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Herpes Type Limbo

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I just got back from an infectious disease specialist after I experienced what I though was my first outbreak. I had never actually seen a sore as the pain was internal (vaginal) and when I had my physician check me out (she originally diagnosed me via blood test) she said that it was indeed a sore, and prescribed me valtrex without culturing it.

Well now it's been several weeks, and I still felt the same pain I did before I started the medication. When I called my doctor back up, she said she didn't know what to tell me, and referred me to the specialist I saw yesterday.

She gave me some interesting news.

After taking one look at my labwork, she told me my numbers were so low as to be meaningless (1.66 for HSV1 and 2.36 for type 2); the doctor who diagnosed me was wrong for telling me that I was definitely positive, and went on to describe that even Igg bloodwork isn't too great at identifying type, and recommended that her patients avoid them altogether. She took another look down below, and said that, while the area looked slightly mottled, there was nothing that could be cultured. So either the valtrex worked, or it was something else. But why would I still feel the nervy-achy pain in my nether-regions?

The specialist said that I definitely have HSV1, but it was hazy on whether or not I have type 2. She didn't think I had it, but I will have to see if the pain gets stronger, and get it checked right away. If it's positive for type 2, then I'll know. But if not, or if it doesn't come back, I will be kind of stuck in this maybe or maybe not scenario.

The idea that this thing that has given me so much grief over the last few months might just go away is tempting, but I know that reality is more complicated. The info from this new doctor is comforting, but what happens when I have to tell a new partner? Will I even have to disclose? I don't know how I would even describe this to another person, or what to make of this in general. I've told past partners they needed to get tested, and disclosed to new ones (one of whom ran). This is awful of me, but I almost regret getting the test done in the first place.

If anyone actually reads all of this, it will be greatly appreciated. :)Does anyone know what to make of this, or been through something similar?

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I'm going through something similar. I had my first outbreak a couple of months ago. It was external though and I saw the bumps. They didn't really look like blisters/sores. I went to one doctor who said HPV, then my regular doctor said herpes but she said the outbreak was too old to be cultured. She did a blood test almost 8 weeks later and I was negative (less than .9) for both HSV 1 and 2. She said it's possible my immune system is keeping the virus in check. I'm going back again four months from my original outbreak to get retested. Until then it's daily acyclovir. It's really frustrating!!

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Try a Lysine supplement for cold sores

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    • Mike2026
      Ok well the red spots have gone away, do you still have any external symtpoms?
    • blurneworder
      Looks a bit similar to what I have. People will tell you it’s not herpes because it’s spred out or does not look like herpes, but my doctors are running out of answers/prescriptions to give me. ive had a host of other symptoms never before felt in my body. my tests are negative for now. I had a swab yesterday, but I’m not sure if it was an area that will yield anything. It was more a plea of something hurts, please swab this. its taken me months to get someone to swab me. I recently found out a hospital did not test my blood for HSV even after I requested it. Messed up, huh?
    • Mike2026
      @WilsonInAus You've helped me before what do you think?
    • Mike2026
      Here are pictures to help.
    • Mike2026
      Ok So I had unprotected sex with a girl about 5 days ago and the day after I had masturbated an abnormal amount for whatever reason. The following day I noticed my urethra and penis had a bit of pain and then I began to have abnormal pelvic pain, though the lymphnodes in my groin area were not swollen or sensitive. After about three days the pelvic pain continued and my urethra soreness continued as well despite my lack of masturbation. I have also had abnormal headaches and my usual lower back pain as an active athlete. No sores or lesions of sorts just a couple of red spots as I had shaved recently before having the unprotected sex and all these red spots are painless and do not itch. I have also had a constant urge to pee. I am on a rollercoaster of convincing myself that I do not have it and then hitting the internet with my symptoms and going into a panic that I could have HSV 2. Am i being a hypochondriac or should I be worried? Thanks guys

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