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amokwithit

Hey all! I'm new here!

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amokwithit

I recently discovered this site and couldn't be happier. Sometimes I feel like I'm the only person in the world with this (although we all know that isn't the case!). I have had herpes for 23 years and feel that this is not the worst thing in the world to have. Honestly, it hasn't really affected my life or relationships at all. For anyone who has recently been diagnosed, please do your homework and learn all you can about it. This does not define who you are or make you a bad person. Believe that. If anyone wants to chat, I'm here.

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unlucky4life

Thanks for your message. It made me feel better.

Do you know a lot about test results...I posted else where and nobody answered my question. I was positive 3 months ago for viral culture for HSV 1. I got a blood test too and it was negative. The MD figured it was new infection then since my body didn't have time to form antibodies. so, it's been like 15 weeks since my outbreak and I got reblood tested to confirm HSV-1 diagnosis and it's still negative as well as HSV-2. I'm confused. The test was IgG specific antibody to HSV1 and HSV2.

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amokwithit

I don't know much about the tests. My ex-husband failed to tell me he had it. I went to the doctor who looked at it and told me what it was. Had a blood test and was told I have herpes. I would go to another doctor and get tested again. This is not the thing you want to be unsure about. The more you know about it, the better off you will be.

Good luck!

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unlucky4life

You said it hasn't affected your relationships too much?? I am in midst of divorce and do have a boyfriend. I'm trying to live in the now. However, after my marriage failed, I realize you can't count on anything in life! And I do have a nice boyfriend (who possibly unknowingly gave it to me) He has HSV-1 of the mouth & that is what I have but down below. He tested positive for HSV-1 and has had cold sores years ago, but none recently. I'm frustrated because I was counting on the blood test to tell me when I got it. I haven't been intimate w/ my ex in over 6 months, and did have a fling between my boyfriend and him due to serious depression over the end of my marriage. I'm usually quite prudish and getting this devasted me. Especially since it coincided w/ my divorce. My husband did cheat (emotionally) and I'm not sure about physically .......but I wouldn't put it past him. He's a liar. So, basically I just feel like I'm trying to get over a marriage and was doing well and then three months later this hit me like a ton of bricks. I can't tell what upsets me worse. I do love my boyfriend, but not sure if it's forever...what is forever anymore ?, except apparently herpes. And I guess I need reassurance that even w/ a new relationship some day , someone won't think I'm a whore w/ this. I am not. And it really burns me up because I know so many promiscuous people who do not have it (or don't know it) and I had one fling and a new relationship in a short amount of time after years of being w/ the same man and being unhappy. And this is how I'm rewarded for finally not being a prude. I check myself constantly for sores, redness, etc. I also have OCD and was overcoming that & my divorce. I'm only 28. :( Thanks for listening.

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  • Posts

    • Trace67
      It doesnt really mean much yet. They still dont know if the herpes is taking advantage of a diseased brain or causing the disease. Furthermore, there is evidence that Alzheimer's might be caused by oral spirochete disease and even Lyme. Many of you could have oral Spirochetes but the Lyme and is less likely. https://globallymealliance.org/pathogen-cause-alzheimers-disease/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5008232/ https://newsblog.drexel.edu/2016/02/10/do-infections-cause-alzheimers-disease/   Of course it could be both! Maybe having hsv-1 and oral spirochetes quadruples the risk.  In my opinion the spirochete theory sounds more likely and its hard to dismiss neurosurgeons and caretakers getting Alzheimers from a disease that was previously thought to be non contagious. I'd worry more about Spirochetes.  
    • Rgs77
      Did ldn work.
    • honkschonks
      I wonder if people in the military are tested for hsv, because the general public isn’t. You have to specifically ask for it and many doctors don’t even see the point because it’s “so common”. It’s very possible he has it and has no symptoms or very mild random symptoms. Sorry to hear what you’re dealing with. It seems like women’s symptoms are worse than men’s.
    • WilsoInAus
      No that’s not the issue at all. The absolute vast majority of nerve pain is not caused by herpes. Hence it cannot be used to reverse engineer a diagnosis of herpes. That is exceptinally dangerous and we must do all we can encourage proper diagnosis.
    • ill47
      Do you have an APOE4 gene? I do. I also have HSV-2, which so far hasn't been linked to dementia. Itzhaki previously found that cold sores occur more frequently in those who carry a gene variant that confers increased risk of Alzheimer’s called APOE-ε4. "Our theory is that in APOE-ε4 carriers, reactivation is more frequent or more harmful in HSV1-infected brain cells, which as a result accumulate damage that culminates in development of Alzheimer's," she said.

      So basically, if you carry the APOE4 gene and have oral HSV-1, you chances of dementia could be quite high. But if you have APOE4, your chances of dementia were higher already. Look, 80% of the population has HSV-1. 80% of the population does not get dementia. You also seem to skip over the fact that antiviral treatment can reduce the increased chances of dementia to almost nothing. "The striking results include evidence that the risk of senile dementia is much greater in those who are infected with HSV, and that anti-herpes antiviral treatment causes a dramatic decrease in number of those subjects severely affected by HSV1 who later develop dementia," Itzhaki said. The data from Taiwan only applies to the rare severe HSV1 or VZV infections. The next step will be to study dementia rates amongst people with mild HSV1 infections, including herpes labialis or mild genital herpes. "Considering that over 150 publications strongly support an HSV1 role in Alzheimer's, these Taiwan findings greatly justify usage of antiherpes antivirals - which are safe and well-tolerated - to treat Alzheimer's disease,” Itzhaki said."They also incentivize development of an HSV1 vaccine, which would likely be the most effective treatment." I think it behooves you to do your research and actually read the articles you are posting before pulling the alarm and trying to scare people. 
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