Jump to content
World's Largest Herpes Support Group
Sign in to follow this  
Stellar1777

Kind of an...interesting story?

Recommended Posts

Stellar1777

Yesterday I was talking to a friend about recently finding that I have GH, and she responded "oh, that sucks, I'm so sorry, etc." (which actually makes me feel a bit worse because I really just want people to tell me that it's not that big of a deal). As we continued talking, I got the impression that she didn't know a lot about herpes. When I told her that it was caused by the HSV virus which also causes cold sores, she said, "that's not right! I have a cold sore on my lip right now and I don't have herpes!" She went on to say that she's had a few cold sores ever since she dated a guy who would get them occasionally, but they always "go away," so it can't be herpes.

I just found her reaction kind of interesting; the conversation was very revealing to me. I have several friends who are health professionals and understand the virus, so telling them is often met with the "don't worry too much about it, it's really common, etc." But I realized that unless the person 1.) has it or 2.) works in the field, he/she may not have any idea what the virus is and simply react to it based on some vague, indefinite social attitude about herpes or STDs in general. Wonder how to deal with that...

Share this post


Link to post
Share on other sites
RealisticGal

I suppose I'm sort of a bitch, but I would print out a pamphlet for your friend with the cold sore so she would be informed about her own reality. The fact is, she is probably out there contributing to the spread of herpes, including the rise in genital HSV1.

Share this post


Link to post
Share on other sites
Blonde Moments

I understand completely. Until I was diagnosed just over 3 weeks ago, I really had no clue what herpes was about. I knew cold sores were herpes and there was the genital kind but that was about it. I had no idea what viral shedding was or this damn itchiness that won't stop after the ob is gone. There really isn't very good education on the topic, I don't even remember them teaching about it in school. They just said it was an STD and moved on. I believe this at least part of the reason why it is running so rampant. That, and people that don't believe they have it and are out there spreading it like crazy.

Share this post


Link to post
Share on other sites
boo32

Agreed

I really do agree with everyone. I actually have GHSV-1 that I am almost completely sure is from oral HSV-1. Who knew? I didn't. I am almost embarrassed to admit that I'm actually a health professional (currently in school) and wasn't fully aware that it could be transmitted that way...especially without any symptoms! But I guess that's why most of us are all here right? I'm sure at one point in the back of my mind I had recognized the fact that people with the virus do not have symptoms all the time, but never did I realize that there are people who simply NEVER even have them, and unknowingly transmit it that way! I guess somewhere along the line being a naive youth I had always thought that someone who contracted the virus would OBVIOUSLY know, and why wouldn't they tell someone who they would potentially be intimate with? Now even as an adult I didn't really understand that about the virus until I read all the information. I don't actually consider myself to be at all naive, or think that I would put myself in a situation where I could potentially contract it, but the keyword there is thought. I didn't actually know. I think this is a huge misconception about this virus (or no conception at all even), especially with how people stigmatize both types, Type 1 being no big deal and Type 2 being the 'dirty' type. I'll be honest and say I, too, thought cold sores were 'no big deal' because my mom has dealt with them all her life. But did I ever think that type could be transmitted to another area? Definitely not, especially if someone has never even shown signs of having the virus. Why would I? So, I guess there lies the problem, but I think that as there may be a lack of education at times, some people may also, unfortunately, take the information for granted :(

But thanks for the posts, I really do find this interesting, and it just goes to show how there are still so many people who have no idea about it and that they may possibly be contributing to the spread of it.

Share this post


Link to post
Share on other sites
AF Vet

I basically had the same thing recently. I was at my mother's house and my youngest sister (20) had double cold sores in the corners of her mouth. My whole family knows about my GH. So I took her aside and told her that her cold sores were probably the oral version. She was shocked! I told her I'd appreciate it if she held off kissing my children for now until she was cleared up (which upset her a bit) and explained to her about doing the same with her boyfriend and not to have oral sex with him. Her response was basically, their just cold sores... I finally convinced her, basically by getting graphic about my first outbreak and how that's what I'd had, painful as it was, down below.

Then she started asking me questions about GH... does GH cause razor burn or ingrown hairs? No... Shaving causes razor burn and ingrown hairs... I showed her this website, told her if she wasn't sure to go get tested.... I don't know if she did or not. She and I aren't on good terms right now... but I was surprised she didn't recognize it for what it was. Alot of people don't. Hell, I didn't. I've been getting cold sores off and on since I was a child. Probably got it from my parents kissing me good night. I didn't really think about it until I was on this site just because its not really taught... and I only get sores orally once every 5 years or so. I don't remember when I had my last one.

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Sign in to follow this  

  • The Hive is Thriving!

    • Total Topics
      69,761
    • Total Posts
      470,458
  • Posts

    • TerribleAtUserNames
      Oh, sorry, I think the catchy title I used was very misleading. And I didn't intend that. I put 'miracle cure' as air quotes because I don't actually think I've discovered a true cure. I mean, I still can get outbreaks, the virus is obviously still there. I like to at least think I'm not that arrogant or naive. 🙄 I had not definitively said anything for a couple reasons, including that I don't prefer making overly definitive statements to things I don't know.  And I was more talking with regard to what you were saying in your second paragraph in your most recent reply, whether tissue absorption had any additional effect to simple topical application. So, hopefully that's cleared up. But it is effectively a functional cure for me. In so far as I've gone from permanent outbreaks to one maybe every... 8ish months? I barely remember I have it.  And the point is that the virus has really impacted some people's lives. To the point where they take crazy--high risk--'treatments' or think about self harm. And if some other people can get the relief I've gotten from something so stupidly simple, I want them to be able to have that too. Especially given that the risk-reward ratio is--in my opinion at least--very favourable. I mean, its like literally 20-30 seconds of isopropyl alcohol a day. If it doesn't do jack for you in two weeks, move on--y'know? But I assume if it acts a particular way for me, it will likely act that way for at least someone else. And that could really change someone's life... Like it did mine.  Cheers, 
    • Cas9
      @TerribleAtUserNames OK, you need to understand the science. Alcohol does not seep into a nerve cell and kill the latent virus; That's a scientific fact. So you don't need to worry about checking. All the alcohol does is kill the virus on the skin surface. Whether it gets a little deeper in the skin layers and kills virus better than soap and water, I can't say for sure. Obviously, popping a blister and using alcohol will have a more drying effect than soap and water. The bottom line is that killing a herpes virus is easy when it's outside the nerve cell. Killing it in a nerve cell is difficult because anything that gets into the cell and kills the virus (breaking up it's dna), must not also damage the cell's dna. You need a smart bomb to do that. That's what gene editing is. It is programmed to have the ability to cut out dna segments specific to the virus without touching the cells dna. You have this image of the cell as a container and the alcohol just pours into it and kills the virus. If that was the case, it would destroy the cell's dna also. Cells are living things that have receptors on their cellular surface. Anything that gets into that cell, must have the protein that matches with one of the cell's receptors (like a key to a lock), which in turn causes the cell to let the substance enter. That's one method of how something gets in a cell. Do you honestly think that in all the decades that great scientific minds have tried to tackle this problem, that they simply missed your alcohol cure? C'mon man!!!      
    • dont quit!17
      That would be nice to have as an option. 
    • dont quit!17
      The momentum slowed down, when that forum member asked for a timeline. That is the last thing we should be asking. That's pretty frustrating. 
    • TerribleAtUserNames
      Hey everyone, thanks for responding! So you know, I updated the original post with negative effects I've experienced with alcohol as treatment, so feel free to check that out if you're curious.  Now, to what you guys were saying...    MaxTX: I actually use alcohol as my disinfectant of choice for most wounds. And sutiability seems to vary based on the type of alcohol used (says the internet). That being said, you are right apparently--but this isn't about the best wound treatment method. Its about stopping outbreaks. Regardless, I suspect the deleterious effects are fairly minor if you're trying to disinfect most wounds, but that's totally my personal opinion.  None the less, I'd suggest giving it a shot for outbreak prevention. It certainly works for me, hopefully it will for you too. And compared to taking an experimental vaccine or something like that, wouldn't this be easy and super low risk to try? Also if you google 'herpes' and 'alcohol' you can find a number of hits suggesting its use as a disinfectant for the sores.   Tired of Waiting: I'm sorry, it was a long time ago that I read her talking about it. But from what I remember, she was talking about wiping down there with alcohol, and how it helped with her outbreaks. I remember her also saying it burned like a mofo at first, but eventually became kinda second nature. I don't know what type of alcohol she used, sorry. Again, if you're concerned, maybe ask your doctor about safety? Like I said, isopropyl has worked well for me. I actually do use it before sex for that reason, back when I was having sex that is. Across 3 partners used with, no known infections--but given that I have hsv 1, and like 50-60% of the population is infected already, but only 10% present with symptoms, that could mean nothing. Unfortunately, I'm not a doctor, and certainly not one that has researched this scientifically, so I can't give you a firm answer for transmission prevention during sex. Personally, I'm confident in at least isopropyl alcohol's herpes killing abilities, even if just topically. For better or worse, real or imagined (but I suspect real), I let myself relax a lot more when using it before sex.  And then again after sex, for my own sake, hahaha, as I'm not overly keen on risking anything else. However, even this is something to consult a doctor about--I feel like there is conflicting information on whether it can be helpful post coitus, or whether it can actually increase the risk of getting an sti vs. simply washing. Imo, do some research and ask a physician to confirm or deny what you've learned.   Cas9: Soap and water never worked anywhere close to as well for me. Soap and water still meant permanent outbreak. So I suspect the alcohol is doing much more. I should clarify though, that I do actually dilligently use soap and water as well--the whole regular bathing thing 😁 I know you suggested to Tired of Waiting that it wouldn't affect outbreak frequency or the latent virus. I can't obviously check my own latent virus levels, but yes I can still get outbreaks if I stop using the alcohol. However I can, indeed, use it as a prophylactic for outbreaks, and it does prevent me from getting them the vast majority of the time. Perhaps because that kind of tissue is more absorbent or something? Or perhaps when topically applied the alcohol is significantly more potent and herpes unfriendly--which I believe really is also the case from what I've read. I know though that I can't discontinue alcohol treatment for more than 6ish days (my limit so far) without flaring up again. And with twice daily showers, that would strongly imply that soap and water is really not helping the same way.  Cheers, guys! 
×
×
  • Create New...

Important Information

We have placed cookies on your device to help make this website better. You can adjust your cookie settings, otherwise we'll assume you're okay to continue.