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need some advice from someone who has been there


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ok...just want some feedback from some personal experiences since doctors really arent helping...ive had red bumps consistantly for the last 8 months in my genital area...mainly around my hair folicles...when i shave or get waxed it makes it worse...i thought it was herpes and had a blood test...my doctor told me that i had hsv 1 but not 2 and some people contract type one when they are a child and have no problems...i have never had a cold sore in my life...but lately the bumps down there have been causing me some discomfort...im not sure what this means since my doctor said it isnt herpes...but in the last few days i have also noticed that on the inside of my bottom lip i have patches of white...it doesnt hurt or anything and it goes away when i brush my teeth...is that a form of oral herpes that maybe i never noticed until i got my diagnosis?? also i saw my ex for the first time in months last week and he had huge sores on his lips...where do i go from here??? some advice would really help me out...thanks i know people read a lot of these stories every day...but im really stuck

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Hi em, Well I think you should consider the fact that maybe you dont have Herpes "down there." They say up to 80% of people dont know they have herpes, so that means its common for people not to have any outbreaks. Maybe you have oral herpes but no symptoms. and the bumps down there are ingrown hairs from waxing. now that i think about it, i got a brazilian wax last summer and i have 1 bump from a ingrown hair and i still have it a year later. maybe your just really sensitive to the waxing, its totally possible. You could get a second opinion with a different doctor. about your ex,dont even worry about his coldsores, cause he could of got them in the last few months since you saw him. You know if it was herpes shaving and waxing wouldnt make it worse, but it would make ingrown hair and irritation from the wax/ shaving worse. really im not a doc but i think maybe you dont have it??????? ladybug

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    • Jeremy Spokein
      Thanks, CHT. I appreciate the feedback. The whole trauma of going through this has led me to figure out a lot about myself and my attachment wounds, so I'm taking courses to come out of this better. This girl really was my dream woman in so many ways, it's been the hardest heartbreak to deal with ever. I'm truly in a lot of pain, but using the pain as fuel to launch that new business and work with coaches. I also opened up to my family about HSV, so my parents and sister know now, and they were very loving and accepting of it. Since opening up about it, I feel way better around this thing. After opening up, I also found out that some mutual friends in our family have discordant couples who are married with children, so HSV hasn't stopped them from living a loving life. The thing is... all of these couples I mention did not disclose until 6-8 months into the relationship. So now I'm thinking it might be better not to disclose until I know things are very serious. I'll of course stay on the medication and use protection, but maybe this is a better route than disclosing upfront and scaring women off.
    • WilsoInAus
      Hey @Lcj987 and welcome to the website. You can be sure that isn't HSV-2, looks nothing like it. It is much more likely to be folliculitis or inflamed fordyce spots.
    • WilsoInAus
      Hey @JackThrowAway herpes causes an outbreak where it enters the body first and maybe a progressive spread. If it doesn't cause an outbreak at the entry site then it won't cause one elsewhere, it also won't 'jump' upon infection - it would be more likely that the lesions are continuous from the penis to the anus. Nevertheless, testing trumps symptoms or any interpretation of symptoms. The correct conclusive result arises when: you have a positive swab; or An IgG HSV-2 level over 3.5 (Herpeselect test).
    • Lcj987
      Slept with someone unprotected, roughly 2 weeks ago now. I felt generally unwell the couple of days after but I’d been drinking the whole weekend and didn’t have much sleep either of the days of that weekend so put it down to that. 6 days after I noticed these spots appear on the shaft of my penis. Along with symptoms of discomfort in my shaft in the couple of days prior to them appearing. No pain when urinating at all that I have noticed. They don’t hurt, itch or tingle and they don’t have fluid in from what I can see or feel if I squeeze them and have never burst? I went to a sexual health clinic to get checked up, they took bloods to do a full test and looked at the spots but said they saw nothing that concerned them but I’m not sure about that, any advice? The smaller spots under the shaft are just follicles I had diagnosed years ago and non-sti related.
    • JackThrowAway
      She tested positive for HSV2. No, there was nothing of that sort in that area.   However I also have ulcerative colitis so I’m on medication that makes me immunosuppressed. I have been bleeding a bit when I pass stools during the time of redness, so I’m unsure if I’m getting a flare from the colitis (from all the stress of everything) or if it’s due to the virus making it’s way to an already inflamed area and popping up as blisters that I can’t see and hence the bleeding.    I had two equivocal results (at 4 weeks and 6 weeks) that then went to a positive result (7 weeks after exposure). Combine that with some flu symptoms, redness, tingling etc. makes me feel it’s conclusive that this points to a hsv2 infection.
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