnosed with hsv2 in March of this year. The past three weeks I've had severe dizziness, especially when lying down and getting up in the mornings. Today my doctor suggested taking acyclovir 400mg twice a day. Has anyone switched from acyclovir to valtrex and experienced better results/less breakouts?
  17. I was dating this guy who has genital hsv2 like me. He thinks that he got hsv2 on his nose from going down on me. It got really bad and had a lot of puzz. The docotr said that they could not be sure that it was herpes because more than 48 hours had passed after he got the outbreaks and swab tests would be unreliable(Never heard that before) I started doing my research based on his symptoms and found out that it can be a staph resistant to antibiotics infection too. I wounder if anyone has had this experience before? How often can you find staph and herpes at the same time?
  18. Hello. I am diagnosed Hsv2 positive, never had same kind of spots I had on glans since first ob, but a lot of side manifestations, mild itch, sensitive glans with lot of tiny bumps... Now about 10 days ago got this on boxer area external side leg, is this a typical hsv2 related? Doesn't itch
  19. AiCuris and Pritelivir have been mentioned in a few threads. Read it all or skip to the last paragraph for the relevance to hsv. https://labiotech.eu/hcmv-antiviral-fda-approved-aicuris/
  20. Hey i have been using something for a while now and I'm convinced it works. I don't want to be greedy so I'll share my recipe and I'd be interested to know how u get on. Can be used as a daily ointment on the area effected or 3 x a day when u sense an outbreak coming on applied with cotton wool. 25 ml fractioned coconut oil 25 ml virgin olive oil 12 drops Tea Tree oil 20 drops origano oil 8 drops propolis liquid Mix well before use and if any irritation increase olive/coconut oils Good luck I also want to keep u up to date with my progress. I use the above to treat/stop an outbreak and have recently started the following to work on ridding myself of the virus altogether. Morning and evening 5 drops of an oregano oil mixed with unrefined olive oil under the tongue. Mix 8-10 drops of oregano oil to every ounce of olive oil. Shake well before use. I will rub 4 drops of oregano oil mixed with pure coconut oil at the base of my spine. Only recently added dmso to this. Well it's been 3 weeks so far and no hint of an ob. Ill keep u posted
  21. I apologize, this maybe a duplicate of my other question. But I'm really concerned on what is happening. Since my first ob that consisted in tiny widespread blisters on glans and (not sure if herpes sores but) two behind leg and two on arm, I feel like my glans never returned to its original skin. What I can see (sometimes most visible on erection) are tiny skin bumps. It feels like I'm always on outbreak, is this even possible? They look like these (pics are not mine, just found them on internet searching "herpes glans" and they describe how my glans looks right now). Could herpes give status of constant tiny bumps in people with low body defence? And since I have them, means I'm constantly shedding? Thanks for your opinions! https://goo.gl/images/v5MXKh https://goo.gl/images/iPv3sW (I am tested HSV2 positive with value 1, three months after exposure)
  22. Herpetic nosodes, homeopathy, micro/energetic-vaccination, decreasing your outbreaks/symptoms.... ok, so what if all the dollars on research to make a therapeutic vaccine were really inappropriate and there's already something out there that can help on a similar level? What is this product? It is essentially a way to homeopathically vaccinate yourself to some herpes viruses (1&2 and others), thereby giving your body insight as to what HSV looks like, enhancing your body's ability to identify, tag and destroy it. What are nosodes. Nosodes are a homeopathic (very minute concentration) dilutions of an energetic impression of a pathogen. So with herpetic nosodes, it'd be energetic impressions of some herpes viruses. Please, I know, I really don't like explaining homeopathic medicine because the more one read or hears about it and the more I explain it, the less I feel others are convinced and the more confusing it is. -But for $16, this is worth a try... So I'll tell about my personal experience. In the beginning of my herpetic initiation, I found a homeopathic nosodes remedy for 23 pills at $40. It helped when prodrome happened but it wasn't incredibly powerful. That company discontinued their product but, by then, I had build up an immunity and things were better. I still experience symptoms of tingling on/around my genitals, sacrum, perineum/crotch and low-level sores on my lips. I'll take SJW for a day and will feel liberated for 3 days then things will steadily creep back. Depending on other symptoms, I have other things I take to address them... But the prodrome will return and the cycle continues.... So I just received my Herpetic Nosodes tincture yesterday in the mail and I tried it. I tried too much of it. I think it says 10 drops and I put half a dropper under my tongue. It was wild, the tingling and whatnot got slightly worse for a minute and then subsided. I felt my spleen organ (to the left in the rib cage) get tense. Usually when an organ is tonified, it will become literally "toned". The spleen is the major lymphatic organ that is in charge of, among many other things, adaptive/learned immunity. So taking this herpetic nosodes shows my body what the virus looks like, just like a vaccination, and my body learns and makes smarter antibodies to identify, tag and destroy the virus. $16. If you have frequent outbreaks, give it a try. you really don't have anything to lose, except $16, which is nothing. Here's a site of the product that I got. https://www.pureformulas.com/herpetic-nosode-2-oz-by-professional-formulas.html I don't know how the long-term effect is. I just got this and started using it 3 days ago and have been amazed. Just thought I'd share my latest find/exploration.
  23. Hey all, I am just so tired of being constantly anxious. I had a vaginal birth with no transmission and my child is now almost two but every time I even see the smallest spot (wether bug bite or allergic reaction etc.) on their skin I go into full intense and shaking panic mode. I just don’t know how to calm down and it’s doing nothing for my stress levels and eating habits. Almost every month I have complete breakdowns in fear of transmission. But logically, there’s no chance my child could contract it. I’m always covered, washing hands throughly after washroom use, no skin to skin contact with my effected areas ever and only one outbreak this year. Any advice or words of support would be awfully nice right now. Thank-you.
  24. SillyGirlMel

    Getting a Labbox??

    Should I send a link to the labbox testing for the guy I hooked up with? I told him I have HSV2 after the deed was done and of course promised to pay for any expenses for testing. I found the link to labbox through honey, but I’m worried if I send him the link the horrific description about hsv2 beneath the merchandise will give him a heart-attack. What should I do? I messed up and I’m trying to help without making it worse.
  25. Dopa.lene

    Viral load??

    So ive tested negative for most std's but my doctor never gives me the viral load count?... Is this because im testing negative??.. How can i contract something if its undetectable?? Does that mean it's gone??
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