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    • Runner278
      Here is an article that discusses postherpetic neuralgia. This is what my doctor will finally diagnose me with once I put it cleanly under his nose. While I haven’t had lesions, I’ve had many of the other symptoms of HSV2 that 5 drs, 4 urgent care professionals and Terri Warren has said “it’s not herpes”. I go for my western blot blood draw Thursday and I have an appointment with a neurologist on 9/1. This virus not only needs better treatment, it needs better drs.    https://www.herpesite.org/post-herpetic-neuralgia-from-genital-herpes/
    • themotion
      @Cas9 Hey, Sorry to bother you, but can you share your opinion on the content quoted above. Hope all is well.   Thank you
    • Aubrey77
    • WilsoInAus
      Hey @Aubrey77 these symptoms are not something that oral HSV-1 can cause. In the end herpes would do what it does best and this is cause a sore somewhere on the lips . It might tingle a little as it forms, be inconvenient as it blisters and then crust as it heals and all look a little unsightly. But that’s herpes.    No reason to disbelieve your doctors thoughts on your issues.
    • Aubrey77
      Any feed back is welcome. I get these small bumps inside my right cheek. They do not hurt or burst. They just come and go. I showed them to doctors and the say they come up with stress and foods. Problem is I have pain and muscle spasms down right arm and in legs. Are these all ongoing issues for getting virus? I am not sure was going on with my body anymore 
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SteveP

This blog post makes sense to me (re: ghsv1 & disclosure)

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SteveP

A couple of the comments are spot on too. Here is one.

The medical community spreads a LOT of misinformation about herpes, and sex ed in school doesn't seem to cover the types of herpes and how it is transmitted. Education about herpes is sorely lacking! I have seen posters on other forums say that they feel it is the responsibility of hsv carriers to educate others in order to fight the stigma. Frankly, I feel that is asking too much, especially on top of dealing with physical symptoms, personal shame, embarrassment of disclosure, and the psychologically debilitating social stigma. The ignorant masses hear "herpes" and get hysterical. It should be the job of medical professionals and sex educators to calm that hysteria. And no, oral hsv carriers are NEVER instructed to disclose, even though they often have frequent outbreaks, are contagious at least 18% of the time, and they are the cause of ghsv1. Only 40% of ghsv1 carriers EVER have another outbreak, and of those, most have 1 or 2 more and then never again. Plus, genital-to genital transmission of hsv1 is RARE. Dr. Hansfield on Medhelp website states he has not seen EVEN ONE CASE of genital-to-genital transmission of HSV-1 in his 30+ years as an STI specialist. Given this, and the fact that only 25% of ghsv1 carriers shed, and of that 25%, they only shed 1-5% of the time, and the fact that 50-90% of Americans already have hsv1 and therefore won't catch it again, I don't see that the risk of ghsv1 warrants mandatory disclosure. The true danger here is the psychological damage that ignorant people can cruelly inflict by treating a ghsv1 carrier like a leper. I would recommend that ghsv1 carriers take some common sense precautions. Don't have sex during a primary outbreak (who would want to?) or the 1-2 outbreaks that follow. After a few years, most do not have outbreaks. I think preaching to ghsv1 carriers that they MUST disclose or else they are immoral dirtbags that shouldn't be able to sleep at night is just adding to stigma. It is making a huge deal out of a strain/location of hsv that does not pose a threat to anyone. Efforts should be directed at educating the public that cold sores can be transmitted genitally through oral sex. Then we'd see the end of this ugly stigma.

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Arielle

Steve,

Thanks for sharing! So true correct education is the key. With the amount of cases of H, I think it would be amazing that if people just take a moment to realize that those with H are their sisters, brothers, etc they would see that it really affects everyone!

It would be viewed a lot less like the plague if people would just take the time to listen to the facts!

Great post! Thanks Steve!

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G77

I got ghsv1 from genital sex and not oral sex so it does happen and I think it happens more frequently than even the doctors are aware of. I slept with this guy once, he wore a condom that half came off and boom a few days later I'm covered in 30+ blisters. 

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