Meningitis and Outbreaks

[Support1]

I would like to know if any developed meningitis with their first outbreak (or any outbreak)? If so, what types of symptoms did you experience with the ob/meningitis?

[tohealth]

Yes. I have met only 1 other person on this site who also has.

My 1st symptoms:

Extreme fatigue, flu like symptoms, pulsing head pain that was not a headache, tremor (like Parkinson's disease), difficulty lifting my head in bed.

Later: symptoms recede and you think you are getting better but they return prominently: vomiting, no ability to lift or turn my head or stand up straight, inability to walk, seizure, severe photophobia, lack of coherence or ability to hold a conversation, unbearable head pain, zero short term memory, inability to perform routine tasks (like operating a phone).

[Young one]

Yes i got meningitis with my first outbreak.

My symptoms: Fever(for one day)

After 2 days of feeling normal: SEVERE headaches, stiff neck, tiredness, photofobia, inability speak or move normally, lots of vomitting. I also had pain and numbness in my leg but i think that was ther herpes and not the meningitis.

Never felt pain like that before in my life and never ever want to!

Did you also get meningitis with your first outbreak?Why do you ask?

[tohealth]

Yes i got meningitis with my first outbreak.

My symptoms: Fever(for one day)

After 2 days of feeling normal: SEVERE headaches, stiff neck, tiredness, photofobia, inability speak or move normally, lots of vomitting. I also had pain and numbness in my leg but i think that was ther herpes and not the meningitis.

Never felt pain like that before in my life and never ever want to!

Did you also get meningitis with your first outbreak?Why do you ask?

Boy oh boy. You make the second person I've met with this experience...and let me get this straight: are you saying that you had symptoms that went away and then came back? I think so (after 2 days of feeling better and then 'hell'). Like you, not only have I never felt pain like that in my life, I didnt know anything could still be alive and be in that much pain. It's seared in me.

Hey but I'm still wondering--were you all written up in medical journals or anything?

(And what's that thumb thing in my box?)

[Young one]

Oh i'm the same person that you met with meningitis on this site the other day

I dont think i was written up in a medical journal but everything is in my medical file.

No one knew i had herpes (including myself) when i had meningitis so i guess they could have made that connection.

Yea i got flu like symptoms the very same day i noticed the blister and then the next day i felt normal and then the next day after that i had very mild headaches and then the next day it was like i was being stabbed with 1000 knives in the front of my head...then it jus went downhill for the next 5 or so days.

[tohealth]

Oh i'm the same person that you met with meningitis on this site the other day .

See, I knew it was rare...

Yea i got flu like symptoms the very same day i noticed the blister and then the next day i felt normal and then the next day after that i had very mild headaches and then the next day it was like i was being stabbed with 1000 knives in the front of my head...then it jus went downhill for the next 5 or so days.

I was struck by how consistent your description is with my own---and particularly with that 'dip' period description. I think it's pretty textbook too. So I think then you are the one who was hospitalized for 3 weeks? I won't ask about your bill...I remember my own just fine though I had decent insurance...