Jump to content
World's Largest Herpes Support Group
Sign in to follow this  
helpiamconfused2

What Can We Do to Make a Change? PLEASE READ!

Recommended Posts

helpiamconfused2

1. Sign and push our petitions - all of them.

2. Donate any little bit that you can afford to any related researcher/organization you can think of.

3. Think of other creative ways we can partner with other bigger, organizations such as Alzheimer's, HIV, etc. Ask them to sign our petitions and get involved with us.

4. Write into magazines, television shows, etc, defining the problems and the lack of attention given to it.

5. Outside of the petitions, write State/Federal and other officials pushing HSV.

6. We need to reach out to some of the larger Foundations (Gates, etc) for some help funding. This is one that we really need a foundation to make happpen. Hopefully, HCF can get off the ground soon.

7. Pepsi Refresh Challenge - get more of the organizations to go for this...

Other ideas? Come on team. Let's work together!!!!!

Share this post


Link to post
Share on other sites
JBnATL

The easiest thing to do is to go out and live a normal life. Herpes for the most part is a very common (80% of the adult population has it), mostly harmless virus.

If everyone were to act like this was no big deal, the stigma associated with this would eventually fade.

There are far worse diseases out there that need funding, hell the flu virus kills 30,000 people a year.

Good luck!

JB

Share this post


Link to post
Share on other sites
helpiamconfused2
The easiest thing to do is to go out and live a normal life. Herpes for the most part is a very common (80% of the adult population has it), mostly harmless virus.

If everyone were to act like this was no big deal, the stigma associated with this would eventually fade.

There are far worse diseases out there that need funding, hell the flu virus kills 30,000 people a year.

Good luck!

JB

JB, why don't you lead a campaign to work on that (the stigma)? I don't necessarilly disagree with you; however, my mission right now is different...

Thanks!

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
Sign in to follow this  

Advertisement

Try a Lysine supplement for cold sores

  • The Hive is Thriving!

    • Total Topics
      68,621
    • Total Posts
      458,529
  • Posts

    • Elly86
      @WilsoInAus thanks for the clarification. I am currently taking into account all possibilities that i might encounter, since my fiance is positive HSV-1. I am preparing myself for the future, if I however eventually get infected from him. Im on the brink . We will have an appointment with a Doctor on friday, to justify more about this and I am so anxious of knowing what the Dr will say. I am scare it might effect my decision of marrying him. How I wish this virus could be kill, how I wish life hasn't be this cruel to us. The day for us to tie the knot is just around the corner, everything had been prepared and we are tested with this news. Im showing my support to him right now but deep down, Im sooo scared. It's truly an adventure
    • WilsoInAus
      Note that it’s not an infection as we know it the eye, these are caused by bacteria. Sometimes though the virus will attack the cornea and cause issues. It is estimated about 1 in 50,000 people per year will suffer some vision impairment from HSV-1. However these people are almost always not treated with antivirals where success appears to be over 90% for preventing permanent damage.
    • Elly86
      Hi..Ive been browsing around the web, and find out that HSV1 might caused eye infection and ultimately blindness..how common is this? Anyone experiencing this before?
    • Elly86
      Hi @patpat I encountered same situation like yours. I really want to know what is your next step. Did you finally get married? How is your life now? Any advice?  I know this is an old thread but this is related to me. Would be so much relieve to be able to talk to someone in the same shoe. Hope you still buzzing around honeycomb
    • metamorphosis333
      BHT has helped me soooo much! When I first got infected my outbreaks were constant .. one would heal up and there comes another ... it was terrible . I was so fuxking depressed and miserable. I cut out the “trigger foods” took vitamin c and lysine .. drank apple cider vinegar .. nothing worked until BHT!!! Now that I take BHT i rarely have Outbreaks. If I do it’s because I sometimes forget and skip taking it .. or I eat some trigger food + forget the Bht .. but even then my outbreaks are SOOOO a mild compared to before . I’ve had outbreaks that have disappeared in a day . Sometimes I up my dosage on BHT when I do have a mild outbreak , and apply topically. It really has been such a blessing to find out about BHT 
×

Important Information

We have placed cookies on your device to help make this website better. You can adjust your cookie settings, otherwise we'll assume you're okay to continue.