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If I'm doing something I'm not supposed to, moderators please let me know!

This site is by far the best I've found online for community and support, so first off, thank you very much for what you have here! That being said, it's really not LGBT focused, and while I really do appreciate hearing what my straight companions are going through and getting the chance to share with them, I just really feel lonely both here and in real life. I know quite a few people with HIV, but really no one with HSV. I was just wondering if there were any Gay Herpes sites that have active chat communities?

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sadly I don't know of any. but the women that I know, who has it as well, seemed to be fine with herpes. they still do what they do sexually, they take meds when they feel they're getting an ob. I'm fine with having herpes now. the only thing that I'm a bit concerned about is " the talk ". but eventually I'll be fine with that too, when the time comes.

I'm sorry for rambling like that..... it's just that I don't really know what you're asking -__- :/ .

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Haha rambling is good :) Well, I'm glad that's where you are, sounds like you are working through everything well! What I was asking for, I guess I was fuzzy, was where to find a group of gay folk to talk to about this situation to see how they are dealing with it and just to not be lonely. This chat is really great here, but I've never seen another gay person in this one. That's really all I'm hoping to find is some type of community. Forums are ok, but was really hoping for a live chat option. From the sounds of things I guess that doesn't exist.

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I've never heard of any myself. I guess in this situation with the virus, it doesn't matter if you're straight, gay, pansexual, etc. because when it comes down to it, we're all trying to see the bright side of this virus. so here everyone's just talking about getting over the shock, contemplating getting into a relationship with people who doesn't or have the virus, having a family, and letting people who are close to us know about their ordeal. ever since I've been here, I've never looked at it the way you're looking at it. just go on the chat room and ask whatever you need to ask, and hopefully there will be someone who can answer it :) .

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  • 3 weeks later...

I'm gay and, based on law of probability and other factors, was recently infected by my partner. Not deliberately, certainly.

I found a bright side - it will force me to exercise more, eat better, etc, to keep future outbreaks down. I miss being with him in intimate ways.

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SweetNScattered

It would be cool if there was an LGBT forum category on here. (Not sure if "category" is the right wording. I mean main topics, like there's Newly Diagnosed and The Secret of Our Success). I've only been here a few days and it seems like a really helpful and thorough website with great forums. And since there is a shortage of info out there in cyberspace specifically geared toward HSV and the LGBT community, it could be a really welcome addition to the site.

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Hey SweetNSCATTERED, I think since just like h2 oral and h1 oral, not much information on LGBT site exsist unless you get the information from those users who live this lifestyles with their partners. For example users tell me their isn't a forum particular for married.couples, well yes.there is, but most of this information comes from users like me who have lived married life over two decades, this is where our experiences or informations come from. Only those who experience what you experience can actually give advice. Otherwise it's like me trying to explain being single and dating, I can't I've been married almost 23 years with ghsv2, my husband is still non h man. Users ask what's the secret. I think that part is the same nomatter who you love. Keep the immune system up and healthy. If your having outbreaks, treat accordingly. If your having prodromes, my advice is Vit.b12. Some tell me they already take that, it doesn't help. So the basic knowledge is the same, it's the situations that make us individually needing information on our particular situation. Does this make sense? It's hard to say. I think anything I can learn from another is valuable! If you have experiences or have information that could help someone else, Please certainly post it. We could even make a sticky thread, it means when a user clicks this forum, your thread will be on top of all others. We all just contribute to the massive amounts of knowledge and experiences here, therefore we all learn from each other. I hope you find a good support buddy here. It's great, I have several that I ask all the time for their knowledge. Many great friends here of all sizes, shapes and genders to help get everyone educated in their h and how it will affect their lives. Truly, hugs to you. Ace :)

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  • 3 weeks later...
  • 2 months later...

I am a lesbian and until now have found no support .. I have been on a few dating sites and met a few people but as soon as I tell them I have herpes they run for the hills. It would be nice to talk to other lesbians that are going through something similar.It's to the point of frustration to be judged merely on a condition that 1 out of 5 people have and are unaware. For those of us with a honest heart seem to get shafted.

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  • 3 months later...

Trippy I have a question, when do you give "the talk"? I've only given the talk 2x in my life and honestly since h, I haven't really dated and not so eager to do so. I told this girl I like on our second meeting that I have genital herpes (hsv2) since we felt mutually connected, then she started researching on it. Also asked me a bunch of questions like what's the statistics of women-to-women transmission, which I didn't know how to answer cos I couldn't find data online specifically for lesbians. So I don't really know when to give "the talk".

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  • 5 years later...

hi all, bi woman here (f preference) just contracted ghsv1. obviously dont want to use dental dems with female partners so how likely is it that i spread the virus without being on antivirals and without protection ?

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    • CHT
      so, you tested positive for GHSV1 via the swab test?  Not by an IgG antibody blood test? Are the OBs severe?  Are they coming often?    GHSV1 in its initial stages (early infection) can cause outbreaks.... the good news is that your odds of outbreaks is significantly lower than those with HSV2 and the number of outbreaks are also much less with GHSV1 than HSV2 especially as time goes on.... on average you may see only one outbreak per year versus 4 to 5 for those with HSV2.... the severity of the outbreaks from GHSV1 are also milder than HSV2 (you may not even notice them with time or go completely asymptomatic).  You may not even need antivirals as time goes on. 
    • Liv25
      The chapstick is called Docoshield and it is on Amazon. Just wanted to pass this along! I have been using this and it brings me a lot of comfort and it has excellent reviews. They also made this chapstick with lysine in it. Hope this helps anyone who needs it! 
    • BabyGirl
      I just stared dating someone who does not have HSV.How long after the sore is healed should I wait before having sex?  I’ve had HSV2 for over 10 years. I rarely have outbreaks going months even years until recently. When I do I get some tingles and one sore in the same spot. But recently, In the last 3 months it’s happened twice. 🤦🏼‍♀️
    • JDMT_176
      If you want to know whats going on when applying it, this was the only study I found describing it. Hard to read through as very technical, but am copy paste parts I found of use. Tables also useful to show which genes are expressed more.  https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6416766/   "A petrolatum donut was applied with a cotton swab to form about a 1 cm diameter donut on skin on the inner aspect of the upper arm. Then a separate cotton swab was dipped in a 2% SADBE solution (w/v) in DMSO, and the swab was then used to apply about 10–20 mg of solution over about a 1 cm diameter circle within the petrolatum donut. Immediately after application, the application site was covered with TEGADERM. Subjects were advised to remove the TEGADERM and rinse and wipe the spot 3 h later.   "Thus in essentially every case, the SADBE treatment changed the group A subjects by day 57 to make them much more like the group B and C subjects who have better immune control of their HSV‐1 infection than the group A subjects were on day 1.   "Others have previously shown that CD8+ T cells are important in controlling herpes labialis outbreaks.23, 24, 25, 26, 27, 28, 29, 30, 31, 32 Our data are consistent with this. The helper/cytotoxic cell ratio (CD4+/CD8+ ratio) was 5.25 in group A versus 3.07 and 3.15, respectively in groups B and C (Table (Table3).3). The P‐value is less than 0.20 for comparisons of group A to both groups B and C, and if groups B and C are pooled and compared to group A the P‐value is 0.065, almost significant. This is consistent with prior evidence discussed below that CD8+ T cells are important and effective in controlling HSV recurrences.   "Consistent with our finding lower anti‐HSV‐1 IgG levels correlate with better control of HSV‐1 outbreaks, Spruance et al. also found lower serum anti‐HSV‐1 antibodies in HSV seropositive patients with a history of frequent herpes labialis than in seropositive persons with no history of herpes labialis.33   "Several prior reports also found IFN‐gamma to be important in controlling HSV infection and reducing HSV outbreaks. Dobbs et al28 showed that CD8+ T cells were able to clear an HSV‐2 infection in transgenic mice, but that efficacy was blocked in vivo by anti‐IFNG IgG. Liu et al31 showed that CD8+ T‐cells could prevent HSV‐1 reactivation from latency in excised trigeminal ganglia (TG), and that IFN‐gamma protein was produced by the CD8+ T cells, and that neutralization of IFN‐γ significantly enhanced the rate of HSV‐1 reactivation from latency in TG cultures. Spruance et al33 found that IFN‐gamma protein levels in PBMC supernatants stimulated with HSV‐1‐infected cell extracts were lower in frequent herpes labialis sufferers than HSV‐1 seropositive controls, consistent with the present result for IFNG gene expression in PBMC stimulated with heat‐killed HSV‐1. McKenna et al7 assayed IFN‐gamma in medium of PBMCs cultured in vitro and stimulated with inactivated HSV‐1 and found IFN‐gamma was at higher concentrations in medium of PBMCs from infrequent herpes labialis sufferers than frequent sufferers, also consistent with our findings. Cunningham et al34 showed higher interferon levels (including alpha, gamma, and lambda) in supernatants of PBMCs stimulated with heat‐killed HSV‐1 virus correlated with longer time to next herpes labialis recurrence. Carr et al35 showed that transgenic expression of IFNG could prevent HSV‐1 reactivation in a mouse model.
    • JDMT_176
      Hi Kurdt- I was thinking back in 2018-2019 there was several threads from viral frog that he was applying a 2% solution very frequently. Like several times a week. From what I gather- it didnt work for him at the time. I think too much applied caused immune chaos or something.  The most recent Square X trial was terminated but this was the dosing frequency that was used in the trial below: I was planning on using Group C protocol. Group A is most frequent. Something to think about.  https://clinicaltrials.gov/ct2/show/results/NCT03521479?term=squarex&draw=1&rank=4   Protocol:  Arm/Group Title Group A Group B Group C Group D  Arm/Group Description Treated with 2% Squaric Acid Dibutyl Ester (SADBE) on day 0 and with 2% SADBE on the visits at week 3, week 6, week 9, and month 8. Squaric Acid Dibutyl Ester: Repeat topical application of 2% and 0.5% squaric acid dibutyl ester (SADBE) in subjects with frequent herpes labialis (4 or more episodes in the previous 12 months). Treated with 2% Squaric Acid Dibutyl Ester (SADBE) on day 0 and with 0.5% SADBE on the visits at week 3, week 6, week 9, and month 8. Squaric Acid Dibutyl Ester: Repeat topical application of 2% and 0.5% squaric acid dibutyl ester (SADBE) in subjects with frequent herpes labialis (4 or more episodes in the previous 12 months). Treated with 2% Squaric Acid Dibutyl Ester (SADBE) on day 0, month 3, and month 6. Squaric Acid Dibutyl Ester: Repeat topical application of 2% and 0.5% squaric acid dibutyl ester (SADBE) in subjects with frequent herpes labialis (4 or more episodes in the previous 12 months). Treated with 2% Squaric Acid Dibutyl Ester (SADBE) on day 0 and month 6. Squaric Acid Dibutyl Ester: Repeat topical application of 2% and 0.5% squaric acid dibutyl ester (SADBE) in subjects with frequent herpes labialis (4 or more episodes in the previous 12 months).   Adverse Reaction Table: Arm/Group Title Group A Group B Group C Group D  Arm/Group Description: Treated with 2% Squaric Acid Dibutyl Ester (SADBE) on day 0 and with 2% SADBE on the visits at week 3, week 6, week 9, and month 8. Squaric Acid Dibutyl Ester: Repeat topical application of 2% and 0.5% squaric acid dibutyl ester (SADBE) in subjects with frequent herpes labialis (4 or more episodes in the previous 12 months). Treated with 2% Squaric Acid Dibutyl Ester (SADBE) on day 0 and with 0.5% SADBE on the visits at week 3, week 6, week 9, and month 8. Squaric Acid Dibutyl Ester: Repeat topical application of 2% and 0.5% squaric acid dibutyl ester (SADBE) in subjects with frequent herpes labialis (4 or more episodes in the previous 12 months). Treated with 2% Squaric Acid Dibutyl Ester (SADBE) on day 0, month 3, and month 6. Squaric Acid Dibutyl Ester: Repeat topical application of 2% and 0.5% squaric acid dibutyl ester (SADBE) in subjects with frequent herpes labialis (4 or more episodes in the previous 12 months). Treated with 2% Squaric Acid Dibutyl Ester (SADBE) on day 0 and month 6. Squaric Acid Dibutyl Ester: Repeat topical application of 2% and 0.5% squaric acid dibutyl ester (SADBE) in subjects with frequent herpes labialis (4 or more episodes in the previous 12 months). Overall Number of Participants Analyzed 10 10 10 10 Measure Type: Number Unit of Measure: events         Localized reaction (rash, erythema, itching/pruritus, warmth/burning) at application site 24 14 17 6 Generalized adverse events (related, possible or greater) 2 3 1 0 Generalized adverse event (unrelated) 4 7 6 4  
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