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crystlicewtr

This is too new...And that really scares me...

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crystlicewtr

When I found out I was diagnosed with Herpes I was beyond ashamed. From what I've heard of it was an STD, something someone got when they sleep around a lot. Well, I've only slept with one guy, and he has cold sores. For some reason he and I never really thought about the fact that because he didn't show signs of it doesn't mean that i couldn't have gotten it.

Anyways, I have herpes in both my mouth and my genitals. Whereas his is only the mouth...

I'm terrified. I don't know what to expect, and when i had my second outbreak I had to figure out what to look for because nothing my gyno gave me told me anything that i didn't already know(which isn't a lot to being with).

I have no one to talk to, and I don't think I can talk to my boyfriend about it because I don't want to sound like I'm accusing him of giving it to me because it was both our faults.

My parents don't know much about it, they don't really talk about it either. I just tell them how much I need for the meds and that's it.

I came here because I think I'm starting to become depressed, thinking that I'm somewhat less of who I once was, and I feel ashamed. Though above all else terrified.

I don't know what to do or how to avoid spreading it further to others or to myself. I'm even too scared to kiss my friends or family on their cheek like I used to all the time.

I need at least one person to talk to...please??

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WarriorKing

I am here. It may be a slow day right now, but there are hundreds here as well. Post at least twice and we can do real time chat

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SAS29

I am sorry, I just found out yesterday that I had herpes. Its a really scary thing but your def. not alone. I feel the same way as you....depressed, ashamed, etc. :( so I completely understand your thoughts.

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OverDecadeDeep

I understand also. I suffered more from my own mental tortures like stigma, future relationships, feeling "dirty", and the fact that I , like you , knew my partner had HSV. I'm recently single and having to come to grips with my sickness to keep everyone safe.

Its important you talk with your boyfriend or someone you can trust. You will feel better. I was actually sleeping terrible for months after my break up, I just thought it was the break up (combined with less..hmmm..smoking.) I finally came to tell my Mom, who was supportive, and my sleeping returned to a normal schedule, looking back it is clear to me I was holding this secret to myself and it was slowly taking me over. This site has helped also.

Dont feel depressed, or too deep at least, just because you have hsv doesnt mean your not yourself anymore. Good luck, support is close.

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WarriorKing
What's "real time chat"?

The top of the screen has a link that says "Live Chat", which is a chat room for us, sometimes busy, and sometimes empty. The postings and answers to postings is the most active part of the site, but if you find people in the chat room it is nice to get immediate communication.

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  • Posts

    • Trace67
      It doesnt really mean much yet. They still dont know if the herpes is taking advantage of a diseased brain or causing the disease. Furthermore, there is evidence that Alzheimer's might be caused by oral spirochete disease and even Lyme. Many of you could have oral Spirochetes but the Lyme and is less likely. https://globallymealliance.org/pathogen-cause-alzheimers-disease/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5008232/ https://newsblog.drexel.edu/2016/02/10/do-infections-cause-alzheimers-disease/   Of course it could be both! Maybe having hsv-1 and oral spirochetes quadruples the risk.  In my opinion the spirochete theory sounds more likely and its hard to dismiss neurosurgeons and caretakers getting Alzheimers from a disease that was previously thought to be non contagious. I'd worry more about Spirochetes.  
    • Rgs77
      Did ldn work.
    • honkschonks
      I wonder if people in the military are tested for hsv, because the general public isn’t. You have to specifically ask for it and many doctors don’t even see the point because it’s “so common”. It’s very possible he has it and has no symptoms or very mild random symptoms. Sorry to hear what you’re dealing with. It seems like women’s symptoms are worse than men’s.
    • WilsoInAus
      No that’s not the issue at all. The absolute vast majority of nerve pain is not caused by herpes. Hence it cannot be used to reverse engineer a diagnosis of herpes. That is exceptinally dangerous and we must do all we can encourage proper diagnosis.
    • ill47
      Do you have an APOE4 gene? I do. I also have HSV-2, which so far hasn't been linked to dementia. Itzhaki previously found that cold sores occur more frequently in those who carry a gene variant that confers increased risk of Alzheimer’s called APOE-ε4. "Our theory is that in APOE-ε4 carriers, reactivation is more frequent or more harmful in HSV1-infected brain cells, which as a result accumulate damage that culminates in development of Alzheimer's," she said.

      So basically, if you carry the APOE4 gene and have oral HSV-1, you chances of dementia could be quite high. But if you have APOE4, your chances of dementia were higher already. Look, 80% of the population has HSV-1. 80% of the population does not get dementia. You also seem to skip over the fact that antiviral treatment can reduce the increased chances of dementia to almost nothing. "The striking results include evidence that the risk of senile dementia is much greater in those who are infected with HSV, and that anti-herpes antiviral treatment causes a dramatic decrease in number of those subjects severely affected by HSV1 who later develop dementia," Itzhaki said. The data from Taiwan only applies to the rare severe HSV1 or VZV infections. The next step will be to study dementia rates amongst people with mild HSV1 infections, including herpes labialis or mild genital herpes. "Considering that over 150 publications strongly support an HSV1 role in Alzheimer's, these Taiwan findings greatly justify usage of antiherpes antivirals - which are safe and well-tolerated - to treat Alzheimer's disease,” Itzhaki said."They also incentivize development of an HSV1 vaccine, which would likely be the most effective treatment." I think it behooves you to do your research and actually read the articles you are posting before pulling the alarm and trying to scare people. 
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