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24/7 outbreaks HELP!!!!!!!!!!!!!!!!!!!!


ricosuave

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i have had hsv for 2 years now. i am taking valtrex and i am having one continuous outbreak for the past year. sex is non existent b/c the outbreaks are so bad that after i recover i have another one immediately. my body just does not recover and has not for a year. what do you suggest?

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See a doctor asap. If it's been 2 years and you are on meds, there may be something else wrong- something may be inhibiting your immune system from fighting off the virus. Or, maybe you are actually having some sort of reaction to the medicine. After 2 years and valrex I don't think you're going to find anything on here that will help- you need to ask a professional! For your sanity if nothing else!

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I have had almost contunious OB's for several years in spite of repressive therapy. I tried taking much more and it worked. Instead of 2 800mgs a day I took 10. Presto - no more OB's or at least smaller tolerable ones. It's probably not very sane advise but it works for me. Good luck.

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I have had almost contunious OB's for several years in spite of repressive therapy. I tried taking much more and it worked. Instead of 2 800mgs a day I took 10. Presto - no more OB's or at least smaller tolerable ones. It's probably not very sane advise but it works for me. Good luck.

Wow. I just hope you realize some of the possible side affects of taking such a high dosage, including seizures, neoplastic diseases of the blood and kidney failure, for example.

That seems like a high price to pay, especially since all your blood tests have come back negative for HSV...

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i have had hsv for 2 years now. i am taking valtrex and i am having one continuous outbreak for the past year. sex is non existent b/c the outbreaks are so bad that after i recover i have another one immediately. my body just does not recover and has not for a year. what do you suggest?

How were you diagnosed with HSV?

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i was not sexually active for about 5 years and had an encounter with my now wife. i had a very bad outbreak and i was diagnosed with hsv2. my wife was tested and she was negative. all tests were negative. doctor told me that it could have sat dormant and blew up after your last sexually encounter. can it sit dormant for 5 years? that would mean my ex wife was cheathing on me.

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i was not sexually active for about 5 years and had an encounter with my now wife. i had a very bad outbreak and i was diagnosed with hsv2. my wife was tested and she was negative. all tests were negative. doctor told me that it could have sat dormant and blew up after your last sexually encounter. can it sit dormant for 5 years? that would mean my ex wife was cheathing on me.

No, that IS NOT what it would mean.

It would mean you have had the virus for a while and it just now showed the first symptoms.

It has to do with HSV being dormant in YOU, not your wife.

And yes, it can lie dormant for years.

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If it is, in fact HSV and you have been having constant outbreaks like that, I would definitely have you immune system checked out.

fullofregret makes a very good point. If your symptoms are definitely proven to be HSV, but antivirals are not helping, you should try to find out why. Maybe a different antiviral would work for you. But you should do what you can to figure it out. That isn't normal.

Are you doing anything to minimize triggers?

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i have been under a lot of stress. but it is from the hsv ravishing my body the way it is. it makes sex almost non existent and that really effects my wife. changed to famvir and am getting positive results. now i need to think positive. stress is probably what is wearing out my system and causing frequent outbreaks.

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  • 2 weeks later...

ive had frequent outbreaks for ages, nearly two years, it changes almost rotates on two different points on my foreskin, really itches, i guess i work too much and drink too much and by reading this i dont eat healthly enough, i think i might start to change the way i feel about herpes after visiting this site.

xx

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    • sgt98
      Hey @WilsoInAus ok thank you, I will do my best to move on and stop trawling forums haha. 
    • WilsoInAus
      Hey @sgt98 but there is no feasible infection or outbreak to suppress and antivirals do not suppress an initial outbreak in any event 
    • sgt98
      Thanks @WilsoInAus I understand apologies for this but the only other thing I am worried about is that I did take a course of Famvir on day 1 as I felt like I was having an outbreak of cold sores and am worried that has suppressed the initial outbreak genitally 
    • WilsoInAus
      Hi @sgt98 it is not feasible to obtain a HSV-2 infection from receiving oral sex - only HSV-1 is feasible but you've already got that and immunity from any further infection with HSV-1. You do not need any further tests for HSV. You're feeling regret, try to forgive yourself and calm down, let the rational take over. You know the answer here and it won't be long until you believe it too.
    • WilsoInAus
      Hi @NerdP423 and welcome to the website. You raise a lot of points and I think the best way to address your concerns is add some comments at each key point. I've copied your note again below and added these comments in square brackets. I appreciate any insight (even speculation) as to what has been going on with me. I'm a 37y/o M. I last was intimate with a new partner on 2/11/2022, and a few days later started having a huge amount of discomfort in my face. [The first thing that happens though is that herpes causes lesions or at least some skin based disruption. Other symptoms are then related to the actions of the immune system responding to the virus. Without lesions, it is highly questionable that the ailment is related to herpes, yet testing is useful if you have concerns as you have done so.] About a month after that [herpes causes issues within days, if the first 'symptoms' are a month later - its extremely unlikely they are related to herpes], significant discomfort downstairs, however every test I have ever taken for HSV 1 and 2 has been negative. Here are the details: Face: Previously, some significant tingling and itching on the right side of my mouth, lips and chin (still there, but milder) [herpes does not cause general tingling and itching, it can cause a reasonably concentrated feeling of itch/throb from which a herpes lesion appears within hours]. Occasional hot flashes near my right eye, cheek and ear [herpes does not do this, it may be a immune response to something, or stress]. Sometimes it will feel like the skin is crawling on the right side of my face [herpes does not cause a general crawling sensation]. Never seen anything that looked like a traditional cold sore [that's extremely telling, even people with associated atypical symptoms will have experienced herpes lesions]. Occasionally, the left side of my face will have a momentary feeling of skin crawling, but it's so mild that I am not really worried about it. Downstairs: Thankfully, most of these are now milder than they were before. Occasional momentary pinch of pain at the base of my genitals. [herpes does not cause a general pinch feeling.] Aching pain in my boxer area (groin, leg folds) [nor this] Occasional feeling of cold in my boxer area, butt, or lower back. ( also in my shins and occasionally even my arms) [nor this] On 4/30/2022, I had been in discomfort for almost two months. I scratched an itch, noticed it hurt, and then checked - I did have an open ulcer down there. Took myself to the ER to get swabbed, came back negative. [If this was a PCR then this will be very conclusive.] Practitioner said it may come back negative because it was already open. However the lab report noted that it definitely didn't look like what you'd expect a typical first herpes outbreak to look like [how would the lab know??]. All blood tests negative so far. I had two western blots, the second one was nine months after exposure. [Two negative Westernblots!!! Many that's real convincing]. All other swabs also negative. I went to urgent care, because I know the timeliness of when the Swab is taken matters. One time, a swab was not done, because practitioner said it was folliculitis and wouldn't swab it (It was at my belt line). [Belt line is highly unlikely to relate to herpes.]   A blood test revealed I had low-ish B12 (technically in range, but at the very low end, especially for a man of my size). I had a series of B12 injections, and I am taking a B12 supplement. I am not taking any lysine or arginine at the moment. I was taking the Arganine to see if I could induce an outbreak. [This is irrelevant, there is no known linkage between herpes outbreaks and arginine/lysine intake - its a myth - and B12 infers nothing.] I think what I am asking is - has anyone here ever repeatedly tested negative over and over again over long period of time, before getting a definitive answer, be a positive test, or something else? [The answer to this is: Extremely few people with a HSV-1 infection and even more rarely HSV-2 test repeatedly negative on Westernblot and actually carry the virus. Of the cases that I know of that had delayed detection by a swab and negative blood tests in the meantime (and that's only 3-4 cases), they had some form of lesions within days of infection but did not obtain a swab for various reasons and then obtained a positive swab of a subsequent lesion with the record being 11 months later. A couple of the cases did have some 'background' symptoms they thought might be related to herpes but that isn't ascertained and some did not have any unusual symptoms at all apart from the lesions. Hence as you did not have lesions around your mouth or lips within days of the last sexual encounter as is exceptionally common for a primary oral HSV-1 infection, that pretty much rules out herpes orally as it is. The fact that you had no genital symptoms for a month also rules out genital herpes. I am not aware of anyone at all who has genuinely gone on to test positive by swab or blood in your specific circumstances. There are hundreds if not more than a thousand experiences on this website alone that are similar to yours that are truly negative for herpes I'm one of them!]  
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