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  1. Does anybody have any suggestions on how you deal with pain at work or when you are out? I have hsv2 I am in the beginning of a break out this one is bad. I can’t really afford to call in so if anybody has any tips I would greatly appreciate it! Thanks.
  2. Morty123

    Elsberg Syndrom " neuropathy"

    Hey guys for those who struggle with daily nerves pain with doctor saying its not related to Herpes, please have a look on "Elsberg Syndrom" on Google. It describes exactly what we have, there are few study of it. It's important that doctors are aware of it, changing the vision they have of herpes, which is not just a "skin condition" for some of us
  3. Hey folks. I posted here last week, I didn't include a picture so here it is. Also my previous post if no one saw it. Does it look like herpes to you? ----- Hey guys and girls. Anyone any advice for me? I feel at a loss. I haven't been properly diagnosed, only a visual diagnosis. On Friday night I was with my fella, we've been seeing each other for 5 months and always used a condom. Everything was fine, then Saturday I felt a little nippy down below. Sunday came and I decided to have a look down there. I was horrified at what I saw. In the entrance of my vagina was a rather large white patch,it looked like a hole, filled with white stuff. After that it got really painful to pee, very painful to walk and even sit down. I told him it looks like herpes, as I googled it. So that night I took a bath, and had another look after my bath. The white stuff had gone, and honest to God all i could see was a bright red looking hole. So this morning I went to my local clinic, and had a nurse take a look. she said it does look like herpes, it could be herpes, but it may not be. She tried to take a swab but the pain was that bad that everytime she touched it you had to peal me off the ceiling so she had to give up, gave me anti viral medication and an ointment to apply and I've to go back next week. I've had my suspicions for a while now as my ex had coldsores, and after a night with him I started to feel funny down there. This was a year and a half ago. Eventually I got diagnosed with vulvodynia, which I'm now thinking it may have been herpes all along. I don't know what to do. Feel disgusting. My boyfriend says if we'd never break up over it, but I'm an over thinker and I'm thinking the worst. I only done 2 things different last week, I used a hair removal cream, and used a different condom to the ones we had been using. Racking my brain trying to think of what else it could be, but honestly I do believe it's genital herpes and I'm gutted. It's the worse physical pain I've ever been in, peeing is the worst.
  4. Ive been going through hell, itchy tailbone, clear discharge, difficulty urinating, pain on tip of penis dull back pain and now this rash..Please someone help. I cant take it! Ive been tested but it was negative. Maybe too early idk just please help.
  5. Hello world! I had my first HSV2 outbreak 8 years ago. The first one is the worst -- the actual outbreak hurts like hell. The outbreak itself was very tiny and localized in a small genital area. However It came with side effects I didn't expect like an acute and intense tingling sensation in my lower back, buttocks, and spread down to my feet/toes. Fast forward years. I rarely get actual outbreaks if ever. But I do experience that intense nerve pain I remember that comes before an outbreak manifests as a skin lesion. So now the outbreaks don't happen, but the prodrome pre-tingles happen often. Except now those piercing sharp tingles aren't just perceptible in the aforementioned areas. I feel it all over my body intermittently - neck, shoulders, arm, yes leg and lower back, foot, etc.. To emphasize, I never experienced any chronic pain remotely similar to "herpes tingles" pre- first HSV 2 outbreak. Several Questions: Does this pain sound familiar to you? Has it migrated outside of where it was when you first had an outbreak? When I bring this up to multiple doctors, I'm baffled that they have no idea what I'm talking about. Or don't see the connection between the nerve(?) /lymph node (?) pain / neuralgia/ paresthesia and HSV. Every time I see a "Lyrica" commercial for fibromyalgia I think to myself, "well this is fucking it. this is what I'm feeling/experiencing in my body." Is there a link between fibromyalgia and herpes? I wonder how many patients diagnosed with fibromyalgia have either HSV 1/ HSV 2/ shingles/ varicella-zoster viruses or something related? It seems to me there is a there there. But I also feel I'm being gas lit by the world and that in general researchers / HCPs are too "embarrassed" to even commit to research around the "not talked about" symptoms of HSV; or even HSV in general. How can herpes be so "common" and yet not a single medical professional is conversant in the totality of the disease or specializing in it? >_< Not related, but where can I purchase acyclovir cream? That stuff is like contraband in the USA lol. ugh this country sucks in this arena.
  6. Approximately 5 years ago a girl gave me a peck on the lips, I wiped my lips off. The next morning I woke up with a painful rash all over my top lip that dried up and resulted in chapped lips, where the skin died and regenerated. No pus or obvious cold sore. I have had this same outbreak approximately once a year in the same place except for this year where I have had it almost continuously, I have been very stressed. I went to the doctor who says it isn't cold sores (I have to wait 2 weeks for a blood test), however I have found someone ( To those with oral HSV2 only by Penumbra,) who tested positive for HSV2 by blood test with my EXACT symptoms. Before an outbreak, my lip/nose area is tingling a lot and I feel a strong twitching in my lip. Is it possible that I have mild cold sores? I would greatly appreciate any help
  7. Dear all, first of, i’m thankful I found this website. I’ve been diagnosed with genital warts a few months back since April and it hasn’t been pleasant. As I was doing my treatment for genital warts, immediately as I went home I realised some small bumps which then immediately turned into huge yellow ulcers that really hurts like shit. Hence I went back to my doctor the next day and she was surprised as well, 1. Is there a chance of contacting genital herpes from oral sex? 2. I do not have any blisters Nor rashes but these sores does hurts and pee-ing is just terrible, it burns so much. 3. How do one survive with being diagosed with herpes? 4. Any chances of soothing the huge sores that i’ve have? 5. I’ve been given some anti-vira medication, any idea how Long does the outbreak takes? 6. Does that means there’ll be no more unprotected sex from now on as I might pass this virus to my partner? 7. Pretty sure I’ve gotten it from this Australian guy, but I haven’t been able to tell him to go for a check up and all. Please feel free to give me suggestions and ideas on this thread as i’m In a lost now and have completely no idea what’s the next step. I can’t seem to upload the photos of the sore here, so if anyone could help, please let me know as i’m Desperate to clear the pain.
  8. cracked

    Neuralgia

    Hey everyone. I’ve read a lot of posts and have talked to some people from the forums who suffer in various ways from this virus. I’ve also heard the term ‘neuralgia’ being thrown around in posts, but have yet to figure out what kind of pain and its origin is for all the people that said they experience it. Please do me a favor and comment below about your experience with it and where it causes you problems and what kind of pain is it exactly? This might help some other newer members also understand. Thanks.
  9. MagentaLace

    Severe Pain

    Hi, I've recently been diagnosed with herpes. At first, it was a sore, then spread to multiple sores that hurt severely when I'd pee. I haven't been eating much. It has been a week and the sores don't hurt as bad, but the pain from my lower back hurts all the way down to my toes. It is severe nerve pain and my skin feels flu like. It is constant. This is my first outbreak. Has anybody else experienced this. The pain is so excruciating I want to throw up.
  10. Lk2404

    Newly diagnosed and alone

    Hello all, I’m a female and was just diagnosed GHSV 1 and I’m devastated. I really need someone to talk to about their experience. I’m at the end of my rope with general practitioners and their horrible bedside manner. If one more person spits a statistic at me or dismisses the psychological pain I’m going through, I’m going to lose my mind. Cannot see a psychologist for another week. Seems like nothing will ever be the same. Please help me.
  11. Im 19, I don't know how this happened but it did. I have not got my results back but I am 110% positive i have herpes. There are bumps lesions and open wounds everywhere, and i show all symptoms. At first I was very suicidal on the fact that I could be HSV2 positive but my mom calmed me down.she told me, it is what it is, and that I can still manage to have a normal life despite this. Im very scared as of right now. Im over the fact that it is herpes but i am in terrible pain. I can't sit i can't lay down i can't stand, walk or move. I had to sleep sitting up last night. I am scared to go pee as it burns tremendously. The doctor could not give me medicine until the culture comes back from the lab so Im hoping i can get an antiviral in my by tomorrow. I read that garlic helps so I've been taking garlic pills. Is there anything i need to know. Is there anything i can do/take to ease the pain. I tried pouring water on me when i pee but that did not help. Im just scared, i don't have a support group in person. Im in college and am embarrassed to tell anyone. Only my mom knows and she's across the country because I'm an out of state student. please help ! I'm desperate
  12. https://www.archyworldys.com/in-russia-developed-a-dna-vaccine-for-herpes/
  13. https://www.change.org/p/give-rational-vaccines-a-moment-to-speak-to-congress-about-the-burden-of-herpetic-disease?recruiter=659087102&utm_source=share_petition&utm_medium=twitter&utm_campaign=share_petition
  14. Concernedteen

    Not sure if rectal herpes

    Hey everyone, Hopefully someone can give me advice. I’m a gay bottom (receptive) and hooked up on the 22nd of February (currently the 5th of March.) during sex, no condom was used, and the guy swore that he got tested regularly, and never had any STI’s. Thursday night (March 1st) I started noticing some pain when I was walking, around my rectal area. The area was really moist, and I had started going to the gym a lot that previous week and doing a lot of stair-stepper workouts, so I thought it was chafing or a rash associated with that. But the more I looked at pictures of rashes, I’m convinced it’s herpes.. I had the Chickenpox when I was a little kid, I’m not sure if that’s relevant. But I’ve been walking around with toilet paper wedges between my butt cheeks because that’s the only thing that helps reduce pain and keeps the area dry, which I read is what you’re supposed to do. The one picture is after the shower, and the other is after a day at work with no toilet paper, so you can see how much discharge is present. Please help!
  15. I think I might have Genital HSV (yet to be confirmed by a test, I have to wait couple more months for a definitive WB). Has anyone experienced burning like pain in different parts of the body, which quickly moves from one spot to another ? I feel pain in front of my knee of my left leg for a few seconds or a minute which they moves to my left leg thigh or calf and then moves to my hand fingers or arms. I also feel pain behind my shoulders, and lower and upper back pain. I am also observing almost constant Tinnitus, which seems to have gotten worse tonight. I am seeing an ENT tomorrow for the Tinnitus. I had felt the muscle near my right ear twitch for a few seconds one day and now I have Tinnitus which has me scared if Herpes has caused nerve damage etc. I had also felt nerve twitching for few days in my left foot, which was limited to a very small area, of my foot. It used to be noticeable which sitting or lying down. Now I have on and off nerve or muscle twitching in my left calf, again limited to one very small spot or almost a point. Please share if you have had similar kind of pain due to Genital HSV ?
  16. tayelle

    Ulcer pain

    Hello, I am currently have an ulcer that has caused excruciating pain. This is the first time I have have an ulcer like this. I was late with my lemon balm this time and i think its only making it worse. Its flesh colored and i need help healing this one and riding of the pain. (Im already on episodic valtrex 1g for this ob but it's not helping with healing process or pain). Suggestions???
  17. Well, it's been one week since I was diagnosed with HSV 2, genital herpes. I'm a 26 year old female and I've only had sex with five men in my entire life. None of them have ever shown symptoms, as far as I know. I originally started feeling like I had a yeast infection (I get them semi-frequently) and I started to get sick. It felt like I had the flu, or something similar. Because of what I know about my past sexual partners, I'm pretty sure that I've had herpes for a very long time without having an outbreak, and never knew I carried the virus. Then I got really sick with a flu-like virus and my immune system was so lowered that it allowed a herpes outbreak to occur. My first outbreak was a living hell. Fever, shaking, sweating, my entire body was sore. I think I was also suffering from a flu-like virus so I'm not sure which symptoms were from the outbreak and which symptoms were from being sick. It hurt SO incredibly bad to pee. I thought I had a UTI so I went into the doctor and they did a pelvic exam, noticed a couple sores and swabbed one of them and it came back positive for HSV-2. I was DEVASTATED. I'm still trying to come to terms with it. I spent the first three days after I found out crying constantly. I had to notify the guy I had been sleeping with and that really sucked to have to have that conversation. He was actually pretty understanding about it. He went and took the blood test and it came back negative. So I knew that I at least didn't give it to him, which was sort of bittersweet. In a way, I was hoping to find out that he was the one who gave it to me, so that we could go through it together. So then I had to contact my ex who I dated before and that was also an unpleasant conversation. He doesn't have health insurance so he cant afford to take the blood test, so I'm helping him sign up for health insurance, which definitely isn't something I saw myself doing. I guess he said that he used to get cold sores in his mouth all the time when he was a kid. So he probably has it in his mouth and gave it to me. (We dated for four years.) It would just be my luck that I have genital herpes but none of the people I've had sex with do. I feel extremely alone, even though my family and a couple of my friends who I told about it have been incredibly loving and supportive. I feel like no one is ever gonna want to be with me again. I mean, if you could choose to be with someone who had herpes or someone who didn't, who on earth would choose to be with someone with herpes?! I feel like I'm not that amazing of a person to cancel out having herpes. I wish I could tell all of my friends about it but I know the stigma is SO negative and dark. I'm afraid I'll be judged. I'm afraid people will gossip about me behind my back. I feel like, in today's society, it's hard enough to find someone that you connect with and feel comfortable with. I'm terrified of rejection in general. And now I run the risk of being rejected because of herpes. I just don't know how I'll ever be able to open up to someone. When I broke up with my boyfriend in April, I felt like I was making a choice to be single. Now I don't feel like it's a choice. I feel trapped in my own body. My outbreak is finally starting to go down and the sores are healing. But I still feel this residual achy feeling or soreness in my vagina. I feel like I have to pee all the time and when I do it just feels really sore and achy. Is this normal? How long is this gonna last? Is my vagina ever gonna feel normal again? Also, what remedies do people have to deal with the pain of an outbreak? Any lotions or creams? Epsom salt baths? What helps? I could use some words of encouragement about living and dating with herpes. And maybe some tips on how to deal with the pain. And how long do symptoms/pain last after an outbreak? I feel like I have to pee ALL THE TIME. When does it end?
  18. Does this look normal or does it look like a penis with herpes? Never paid attention to my penis till I had sex and then started to worry about stds. Seems to wrinkly/cracked , doesn't hurt.
  19. Arrowhead

    hsv2 symptoms... Normal???

    I got my first ob about 8/1/17, and my last one was cleared about 9/10/17. For the last 4 weeks I've had groin lymph tenderness (bothersome), hamstring and butt slightly sore like I've worked out. My question is is this normal? Will it go away? I'm on suppressive antiviral drugs. I also take some mild supplements- vita B, C, D, garlic, lysine, sjw, selenium, echinacea, and zinc. I'm glad to be ob free for the last 3 weeks, I would eventually like to get off of antiviral meds and go with a natural suppressor. Im really wanting to start with the Olive Leaf Extract, but id like to feel 100% first, will I ever feel 100% physically again?
  20. fromseatoshiningsea

    Looking For Ways to Ease the Pain

    Hello! I have just been diagnosed with Herpes and I am currently experiencing my first outbreak. I have used an ice compress as needed and that really helps with the pain. However, I am a college student and I am forced to walk about campus which causes me great pain. I can't carry an ice pack with me everywhere so I am looking for any advice on how to keep my pain levels down. I have just taken some Tylenol extra strength and I hope it helps but nothing yet. Thank you in advance :-)
  21. Hello!! I recently just joined this forum today. I'm writing this for all my fellows whom are going through the same thing as me. It's crazy, I could barely find anything on a site that honestly helped except from hours on googling and trying everything. Before I start, here's some facts about me. I was diagnosed 2 years ago, within the 2 years I had 4 outbreaks. I'm on my 4th one as I type. ***NOTE EVERYONE IS DIFFERENT, AND YOU SHOULD ALWAYS TALK TO A DOCTOR, THESE REMEDIES HELPED FOR ME AND MAY DIFFER FROM EACH PERSON*** I've googled and googled, what some people's triggers are may not always be yours. Stress is not a key for me, like most people, I only get my OB in the summer. I still don't know what my triggers are, but what I do notice is sex is painful and that kinda gives me an idea. **BEST WAY TO SHORTEN YOUR OB** as soon as you notice or may feel like an OB is going to happen go fill up your tub with warm water, pour at least 2 handfuls of Epsom salt, I generously load my tub full. Soak in it for at least 20mins, but try for an hour. Getting out of the tub AVOID the area, pat dry Around the vagina then finish it off with your blow dryer on low and DRY , REMEMBER DO NOT TOUCH THE AREA, you will be amazed how much that speeds it up. Clothing* lose pants dresses, Keep the area well aired. Cotton undies. SLEEEPING WHILE HEALING, I know you're itchy best way to ease it is propping your bum up and have a fan pointed below, no pants on. ***medication*** I've tried it all, the one that works best for me is valtrex 1000mg twice daily, **PLEASE REMEMBER DRINK LOTS OF WATER, it will help with the stinging when you pee by far!** i would love love to answer any questions and like to help anyone. My OB last for 5 weeks, this cuts it down to 2 weeks
  22. A friend of mine suggested I try glutathione cream, because of its immune boosting health benefits. After a full weekend of sun and drinking, I felt the early signs of an OB. I had pain along my outer thigh (my usual OB site) and sacral area, the pain includes shooting electric pain and burning. I applied the cream all along my outer thigh, and the back of my thigh, as well as my sacral area (where the dermatomes are located, as well as the nerve root). I applied the cream three times that day, and the next morning the pain and sensations were gone! I kept applying the cream 3x day for the next couple of days and then just once a day. I haven't had an OB since doing that. The cream I use is from Apex energetics called "Oxicell" http://www.completenutritionandwellness.com/shop/oxicell-k-22-1-6oz-pump.html Like I mentioned above, my Ob's happen on my outer thigh. I don't know how helpful they could be in other areas, but I had to share how amazing this stuff is!
  23. I am riding out my first OB of ghsv2. Most of the twenty or so ulcers have scabbed over and are healing after a week, but a few of them that are on the inner lip of my labia are not healing at all. Still swollen, red, open sores. Because of their location it seems like I can't keep them dry unless I'm laying around with my legs open all day long, which is impossible, I have two small children to care for. What can I do to speed this up? I am on Valtrex, I've tried essential oils, a beeswax based lysine cream, even antibiotic spray with an anelgesic in it which burned like a motherfucker before numbing it for a while. I can't function at all, it's stinging, chafing and raw all day long and I can't even sit down. Any suggestions are greatly appreciated.
  24. Hello all. I wanted to share some stories with everyone here so that everyone understands they are not alone in this. I made a petition recently to raise awareness about herpes. It's steadily gaining a lot of support on social media. The MOST powerful thing is reading the stories of people who have been diagnosed. It is heartbreaking to read, but it's also the experience everyone needs to see. People need to understand that the STIGMA is the WORST part of this disease. If you decide you want to sign the petition (AFTER reading it over), please know that PLEASE READ BEFORE SIGNING PETITION: Please know that you do not need to sign the petition with your real name or e-mail address. Please protect your privacy. Your name is NOT what we need. It is your support that matters. If you do decide to use your real name and e-mail address, please note that if you comment (your name and location will be revealed). If you sign but do not comment, neither the petition creator nor anyone else who signs the petition can see it. However, the petition is on change.org. Please know what you are comfortable with. I wish people wouldn’t cast judgement for supporting a good cause, but that’s the aim of this petition. We aim to change how this condition is perceived. You can absolutely lend your support using a different name and different e-mail address. There is no need or obligation to reveal your true identity. If you have already signed and commented, please feel free to remove it and sign in with your alternate name. Please hang onto your new e-mail for when we post updates! Your help is essential! https://www.change.org/p/herpes-a-medical-condition-like-any-other-with-the-stigma-unlike-almost-any-other/w?source_location=petition_show Here are the stories of people with herpes. Here is what they are asking for. Let's help them. Let's help ourselves.
  25. I have been experiencing numbness and my hands become claw like and I can't open them up without difficult. Has anyone else experienced something like this.
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