Jump to content

Had a biopsy, but another Dr. says it is herpes?


tooscared4words

Recommended Posts

I am a female who has been having some issues for a few years now. I get a mild rash about every 6 months. No blistering, no burning. Just redness and soreness.

The last time this happened I got in to see my OBGYN. She did a visual exam and stated that the "rash" did not look like herpes. To be on the safe side, she completed a hole-punch biopsy.

The biopsy came back as a hemangioma (clustered blood vessels) -- negative for herpes. Since that time, I have gotten the "rash" about 3 times and have had a miscarriage read: lots of blood work completed), and have been diagnosed with a blocked bladder and an on medication for that condition. I have had 2 OBGYNS and 3 Urologists look at this rash before and all have stated the "rash" was nothing to worry about.

Now my current concern; My OBGYN stated next time it flared to come in to see her. Unfortunately, she was on vacation and I had to see another Dr. in her office. He looked and said it looked like a "mild" case of herpes. He took a culture and sent it to the lab. I am now waiting for the results. In the interim he gave me a prescription for Valtrex.

I am sick with worry. My husband and I have been married for 2 years and have been sexually active for 2 and half. I purposely went to my OBGYN 2 times prior to becoming sexually active with my husband to rest assured that I would not have anything prior to engaging sexually with him. Now 2 years later, I am told I have herpes. My husband has had zero symptoms and no rashes at all (I know that really means nothing since this virus can go undetected for years).

I guess why I am posting here is to ask the likelihood of this being missed by 4 or more doctors AND a hole-punch biopsy.

Thank you for your insight and help.

Link to comment
Share on other sites

I can tell you of many cases where things are misdiagnosed... some cases look so different that a doc may base it only on what they have seen prior... and a biopsy is targeting specific things, did they target HSV?if you end up positive, I'd suggest telling the docs they misdiagnosed you - to help the next person. Honestly, I've been meaning to do that but I've been a bit angry about it because the doc looked at me when I was pregnant and was cold about my concerns... I'm just lucky I had a c section and no OBs during labor.

Good luck with your results - let us know..

Link to comment
Share on other sites

It was positive

The culture came back positive.

I know this isn't the end of the world -- but it sure does feel like a real show-stopper.

I guess over time I will get used to this. I am over the fear aspect -- now I am just angry. I am sure that too shall pass.

I am lucky -- my husband has been extremely supportive. Since we aren't sure if I was exposed first or if he was exposed first he is going to get bloodwork done to see if he is positive.

Interesting side note: My regular Dr. asked me if my husband had coldsores -- and if we had had oral sex -- obviously that would mean I had HSV-1 in the genital area. That caused me to ask her if the culture came back as HSV-1 or HSV-2. She said they don't even differentiate between the two anymore - it is so common -- she said 10 years ago when she was completing her residency they were very strict about defining which version -- now she said it really doesn't matter.

She said they pretty much act the same and pose no serious health risk -- other than the OBs and the potential to spread. She also said that it is estimated by 80% of Americans have one or both by the age of 65.

Has anyone else ever heard this?

Link to comment
Share on other sites

Yes, everything your doc said is true, except some docs still do type tests - mine did. The only point of knowing is to know if you're at risk for getting the other type. Thats all. It's easier to get type 1 lower than it is to get type 2 upper - but who knows...

I'm glad your husband is supportive. Even though we were starting divorce proceedings, when we both found out there wasn't much of the blame game - I think he thinks I gave it to him - I KNOW I didn't have it prior to him - I had major surgery - if I had HSV I surely would have had an OB. But it didn't matter - we had it.

Good luck dealing - it seems like your optomistic - good. I think it may be harder being single where is effects your future so much. I don't know.

Best wishes.

LM

Link to comment
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

×
×
  • Create New...

Important Information

We have placed cookies on your device to help make this website better. You can adjust your cookie settings, otherwise we'll assume you're okay to continue.