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peaceful1

Positive with gential herpes(possible oral and eye too)

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peaceful1

i was recently diagnosed with hsv 2. I noticed little bumps on my lip (never goes away-if i open my lip wide i can see them). Now, they're starting to get bigger white mucus dot ones on my bottom lip, but i put salt on it and it went away in a day. I don't want it to get big and look obvious. I will be so embarassed.

now my eyes are starting to burning, pressure & white mucus in the outter corners. I went to the eye dr who said it's dry eyes, but i dont think so. I am very scared and i dont want to go blind.

my husband and i been together for over 10 yrs and i dont know how this started (approx 2 mths now). I'm scare to let my child and husband touch me. I want to get both on them tested because they have no symptoms.

i'm not on any medicine yet, but reading all the websites are freaking me out. My life is over, just waiting to die. Scared to eat because i dont want an outbreak, etc. I dont know, just needed to vent. Thanks for listening.

and to think, i went to 2 doctors who told me it dont look like herpes, but when i took the igg blood test- it came back positive.

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notcool

You are not alone. I only found out Monday about being positive for both 1 and 2. Don't know how to tell my wife yet. I'm scared to tell her because we been together for 13 years. Hate to think a stupid act on my part may have caused this.

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peaceful1

We're going to get through this. I know it's hard, but you have to tell her. I know what your saying. I was scared to tell my husband, but i didn't do anything wrong. I must have been infected for many years b4 him without any symptoms. I get STD testing every year and didn't know they did test for that. I still wouldn't have known if my lip didn't start burning. I'm annoyed with the lip outbreaks every other day. I still don't know about treatments and food diets to avoid outbreaks. I also have a thyroid problem.

ON A POSITIVE NOTE, WE'RE BLESSED BECAUSE IT COULD'VE BEEN WORST.

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blinky123

Hey guys, I was in the same position as you guys 2 years ago. Thankfully we are still together and going strong.

Be honest, its tough, I had tears and fights for a week, but once the panic was out of us both, we settled and got on with life.. it does go on! And as for you NotCool, please please be brave enough to tell her before she has an OB, maybe the doc can put her on something to help clear the blood to prevent it, my fiancée has never had an OB but does carry because of me :(

Please click on this link, I made a thread about products that help me.. in a clear list with links, the more you read about herpes on Google etc, the more confusing it gets.. I'm no expert, but this is what has been helping me out the last 2 years..

http://www.herpes-coldsores.com/messageforum/showthread.php?34923-What-works-for-me!-(May-help-you!)

Hope it helps you both! Your going to be just fine, in 6 months you'll wonder what all the fuss was about!

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babybooh

I didn't know you could get herpes of the eye.. Should i talk to my doctor about that? Is it an always or a sometimes situation?

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Disbelief37

Peaceful,

How are your eyes? I was recently diagnosed with HSV1 and have the same issues with my right eye. It started about 4 weeks after I contracted HSV and has been constant for close to 9 weeks. I've been to 3 ophthalmologists and they all say dry eyes too. Just never having an eye issue before seems like too much of a coincidence. It is really bothersome. Wanted to see if you found anything that has helped.

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determined87

same here

Hi'

Im also in the same situation. I was diagnosed with Herpes 1 genital and oral. I've been with my boyfriend for three years. We broke up for a few months because I found out he was cheating. I had sex with an old friend one time and when I went to be checked for std's I found this out. I'm scared to talk to him because I dont know what to say. He could've gave it to me or I couldve contracted it from the other guy. Im scared this will tear us apart.

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peaceful1

Hi Disbelief37, I just went to another doctor less than a week ago and they're still saying it's a chronic dry eye condition. Now, I woke up this morning and my eye was irritated again. I lifted my lid and I see a bump inside. I guess I should look for another doctor for a third opinion. IF I GET ANY ANSWERS I'LL LET YOU KNOW. JUST TRYING TO STAY POSITIVE. EVERYDAY IS SOMETHING NEW.

ONE WEBSITE SAY MANY PEOPLE ARE MIS-DIAGNOSED IN THE EARLY STAGES. THE DOCTORS NEED TO DO MORE RESEARCH ON THE TOPIC.

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peaceful1

HI DETERMINED87, I'm sorry hear that. I know it's scary, but you have to tell him. Hopefully, you both can work through it. If you need to talk, I'm here. GOOD LUCK

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    • StayingUpbeat
      First, that your doctor simply tried non-generic valacyclovir instead of referring you to a dermatologist is surprising.  If you are taking daily Valacyclovir, and still have frequent visible lesions, a competent dermatologist would prescribe something called Foscarnet.  It is unfortunately an injection and (I believe) it must be administered weekly at an injection center or hospital.  However, the combination of weekly foscarnet and daily valacyclovir would almost certainly eliminate your visible outbreaks.  It's important to note that no current drug combination is known to totally eliminate HSV shedding.  You would need to have routine blood monitoring on this combination as Foscarnet has some potential side effects. Next, there are members on this site who have been able to obtain a drug called Amenalief from Japan.  It's a recently approved (in Japan) member of a class of HSV drugs called Helicase Primase Inhibitors (HPI): https://www.mimaki-family-japan.com/item/detail?item_prefix=TF&item_code=705711&item_branch=001 It is bio-similar to a drug called Pritelivir which is currently in clinical trials in the US for HSV in the immuno-compromised (i.e. organ transplants, HIV).  A member in this thread talks specifically about his experience taking 100mg/day to help with outbreaks.  It unfortunately sounds very expensive to take suppressively.  Finally, there was recently a small successful clinical trial on the use of topical squaric acid dibutylester (SADBE) for the control of HSV.  If your doctor is comfortable trying alternate therapies to control your outbreaks topical SADBE is an FDA approved cream that you could discuss trying.  My recommendation would be to bring this paper discussing the trial to your next doctor's visit.  It would be an off-label use but the cream is relatively benign.  It's most frequent use is clearing-up cutaneous warts on children. As always none of this discussion constitutes medical advice (I am simply a middle-aged engineer not a doctor) and you should always follow the direction of your doctor or medical professional over advise found on the internet.  One of these three options may however improve your situation.  Unless there is something other than HSV going on.
    • Hellothere123
      I really don’t feel like I can keep going on with this, it’s always in the back of my head and I feel like I’m not worthy of love anymore and I just want to end it all 
    • honkschonks
      @Anon222 I told the women I have slept with most recently. She’s been a regular partner who has had zero symptoms. She’s going to get tested. She’s the most level headed person I know and a good friend. One doctor told me for legal reasons to tell everyone in the past year that I have it. Another doctor said that’s unrealistic and pointless. I have no idea when it started as I had no major undoubtable outbreak, so going back a year may be too far, it may not be far enough. I’m not sure what to do. It has irritated me how casual doctors are about this. It won’t kill you but The emotional effect of knowing you have it or thinking you may have it seems to be more damaging than having it. People on here talking about suicide. I guess that’s why they don’t test for it, or it just got out of hand and there’s no going back. Strangely I haven’t been that stressed about it. Luckily I’ve been very busy working so I haven’t had time worry about it. Thanks @NY12345 for your thoughts.
    • Runride
      I've heard of STD dating sites but have never looked into one. Are they real? And does anyone have any experience with them?  If someone does I would really like to hear some details.  They sound kind of scary, but it seems it could also be a relief to know I would be less likely to be judged for this condition.
    • IcantThinkofaName
      I've also considered this option..and its still looking like a good idea. so... Did you try any other Av's like famvir or privetir? I think there are some others too...  Up the vitamin C, check your vit D levels via bloodwork... Are you stressed out or have a stressful lifestyle ( aside from having HSV, which alone is a stressor)? There are no other health issues going on ? How hard are your workouts? The last few Obs I had were after very intense resistance/weight workouts, and I was completely exhausted after...combined with a night of bad or little sleep. Tried L- glutamine supplementation? Lithium orotate ( its a supplement too) has been known to supress the virus/replication too. I have also read it could mutate it...not sure how accurate that is, or if there was a study that proved that..maybe google it. I took The lithium one time and it was an abbreviated/shorter Outbreak than others...but I was also taking alot of vit C, or it could have happened for another reason...I'll never know for sure. but...mediating for 12 hours a day might help too... (seriously) but just don't meditate on HSV. Or maybe in another year your body will get a better hold on the virus and can cope better. it is depressing, I can relate.  My Obs have finally  lessened after 1 yr and 3 months. I still have almost daily sensations, tingling though..I'm probably contagious AF. Sex isn't really on the radar anymore. so No reason to take the AVs as they cause some side effects for me. Time to join that monastery. There are more important things in life than sex, right?  (thats what some people are telling me and I want to punch them. I really liked/enjoyed sex) Hang in there. I was told after the 6 yr mark, HSV becomes a non issue in your body. ( thats what one of my Drs told me, so  not sure how accurate that is either, but I guess it gives me 4.5 years of hope) let me know if any of this helps or you find something that does.I wish you the best.  
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