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A little insight into Alzheimer's (Herpes has been linked to Alzheimer's)

Movingslowly

By Movingslowly
in Herpes Cure Research

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Movingslowly Acknowledged Support Member

Movingslowly

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Alzheimer's AssociationJanuary 4 at 8:41pm Report

Following the unanimous approval of Congress earlier this month, and the thousands of e-mails and messages you and other advocates sent to the White House last week, I'm pleased to share that today President Obama signed the National Alzheimer's Project Act (NAPA) into law. Once implemented, NAPA will ensure our nation has what Health and Human Services Secretary Kathleen Sebelius calls an "aggressive and coordinated national strategy" to confront the present and rapidly escalating Alzheimer crisis.

Today is a day to celebrate. This is a victory for the 5.3 million people who live with Alzheimer's in this country and the nearly 11 million caregivers. It is a victory for you and more than 300,000 other advocates who stood up and demanded that our nation's leaders create a plan for combating this disease. The journey to take NAPA from concept to law of the land is a victory for all of us.

Tomorrow we will return to the hard but rewarding work that lies ahead. NAPA is a milestone and a very important step forward, but it is not the destination. Our destination is a world without Alzheimer's and we can only arrive there through therapies that stop this disease and improved care and support for those contending with it. Rest assured that we will work tirelessly to maintain the momentum evident today. We will work to ensure NAPA is implemented effectively so that it lives up to its promise, and we will work to advance our other legislative priorities for 2011, including a major, immediate increase in research funding.

As you know, there is no time to waste.

Please continue to stand with us in the fight against Alzheimer's. We can't succeed without you. And please ask others to join us in this effort. We'll need to call on every available voice to succeed.

Again, congratulations and thank you.

Sincerely,

Harry Johns

President and CEO

Alzheimer's Association;)

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Sweet7 Acknowledged Support Member

Sweet7

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Wow, this is great news. I sure hope that some funding will go to research regarding the link between Alheimers and HSV. It's also good to hear that signing the petitions did some good. Thanks for posting.

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helpiamconfused2 Platinum Support Member

helpiamconfused2

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Do we have any recent authoritative medical literature unequivocally linking herpes to Alzheimer's? If so, please share it and we need to reach out to this organization and team up with them.

If someone can provide me with the link, I'll certainly make them aware of our petitions and also see if there is a way we can coordinate our efforts some way.

Thanks!

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helpiamconfused2 Platinum Support Member

helpiamconfused2

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Please see the email I sent to the Alzheimer's Association. Please copy and paste and send yourself. We need their support!!!!

To: info@alz.org

As you know, Alzheimer's has been linked to herpes. We are working diligently to petition the US government to funding herpes research.

We'd like to solicit your help. As you can see below, here is the link from HSV1 to Alzheimer's.

http://www.sciencedaily.com/releases/2008/12/081207134109.htm

Please sign our petitions to increase herpes research funding. This will help all of us.

http://www.petition2congress.com/387...d-cure-herpes/

http://www.petition2congress.com/373...earch-funding/

http://health.change.org/petitions/v...search_funding

Thanks!

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helpiamconfused2 Platinum Support Member

helpiamconfused2

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It's great that they are researching but the connection really sucks for us. Just another thing to worry about.

Let's leverage the connection and see if we can get more hsv research money as a result!

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camomile Established Member

camomile

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Moving slowly had posted this information on another thread. I was under the impression that our petitions played a role in this already.

Yes.

Professor Ruth Itzhaki is apparently struggling with fund-raising for her research.

"The more we know about that, the more we can treat the disease. Yet she is struggling to secure funds to for the next stage of her research. "

http://www.thejc.com/news/people/ruth-itzhaki-makes-a-bizarre-discovery-about-alzheimer%E2%80%99s

I'm sure she knows any new progress of H vaccine(s) in the pipeline. Wonder if someone could contact her as a representative of this site?

http://www.manchester.ac.uk/research/Ruth.itzhaki/

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helpiamconfused2 Platinum Support Member

helpiamconfused2

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Alzheimers link

Write them and ask them to sign our petitions! It helps all of us!

They have the administration's ear. Leverage that! We don't get many opportunities like this!

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struggle83 Acknowledged Support Member

struggle83

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Let's leverage the connection and see if we can get more hsv research money as a result!

I agree. I proposed seeking out the Alzheimers lobbiests months ago for support.

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helpiamconfused2 Platinum Support Member

helpiamconfused2

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I agree. I proposed seeking out the Alzheimers lobbiests months ago for support.

S83, then you and everyone else contact the organization as I did. They'd make a strong partner!

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camomile Established Member

camomile

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I wondered if it would be helpful to have a dedicated list of research-related articles and links, to remind ourselves of different research going on and perhaps a list of researchers would also be very useful.

My GP (now retired) used to tell me HSVs commonly affect human temporal lobes. University of Liverpool researcher Juliet Holdstock seems to be doing some research on this.

http://www.livestrong.com/article/175920-temporal-lobe-diseases/

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helpiamconfused2 Platinum Support Member

helpiamconfused2

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Reach out to the Alzheimer's Organization!

I wondered if it would be helpful to have a dedicated list of research-related articles and links, to remind ourselves of different research going on and perhaps a list of researchers would also be very useful.

My GP (now retired) used to tell me HSVs commonly affect human temporal lobes. University of Liverpool researcher Juliet Holdstock seems to be doing some research on this.

http://www.livestrong.com/article/175920-temporal-lobe-diseases/

It's great and now we know the connection! For goodness sake, let's use it!

Write to the Alzheimers group and ask them to sign our petitions! Talk gets us nowhere. We need ACTION! Take it and make something happen!

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Sweet7 Acknowledged Support Member

Sweet7

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Actually, I had some communication with Ruth Itzhaki a while back. I told her about the Pespsi refresh challenge. It sounded pretty grim for her research then. She was using standard antiviral's in her studies and I mentioned Bav to her. She would have been happy to do an invitro study as long as she had plenty of funds to keep her current research going. If her project is still going, we may not want to bother her much. Her reseach is proving the link, so we need to let her do that. Letting her know about the petitions is a good idea. She can forward that infomation to the organization in he US that accepts donations for he research. I posted that infomation, so if anyone is interested in contacting them, you can do a search for it.

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helpiamconfused2 Platinum Support Member

helpiamconfused2

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Actually, I had some communication with Ruth Itzhaki a while back. I told her about the Pespsi refresh challenge. It sounded pretty grim for her research then. She was using standard antiviral's in her studies and I mentioned Bav to her. She would have been happy to do an invitro study as long as she had plenty of funds to keep her current research going. If her project is still going, we may not want to bother her much. Her reseach is proving the link, so we need to let her do that. Letting her know about the petitions is a good idea. She can forward that infomation to the organization in he US that accepts donations for he research. I posted that infomation, so if anyone is interested in contacting them, you can do a search for it.

Sweet, can you elaborate a little? Did you contact Ruth and if no, tell me how and I will inform her of the petitions.

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Sweet7 Acknowledged Support Member

Sweet7

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I did contact her months ago. I just pm'd her email address to you. I told her about the refresh award but she referred me to someone else. Chris Cox is the coordinator for funding for them. His email address is has the same naming convention as hers.

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camomile Established Member

camomile

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A bit dated article, titled:

"Investigation of HSV-1, HSV-2, CMV, HHV-6 and HHV-8 DNA by real-time PCR in surgical resection materials of epilepsy patients with mesial temporal lobe sclerosis"

You can read an abstract here:

http://www.jns-journal.com/article/S0022-510X%2807%2900570-9/abstract

Looks like there's some indication of HSV in epilepsy?

"Pathological specimens were obtained from 33 patients with MTLE undergone temporal lobectomy with amygdalo-hippocampectomy due to intractable seizures. Autopsy materials from the hippocampus of 7 patients without neurological disease were used as controls. The data was also correlated with the clinical history of patients including febrile convulsions, age, and history of CNS infections. Real-time polymerase chain reaction method was performed for detection of DNAs of these viruses."

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Sweet7 Acknowledged Support Member

Sweet7

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Good find! And Whata know? I think it's high time the cdc didn't just hear our stories but take HSV much more serious. Both versions, oral and genital. The HHV6 foundation has been looking into this. We should hound the cdc to start recommending to Dr. to advise patients that they are not being tested for all std's and they must ask if they would want to participate. More people will find out what they have and spur the market for cure. I swear, the cdc guidelines have really ticked me off. If they had better recommendations, there wouldn't be nearly as many people infected. Ugh. Ok. Got to stop. This is not the rant and rave section. Sorry...

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camomile Established Member

camomile

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I recently had to contact my local member of parliament for some dodgy practice ("hc service" that I had been paying for) within my health care system as my initial formal complaint was completely ignored.

Better to deal with someone at a higher level and ppl responsible, would have to listen. You have got the excellent reason to do so xx

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