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Herpes Type Limbo

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I just got back from an infectious disease specialist after I experienced what I though was my first outbreak. I had never actually seen a sore as the pain was internal (vaginal) and when I had my physician check me out (she originally diagnosed me via blood test) she said that it was indeed a sore, and prescribed me valtrex without culturing it.

Well now it's been several weeks, and I still felt the same pain I did before I started the medication. When I called my doctor back up, she said she didn't know what to tell me, and referred me to the specialist I saw yesterday.

She gave me some interesting news.

After taking one look at my labwork, she told me my numbers were so low as to be meaningless (1.66 for HSV1 and 2.36 for type 2); the doctor who diagnosed me was wrong for telling me that I was definitely positive, and went on to describe that even Igg bloodwork isn't too great at identifying type, and recommended that her patients avoid them altogether. She took another look down below, and said that, while the area looked slightly mottled, there was nothing that could be cultured. So either the valtrex worked, or it was something else. But why would I still feel the nervy-achy pain in my nether-regions?

The specialist said that I definitely have HSV1, but it was hazy on whether or not I have type 2. She didn't think I had it, but I will have to see if the pain gets stronger, and get it checked right away. If it's positive for type 2, then I'll know. But if not, or if it doesn't come back, I will be kind of stuck in this maybe or maybe not scenario.

The idea that this thing that has given me so much grief over the last few months might just go away is tempting, but I know that reality is more complicated. The info from this new doctor is comforting, but what happens when I have to tell a new partner? Will I even have to disclose? I don't know how I would even describe this to another person, or what to make of this in general. I've told past partners they needed to get tested, and disclosed to new ones (one of whom ran). This is awful of me, but I almost regret getting the test done in the first place.

If anyone actually reads all of this, it will be greatly appreciated. :)Does anyone know what to make of this, or been through something similar?

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I'm going through something similar. I had my first outbreak a couple of months ago. It was external though and I saw the bumps. They didn't really look like blisters/sores. I went to one doctor who said HPV, then my regular doctor said herpes but she said the outbreak was too old to be cultured. She did a blood test almost 8 weeks later and I was negative (less than .9) for both HSV 1 and 2. She said it's possible my immune system is keeping the virus in check. I'm going back again four months from my original outbreak to get retested. Until then it's daily acyclovir. It's really frustrating!!

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  • The Hive is Thriving!

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    • MikeIke
      Postherpetic neuralgia 15% of the time is hsv1. It lives in your nerve ganglia. I don't see why that's so far fetched when it is well supported by research. 
    • Jas14
      I have HSV & foot nerve pain. I am 100% sure it's from HSV. My Infectious Disease Dr, very well known in NJ, said it is a possibility, he is not ruling it out. There are many strains of HSV & the one I have affected my feet.  I take L-Lysine, Daily Complete Vitamins & Vitamin B-12. My heart goes out to you. I will pray you find relief. Keep your head up & think positive. Sending hugs. Keep us posted
    • Rockster
      The chance of getting some HPV-Strain in life (as a person that is not abstinent) is literally about 99% i read. 
      And in 90% of cases the virus is gone after 2 years. And the chance of cancer is looooots smaller than 10% - you just go get your pap smears, so if something happens they know right away and they can treat it. Getting a positive pap smear at some point in life is super-common as a woman. 
    • nydb1
      I'd like to thank everyone for their input. Let's please keep things civil. I am going to continue with Acyclovir, until I feel my symptoms disappear. If they do not subside, I plan on consulting a physician again.
    • Rockster
      So... this would be a revolutionary simple Solution, to an extreme problem: transmitting and getting STD's where condoms don't help.  And people don't give a fuck and noone answers.    Now we just have to find out if it works.  - Does it hinder herpes transmissions (and perhaps also other stuff like hpv) - What is the cost (per sex) - What is the practicality

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