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PHN Pudendal Nerve

Lonnidet

By Lonnidet
in About My Outbreaks

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Lonnidet Honeycomb Member

Lonnidet

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I am having very bothersome symptoms related to what seems to be Pudendal Nerve Entrapment (PNE). The HSV virus travels the pudendal nerve pathways to cause an outbreak. Is anyone else experiencing ongoing almost constant tingling/sensitivity? Just as in PNE it is worse sitting down and is almost alleviated by standing. On weekends it is basically gone. By the end of a work week, it can be driving me crazy. The theory I have heard is that the Pudendal nerve gets irritated by the virus traveling on it and swells. This causes the entrapment and nerve irritation. I was hoping others may have some input on this?

I thought I was having recurring OBs internally or something but now I am wondering if the skin sensations are just my pudendal nerve being a mess.

Almost seems related to Post Herpetic Neuralgia. Thoughts anyone?

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bluefrog Acknowledged Support Member

bluefrog

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no help from me; all ya did was scare the crap out of me; like, when do the issues with virus ever end? is there something you can be prescribed to help your situation? have you had herpes or did you just get it? i know the first 3 months (in 4th month now) i was continually itchy and tingly and sore, etc.

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Lonnidet Honeycomb Member

Lonnidet

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no help from me; all ya did was scare the crap out of me; like, when do the issues with virus ever end? is there something you can be prescribed to help your situation? have you had herpes or did you just get it? i know the first 3 months (in 4th month now) i was continually itchy and tingly and sore, etc.

The more I read on this virus the more it scares me too. The sad thing is I think the people on these message boards know more than many of the doctors even the "Pros" answering questions online. It is a nasty virus to have. It is not only about having an OB and then healing. It lives in our spinal nervous system. I'm going on 4 months of this sensation....although this month it seemed to wane some after I menstruated. I'm now sitting on my feet, tilted to one side, at my desk to alleviate the pressure on that nerve. Wonderful....but it does seem to be helping! I didn't have the itchies so much but I definitely had the tinglies and sore.

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bluefrog Acknowledged Support Member

bluefrog

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when i have my period, i get 3x the painful back aches and cramping in my thighs; this since getting herpes. like the normal menstrual aches and pains weren't enough.

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thiscantbe Established Member

thiscantbe

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I've had a lot of strange pain/tingles too

I contracted GH on July 1 or so, started fever by July 3, and haven't been normal since. As soon as my sores were 95% gone from the first OB, OB #2 began.

I've also gotten weird pain and twinges in my lower back, my butt, and the back of my upper thighs... strange feelings like I have never had before, and it was really bad during the whole first OB, started to get a little better (but didn't go away), and then got worse again right before OB 2 started.

I sure hope this eventually goes away.

So far, I am not having a very good time with this virus. People who keep calling this a "minor skin condition" must just be lucky or have good immune systems or something. Heck, this virus could affect some more than others even due to some genetic susceptibility (like they've learned that some people are more HIV resistant; maybe some are more HSV resistant... who knows?).

I read this on facial-neuralgia.org. Of course, they are talking about oral herpes... but seeing as the herpes is herpes no matter where it lives, I thought it might be relevant.

There has been speculation and anecdotal evidence that some cases of trigeminal neuralgia could be caused by active herpes simplex lesions along the trigeminal nerve. If this is true, then acyclovir would be a possible treatment at the first tingling sensation that some sufferers have learned indicates the beginning of a period of TN pain. In addition, L-Lysine supplements and a high-protein diet could discourage further growth of the virus.
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Lonnidet Honeycomb Member

Lonnidet

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When I was young I had Bells Palsy which is linked to hsv1 oral acquisition. This causes paralyses of half of your face for several months. Maybe you are correct about people reacting differently to virus activity in nerves. I get tingling when I am getting an hsv1 oral sore but it is not like the waves of tingling I am getting now "down below". This is definitely different. It comes and goes in frequency and I can't tell a pattern to any of it yet.

Yeah this is just lovely....But guess what? I am only getting irritation and raw rashy areas, no sores...So life could be so much worse.

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  • 7 years later...
Siegfried Newbie

Siegfried

Posted
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I am having very bothersome symptoms related to what seems to be Pudendal Nerve Entrapment (PNE). The HSV virus travels the pudendal nerve pathways to cause an outbreak. Is anyone else experiencing ongoing almost constant tingling/sensitivity? Just as in PNE it is worse sitting down and is almost alleviated by standing. On weekends it is basically gone. By the end of a work week, it can be driving me crazy. The theory I have heard is that the Pudendal nerve gets irritated by the virus traveling on it and swells. This causes the entrapment and nerve irritation. I was hoping others may have some input on this?

I thought I was having recurring OBs internally or something but now I am wondering if the skin sensations are just my pudendal nerve being a mess.

Almost seems related to Post Herpetic Neuralgia. Thoughts anyone?

Dear Lonnidet,

Are you still around?

I seem to have the same issues. I get herpes outbreaks triggered by sitting. Pain in the buttock starts the whole thing.

I got some relief with a superb office chair, but still issues.

The good thing is that the burning pain I had in my testicles and buttocks is now over, but still redness on the glands.

I hope to hear from you.

kind regards

Siegfried

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