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HOPE IS ALL I HAVE

By HOPE IS ALL I HAVE
in Herpes Cure Research

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Sweet7 Acknowledged Support Member

Sweet7

Posted
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Because this virus isn't considered deadly and treatment options are available, even though it isn't as good as a cure. Most people with HSV don't concern themselves with a cure because for most, it's not that bad. Funding is the biggist issue. If everyone with HSV helped to fund a cure, we would already have it. Hang in there though. The Race is on.

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struggle83 Acknowledged Support Member

struggle83

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Why is there no cure for this virus??!!! i just don't understand :(

Sweet is correct. As well, viruses are extremely complex. It has taken all the innovations and advances in computer science for researchers to finally be able to learn about the intricacies of viruses and viral lifecycles.

Viruses are simple, yet sophisticated in their simplicity. In addition, the human body is extremely complicated. It is a difficult combination to understand. This is going to be the decade that we uncover the innerworkings of all sorts of viruses. Hopefully with that, more effective treatments.

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Kqk Established Member

Kqk

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What a virus is.....

"Viruses, Hogue stresses, differ fundamentally from other common microscopic pathogens like bacteria, in that viruses are structurally primitive, lacking the means to independently replicate. Viruses are composed of genetic information (DNA or RNA), encased by proteins. They exist in a shadowy region between living and non-living entities.

In order for a virus to replicate, it must commandeer machinery of a host cell it has infected. Nevertheless, viruses have evolved to be highly adept at this sort of replication-by-proxy, and can infect virtually all types of organisms, from animals and plants to bacteria and even Archaea. Viruses -- of which millions of forms are known to exist -- are far and away the most numerous (and successful) parasitic invaders on earth."

This was copy and pasted from an article from the site Sciencedaily.com.

Sanner

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JHenry Established Member

JHenry

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Sweet7, I agree---there seems to be a race at fever pitch. It heightens my optimism that for those of us infected for the majority of our adult lives, the glimmer of light can be seen ahead,....finally. Henry.

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blackvelvet Honeycomb Member

blackvelvet

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there is no cure for any virus right now. And of the viruses out there, this one isnt neccessarily seen as a priority. There is a LOT of good herpes research going on though, better treatments, and hopefully a cure is on the way!

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struggle83 Acknowledged Support Member

struggle83

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Sweet7, I agree---there seems to be a race at fever pitch. It heightens my optimism that for those of us infected for the majority of our adult lives, the glimmer of light can be seen ahead,....finally. Henry.

Where do you guys get the impression that there is a race at fever pitch? I am just curious. I agree there are many more in the pipleline than maybe 5 years ago but I don't get the sense from talking to the companies that they are in a race or a rush, unlike HIV research was a decade ago.

I think the lengthy and laboured (and hugely disappointing) HIV research has been a slap of reality on any companies rushing to any cure regarldess of the etiology.

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wmlb87 Honeycomb Member

wmlb87

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The thing that encourages me the most is this: whoever can come up with a hardcore suppressive drug that is basically as good as a cure (no shedding, no symptoms) is going to make an insane amount of money. Valtrex and acyclovir bring in billions of dollars a year. There is plenty of motivation for pharm companies to come up with something better. Hopefully it will be in the next 2-3 years. I think 5 years is the max

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Movingslowly Acknowledged Support Member

Movingslowly

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I believe it will be closer to five years for Dr. Blooms research to make headlines news on a successful cure/treatment, but it could take a few more years to get the drug to the market. It is his idea to inactivate the virus. To me that is just as good as having a cure. You will not have symptoms nor be able to spread it to other people. It's as if you don't have the virus. I hope his research is the key to our future. I don't know what it is but my faith lies with him. Every article I read, research, you name it, I think back to Dr. Bloom's approach. It's feasible and highly favorable.

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Teacher Man Established Member

Teacher Man

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You're right, MovingSlowly, it will be a few years. However, it's sooooo encouraging to know that numerous researchers are tackling this issue. Bloom, Cullen, Knipe, and others. Given the breakthroughs of the past few years, I really think we're likely to see new treatments,

vaccines, and maybe a cure in our lifetimes. Funding and awareness are key. Keep putting the word out, and every dollar helps...literally.

Until then, it's up to us to live our lives free from shame, doubt, and fear. Easier said than done, but what else is new?

"Life is choice"...(watch this clip, and feel good).

http://www.youtube.com/watch?v=9BBDexSzmMM

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wmlb87 Honeycomb Member

wmlb87

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I don't want to be pessimistic but Bloom/Cullen/Knipe are extremely far off. Its going to take at least five years for them to even make it to phase I clinical trials, meaning it's going to be 10 years minimum. That's not even taking into account possible funding problems. The real hope is drugs like AIC-316. They're already in development. If everything goes well it will be as good as a cure, and it could be here within a few years. THAT'S what we should be focusing on. Obviously a cure is the best option, but it would be a huge improvement for all of us if we could just take a pill once a day and never have any symptoms/risk of transmission. All the cure talk, to me, is just a far away pipe dream

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helpiamconfused2 Platinum Support Member

helpiamconfused2

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I don't want to be pessimistic but Bloom/Cullen/Knipe are extremely far off. Its going to take at least five years for them to even make it to phase I clinical trials, meaning it's going to be 10 years minimum. That's not even taking into account possible funding problems. The real hope is drugs like AIC-316. They're already in development. If everything goes well it will be as good as a cure, and it could be here within a few years. THAT'S what we should be focusing on. Obviously a cure is the best option, but it would be a huge improvement for all of us if we could just take a pill once a day and never have any symptoms/risk of transmission. All the cure talk, to me, is just a far away pipe dream

Sign our petitions and donate if you can... Let's help ourselves and others by being active!

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SuperManFace Established Member

SuperManFace

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Sweet is correct. As well, viruses are extremely complex. It has taken all the innovations and advances in computer science for researchers to finally be able to learn about the intricacies of viruses and viral lifecycles.

Viruses are simple, yet sophisticated in their simplicity. In addition, the human body is extremely complicated. It is a difficult combination to understand. This is going to be the decade that we uncover the innerworkings of all sorts of viruses. Hopefully with that, more effective treatments.

Yup good point. The gene and cell therapy techniques can guaranteed cure this, because gene and cell therapy uses the body as a tool for eradicating the illness. Since our bodies are so complex and sophisticated, many things which we don't know, it is better to let our bodies do the work.

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struggle83 Acknowledged Support Member

struggle83

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I believe it will be closer to five years for Dr. Blooms research to make headlines news on a successful cure/treatment, but it could take a few more years to get the drug to the market. It is his idea to inactivate the virus. To me that is just as good as having a cure. You will not have symptoms nor be able to spread it to other people. It's as if you don't have the virus. I hope his research is the key to our future. I don't know what it is but my faith lies with him. Every article I read, research, you name it, I think back to Dr. Bloom's approach. It's feasible and highly favorable.

But Bloom doesn't have a drug. He is doing pure research. His conclusions may lead to drugs but that's not where he's at. Plus, they don't even know what it means to be active. Can he turn off all the viral functions, even those unrelated to outbreaks?

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camomile Established Member

camomile

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Looking at different high profile Charities/Foundations advocating for their patients, they attract a huge amount of funding, deal with Public Relations and organize research projects.

ME/Chronic Fatigue used to be considered as an "elusive" illness a few years ago. Now, they are recognized as a serious illness by WHO. These things, unfortunately media attention is also quite important. Patients need to be heard and public awareness need to be much more increased. If we haven't got the Foundation, it would be a tough going. Having said that, this site has so far provided a huge platform for our voices to be heard.

xx

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    • sgt98
      What is the usual order of events in initial infection for GHSV?

      By sgt98 · Posted

      Hey @WilsoInAus ok thank you, I will do my best to move on and stop trawling forums haha. 
    • WilsoInAus
      What is the usual order of events in initial infection for GHSV?

      By WilsoInAus · Posted

      Hey @sgt98 but there is no feasible infection or outbreak to suppress and antivirals do not suppress an initial outbreak in any event 
    • sgt98
      What is the usual order of events in initial infection for GHSV?

      By sgt98 · Posted

      Thanks @WilsoInAus I understand apologies for this but the only other thing I am worried about is that I did take a course of Famvir on day 1 as I felt like I was having an outbreak of cold sores and am worried that has suppressed the initial outbreak genitally 
    • WilsoInAus
      What is the usual order of events in initial infection for GHSV?

      By WilsoInAus · Posted

      Hi @sgt98 it is not feasible to obtain a HSV-2 infection from receiving oral sex - only HSV-1 is feasible but you've already got that and immunity from any further infection with HSV-1. You do not need any further tests for HSV. You're feeling regret, try to forgive yourself and calm down, let the rational take over. You know the answer here and it won't be long until you believe it too.
    • WilsoInAus
      Looking for some insight on an atypical experience.

      By WilsoInAus · Posted

      Hi @NerdP423 and welcome to the website. You raise a lot of points and I think the best way to address your concerns is add some comments at each key point. I've copied your note again below and added these comments in square brackets. I appreciate any insight (even speculation) as to what has been going on with me. I'm a 37y/o M. I last was intimate with a new partner on 2/11/2022, and a few days later started having a huge amount of discomfort in my face. [The first thing that happens though is that herpes causes lesions or at least some skin based disruption. Other symptoms are then related to the actions of the immune system responding to the virus. Without lesions, it is highly questionable that the ailment is related to herpes, yet testing is useful if you have concerns as you have done so.] About a month after that [herpes causes issues within days, if the first 'symptoms' are a month later - its extremely unlikely they are related to herpes], significant discomfort downstairs, however every test I have ever taken for HSV 1 and 2 has been negative. Here are the details: Face: Previously, some significant tingling and itching on the right side of my mouth, lips and chin (still there, but milder) [herpes does not cause general tingling and itching, it can cause a reasonably concentrated feeling of itch/throb from which a herpes lesion appears within hours]. Occasional hot flashes near my right eye, cheek and ear [herpes does not do this, it may be a immune response to something, or stress]. Sometimes it will feel like the skin is crawling on the right side of my face [herpes does not cause a general crawling sensation]. Never seen anything that looked like a traditional cold sore [that's extremely telling, even people with associated atypical symptoms will have experienced herpes lesions]. Occasionally, the left side of my face will have a momentary feeling of skin crawling, but it's so mild that I am not really worried about it. Downstairs: Thankfully, most of these are now milder than they were before. Occasional momentary pinch of pain at the base of my genitals. [herpes does not cause a general pinch feeling.] Aching pain in my boxer area (groin, leg folds) [nor this] Occasional feeling of cold in my boxer area, butt, or lower back. ( also in my shins and occasionally even my arms) [nor this] On 4/30/2022, I had been in discomfort for almost two months. I scratched an itch, noticed it hurt, and then checked - I did have an open ulcer down there. Took myself to the ER to get swabbed, came back negative. [If this was a PCR then this will be very conclusive.] Practitioner said it may come back negative because it was already open. However the lab report noted that it definitely didn't look like what you'd expect a typical first herpes outbreak to look like [how would the lab know??]. All blood tests negative so far. I had two western blots, the second one was nine months after exposure. [Two negative Westernblots!!! Many that's real convincing]. All other swabs also negative. I went to urgent care, because I know the timeliness of when the Swab is taken matters. One time, a swab was not done, because practitioner said it was folliculitis and wouldn't swab it (It was at my belt line). [Belt line is highly unlikely to relate to herpes.]   A blood test revealed I had low-ish B12 (technically in range, but at the very low end, especially for a man of my size). I had a series of B12 injections, and I am taking a B12 supplement. I am not taking any lysine or arginine at the moment. I was taking the Arganine to see if I could induce an outbreak. [This is irrelevant, there is no known linkage between herpes outbreaks and arginine/lysine intake - its a myth - and B12 infers nothing.] I think what I am asking is - has anyone here ever repeatedly tested negative over and over again over long period of time, before getting a definitive answer, be a positive test, or something else? [The answer to this is: Extremely few people with a HSV-1 infection and even more rarely HSV-2 test repeatedly negative on Westernblot and actually carry the virus. Of the cases that I know of that had delayed detection by a swab and negative blood tests in the meantime (and that's only 3-4 cases), they had some form of lesions within days of infection but did not obtain a swab for various reasons and then obtained a positive swab of a subsequent lesion with the record being 11 months later. A couple of the cases did have some 'background' symptoms they thought might be related to herpes but that isn't ascertained and some did not have any unusual symptoms at all apart from the lesions. Hence as you did not have lesions around your mouth or lips within days of the last sexual encounter as is exceptionally common for a primary oral HSV-1 infection, that pretty much rules out herpes orally as it is. The fact that you had no genital symptoms for a month also rules out genital herpes. I am not aware of anyone at all who has genuinely gone on to test positive by swab or blood in your specific circumstances. There are hundreds if not more than a thousand experiences on this website alone that are similar to yours that are truly negative for herpes I'm one of them!]  
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