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Jaggirl

Herpes attack Spinal Cord?

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Jaggirl

Hello! I was diagnosed with HSV 1 in Oct. 1999. I had one OB and then nothing until May 2007. From then on till Mar. 2011 I had an OB maybe 1-2 times a year usually if I got sick. Then in March 2011 I woke up with shooting pain going down the left side of my neck to my shoulder. A few hours later I could no longer move my left arm and loss all sensation of the right side of my body, shoulder to my toes. I can no longer feel heat/cold or pain on the right side of my body. Intially all the doctors thought MS. I had MRI brain scans, MRI of my entire spinal cord, as well as a spinal tap. The only thing they found was a lesion in my spinal cord up by my neck. All test came back normal, which is good. Even tests the herpes virus in my spinal cord which came back negative as well. Since then I have gone to PT and regained all movement and mostly all my strenght back in my arm. I still can't feel anything on the right side and don't expect to get it back. I have had probably 6 OB since this has occured. 2 back to back this month. I have back pain all the time and is worse during OBs.

I order some Lysine supplements and changed my diet. I currently take valacyclovir but really doesn't seem to help. Hope the Lysine will help me.

Has anyone experienced this? The doctors don't know what caused this and I'm currently undiagnosed. I feel strongly that it has something to do with my HSV. I try not to get depressed but my life since this has happen in March has been an emotional roller coaster. I know it could be way worse.

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luckyCat

I experienced something very similar that started about 3 years ago. Although i still had use of my right arm...it was very weak and I could barely raise it to shoulder height. Turned out I have a degenerative disc condition in my neck and the subsequent muscle spasms it was causing in my neck was causing a nerve on the right side (base of skull to right shoulder) to get pinched. Very painful...couldnt even turn my head when it flared up. It still flares sometimes but nowhere nearly as bad as in the beginning. I dont believe Herpes is a factor.

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