I'm really sorry you're going through this. The good news is your recurrent outbreaks shouldn't be nearly as bad. The fact the guy didn't disclose and now won't respond is beyond rude but unfortunately thats how shitty ignorant people are. Sadly there is lot of people who don't know they have it or don't care enough to actually tell the person if they do. Did they swab the sores for an official diagnosis? Hang in there.
I'm actually in the same situation as you are, and have seen many doctors pertaining this.. But every MD I see states that my child would be very sick by now and probably would have died.. But I keep reading about cases where meningitis and encephalitis went undiagnosed and the only way they were apparent was when the child wasn't meeting big milestones and that's what scares me.. It also scares me that she keeps having outbreaks and they are being taken care off.. Any one know if my child had contracted hsv from me from birth, and had hsv meningitis or encephalitis would it be very obvious and would she by now have gotten worse with all these outbreaks? Also the tests that they have done on her were swabs month of age.. PCR of the blood at 3 months of age.. And igm and igg antibody test of blood also.. All of which were negative.. But it also scares me that the virus just wasn't present when they did these tests or it wouldn't of been picked up by these tests and the most accurate test (spinal tap) is what they are refusing to do because they state that she would not look/act this good.. Can someone with experience please help?
Perhaps this is a reaction to something you are using topically on your baby or even the diapers. Such a sensitive area would react to any irritant. I truly hope you find your answers quickly and please know there are very intelligent people here to help because they have amassed a great deal of knowledge directed at this virus. We are very motivated to find answers for ourselves and to help others.