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  1. Has anyone else experienced the painful tingling sensation (not to be confused with hyperaesthesia/ skin sensitivity) outside of the localized area of where they typically get their outbreak? I'm a woman. Have had genital herpes for about 8+ years. The most frustrating symptom for me has been the above. I don't often get blister outbreaks. And when I do it doesn't present like the Google image searches - blistering clusters. I get one very small sort of barely perceptible raise in skin that barely hurts. My most persistent "symptom" of my HSV 2 diagnosis has been that painful tingling EVERYWHERE. This is something I've only ever noticed after my first outbreak - having experienced that same exact sensation then. Shortly after it started happening everywhere. Not just the labia area. I experience isolated painful stabbing throbbing in my ears, fingers, chest, nose, arms, fingers, back, legs, stomach... literally anywhere. It happens for 2-6 days every 2-3 months or so. I've complained about this to my GP, Ob/Gyn... even a infectious diseases specialist. As you can imagine it's annoying, it hurts, it's depressing, am I contagious when this happens... lots of questions. All of the HCPs I've visited seem totally ignorant to the various symptoms of a herpes infection outside of "outbreaks" and "well I hear sometimes ppl have skin sensitivities and tingling in the infected area." I'm just very frustrated. What I'm experiencing seems to be common enough. Granted everyone experiences every disease differently, but again this seems common enough that their should be a subject matter expert on it.. somewhere???? Could you refer any specialists/researchers? Daily anti-virals don't seem to stave off that tingling. Or if you think what I'm experiencing has zero to do with herpes... interesting, since it only started after herpes and feels just like that tingling, but I would like to know what you think too! lol Sincerely, Frustrated by this disease no one seems to take seriously but yet everyone is scared of
  2. HSV2sucks

    Newly Diagnosed & Depressed

    On Feb 10, I slept with somebody new. I specifically asked him if he had been tested for HSV and HIV via blood test. He told me he had just been tested two months ago and everything was negative and he hadn’t slept with anybody in a year. He either lied to me about being tested or lied about his status. I believe he knew he had HSV2, was not taking antivirals, and didn’t care if he infected me. Now he is using it to make me feel like I HAVE to stay with him because we both have this. And he is minimizing it. I am in pain, depressed, having suicidal thoughts (don’t think I’d act on them), and feeling hopeless. I have nerve pain all over my genitals, my lower back, my butt, back of my legs. It’s a constant pain and burning. I’m also bleeding as if I’m on a light period! ITS AWFUL! I don’t understand why anybody minimizes this!!! INFORMED CONSENT IS SO IMPORTANT! I feel violated! I’m so angry
  3. I am experiencing a lot of nerve pain, numbness, shooting pain, back pain, leg pain, pain in my butt cheeks... and I found some studies on nerve pain & HSV... https://jamanetwork.com/journals/jamaneurology/fullarticle/795486
  4. ambervn

    Is this herpes?

    I’ve always had a problem with razor bumps, very bad problem. But this time, I’m not too sure if this is genital herpes or just regular razor bumps. I’m waiting on my swab culture test to get back to me, but it takes a couple of days. I recently used a razor that was super old, so I really hope its just razor bumps and not herpes. Im starting to let the hair grow back in and so far, when I pee it doesn't hurt anymore, so maybe that’s a sign of it healing. I noticed the bumps when I was having intercourse and I had to stop because the pain was bad. Those are the only signs I noticed that these bumps could possibly be herpes, painful intercourse, burning sensation when my urine touches the bumps. But these also are symptoms of razor bumps.
  5. Does anybody have any suggestions on how you deal with pain at work or when you are out? I have hsv2 I am in the beginning of a break out this one is bad. I can’t really afford to call in so if anybody has any tips I would greatly appreciate it! Thanks.
  6. Morty123

    Elsberg Syndrom " neuropathy"

    Hey guys for those who struggle with daily nerves pain with doctor saying its not related to Herpes, please have a look on "Elsberg Syndrom" on Google. It describes exactly what we have, there are few study of it. It's important that doctors are aware of it, changing the vision they have of herpes, which is not just a "skin condition" for some of us
  7. Hey folks. I posted here last week, I didn't include a picture so here it is. Also my previous post if no one saw it. Does it look like herpes to you? ----- Hey guys and girls. Anyone any advice for me? I feel at a loss. I haven't been properly diagnosed, only a visual diagnosis. On Friday night I was with my fella, we've been seeing each other for 5 months and always used a condom. Everything was fine, then Saturday I felt a little nippy down below. Sunday came and I decided to have a look down there. I was horrified at what I saw. In the entrance of my vagina was a rather large white patch,it looked like a hole, filled with white stuff. After that it got really painful to pee, very painful to walk and even sit down. I told him it looks like herpes, as I googled it. So that night I took a bath, and had another look after my bath. The white stuff had gone, and honest to God all i could see was a bright red looking hole. So this morning I went to my local clinic, and had a nurse take a look. she said it does look like herpes, it could be herpes, but it may not be. She tried to take a swab but the pain was that bad that everytime she touched it you had to peal me off the ceiling so she had to give up, gave me anti viral medication and an ointment to apply and I've to go back next week. I've had my suspicions for a while now as my ex had coldsores, and after a night with him I started to feel funny down there. This was a year and a half ago. Eventually I got diagnosed with vulvodynia, which I'm now thinking it may have been herpes all along. I don't know what to do. Feel disgusting. My boyfriend says if we'd never break up over it, but I'm an over thinker and I'm thinking the worst. I only done 2 things different last week, I used a hair removal cream, and used a different condom to the ones we had been using. Racking my brain trying to think of what else it could be, but honestly I do believe it's genital herpes and I'm gutted. It's the worse physical pain I've ever been in, peeing is the worst.
  8. Ive been going through hell, itchy tailbone, clear discharge, difficulty urinating, pain on tip of penis dull back pain and now this rash..Please someone help. I cant take it! Ive been tested but it was negative. Maybe too early idk just please help.
  9. Approximately 5 years ago a girl gave me a peck on the lips, I wiped my lips off. The next morning I woke up with a painful rash all over my top lip that dried up and resulted in chapped lips, where the skin died and regenerated. No pus or obvious cold sore. I have had this same outbreak approximately once a year in the same place except for this year where I have had it almost continuously, I have been very stressed. I went to the doctor who says it isn't cold sores (I have to wait 2 weeks for a blood test), however I have found someone ( To those with oral HSV2 only by Penumbra,) who tested positive for HSV2 by blood test with my EXACT symptoms. Before an outbreak, my lip/nose area is tingling a lot and I feel a strong twitching in my lip. Is it possible that I have mild cold sores? I would greatly appreciate any help
  10. Dear all, first of, i’m thankful I found this website. I’ve been diagnosed with genital warts a few months back since April and it hasn’t been pleasant. As I was doing my treatment for genital warts, immediately as I went home I realised some small bumps which then immediately turned into huge yellow ulcers that really hurts like shit. Hence I went back to my doctor the next day and she was surprised as well, 1. Is there a chance of contacting genital herpes from oral sex? 2. I do not have any blisters Nor rashes but these sores does hurts and pee-ing is just terrible, it burns so much. 3. How do one survive with being diagosed with herpes? 4. Any chances of soothing the huge sores that i’ve have? 5. I’ve been given some anti-vira medication, any idea how Long does the outbreak takes? 6. Does that means there’ll be no more unprotected sex from now on as I might pass this virus to my partner? 7. Pretty sure I’ve gotten it from this Australian guy, but I haven’t been able to tell him to go for a check up and all. Please feel free to give me suggestions and ideas on this thread as i’m In a lost now and have completely no idea what’s the next step. I can’t seem to upload the photos of the sore here, so if anyone could help, please let me know as i’m Desperate to clear the pain.
  11. cracked


    Hey everyone. I’ve read a lot of posts and have talked to some people from the forums who suffer in various ways from this virus. I’ve also heard the term ‘neuralgia’ being thrown around in posts, but have yet to figure out what kind of pain and its origin is for all the people that said they experience it. Please do me a favor and comment below about your experience with it and where it causes you problems and what kind of pain is it exactly? This might help some other newer members also understand. Thanks.
  12. MagentaLace

    Severe Pain

    Hi, I've recently been diagnosed with herpes. At first, it was a sore, then spread to multiple sores that hurt severely when I'd pee. I haven't been eating much. It has been a week and the sores don't hurt as bad, but the pain from my lower back hurts all the way down to my toes. It is severe nerve pain and my skin feels flu like. It is constant. This is my first outbreak. Has anybody else experienced this. The pain is so excruciating I want to throw up.
  13. Lk2404

    Newly diagnosed and alone

    Hello all, I’m a female and was just diagnosed GHSV 1 and I’m devastated. I really need someone to talk to about their experience. I’m at the end of my rope with general practitioners and their horrible bedside manner. If one more person spits a statistic at me or dismisses the psychological pain I’m going through, I’m going to lose my mind. Cannot see a psychologist for another week. Seems like nothing will ever be the same. Please help me.
  14. Im 19, I don't know how this happened but it did. I have not got my results back but I am 110% positive i have herpes. There are bumps lesions and open wounds everywhere, and i show all symptoms. At first I was very suicidal on the fact that I could be HSV2 positive but my mom calmed me down.she told me, it is what it is, and that I can still manage to have a normal life despite this. Im very scared as of right now. Im over the fact that it is herpes but i am in terrible pain. I can't sit i can't lay down i can't stand, walk or move. I had to sleep sitting up last night. I am scared to go pee as it burns tremendously. The doctor could not give me medicine until the culture comes back from the lab so Im hoping i can get an antiviral in my by tomorrow. I read that garlic helps so I've been taking garlic pills. Is there anything i need to know. Is there anything i can do/take to ease the pain. I tried pouring water on me when i pee but that did not help. Im just scared, i don't have a support group in person. Im in college and am embarrassed to tell anyone. Only my mom knows and she's across the country because I'm an out of state student. please help ! I'm desperate
  15. https://www.archyworldys.com/in-russia-developed-a-dna-vaccine-for-herpes/
  16. https://www.change.org/p/give-rational-vaccines-a-moment-to-speak-to-congress-about-the-burden-of-herpetic-disease?recruiter=659087102&utm_source=share_petition&utm_medium=twitter&utm_campaign=share_petition
  17. Concernedteen

    Not sure if rectal herpes

    Hey everyone, Hopefully someone can give me advice. I’m a gay bottom (receptive) and hooked up on the 22nd of February (currently the 5th of March.) during sex, no condom was used, and the guy swore that he got tested regularly, and never had any STI’s. Thursday night (March 1st) I started noticing some pain when I was walking, around my rectal area. The area was really moist, and I had started going to the gym a lot that previous week and doing a lot of stair-stepper workouts, so I thought it was chafing or a rash associated with that. But the more I looked at pictures of rashes, I’m convinced it’s herpes.. I had the Chickenpox when I was a little kid, I’m not sure if that’s relevant. But I’ve been walking around with toilet paper wedges between my butt cheeks because that’s the only thing that helps reduce pain and keeps the area dry, which I read is what you’re supposed to do. The one picture is after the shower, and the other is after a day at work with no toilet paper, so you can see how much discharge is present. Please help!
  18. I think I might have Genital HSV (yet to be confirmed by a test, I have to wait couple more months for a definitive WB). Has anyone experienced burning like pain in different parts of the body, which quickly moves from one spot to another ? I feel pain in front of my knee of my left leg for a few seconds or a minute which they moves to my left leg thigh or calf and then moves to my hand fingers or arms. I also feel pain behind my shoulders, and lower and upper back pain. I am also observing almost constant Tinnitus, which seems to have gotten worse tonight. I am seeing an ENT tomorrow for the Tinnitus. I had felt the muscle near my right ear twitch for a few seconds one day and now I have Tinnitus which has me scared if Herpes has caused nerve damage etc. I had also felt nerve twitching for few days in my left foot, which was limited to a very small area, of my foot. It used to be noticeable which sitting or lying down. Now I have on and off nerve or muscle twitching in my left calf, again limited to one very small spot or almost a point. Please share if you have had similar kind of pain due to Genital HSV ?
  19. tayelle

    Ulcer pain

    Hello, I am currently have an ulcer that has caused excruciating pain. This is the first time I have have an ulcer like this. I was late with my lemon balm this time and i think its only making it worse. Its flesh colored and i need help healing this one and riding of the pain. (Im already on episodic valtrex 1g for this ob but it's not helping with healing process or pain). Suggestions???
  20. Well, it's been one week since I was diagnosed with HSV 2, genital herpes. I'm a 26 year old female and I've only had sex with five men in my entire life. None of them have ever shown symptoms, as far as I know. I originally started feeling like I had a yeast infection (I get them semi-frequently) and I started to get sick. It felt like I had the flu, or something similar. Because of what I know about my past sexual partners, I'm pretty sure that I've had herpes for a very long time without having an outbreak, and never knew I carried the virus. Then I got really sick with a flu-like virus and my immune system was so lowered that it allowed a herpes outbreak to occur. My first outbreak was a living hell. Fever, shaking, sweating, my entire body was sore. I think I was also suffering from a flu-like virus so I'm not sure which symptoms were from the outbreak and which symptoms were from being sick. It hurt SO incredibly bad to pee. I thought I had a UTI so I went into the doctor and they did a pelvic exam, noticed a couple sores and swabbed one of them and it came back positive for HSV-2. I was DEVASTATED. I'm still trying to come to terms with it. I spent the first three days after I found out crying constantly. I had to notify the guy I had been sleeping with and that really sucked to have to have that conversation. He was actually pretty understanding about it. He went and took the blood test and it came back negative. So I knew that I at least didn't give it to him, which was sort of bittersweet. In a way, I was hoping to find out that he was the one who gave it to me, so that we could go through it together. So then I had to contact my ex who I dated before and that was also an unpleasant conversation. He doesn't have health insurance so he cant afford to take the blood test, so I'm helping him sign up for health insurance, which definitely isn't something I saw myself doing. I guess he said that he used to get cold sores in his mouth all the time when he was a kid. So he probably has it in his mouth and gave it to me. (We dated for four years.) It would just be my luck that I have genital herpes but none of the people I've had sex with do. I feel extremely alone, even though my family and a couple of my friends who I told about it have been incredibly loving and supportive. I feel like no one is ever gonna want to be with me again. I mean, if you could choose to be with someone who had herpes or someone who didn't, who on earth would choose to be with someone with herpes?! I feel like I'm not that amazing of a person to cancel out having herpes. I wish I could tell all of my friends about it but I know the stigma is SO negative and dark. I'm afraid I'll be judged. I'm afraid people will gossip about me behind my back. I feel like, in today's society, it's hard enough to find someone that you connect with and feel comfortable with. I'm terrified of rejection in general. And now I run the risk of being rejected because of herpes. I just don't know how I'll ever be able to open up to someone. When I broke up with my boyfriend in April, I felt like I was making a choice to be single. Now I don't feel like it's a choice. I feel trapped in my own body. My outbreak is finally starting to go down and the sores are healing. But I still feel this residual achy feeling or soreness in my vagina. I feel like I have to pee all the time and when I do it just feels really sore and achy. Is this normal? How long is this gonna last? Is my vagina ever gonna feel normal again? Also, what remedies do people have to deal with the pain of an outbreak? Any lotions or creams? Epsom salt baths? What helps? I could use some words of encouragement about living and dating with herpes. And maybe some tips on how to deal with the pain. And how long do symptoms/pain last after an outbreak? I feel like I have to pee ALL THE TIME. When does it end?
  21. Does this look normal or does it look like a penis with herpes? Never paid attention to my penis till I had sex and then started to worry about stds. Seems to wrinkly/cracked , doesn't hurt.
  22. Arrowhead

    hsv2 symptoms... Normal???

    I got my first ob about 8/1/17, and my last one was cleared about 9/10/17. For the last 4 weeks I've had groin lymph tenderness (bothersome), hamstring and butt slightly sore like I've worked out. My question is is this normal? Will it go away? I'm on suppressive antiviral drugs. I also take some mild supplements- vita B, C, D, garlic, lysine, sjw, selenium, echinacea, and zinc. I'm glad to be ob free for the last 3 weeks, I would eventually like to get off of antiviral meds and go with a natural suppressor. Im really wanting to start with the Olive Leaf Extract, but id like to feel 100% first, will I ever feel 100% physically again?
  23. fromseatoshiningsea

    Looking For Ways to Ease the Pain

    Hello! I have just been diagnosed with Herpes and I am currently experiencing my first outbreak. I have used an ice compress as needed and that really helps with the pain. However, I am a college student and I am forced to walk about campus which causes me great pain. I can't carry an ice pack with me everywhere so I am looking for any advice on how to keep my pain levels down. I have just taken some Tylenol extra strength and I hope it helps but nothing yet. Thank you in advance :-)
  24. Hello!! I recently just joined this forum today. I'm writing this for all my fellows whom are going through the same thing as me. It's crazy, I could barely find anything on a site that honestly helped except from hours on googling and trying everything. Before I start, here's some facts about me. I was diagnosed 2 years ago, within the 2 years I had 4 outbreaks. I'm on my 4th one as I type. ***NOTE EVERYONE IS DIFFERENT, AND YOU SHOULD ALWAYS TALK TO A DOCTOR, THESE REMEDIES HELPED FOR ME AND MAY DIFFER FROM EACH PERSON*** I've googled and googled, what some people's triggers are may not always be yours. Stress is not a key for me, like most people, I only get my OB in the summer. I still don't know what my triggers are, but what I do notice is sex is painful and that kinda gives me an idea. **BEST WAY TO SHORTEN YOUR OB** as soon as you notice or may feel like an OB is going to happen go fill up your tub with warm water, pour at least 2 handfuls of Epsom salt, I generously load my tub full. Soak in it for at least 20mins, but try for an hour. Getting out of the tub AVOID the area, pat dry Around the vagina then finish it off with your blow dryer on low and DRY , REMEMBER DO NOT TOUCH THE AREA, you will be amazed how much that speeds it up. Clothing* lose pants dresses, Keep the area well aired. Cotton undies. SLEEEPING WHILE HEALING, I know you're itchy best way to ease it is propping your bum up and have a fan pointed below, no pants on. ***medication*** I've tried it all, the one that works best for me is valtrex 1000mg twice daily, **PLEASE REMEMBER DRINK LOTS OF WATER, it will help with the stinging when you pee by far!** i would love love to answer any questions and like to help anyone. My OB last for 5 weeks, this cuts it down to 2 weeks
  25. A friend of mine suggested I try glutathione cream, because of its immune boosting health benefits. After a full weekend of sun and drinking, I felt the early signs of an OB. I had pain along my outer thigh (my usual OB site) and sacral area, the pain includes shooting electric pain and burning. I applied the cream all along my outer thigh, and the back of my thigh, as well as my sacral area (where the dermatomes are located, as well as the nerve root). I applied the cream three times that day, and the next morning the pain and sensations were gone! I kept applying the cream 3x day for the next couple of days and then just once a day. I haven't had an OB since doing that. The cream I use is from Apex energetics called "Oxicell" http://www.completenutritionandwellness.com/shop/oxicell-k-22-1-6oz-pump.html Like I mentioned above, my Ob's happen on my outer thigh. I don't know how helpful they could be in other areas, but I had to share how amazing this stuff is!
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