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Is anyone having this symptom??

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I originally put this under the newly diagnosed heading but I think the it should have been under this one. Is anyone having this type of problem?

I was diagnosed in July with hsv1 (1.82) and hsv 2 (4.40) Herpeselect so I'm still trying to deal with this emotionally.

Like I said in my first post I have only had one sore down there probably close to a year ago and had no idea that it could have been H, thought maybe it was a shave bump or pimple. Ex boyfriend told me first week of July that he may have exposed me and I needed to get checked. I did, doctors confirmed and put me on Acyclovir 400 mg twice a day.

Now tonight as I was worrying myself sick about this again, I was looking on a website where real people were talking about Acyclovir and the long term effects. It seemed like alot of people were experiencing hair loss and some with kidney problems.

My doctor was only going to put me on episodic treatment if I had an ob but asked me if I was sexually active. Which, I am not BUT have been talking to a man and wasn't sure if in the future would lead to that or not. I have told the man about my condition and he is still wanting to pursue our friendship.

Now, I'm panicking wondering if I should NOT be on the suppressive (long term) therapy but just keep getting the prescription filled and take it only if I get an ob. I DON'T want to lose my hair and I definitely DON'T want kidney problems (renal failure). I also feel like I'm tired and sleepy all the time and my back hurts often. I'm scared.

Another thing that has been bothering me is my lips. Before I was told that I do have H, I never really noticed anything unusual about my lips other than being chapped often but now I am constantly feeling like they tingle all the time and am wondering if I am trying to get a sore on my lip. I've been using Carmex and I keep checking my lips but every little twitch or tingle has me going paranoid wondering if I'm getting and sore.

Has anyone that has been on long term use of Acyclovir here had any signs of losing hair? For mild or no ob, do you take no meds or eposodic or suppressive. I'm just not sure what I should do....This is so frustrating!


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I have heard of hair loss... And it's okay to just take the meds during an OB.. it'll be fine... some people don't use supressive therapy and are fine...

others take the therapy to protect a new partner (extra)

Anything else going on??

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Toxicity is not really common many people have been on suppressive therapy for years and years without incident but obviously you should have regular check-ups to make sure you continue to have normal kidney and liver function. Your liver and kidneys can repair themselves in most cases even when drugs have damaged them so long as you discontinue use.

Episodic therapy is probably not likely to cause either hair loss or toxicity.

As a note hair loss is a known side effect but not amongst the most common side effects. Also it is not known as a side effect of famvir which is a similar drug, so if you find you are having hair loss you can switch to famvir.

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    • rareangel
      You really need to slow down or stop with your fear mongering. You are not deep in things of this nature as I am and we know the bottlenecks we face everytime we offer proof of what we have achieved as naturopaths. We are often rejected right at the door but does that stop us? Those who manage to accept us end up declaring what we do ineffective but later turn around and synthesize what we provided and began using it themselves simply because they believe they are more scientific than we are.   Much of conventional medicine was derived from nature and that should let you know that nature already holds most of the answers to our health but if anyone can easily get help from nature, then where is the money in it for big pharma? Diet alone does not handle hsv. I included a diet plan in my response to you but besides that, there is also the remedy which is most important. (This should let you know that I know what I am doing and saying) I did not come to this forum to play cloaks and daggers with anyone but to genuinely help. You should sound more encouraging and not judgemental. Hsv isn't a life sentence as many have been made to believe.
    • rareangel
      Thank you for posting our email conversation and also thank you for proving what I said about the mindset of people toward naturopaths especially when you suggested I could be a millionaire if I approached a scientific body.    If unscientific people such as you can easily be this judgemental and bigoted, how then do you think the truly scientific ones can be? Hsv is not as difficult as it is made to look. Indeed no illness is with the right treatment all illnesses that do not require surgery are easy. I run my own tests and have treated my own patients and have my own proofs. Surely you wouldn't expect me to forgo a patient confidentiality clause and release information on my patients to just about everybody do you?   If you were my patient would you want me to splash your details all over the web so anyone can have access to it?   People are afraid of what they do not understand so I understand your position and mindset but try not to label people from your position of insecurity. Not all of us are insecure.
    • Roja
      I am judgemental with people who try to take advantage of thousands of people, yes. Because I am sure some of them believe what you say and spend their savings in your "cure". And btw, I am a big fan of natural remedies. I believe that diet is one of the best ways to handle the virus. But I am also aware of the fact that it is up to now not possible to "delete" the virus. Maybe big pharma is trying to hide something, yes, but I don't think every single doctor and medical professional is lying to us. These people are professionals, they studied the human body for years. Do you really think all the doctors around the world would hide a "cure" like this for money?
    • Roja
      So you did not "just join this group".    So yeah, for everyone who is interested, I'll copy your e-mail:  "Good morning [name], The treatment for hsv from me lasts for a minimum of 3 months. The sequence of treatments goes thus 1) month 1 takes care of every symptom of hsv 2 you would ordinarily experience prior to or during an outbreak such as itchy/tingling sensation, feverish feelings and water retaining breakouts. 2) month 2 is the full body flush also done with one of my remedies which is pleasant tasting and calming to the body. This dislodges the virus from whatever nerve endings it has gone into and causes a weakening of the cell membrane in its envelope stage. 3) month 3 is a repeat of month one plus extra. The virus is killed off after the once impossible to penetrate cell membrane had been weakened and breached by the flush. Virus dies and patient at this stage would feel totally renewed and refreshed and free. Patient may experience an outbreak during the course of treatment which is expected but the appearance of the outbreak would prove patient is on track and doing well because the outbreak would be totally different from what used to be as I guarantee, no feverish feelings, no itch or tingling and no water retention in any rash that may appear. By the time we are done you can say goodbye to any form of breakouts be they stress triggered or not as you test negative. My remedy has zero side effects and works like a charm. Cost for each months treatment stands at $380. Patient has the option of running a monthly treatment thus paying monthly or paying for the entire 3 months and receiving all the remedies for the entire 3 months with directions on how to prepare them and the dose to take per time. Patient would also be required to keep in touch with me thus providing me with updates regarding progress reports so I can know if there is need to increase the dosage or leave it as it is. A diet plan would also be provided for the patient during the course of treatment. Long story short, I will work with patient for the entire 3 months of treatment up to the point of testing negative. Good morning once again. [Name]" So: 1) Not even one scientific proof. How should anyone believe your clients are "negative" if you can't prove?  2) 380 x 3 = 1140 $ for something that has no scientific proof at all AND moreover for something that up to now is IMPOSSIBLE. "This dislodges the virus from whatever nerve endings it has gone." Come on, that is impossible, as well as killing HSV from anyone's blood!  Again, you are a scam. And I feel so sad for all these desperate people who pay you a minimum of 1140$ for a treatment that doesn't work. 
    • rareangel
      The rule here says you should not be judgemental and you are already judgemental.   We are communicating via email and you got my permission to post whatever we discuss via email on this forum and I just sent you your first detailed reply and you are yet to post it here yet you have already labelled me a scam.  Do you now see why I said earlier that we naturopath's get the short end of the stick from skeptics like you?   I suggest you make amends to your post and stop being in a hurry to label everyone you see.

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