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unlucky4life

More confused with more info & conflicting tests!!!

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unlucky4life

Hi. I have posted before. I had probable exposure 4/09. Just regular sex. Got a boyfriend a few weeks later. Come June after horrific sunburn, broke out with blisters all in my rectal area. No anal sex. Also current boyfriend likes to give oral sex, but had no oral sex w/ random in April. But boyfriend tests positive for hsv 1 via blood..no ulcer but had them in past. I Got cultured and tested positive for genital hsv 1. Per blood testsin June, negative igg hsv1 and 2. Told to get a blood test 3 mos from that. Come September, 5 mos from exposure from random and 3 mos from outbreak, hsv igg 1 and 2 redone and both negative. Not even equivocal. Told that positive hsv culture is 100 percent. More accurate than blood test and that hsv 1 doesn't always show up in blood in ten percent of people. But w/ my OCD and possible symtoms..I kept looking for an answer. Seen MD 8 times since June and only one confirmed ob but I get slivers that don't pus. And sometimes tingle so I assume it's constantly shedding although I'm on 500 valtrex once a day. And genital hsv 1 research indicates less likely recur. So blood tests redrawn 11/09, 7 mos from risky exposure and five from ob. Hsv 2 now positive with high igg and hsv 1 igg

positive but equivocal number being 1.12. Hsv 2 is 5. WTF. Do I have both down there?? And did it take 7 mos to show up, I mean less than 0.9 as in neg result was two mos ago..now a five!!! What is more accurate a culture or blood test?? And we've been sexually active on notion I have hsv 1 genital and he hsv 1 oral so no condoms . I get herpes happens. But why are my results so very inconsistent?? Every MD has dif opinion. I want facts!!and consistent answers!! Had 6 HIV hep c tests since April..all negative . But I don't believe this crap anymore. Any insight would be greatly appreciated. Should I see infectious disease MD?? I'm really upset and confused . Thanks

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foofyforever

i would go see a specialst... expecially since all ur tests are all over the charts. i am sorry i dont have more insight... but i would assume they would both be the same... blood tests and swabs... expecially for the blood test if you have had the symptoms for more then 3 months.

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unlucky4life

Thanks Hishoofy. I guess I feel ridiculous going to yet another MD. I mean I have GHSV...1, 2, or 1 & 2. But I'm upset about inconsistency. I'm so sad. I realize it's not life threatening. But I for one was never highly sexual due to a 6year bad relationship. I was nervous to get back out there. And here I am. I never want to have sex again. My boyfriend (HSV 2 neg) accepts me & that should be enough. But it isn't. I feel disgusting. I wasn't even sure about current boyfriend as a longterm relationship. I just got out of one relationship that I wasn't sure of and it failed & this was my time to figure myself out & feel like I could finally have what I want in life.... and have "fun". I wanted this time to be alone. I feel like such a coward. I'm afraid to be alone w/ my thoughts and disgust of myself. I do care for my boyfriend and he knows I"m having a hard time. Funny, he doesn't care...he is ok w/ it & still hugs, kisses me and attempts sex. I am not, nor do I feel I ever will be ok w/ this. And to be honest, the idea of sex disgusts me so much. I always feel "symptomatic" "diseased" and like I wasted my life. I know if I didn't have issues prior to this w/ depression, OCD, I could handle this better. I realize we are all vulnerable. But I really couldn't imagine a harder thing for me to deal w/ . I can't help but think this defines me now. And I know that sounds ridiculous. But that is how I feel. And feelings don't always have reasoning. And I really think I've turned off "down there" for a long long time.

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raph

a little light

HSV 1 is usually cold sores. Which your boyfriend has. He can test negative even though he has it, as can you. You will only test positive when it is active. When it is dormant, you will test negative.

HSV 2 is usually genital or anal sores. Which sounds like you have. If your boyfriend went down on you when his HSV1 was active (whether or not he had a cold sore), it could have transferred to you and became HSV2.

You can have both. If you ever tested positive for either, you have them for life. A negative test doesn't mean confusion--it just means dormancy. And the more negative tests you have, the more you know that this virus isn't wreaking havoc on you--it's sleeping. You also can't pass it on when it's not active (but you won't always know when it's active). I think a home test should be invented so that you know when you can have oral sex without the f'ing dental dam and when you can have regular sex without being freaked out that you're going to give it to your partner.

Valtrex also reduces the chance of transmission by 85-95%, so by paying attention to your body, taking the drug, and using proper precautions, your sex life can continue. And as so many posts in this forum say, 70-80% of all people on earth have this virus. I read a book a while ago by a doctor who knew he had it, and he was conducting a seminar on HSV. He said at the end of the session, he asked the class who all had HSV. No one raised their hands, and he told them they were all in denial or else completely ignorant. Better to know you have it and be taking the proper precautions and getting ''treated'' than not knowing and passing it on to every person you sleep with.

You will come to terms with it (please do, you need to carry on with your productive life), and although life will not be normal per se, it will not be greatly altered. And if your partner understands, you are greatly blessed!!!

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talesofagirl
HSV 1 is usually cold sores. Which your boyfriend has. He can test negative even though he has it, as can you. You will only test positive when it is active. When it is dormant, you will test negative.

HSV 2 is usually genital or anal sores. Which sounds like you have. If your boyfriend went down on you when his HSV1 was active (whether or not he had a cold sore), it could have transferred to you and became HSV2.

You can have both. If you ever tested positive for either, you have them for life. A negative test doesn't mean confusion--it just means dormancy. And the more negative tests you have, the more you know that this virus isn't wreaking havoc on you--it's sleeping. You also can't pass it on when it's not active (but you won't always know when it's active). I think a home test should be invented so that you know when you can have oral sex without the f'ing dental dam and when you can have regular sex without being freaked out that you're going to give it to your partner.

Valtrex also reduces the chance of transmission by 85-95%, so by paying attention to your body, taking the drug, and using proper precautions, your sex life can continue. And as so many posts in this forum say, 70-80% of all people on earth have this virus. I read a book a while ago by a doctor who knew he had it, and he was conducting a seminar on HSV. He said at the end of the session, he asked the class who all had HSV. No one raised their hands, and he told them they were all in denial or else completely ignorant. Better to know you have it and be taking the proper precautions and getting ''treated'' than not knowing and passing it on to every person you sleep with.

You will come to terms with it (please do, you need to carry on with your productive life), and although life will not be normal per se, it will not be greatly altered. And if your partner understands, you are greatly blessed!!!

Okay, the type is what it is. If somebody with hsv1 oral transfers it to your genitals, you have hsv1 genital. It does not change type because of the location. It is what it is.

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unlucky4life

Thanks for replies...............but my impression was it doesn't change hsv 1 or 2 based on location......you can have either in either place...although predominantly hsv 1 is upstairs and 2 is downstairs. But I still scheduled Infectious disease MD. I realize I have one or both.........but....all my tests initially indicated I had genital HSV 1 and the time frame and partner not having hsv 2 makes me question things.......I have to deal w/ it. I have one or the other or both. But the inconsistent results are quite unsettling. It's 2009, almost 2010 for goodness sakes. Time for this stuff to be accurate. Or at least a specialist can provide an explanation instead of "I'm not sure...or who knows... or who cares..." I care!

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talesofagirl
Thanks for replies...............but my impression was it doesn't change hsv 1 or 2 based on location......you can have either in either place...although predominantly hsv 1 is upstairs and 2 is downstairs. But I still scheduled Infectious disease MD. I realize I have one or both.........but....all my tests initially indicated I had genital HSV 1 and the time frame and partner not having hsv 2 makes me question things.......I have to deal w/ it. I have one or the other or both. But the inconsistent results are quite unsettling. It's 2009, almost 2010 for goodness sakes. Time for this stuff to be accurate. Or at least a specialist can provide an explanation instead of "I'm not sure...or who knows... or who cares..." I care!

Sorry, my reply was more to the other person--I didn't really read through all of your messages....

Having read them now, it was very weird. It's good you're seeing a specialist. That's probably the only person who can really help you.

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unlucky4life

it's cool Tales,.....I knew what you meant.....I just want more answers....but key here now is acceptance. I need to accept it. :) My initial post was too long anyway...I should've abbreviated.....but I tend to ramble when I'm anxious :cool:

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raph

Note I said usually, and the info I got said HSV1 can turn into HSV2. Yes, they are two different viruses, but one can lead to the other, as far as I read.

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