Sign in to follow this  
Followers 0
pollyanna1

What is the worst part of having H? Genital or Face doesnt matter

28 posts in this topic

Whats the most awful part that happened because of H? Im so worried if something bad happened cause of H and I can not help it to reduce that emotinal and physical pain :(

Share this post


Link to post
Share on other sites

Mine is the fear :( i always get this fear when i had sex. I dont care my partner okay with it but i always know the one that i have herpes and i contract him. This is the only fear :( and also so scared to have some permenant nerve damage

Share this post


Link to post
Share on other sites

The worst part for me : Back then was not knowing or ever hearing of herps and the way the doctors treated me as a married naive woman.

The worst part for me now: It is appauling how far we HAVE NOT COME! I still meet many saying the dr says "don't bathe, herps can spread in watres".

They say I can't use same toilets as my family or shower in same shower or bathe in same tubs, or use my families towels or the dinner plates.

It makes me want to vomit :sickgreenface:

How ignorant can these new aged doctors be about herpes in todays society of all the new age technologies? It truly blows my freaking mind. Sorry for the rants.

About for myself I have no worries I will continue on with what has worked for me , just as I did back 25 years ago. If something happens and oneday I find myself having been harmed by these meds for all these years, well then I guess it will be my time for my God to take me as he sees fit :) . Hugs honey Good post btw. Ace

Share this post


Link to post
Share on other sites

My worst fear is that the hip pain and fatigue won't go away and I will live like this for the rest of my life. That it will continue to get worse.

I know statistically that I will get better, but when you have it for weeks, months on end and you finally get it under control and something ELSE pops up. WTH?!?! I sometimes feel like I am on a boat full of holes. Each one I plug with a finger or toe another pops up. jeez. Sorry, coming off the end of a long very painful session. I will be in better spirits soon once I get back into the gym finally. Two months no gym sucks AND I gained weight darn it!!

Share this post


Link to post
Share on other sites
My worst fear is that the hip pain and fatigue won't go away and I will live like this for the rest of my life. That it will continue to get worse.

I know statistically that I will get better, but when you have it for weeks, months on end and you finally get it under control and something ELSE pops up. WTH?!?! I sometimes feel like I am on a boat full of holes. Each one I plug with a finger or toe another pops up. jeez. Sorry, coming off the end of a long very painful session. I will be in better spirits soon once I get back into the gym finally. Two months no gym sucks AND I gained weight darn it!!

do u use anything to reduce the hip pain hun, I have had the same thing before but now ım on valtrex and its gone for good. ;)

Share this post


Link to post
Share on other sites
do u use anything to reduce the hip pain hun, I have had the same thing before but now ım on valtrex and its gone for good. ;)

I am on famcyclovir 500mg 2x daily. Only thing that worked. Acyclovir did NOT work for me at all. No change taking it. Valtrex made me sick and gave me awful headaches.

So I went to more natural supplements. I will use something for a while and then pain comes back. I try something else, goes away...etc. I am now taking Black cumin seed (Nigella sativa) along with olive leaf extract and Lysine+ from Quantum (and a few other things). Olive leaf is the only thing that even remotely seems to help now and if I miss my 4-hour window of taking it, I know it. I feel the pain coming back. I think the famcyclovir is fading for me too. I am thinking about stopping it for a bit and see if I can use it again later? I don't know. I just take it one day at a time and glad it is finally easing up again. I have had about 2 days of almost no pain compared to limping pain so back on my cycle again. Hurts a while, eases up for a while. It varies on what that while is. Sometimes a month, sometimes a day or two. I am going to try to start back at the gym tomorrow but start out slow - no interval training or anything. Just treadmill for a bit and then elliptical which won't be long because the elliptical kicks my butt quick. But I should be able to build up to 20 minutes within about 2 weeks if I go every day. I need to go for at least 5 days a week of 30-45 minutes but I will probably just barely do 30 minutes for the next 2-3 weeks building back up. I have lost so much in not exercising for the last two months from hurting so bad.

Anyway, life goes on. Thanks for asking.

Share this post


Link to post
Share on other sites

life is totally goes on sweety. great job. I hope you will be fine more and more everyday

Share this post


Link to post
Share on other sites
I am on famcyclovir 500mg 2x daily. Only thing that worked. Acyclovir did NOT work for me at all. No change taking it. Valtrex made me sick and gave me awful headaches.

So I went to more natural supplements. I will use something for a while and then pain comes back. I try something else, goes away...etc. I am now taking Black cumin seed (Nigella sativa) along with olive leaf extract and Lysine+ from Quantum (and a few other things). Olive leaf is the only thing that even remotely seems to help now and if I miss my 4-hour window of taking it, I know it. I feel the pain coming back. I think the famcyclovir is fading for me too. I am thinking about stopping it for a bit and see if I can use it again later? I don't know. I just take it one day at a time and glad it is finally easing up again. I have had about 2 days of almost no pain compared to limping pain so back on my cycle again. Hurts a while, eases up for a while. It varies on what that while is. Sometimes a month, sometimes a day or two. I am going to try to start back at the gym tomorrow but start out slow - no interval training or anything. Just treadmill for a bit and then elliptical which won't be long because the elliptical kicks my butt quick. But I should be able to build up to 20 minutes within about 2 weeks if I go every day. I need to go for at least 5 days a week of 30-45 minutes but I will probably just barely do 30 minutes for the next 2-3 weeks building back up. I have lost so much in not exercising for the last two months from hurting so bad.

Anyway, life goes on. Thanks for asking.

What do you mean hip pain?! I'm so confused how can you get in so much pain over h?

Share this post


Link to post
Share on other sites

Genital herpes lies in the Spinal Ganglia Nervous system located at the base of spine. Some have many health issues.and having herpes can cause more issues along.with the already health issues a person has. DangitinAL is a good friend, she has suffered from many terrible things, but I continue to see her smiling face here educating.and supporting like the strong woman she is. Take care Hon. Truly Ace

Share this post


Link to post
Share on other sites

Ive got both. I can just rub some abreva on my face when I feel a cold sore coming on so I dont them very often. Genital herps has been a pain in the butt literally. Ive had physical issues such as chronic infections and nerve pains. The only emotionally pain I have is from the man that gave it to me on purpose and laughed at me. Thats been the hardest part.

Share this post


Link to post
Share on other sites
Ive got both. I can just rub some abreva on my face when I feel a cold sore coming on so I dont them very often. Genital herps has been a pain in the butt literally. Ive had physical issues such as chronic infections and nerve pains. The only emotionally pain I have is from the man that gave it to me on purpose and laughed at me. Thats been the hardest part.

Hey cupcakes, I understand that so well! My first husband, my giver, he did the same thing. Boy how I just wanted to kick his ass. But Karma took over, he is dead now and can never go around and infect anymore girls . He continued to give his h, even after he knew he had given it to me. He married 5 more wives, 3 were my ex best friends. God don't sleep he knows what's what!. Hugs honey, Ace :)

Share this post


Link to post
Share on other sites

For me I think it would be the relationship aspect of it all. Just having to tell them, and how they're going to feel about it and such. Also, the fact that I may have given to other people since I'm not sure how long I've had it.

Share this post


Link to post
Share on other sites

Well for me I used to fear not what friends or family thought of me but of like what co workers and passer bys thought. But that was 3 years ago being older now I realize that the worst part is actually letting the emotions overcome you try and be strong! the above posters are right life goes on be proud of who you are and keep dont be afraid of anything.

Share this post


Link to post
Share on other sites
Well for me I used to fear not what friends or family thought of me but of like what co workers and passer bys thought. But that was 3 years ago being older now I realize that the worst part is actually letting the emotions overcome you try and be strong! the above posters are right life goes on be proud of who you are and keep dont be afraid of anything.

Hey peter, welcome to our family :wavey: . I absolutely love your positive attitude. What is your h may I ask? I'm female with ghsv2 for 25.years and my life is very good. A lot better than it was before h. It's great that you found us and once again welcome. Truly, Ace :)

Share this post


Link to post
Share on other sites

I have hsv1 both oral and genital ( weel at least i think genital) glad to be here i het down alot durrin OB but we have to stay positive we are no diffret fromAnyone else if anything getting hsv showed me the beauty of people

Share this post


Link to post
Share on other sites

Hey peter, why you think genital h1? have you just tested but never had outbreak in that area? or have you only tested for HSV 1? I am ghsv2 and now 25 years into this I don't get outbreaks , just prodrome symptoms that are located on the base of my spine. Good to have you here. Welcome fellow herpsters family member :itllbeok: . Good to always see new faces. Hugs, Ace

Share this post


Link to post
Share on other sites
I have hsv1 both oral and genital ( weel at least i think genital) glad to be here i het down alot durrin OB but we have to stay positive we are no diffret fromAnyone else if anything getting hsv showed me the beauty of people

did you get tested for it or swab at least to make sure? Because herpes could be mixed anything else also like molluscum etc..

Share this post


Link to post
Share on other sites

Ace,

I truly admire how supportive you have been with all the people on this site. I read from your reviews you've had this virus for over 25 years and they still hadn't come up with a cure? oh boy. I have met my true love and it hurts like bitch to tell him I have this virus and I never even knew, only to find out its both type. I have never had a cold sore in my life but just bad case of chapped lips. Could this really be it cause it occurred almost the same time down there. Keep on supporting, I really appreciate the great feedback given

Share this post


Link to post
Share on other sites
Ace,

I truly admire how supportive you have been with all the people on this site. I read from your reviews you've had this virus for over 25 years and they still hadn't come up with a cure? oh boy. I have met my true love and it hurts like bitch to tell him I have this virus and I never even knew, only to find out its both type. I have never had a cold sore in my life but just bad case of chapped lips. Could this really be it cause it occurred almost the same time down there. Keep on supporting, I really appreciate the great feedback given

Hey STRESSED, Welcome honey :wavey: . But why you stressing this pesky virus? Did you know that the chances he has it too are much greater than you giving it to him? Also there is a chance if your ghsv1 you could possibly have gotten it from him. ;) . Honey 80% of the population has h in one form or another. They never properly test, so therefore they never find out or get diagnosed. It's much more common now and days then it was in my day. Internet wasn't invented then :( . I had noone for information or education. My now husband is still non h after 22 years of marriage. My daughter is now still too non h. I don't give my h powers or controls, back then we didn't feel stigmas we just lived. Taking antivirals daily keep my husband an h free man. That is success! :) . Ask any questions and feel free to message me anytime. Take care, hugs Ace :itllbeok:

Share this post


Link to post
Share on other sites

Reply to ACE

Ace,

Thanks for your quick response. That is amazing that after all those years your husband is h free. Please tell me the secret as I think that is my biggest fear. Passing it on to the people i love. He didn't pass it on to me, as I've had this bad chapped lips before we met and ive had an ob but didnt know it was as the same time i had a yeast and the test were all negative so the diagnosis then was the cut was from the yeast. But it only looked like a small cut not blisters, still does.

My boyfriend is so supportive, I couldnt believe it. His response was "honey i aint going anywhere, im with u for life and we will get through it". He makes it easier thinking about it so now i want to ensure he is protected. Any suggestions as well as preventing the outbreaks?

Share this post


Link to post
Share on other sites
Ace,

Thanks for your quick response. That is amazing that after all those years your husband is h free. Please tell me the secret as I think that is my biggest fear. Passing it on to the people i love. He didn't pass it on to me, as I've had this bad chapped lips before we met and ive had an ob but didnt know it was as the same time i had a yeast and the test were all negative so the diagnosis then was the cut was from the yeast. But it only looked like a small cut not blisters, still does.

My boyfriend is so supportive, I couldnt believe it. His response was "honey i aint going anywhere, im with u for life and we will get through it". He makes it easier thinking about it so now i want to ensure he is protected. Any suggestions as well as preventing the outbreaks?

Stressed, are you oral h 1 and genitally h2? Please reply. How were you tested? Has he ever tested? I see many who have had h for years, genital h1 from oral sex , it went to genital locations when oral sexual pleasures were performed. Their husbands/wives had cold sores, but never showed signs. If you are oral h1, cold sores, have you been typed tested on the genital outbreaks? Hugs

Share this post


Link to post
Share on other sites

worst part is the constant pain, having to limit everything i do, having to be overly aware and overly conscious of everything i do so as not to trigger an outbreak or worsen an existing one, having to worry about people finding out, worrying about being judged, worrying about losing my job, worrying about losing friends, worrying about infecting people, worrying about transferring it to my partners genitals (only recently even realized this was a real concern and now i feel awful for having gone down on him without considering this...), worrying about when the next outbreak is coming, worrying about when my constant pain and burning and inflammation will turn into an actual outbreak, spending money on drugs and vitamins and creams and ointments, coming up with excuses to avoid people when having an outbreak, hmmm pretty much everything!

Share this post


Link to post
Share on other sites

Hi everyone the worst part of having hsv2 for me was when the doctor told me that for some reason I will have recurrent outbreaks for sometime.ive had it for nearly 3 years now, and within a year I had over 35 outbreaks.fortunatly the doctor at the GUM clinic is great.he put on suppressive therapy and I have been on aciclovir for just over 1 and a half years and it has improved brilliantly.i wasnt happy at first wen I got diagnosed but I got used to having it and treat it the same way I would if it was something I could get anytime such as a cold.sounds silly but it helps wen I think of it like that

Share this post


Link to post
Share on other sites

I have gHSV1, the guy who gave it to me had never had a cold sore so had no idea he had it. It's a silent sneaky bastard of a virus! haha I was very upset when I was first diagnosed but have mellowed out after doing all my research, and finding this site! I've been very lucky (touch wood) and haven't had another OB since my initial one 6 months ago. My biggest fear was telling prospective partners and what they would think of me. I've met a wonderful guy though and he was very supportive when I told him. Fear busted :)

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
Sign in to follow this  
Followers 0

  • Latest Buzz

    • coffeeunicorncandy
      I have had a few outbreaks after my first original OB. I don't think any of my ex boyfriends actually had HSV-1.  If I had known the risks, I would have insisted on using dental dams....or just not have oral sex, I'm not too crazy about it.
    • VVK
      To supplement Wilso's explanation, "Per episode" could be used as a very rough ballpark estimate of how likely the average person would be to get infected in any given sexual encounter. Taking an example value of 1 in 5'000, that would mean that out of 5000 sexual encounters, 1 of them would be expected to lead to infection. While I would like to think that the risk would be as low as 1 in 10'000, ultimately with the large error margins in the available data that number could range anywhere from 1 in 1'000 to 1 in 10'000. Not everybody is going to be average either. Some will get to that 1 sexual encounter sooner than others.
    • WilsoInAus
      I know it is disappointing to have been infected and I hope that you are like many women with genital HSV-1; no more outbreaks, no more issues and are able to completely forget you even have it. I am curious though as most guys you have been with and received oral sex from have oral HSV-1. What would you have done differently? Give up oral sex?
    • WilsoInAus
      Per episode means each sexual encounter! Generally I divide the annual percentage by 100 (an assumed number of sexual episodes in a year) and take a reciprocal to express it as 1 in 5,000 or whatever the number is which is easier to interpret than 0.02%.
    • thebear123
      Hi, I've been searching around this section of these forums and haven't quite find what I was looking for. I'm a male and was wondering if anyone else on has GHSV1 within their urethra only. If so, what are your triggers or signs of outbreaks? What do your outbreaks look like within your urethra? Thank you!  
    • throwawaynyc
      i believe he has enough participants for the therapeutic, discordant couples he may need
    • stronghands87
      Does he still need people for trials or is that over with?
    • stronghands87
      You know I never thought about it like that, but now that you put it this way I'm like wow.
    • Lisajd
      Can you please explain per episode jn simple terms.  I think i understand but clarity would be good.  Once you agree on data a simple summary would be good to see
    • VVK
      With respect to the 23 million figure, I believe that was from the WHO source using 2003 data. Perhaps some of that could be HSV-1 misdiagnosed as HSV-2. Point taken. I was just reading some more on this and a more recent paper using numbers from 2012 suggests 140 million new HSV-1 infections of which 85% (or 100 million) may be genital HSV-1. I'm curious as to why they used 85%. Take a look here if interested: http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0140765 If we can get a good figure of new genital HSV-1 infections per year then we could settle this for sure. But if it is between 23 and 100 million then that's a roughly 5-fold difference so could be 1-5% per annum (so between 1 in 2'000 and 1 in 10'000 per episode). I think the range sounds about right and that it's closer to 1% than it is to 5%.
  • Featured