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Outbreaks when on suppressive therapy?

Lorna

By Lorna
in Herpes Treatment Zone

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Lorna Newbie

Lorna

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I was newly diagnosed 2 months ago (it was awful and so painful....I know you all understand) and following my first outbreak my doctor prescribed the normal Famvir treatment. Within 5 days of finishing I had another outbreak, so I went back to the doctors and started another treatment....this happened again so finally my doctor told me to go on supressive treatment for 3 months. The supressive treatment seemed like a good idea and for first 3 weeks of treatment it worked well but since then I have had 2 small outbreaks and feel another one coming on. Has anyone else experienced this?

I am trying to keep a record of my diet, stress, sex etc to see if anything could have triggered it. However, the strange thing is that the first 3 weeks of supressive treatment was while I was on holiday overseas....eating bad food, drinking beer and having a lot of "protected" sex with my partner (who is clear of the virus). I am wondering what could be triggering the outbreaks since my return home? I had another 2 weeks holiday from work when I returned home so I can't blame that for stressing me out.

I am so new to this whole virus that any advice would be appreciated.

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camomile Established Member

camomile

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It seems ppl who are on suppressive do get H ob's. (me, included)

Good to hear about Famivir which I had never been on. Sounds like another expensive version of Acylovir (no offense, please x)

H is a very difficult virus, to me. This virus has been intractable. In order to completely keep it dormant, I would probably need to live on cabbages and using a very restricted range of foods, which would be hard to sustain my energy and vitality. But maybe, you could be lucky not to think that way, ever if the infection isn't too persistent.

This site has a very useful range of resources (on the right hand side). It may be worthwhile spending time reading "Treatment".

Good luck and welcome x x x

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Lorna Newbie

Lorna

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Thanks for the response :-) It's good to hear that the ob's are common even when on treatment, this virus is just so complex and it makes me so frustrated at times. Famvir is expensive but fortunately we get massive discounts in Australia if the treatment is considered suppressive. I guess it's just a matter of researching what works for me and I'm so grateful for a site like this so I can talk to people in the same situation!

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      What is the usual order of events in initial infection for GHSV?

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      Hey @WilsoInAus ok thank you, I will do my best to move on and stop trawling forums haha. 
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      What is the usual order of events in initial infection for GHSV?

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    • sgt98
      What is the usual order of events in initial infection for GHSV?

      By sgt98 · Posted

      Thanks @WilsoInAus I understand apologies for this but the only other thing I am worried about is that I did take a course of Famvir on day 1 as I felt like I was having an outbreak of cold sores and am worried that has suppressed the initial outbreak genitally 
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      Hi @sgt98 it is not feasible to obtain a HSV-2 infection from receiving oral sex - only HSV-1 is feasible but you've already got that and immunity from any further infection with HSV-1. You do not need any further tests for HSV. You're feeling regret, try to forgive yourself and calm down, let the rational take over. You know the answer here and it won't be long until you believe it too.
    • WilsoInAus
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Without lesions, it is highly questionable that the ailment is related to herpes, yet testing is useful if you have concerns as you have done so.] About a month after that [herpes causes issues within days, if the first 'symptoms' are a month later - its extremely unlikely they are related to herpes], significant discomfort downstairs, however every test I have ever taken for HSV 1 and 2 has been negative. Here are the details: Face: Previously, some significant tingling and itching on the right side of my mouth, lips and chin (still there, but milder) [herpes does not cause general tingling and itching, it can cause a reasonably concentrated feeling of itch/throb from which a herpes lesion appears within hours]. Occasional hot flashes near my right eye, cheek and ear [herpes does not do this, it may be a immune response to something, or stress]. Sometimes it will feel like the skin is crawling on the right side of my face [herpes does not cause a general crawling sensation]. Never seen anything that looked like a traditional cold sore [that's extremely telling, even people with associated atypical symptoms will have experienced herpes lesions]. Occasionally, the left side of my face will have a momentary feeling of skin crawling, but it's so mild that I am not really worried about it. Downstairs: Thankfully, most of these are now milder than they were before. Occasional momentary pinch of pain at the base of my genitals. [herpes does not cause a general pinch feeling.] Aching pain in my boxer area (groin, leg folds) [nor this] Occasional feeling of cold in my boxer area, butt, or lower back. ( also in my shins and occasionally even my arms) [nor this] On 4/30/2022, I had been in discomfort for almost two months. I scratched an itch, noticed it hurt, and then checked - I did have an open ulcer down there. Took myself to the ER to get swabbed, came back negative. 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There are hundreds if not more than a thousand experiences on this website alone that are similar to yours that are truly negative for herpes I'm one of them!]  
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