Jump to content
World's Largest Herpes Support Group
Elly

HSV-1, Facial pain (Trigeminal neuralgia) and Vertigo-attacks.

Recommended Posts

Elly

Hello everybody,

It started for me two years ago with the Vertigo-attacks (like Menieres desease) and the Facial pain (diagnosed Trigeminal Neuralgia) at the same time.

Not very pleasant ... :(

Recently they found out I'm having active HSV-1, which can't calm down.

I'm wondering if there is anyone out there who has HSV-1 and Trigeminal Neuralgia (facial pain) and/or Vertigo attacks or any other earproblem (Tinnitus, Eustachian tube disorder, ...) ?

I would very much appriciate to hear from you!

Elly :wavey:.

Share this post


Link to post
Share on other sites
Toro

I have experienced the same and still have vertigo , ear problems tinnitus...All began on summer when I was off suppresive treatment. Calmed down after suppresive Valtrex now with Famvir treatment.. Hope they find a cure the soonest...

Share this post


Link to post
Share on other sites
Elly

Thank you for posting Toro!

I'm very surprised to get a reaction on my post. I'm very sorry for you though...

I don't seem to have any outbreaks on my skin, but the virus is in a constant active state (they've tested my blood several times). I get cold-sores frequently also. I got chickenpox (also a HSV type) on my 40th year.

It seems to me my problems (vertigo, trigeminal neuralgia, earproblems) are NOT an coincidence.

Does your vertigo come as 3-hour attacks?

And is your tinnitus also on your heartbeat? Full ear? Pressure?

They have treated me for Menieres, but it didn't work, so now they're thinking its MAV (migraine associated vertigo), but they are not shure yet.

Still have bad Trigeminal Neuralgia at times, taking Carbamazepine all the time. Couldn't live without it.

I was on Valacyclovir, 2 times a day 500 mg, for 3 weeks. That was it. On my last day on Valacyclovir I got a vertigo-attack. So maybe I needed to take more or longer, I don't know.

May I ask you what your dosage was on your suppresive treatment? And how long did you took it?

Many thanks for your reply!

Elly.

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • The Hive is Thriving!

    • Total Topics
      69,746
    • Total Posts
      470,346
  • Posts

    • Sarah889
      Really wasn't sure which topic to put this in! I'm guessing a lot of you will have seen the recent news that Mel B was rushed to hospital thinking she was blind from her eye herpes.  I know she's not as famous as she used to be, but I really don't understand why celebrities with a big presence aren't doing anything about this, such as fundraising for a cure or even just talking about it to raise awareness. Correct me if I'm wrong but I don't think she's ever spoken about it before!  She clearly suffers from some bad symptoms. Thinking that you've gone blind must have been one of the most terrifying experiences, and to me, after that ordeal I would try and do everything in my power to raise awareness and find a cure.  Maybe she just doesn't know about all the vaccination research that's currently happening, and how many of these places need the extra funding to keep going?  Not sure where I'm going with this 😂 But does anyone think it's worth getting in contact with her about raising some awareness?
    • WilsoInAus
      Hey @Alda whatever is going on for your arm you can rest assured it is not at all likely to be herpes. Could the blister type things be from the massage causing irritation, perhaps even contact dermatitis? If you aren't seeing improvement soon consider seeing the doctor but it doesn't strike me as anything of much concern.
    • Alda
      I need help; i went and got a massage and 2 days later my upper arm feels super sore and is red with 3 blister type things, each about a small pea size the place I got a massage at was  not very sanitary , it was hot in there and the masseuse was sweating I think (i do have the down south H but haven’t had a breakout in about a year and I still don’t.) my arm does not itch just super sore. I wonder what is on my arm. any ideas?
    • Quest
      It did! There are combinations you can take that will not give you this effect, I just didn't want to do medication anymore. What I am doing https://www.amazon.com/MakingCosmetics-BHT-4-4oz-125g/dp/B01DE780OS read Steve Fowkes free book BHT1/8 t in coconut liquid MCT chain oil. Extremely hard to dissolve. I leave it for a day, must read Steve Fowkes free book online, overdose gets people dizzy! More is not better! Oils will also not get Rancid if you put some in your cooking oils! whole food vitamin, glutamine 3x one gram, suggested by case9 love it DHEA,25mg, most people who breakout have low levels lugols iodine worked way to four drops. Fulvic acid minerals. Thyriod granular meds   When I used to have obs I used monolaurin and st.John s wort. I used diaper rash cream for obs I also still spray genitals with zinc sulfate mixed with water. I learned it kills any virus plus summer sweat won't smell at all!  There is one thing I will not be without and that's BHT and zinc sulfate
    • blurneworder
      Did your hair grow back?
×
×
  • Create New...

Important Information

We have placed cookies on your device to help make this website better. You can adjust your cookie settings, otherwise we'll assume you're okay to continue.