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New to Support Group...Living with HSV for About 1 Year

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Hey everyone,

I've been living with HSV for about a year and I just want to let the newly diagnosed know (as I'm sure others have been saying) that this is NOT the end of the world and things will get BETTER. I had my first OB after my BF cheated on me...but I will never really know who gave it to me and the best piece of advice is NOT to stress over it...it doesn't make a difference and there is no going back...only moving on with your life!

There will be plenty of people who are scared when you tell them and not willing to take the risk, but you will meet people who accept you for who you are and look past your situation. It will help you realize how amazing they are and is a good way to sort the shallow from the understanding. But also...who are we to judge their decision? What would you do if the shoe was on the other foot?

I joined the support group because I think the stigma attached to HSV is terrible and I'm trying to make some good out of the bad and help others make it through the rough time I went through and still go through occasionaly. I look the same (99% of the time!) and am still a loyal, loving woman. I could go through life and never tell anyone and no one would know...so why am I chastized for being honest and responsible?

I still have an occasional OB which gets me all sad and upset. Mostly I'm just upset because my outbreaks are so mild ("why does she think this is a bad thing?!") and I'm never sure if its an actual outbreak or irritation from taking a bath or wearing tight pants! This is only a problem because I have an amazing boyfriend (who I met AFTER being diagnosed with HSV) and it means I can't have sex!

I think the hardest thing for me now is noticing other people joking about herpes. TV shows, movies, people I don't know, people I do know (who don't know my situation!)...I even had a professor crack a herpes joke...not cool.

So sorry for the long post...but that's my story...and I'm still here and in good spirits. If you would've asked me a year ago I would've told you my life was over. But its not...and yours isn't either.

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Hello Magnolia and welcome to the site. What a great post! Well done and we certainly need positive stories like that around here. I too have noticed more and more people on TV etc talking about herpes and making jokes out of it. Never really seems that funny when it just makes the stigma of herpes even worse. Your positive attitude and honesty is very welcome here. Please don't hesitate to reply to other peoples threads who perhaps struggle a little more. Hope you stick around!

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Try a Lysine supplement for cold sores

  • The Hive is Thriving!

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    • Elly86
      @WilsoInAus thanks for the clarification. I am currently taking into account all possibilities that i might encounter, since my fiance is positive HSV-1. I am preparing myself for the future, if I however eventually get infected from him. Im on the brink . We will have an appointment with a Doctor on friday, to justify more about this and I am so anxious of knowing what the Dr will say. I am scare it might effect my decision of marrying him. How I wish this virus could be kill, how I wish life hasn't be this cruel to us. The day for us to tie the knot is just around the corner, everything had been prepared and we are tested with this news. Im showing my support to him right now but deep down, Im sooo scared. It's truly an adventure
    • WilsoInAus
      Note that it’s not an infection as we know it the eye, these are caused by bacteria. Sometimes though the virus will attack the cornea and cause issues. It is estimated about 1 in 50,000 people per year will suffer some vision impairment from HSV-1. However these people are almost always not treated with antivirals where success appears to be over 90% for preventing permanent damage.
    • Elly86
      Hi..Ive been browsing around the web, and find out that HSV1 might caused eye infection and ultimately blindness..how common is this? Anyone experiencing this before?
    • Elly86
      Hi @patpat I encountered same situation like yours. I really want to know what is your next step. Did you finally get married? How is your life now? Any advice?  I know this is an old thread but this is related to me. Would be so much relieve to be able to talk to someone in the same shoe. Hope you still buzzing around honeycomb
    • metamorphosis333
      BHT has helped me soooo much! When I first got infected my outbreaks were constant .. one would heal up and there comes another ... it was terrible . I was so fuxking depressed and miserable. I cut out the “trigger foods” took vitamin c and lysine .. drank apple cider vinegar .. nothing worked until BHT!!! Now that I take BHT i rarely have Outbreaks. If I do it’s because I sometimes forget and skip taking it .. or I eat some trigger food + forget the Bht .. but even then my outbreaks are SOOOO a mild compared to before . I’ve had outbreaks that have disappeared in a day . Sometimes I up my dosage on BHT when I do have a mild outbreak , and apply topically. It really has been such a blessing to find out about BHT 

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