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Herpes attack Spinal Cord?

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Hello! I was diagnosed with HSV 1 in Oct. 1999. I had one OB and then nothing until May 2007. From then on till Mar. 2011 I had an OB maybe 1-2 times a year usually if I got sick. Then in March 2011 I woke up with shooting pain going down the left side of my neck to my shoulder. A few hours later I could no longer move my left arm and loss all sensation of the right side of my body, shoulder to my toes. I can no longer feel heat/cold or pain on the right side of my body. Intially all the doctors thought MS. I had MRI brain scans, MRI of my entire spinal cord, as well as a spinal tap. The only thing they found was a lesion in my spinal cord up by my neck. All test came back normal, which is good. Even tests the herpes virus in my spinal cord which came back negative as well. Since then I have gone to PT and regained all movement and mostly all my strenght back in my arm. I still can't feel anything on the right side and don't expect to get it back. I have had probably 6 OB since this has occured. 2 back to back this month. I have back pain all the time and is worse during OBs.

I order some Lysine supplements and changed my diet. I currently take valacyclovir but really doesn't seem to help. Hope the Lysine will help me.

Has anyone experienced this? The doctors don't know what caused this and I'm currently undiagnosed. I feel strongly that it has something to do with my HSV. I try not to get depressed but my life since this has happen in March has been an emotional roller coaster. I know it could be way worse.

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I experienced something very similar that started about 3 years ago. Although i still had use of my right arm...it was very weak and I could barely raise it to shoulder height. Turned out I have a degenerative disc condition in my neck and the subsequent muscle spasms it was causing in my neck was causing a nerve on the right side (base of skull to right shoulder) to get pinched. Very painful...couldnt even turn my head when it flared up. It still flares sometimes but nowhere nearly as bad as in the beginning. I dont believe Herpes is a factor.

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Try a Lysine supplement for cold sores

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    • WilsoInAus
      No it’s not a fact at all. How can it be a correlation if it happens no more than chance? Remember 70-80% of people using PW have herpes.
    • BeautyLover321
      Hello! Thanks so much for your reply. I was told (and believe) I have HSV 2. They told me that on the phone; it was confirmed through swab. I have never taken a blood test or been tested for it otherwise. I've read mixed reviews about HSV1 providing protection-- because some studies seem to allude that it does. If this is true- it makes sense because I never had chicken pox or HSV1 in my entire life so I think it explains why I caught HSV2 from a one night experience (just my luck and just my own theory) Although I still experience twitching in my body -- I feel happy that the valtrex every other day suppresses it. But I do wonder, because I'm experiencing such reduced symptoms; if my shedding is reduced too. I doubt it but just a thought.  Anyways - I can live with condoms but I don't want to.. so I'm hoping for some guidance
    • MikeHerp
      This is no great surprise that HSV is pushed back in ExcisionBio's pipeline.  I'd be surprised if it isn't pushed back again. The chart they put out is painfully uninformative.  Sloppy.  And that's a red flag in and of itself. My guess is that those arrows are progress rather than efficiency, but it's not completely clear.  But if a scientific company can't get this chart right, then I really wonder what other mistakes they are making. I don't have a ton of confidence in this.  But we'll see.  I'm glad that it seems they are trying to do something.  I think CRISPR could be a solution to HSV (some kind of solution).  But I question whether it will be ExcisionBio that makes it in the end.  
    • MikeHerp
      Good to know.  I don't think this is a listed company, but from what I've read, they've gotten decent funding.  Around $70 million.  Most of that probably won't go to HSV research, but it's good they have some money. By comparison, ExcisionBio has raised $10 million.
    • MikeHerp
      The fact that Admedus is farming this out, kind of tells you it's a long shot at best.  It's good that it hasn't been abandoned.  But I'm doubtful much will come of this.  But maybe new knowledge about what doesn't work will come, and that's always helpful.

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