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WoodlandWalker

Potential wider network to find / fund a cure

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WoodlandWalker

I think that to motivate funding for a cure for Herpes we need to involve a wider spectrum than just those that have recurring herpes simplex problems.

Herpes is a group of 8 viruses effecting humans. Presumably these 8 types of virus must share part of their DNA in common. It would seem silly to develop a cure, or inhibitory drug, that targeted DNA that was peculiar to Simplex, when you could develop one that targeted a section of the DNA common to all 8 viruses.

With risk of saying what you may already know I’ll list some of the conditions that these 8 viruses can cause:

1 & 2 Herpes simplex virus type 1 or 2

Cold Sores

Genital Sores

Encephalitis

Meningitis

Chronic Fatigue Syndrome

Alzheimer’s Disease

Crone’s Disease (Unreferenced Wikipedia Listing)

3. Varicella-zoster virus

Chicken Pox

Shingles

Post Herpetic Neuralgia

4. Epstein Barr virus

glandular fever (mononucleosis, mono)

occasionally causes Hodgkin's lymphoma or nasopharyngeal cancer.

5. Cytomegalovirus (CMV)

Sometimes it causes the same symptoms as a mild glandular fever.

6. Human herpesvirus 6

Multiple Sclerosis

immunosuppression

Encephalitis

Chronic Fatigue Syndrome

Previous infection with HHV6 is a prerequisite for many immune cells to be able to be infected by HIV.

Type 6B causes roseola in babies. (It is a cause of fever induced seizures in babies.)

In adults causes:

Epilepsy

mononucleosis syndromes,

focal encephalitis

pneumonitis.

7. Human herpesvirus 7

Not much seems to be known about this.

8. Human herpesvirus 8 (Karposi's sarcoma herpes virus or KSHV)

cause of Karposi's sarcoma - a skin cancer found in people with AIDS.

I am sure that there are other conditions that can be caused by Herpesviruses some of which are being investigated and some of which are not.

Most of the conditions listed above will have their own support group/charity each wishing the find a cure/prevention for its associated condition, but each working in isolation from the others. Give that one treatment could target the viruses that cause all these conditions we should try to find a way of uniting all of these disparate groups behind the goal finding a common cure.

Like many of you I am keen on the idea of a charity to raise funds to find a cure for Herpes. But I think that it must aim for a cure for all Herpesviruses not just Simplex.

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      It’s really scary and depressing to find out you have this virus. When I found out, last Wednesday, I went through the emotions and the pain of a severe breakout (8 in total, all in separate spots). Today, almost a week later, I can finally move without wanting to scream. My best friends, during this time, were my detachable shower head, Naproxen, and Lidocaine 5% cream. (If you do not have a detachable shower head I recommend one or get a Peri Bottle. They help for keeping clean and for pain relief) Just as everyone here, we want this to be over with. The pain to go away. To feel “normal” again. I’ve researched and read everything I could get ahold of. Then I read about Monolaurin. It's a substance that's derived from lauric acid that is found in coconut oil and human breast milk. It supposedly helps immensely with our virus from hell!  I read that this woman started using it and she hasn’t had a break out in 2 years AND when she does feel one coming on she doubles up on her dose and BOOM, it’s gone! I ordered some off of Amazon and can’t wait for it to get here! What can it hurt, right? Seriously, what do we have to lose (besides a breakout, hopefully!) Here’s some info if you have never heard of it and want to know more. Good luck and keep your head up!   https://www.verywellhealth.com/the-benefits-of-monolaurin-89482  
    • fixme1
      To be fair it would be hard to prove, you could have an oral infection for years before
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