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Herpes Symtoms but Always Testing Negative?

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In doing some research I came across something very interesting. It may be useful to those who are experiencing typical herpes symptoms, but, testing negative over and over again. I am not implying this is what you have; but certainly something worth considering. And btw, as usual, after 2 minutes of reading it, I've already diagnosed myself with it.:oops:


An autoimmune disease called Behcet's Syndrome's initial symptoms closely resemble the herpes virus, causing vaginal sores, cuts, fissures, folliculitis and or inflammation in the genital area. Other symptoms develop many years later. I believe that many of you have this illness at varied degrees. It is different in everyone who has it. Your body is basically allergicly reacting to things around you. Your immune system is in over drive, it is an autoimmune disorder caused by enviromental damage to your immune system. It can not be fixed. It could get better or worse, depending on how well you take care of yourselves and how well you are treated.

. My symptoms started at age fifteen with itching, inflammation, then folliculitis (ingrown hairs), then cuts all over from time to time. It is different for everyone who has it. Some people just have inflammation where others may get cuts, or sores aswell. Folliculitis is a type of acne and is very common in Behcet's and occurs during or before a "flare" and can be on the face or anywhere. Chronic yeast infections and BV come hand and hand with Behcet's because it is a immune system disorder that weakens the immune system because the immune system is working in over drive. You are now allergic to more things. It is not contagious and it doesn't run in families. Researchers around the world think it is triggered by strep throat or from other enviromental causes, which permanitally damaged the immune system. It has been proven to not be genetic. Gential (genital) to Gential (genital) contact will cause a reaction "flare" in these people, so will a common illness, injury, or stress. It is very important for people who have this to rest often, use condoms, and take good care of themselves to avoid flares. They will also need medication like steriods and or immune suppressants, depending on their case. Someone who needs a lot of medication to start, might not need that much with a little time. Common symptoms later in the disease, if it goes untreated, are digestive symptoms, bowel inflammation, possible bladder inflammation that feels like a bladder infection, arthritis, fibromyalga (fibromyalgia), and very late in the disease serious eye inflammation and possibly central nervous system involvement. People rarely die from this illness, the main thing a person has to be worried about is quality of life. That why you want to be proactive, not scared. This disease can be managed if properly treated.

For about ten years I had the gential (genital) symptoms and was sure it was herpes and never mentioned it to my doctors again. None of the medication for herpes had ever helped me and I also noticed my husband never got sick from me. The inflammation was the worst and I was using hydrocortisone on my own by then for some relief.

I started having other symptoms like irritable bowel syndrome and fatigue. Then after I had two children my symptoms got a lot worse. FIbromyalga (fibromyalgia), Interstitial Cystitis, Epi-scleritis (inflammation of the small blood vessels in my eyes), and things like that. My immune system was attacking my body. It took years before I had enough symptoms and saw enough doctors to start getting it treated. They are still not totally sure what is wrong with me. There is a lot of misconceptions about these things because they are thought to be rare. The truth is that they are just highly under treated in the United States. They think I have something called Behcet's Syndrome, the world's oldest known disease. It is an autoimmune disease that can be very mild or more severe. It is hard to tell what it is unless you are able to get enough of the symptoms well documented and you have just the right symptoms even though your symptoms might be totally different than everyone else's symptoms. The stress in your life plays a big role in how bad your flares will be.

There are no tests that can tell if you have Behcet's. It is based on symptoms only. Vaginal symptoms that look like herpes (herpes causes inflammation, cuts, or sores), canker sores in the mouth at least three times per year, and inflammation in the blood vessels in the eyes. It can take years for enough of the symptoms to show up and they usually don't show up at the same time. You really need to fight for answers. Go to the American Behcet's Association for more information, but remember when you are there, those are the worst cases, most people with Behcet's don't have it that severe and do well with treatment.

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