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I was newly diagnosed 2 months ago on a culture in back of throat. For the past 2 months I have had swelling on tongue, redness, pain when eating, drooling in mouth. It seems to be in the front of the tongue and moves where the bumps and swelling occurred. I called the herpes hotline and was told it is rare to have it like this. I had another culture 2 weeks ago this time on the tongue and it was also positive. The blood test was still negative for HSV1. I am taking Valtrex for the past 2 weeks 1 mg per day but it does not seem to be helping but who knows what it would be like without Valtrex. Tongue just makes it so hard to concentrate as I feel the swelling all the time and the tongue pain is in the front of the tongue which constantly hits the teeth. Any comments appreciated. I also tested negative for HSV2.

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I am not a doctor but...it doesn't seem to me that the problem with your tongue is herpes. Your bloodwork was negative after 2 months...that's pretty strange. The culture was positive. I'm confused too. My culture was positive three weeks ago & i just got my bloodwork back and it was positive too. If it is herpes and it's located there...it will be difficult to heal because it can't dry out. I will suggest taking massive vitamins, including Lysine to build your immune system. Maybe the bloodwork is negative because you haven't built up your antibodies. Ask your doctor to increase the amount of valtrex that you are taking. Avoid caffeine, nuts, and foods high in arginine: see this website: http://www.freewebtown.com/fooddb/nutrdefs/511/2100.html for foods to avoid. Maybe you just need to get through this outbreak and then maintain your immune system. Did you go to an ear, nose and throat specialist? Hope I've helped.


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the fact that I have had 2 positive cultures for hsv1 one in mid June and one in early August makes me think it is herpes but I will take another blood test next month to make sure as the blood test I think should be positive within 4 months of exposure. I will see an ENT as well as my tongue has small white blisters that start in one area, go away and then go to another area. Sometimes my tongue gets very swollen as well.

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