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kk90

im scared

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kk90

i was diagnosed in the emergency room... i thought it was just a yeast infection. they ran a test just to make sure. I was still in such denial. when i got the phone call a couple days later all they told me was to continue taking the medicine prescribed and to get in touch with my primary physician. they didnt tell me what kind i had or what i should do until that moment. for the most part ive been on my own tryin to figure all this out. the general information is out there but i still have so many questions. im scared. idk what im looking for or what to expect or how to handle this. besides the drugs they prescribed me. they gave me meds for the pain that might come along (that definitely did) but i couldnt continue taking them. they helped with the pain but they made me sick and i couldnt function. i dont want to do that every outbreak. im so so scared.

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db8trgirl

the first outbreak is always really rough. it does get better though. I've had it for over a year, and that first few months is a real bummer. The pain sucks. There are a few tricks that i learned when I first found out and would be glad to share. It is tough but that is why this website is here. Don't forget that we are all here for you. i would definitely advise you to keep taking the suppression meds. and see if food doesn't help if you need the pain med. The suppression drugs were making me sick when i first started and food helped a lot. :)

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kk90

i hope it gets better... the first outbreak was really rough. any thing you could share to help would be appreciated.

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db8trgirl

Well if the break out is located on your labia, like mine is, it hurts to urinate during a break out. I went on a site that said to pull it aside but you have the risk of getting it on your fingers. I use sandwich bags with out the zipper to cover my hands and then fold it in on itself and throw it away. It is less suspicious than gloves and is also cheaper.

Um.... I use a hair dyer to dry the area instead of towel which can hurt. It helps if you keep it on cool.

I don't wear underwear when I sleep with a breakout. It keeps it dry.

I don't wear jeans on my breakout. Knit pants work awesome, and allow breathing.

Ice packs help with the pain. Place between my legs over my knit pants for a few mins. Never to long.

Hope this helps.

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kk90

thank you so much. i hope i can figure all this out soon. im still tryin to search for signs that another breakout and what things i should be avoiding... *sigh. i hope this all gets easier

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db8trgirl

It does. You just have to be aware of your body. :) It will get better as time goes on.

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SublimeBeauty

I totally understand what your saying. I was diagnosed Valentines Day. I have never experienced anything so uncomfortable. I detected the infection by one small lesion on myself and got to the doctors quickly. The week before i had made it to the doctors I thought i had the flu. I had fevers, chills & sweats. My body was aching like i ran ten miles. I had no idea what this virus was capable of and certainly never thought it would be a concern of mine. I am really glad I found this site, and surely will be using it for information and advise. Being educated on the subject has really brought my mind to rest. I am so grateful

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username1

why go through all this trouble? Do you have about 20-30 bucks on you? is there a vitaminne shoppe in your area? i'm sure there is. you can buy it online also. I used oil of oregano. It is the best out there. Just rub it down there with some olive oil and you will pee normally. You can rub it on the base of your spine daily with some olive oil daily for about 3 months. I have been doing it since my diagnosis. also one drop under my toungue. try it. you probably won't be posting back here because all of your problems associated with hsv will be gone after you take the oil of oregano.

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db8trgirl

;DHmmm. I had never heard that type of treatment, actually. It sounds like it would definitely be worth the try. :D

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username1

I haven't heard of it too until a few days after I went to the ER and did a little research of my own. just make sure it says "oil of oregano p73" :) you can get really any brand just make sure the bottle is "p73". mine's is just the vitaminne shoppe brand, and i don't even take any other drugs from the pharmacy. all one needs for hsv 2 or hsv1 is oil of oregano. i hope that when they do diagnose people, they give them some information on OOO because it really is nature's gift. By the way i'm eating peanuts, cookies, i drank 3 sodas today, and drink a soda everyday, tea with sugar, you name it, pizza, junk food, and no outbreak, zero, zilch. save the money that you would spend for your doctor's fees and pharmacy meds and do yourself a favor and buy the oil of oregano. i never regretted doing that.

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db8trgirl

What does the research say on it's effect on the shearing of viruses? I know the drugs help with it but does OOO?

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username1

I haven't found research stating its effect on shedding of viruses, but since it's an antiviral and i heard that it can sterilize sewage water: "In 1995, researchers at the University of Thessaloniki in Greece, proved that a 1/4000 dilution of wild oregano could sterilize sewage water. In a study completed by Georgetown University professor, Harry Preuss MD, it was found that oil of oregano's germ-killing properties were comparable to antibiotic drugs, such as penicillin, at killing Staphylococcus bacteria. In 2000, in the Journal of Applied Microbiology, it was proved that "oil of oregano had antibacterial activity against 25 different bacteria." A study completed by the University of Tennessee in 2001 reported that oil of oregano was the most effective plant oil for treatment against pathogenic bacteria such as E.coli and staph."

Read more: http://www.livestrong.com/article/186836-oil-of-oregano-treatment/#ixzz1EdbCU5E6

Since my sex buddy has hsv 2 I really couldn't say, but it might be the case. One could use as a lubricant OOO with some olive oil and rub it all around down there. Just a thought.

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  • The Hive is Thriving!

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    • StayingUpbeat
      First, that your doctor simply tried non-generic valacyclovir instead of referring you to a dermatologist is surprising.  If you are taking daily Valacyclovir, and still have frequent visible lesions, a competent dermatologist would prescribe something called Foscarnet.  It is unfortunately an injection and (I believe) it must be administered weekly at an injection center or hospital.  However, the combination of weekly foscarnet and daily valacyclovir would almost certainly eliminate your visible outbreaks.  It's important to note that no current drug combination is known to totally eliminate HSV shedding.  You would need to have routine blood monitoring on this combination as Foscarnet has some potential side effects. Next, there are members on this site who have been able to obtain a drug called Amenalief from Japan.  It's a recently approved (in Japan) member of a class of HSV drugs called Helicase Primase Inhibitors (HPI): https://www.mimaki-family-japan.com/item/detail?item_prefix=TF&item_code=705711&item_branch=001 It is bio-similar to a drug called Pritelivir which is currently in clinical trials in the US for HSV in the immuno-compromised (i.e. organ transplants, HIV).  A member in this thread talks specifically about his experience taking 100mg/day to help with outbreaks.  It unfortunately sounds very expensive to take suppressively.  Finally, there was recently a small successful clinical trial on the use of topical squaric acid dibutylester (SADBE) for the control of HSV.  If your doctor is comfortable trying alternate therapies to control your outbreaks topical SADBE is an FDA approved cream that you could discuss trying.  My recommendation would be to bring this paper discussing the trial to your next doctor's visit.  It would be an off-label use but the cream is relatively benign.  It's most frequent use is clearing-up cutaneous warts on children. As always none of this discussion constitutes medical advice (I am simply a middle-aged engineer not a doctor) and you should always follow the direction of your doctor or medical professional over advise found on the internet.  One of these three options may however improve your situation.  Unless there is something other than HSV going on.
    • Hellothere123
      I really don’t feel like I can keep going on with this, it’s always in the back of my head and I feel like I’m not worthy of love anymore and I just want to end it all 
    • honkschonks
      @Anon222 I told the women I have slept with most recently. She’s been a regular partner who has had zero symptoms. She’s going to get tested. She’s the most level headed person I know and a good friend. One doctor told me for legal reasons to tell everyone in the past year that I have it. Another doctor said that’s unrealistic and pointless. I have no idea when it started as I had no major undoubtable outbreak, so going back a year may be too far, it may not be far enough. I’m not sure what to do. It has irritated me how casual doctors are about this. It won’t kill you but The emotional effect of knowing you have it or thinking you may have it seems to be more damaging than having it. People on here talking about suicide. I guess that’s why they don’t test for it, or it just got out of hand and there’s no going back. Strangely I haven’t been that stressed about it. Luckily I’ve been very busy working so I haven’t had time worry about it. Thanks @NY12345 for your thoughts.
    • Runride
      I've heard of STD dating sites but have never looked into one. Are they real? And does anyone have any experience with them?  If someone does I would really like to hear some details.  They sound kind of scary, but it seems it could also be a relief to know I would be less likely to be judged for this condition.
    • IcantThinkofaName
      I've also considered this option..and its still looking like a good idea. so... Did you try any other Av's like famvir or privetir? I think there are some others too...  Up the vitamin C, check your vit D levels via bloodwork... Are you stressed out or have a stressful lifestyle ( aside from having HSV, which alone is a stressor)? There are no other health issues going on ? How hard are your workouts? The last few Obs I had were after very intense resistance/weight workouts, and I was completely exhausted after...combined with a night of bad or little sleep. Tried L- glutamine supplementation? Lithium orotate ( its a supplement too) has been known to supress the virus/replication too. I have also read it could mutate it...not sure how accurate that is, or if there was a study that proved that..maybe google it. I took The lithium one time and it was an abbreviated/shorter Outbreak than others...but I was also taking alot of vit C, or it could have happened for another reason...I'll never know for sure. but...mediating for 12 hours a day might help too... (seriously) but just don't meditate on HSV. Or maybe in another year your body will get a better hold on the virus and can cope better. it is depressing, I can relate.  My Obs have finally  lessened after 1 yr and 3 months. I still have almost daily sensations, tingling though..I'm probably contagious AF. Sex isn't really on the radar anymore. so No reason to take the AVs as they cause some side effects for me. Time to join that monastery. There are more important things in life than sex, right?  (thats what some people are telling me and I want to punch them. I really liked/enjoyed sex) Hang in there. I was told after the 6 yr mark, HSV becomes a non issue in your body. ( thats what one of my Drs told me, so  not sure how accurate that is either, but I guess it gives me 4.5 years of hope) let me know if any of this helps or you find something that does.I wish you the best.  
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