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Getting on with it......

boopboop

By boopboop
in The Secret to Our Success

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boopboop Established Member

boopboop

Posted
Posted

So had gh since September now, worst week ever!! But it did put my life in a positive light - made me realise how lovely my bf is when I told him..still not saw him since then bc were doing long distance and hes still to get retested. Started salsa dancing! Also started doing events and thinking a lot more about what I should do with my life. My first OB lasted just over 2 weeks so I promised to make the most of when I feel well!

Down there started feeling normal again after a month and I had 2 obs after that...but hardly felt them and got a couple of blisters. The last month though with exams I've had 2 obs in the last 4 weeks and the one at the moment isnt sore just irritating! Bit like a gentle carpet burn on my bits that come and goes! I want it to go away!!! So should I see about suppressive therepy since I've had 5 OBs now in the last 4 months?

I know its most active in the first two years...really wish it would hurry up and fade a bit. I also take vitamins and put mellisa oil and aloe vera gel on sores. When I put the oil on at the first signs of an OB it seems to go away it 2 or 3 days but this one I didnt catch early and my body doesnt really give me any signs! Also get thrush with every OB which is far more annoying than the herpes itself!

Still have the "unlucky and unfair" days when I'm like ahh why me and I worry about when my bf and I are back together it comes back he doesnt have it. But still feel sooo lucky I didnt catch anything worse!

So newbies hang in there...you do slowly get used to it and get positives out of it.

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AquariusAngel Acknowledged Support Member

AquariusAngel

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Posted

Hey boop

It's always interesting to read different members posts because while some think their life is over after their diagnosis, some like you take it as a new beginning, a chance to really get out there and enjoy life!

I think it may be a good idea to chat to your doctor about going on suppressive therapy. 5 outbreaks in 4 months is classed as moderate to severe so I would be looking into it. I used to get my outbreaks about once every 3 months but they were so horrendous which is why I was finally put on suppressive therapy. I've been great since.

Yes the key is to attack any outbreak as early as possible. It should not matter if your boyfriend doesn't have it. Just get yourself right and make sure he feels he can talk to you about anything that is concerning him. These sorts of scenarios often bring couples that much closer together. I am sure with your great attitude you will be one of the success stories!

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    • sgt98
      What is the usual order of events in initial infection for GHSV?

      By sgt98 · Posted

      Hey @WilsoInAus ok thank you, I will do my best to move on and stop trawling forums haha. 
    • WilsoInAus
      What is the usual order of events in initial infection for GHSV?

      By WilsoInAus · Posted

      Hey @sgt98 but there is no feasible infection or outbreak to suppress and antivirals do not suppress an initial outbreak in any event 
    • sgt98
      What is the usual order of events in initial infection for GHSV?

      By sgt98 · Posted

      Thanks @WilsoInAus I understand apologies for this but the only other thing I am worried about is that I did take a course of Famvir on day 1 as I felt like I was having an outbreak of cold sores and am worried that has suppressed the initial outbreak genitally 
    • WilsoInAus
      What is the usual order of events in initial infection for GHSV?

      By WilsoInAus · Posted

      Hi @sgt98 it is not feasible to obtain a HSV-2 infection from receiving oral sex - only HSV-1 is feasible but you've already got that and immunity from any further infection with HSV-1. You do not need any further tests for HSV. You're feeling regret, try to forgive yourself and calm down, let the rational take over. You know the answer here and it won't be long until you believe it too.
    • WilsoInAus
      Looking for some insight on an atypical experience.

      By WilsoInAus · Posted

      Hi @NerdP423 and welcome to the website. You raise a lot of points and I think the best way to address your concerns is add some comments at each key point. I've copied your note again below and added these comments in square brackets. I appreciate any insight (even speculation) as to what has been going on with me. I'm a 37y/o M. I last was intimate with a new partner on 2/11/2022, and a few days later started having a huge amount of discomfort in my face. [The first thing that happens though is that herpes causes lesions or at least some skin based disruption. Other symptoms are then related to the actions of the immune system responding to the virus. Without lesions, it is highly questionable that the ailment is related to herpes, yet testing is useful if you have concerns as you have done so.] About a month after that [herpes causes issues within days, if the first 'symptoms' are a month later - its extremely unlikely they are related to herpes], significant discomfort downstairs, however every test I have ever taken for HSV 1 and 2 has been negative. Here are the details: Face: Previously, some significant tingling and itching on the right side of my mouth, lips and chin (still there, but milder) [herpes does not cause general tingling and itching, it can cause a reasonably concentrated feeling of itch/throb from which a herpes lesion appears within hours]. Occasional hot flashes near my right eye, cheek and ear [herpes does not do this, it may be a immune response to something, or stress]. Sometimes it will feel like the skin is crawling on the right side of my face [herpes does not cause a general crawling sensation]. Never seen anything that looked like a traditional cold sore [that's extremely telling, even people with associated atypical symptoms will have experienced herpes lesions]. Occasionally, the left side of my face will have a momentary feeling of skin crawling, but it's so mild that I am not really worried about it. Downstairs: Thankfully, most of these are now milder than they were before. Occasional momentary pinch of pain at the base of my genitals. [herpes does not cause a general pinch feeling.] Aching pain in my boxer area (groin, leg folds) [nor this] Occasional feeling of cold in my boxer area, butt, or lower back. ( also in my shins and occasionally even my arms) [nor this] On 4/30/2022, I had been in discomfort for almost two months. I scratched an itch, noticed it hurt, and then checked - I did have an open ulcer down there. Took myself to the ER to get swabbed, came back negative. [If this was a PCR then this will be very conclusive.] Practitioner said it may come back negative because it was already open. However the lab report noted that it definitely didn't look like what you'd expect a typical first herpes outbreak to look like [how would the lab know??]. All blood tests negative so far. I had two western blots, the second one was nine months after exposure. [Two negative Westernblots!!! Many that's real convincing]. All other swabs also negative. I went to urgent care, because I know the timeliness of when the Swab is taken matters. One time, a swab was not done, because practitioner said it was folliculitis and wouldn't swab it (It was at my belt line). [Belt line is highly unlikely to relate to herpes.]   A blood test revealed I had low-ish B12 (technically in range, but at the very low end, especially for a man of my size). I had a series of B12 injections, and I am taking a B12 supplement. I am not taking any lysine or arginine at the moment. I was taking the Arganine to see if I could induce an outbreak. [This is irrelevant, there is no known linkage between herpes outbreaks and arginine/lysine intake - its a myth - and B12 infers nothing.] I think what I am asking is - has anyone here ever repeatedly tested negative over and over again over long period of time, before getting a definitive answer, be a positive test, or something else? [The answer to this is: Extremely few people with a HSV-1 infection and even more rarely HSV-2 test repeatedly negative on Westernblot and actually carry the virus. Of the cases that I know of that had delayed detection by a swab and negative blood tests in the meantime (and that's only 3-4 cases), they had some form of lesions within days of infection but did not obtain a swab for various reasons and then obtained a positive swab of a subsequent lesion with the record being 11 months later. A couple of the cases did have some 'background' symptoms they thought might be related to herpes but that isn't ascertained and some did not have any unusual symptoms at all apart from the lesions. Hence as you did not have lesions around your mouth or lips within days of the last sexual encounter as is exceptionally common for a primary oral HSV-1 infection, that pretty much rules out herpes orally as it is. The fact that you had no genital symptoms for a month also rules out genital herpes. I am not aware of anyone at all who has genuinely gone on to test positive by swab or blood in your specific circumstances. There are hundreds if not more than a thousand experiences on this website alone that are similar to yours that are truly negative for herpes I'm one of them!]  
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