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    • Just a human being
      People say they want a cure but some days I wonder. If you express how stressful it’s been to support a small cohort through treatment with limited evidence most do not understand, when you ask for support or your struggles to cope with people’s trauma in treatment, or the ingrained societal perceptions, when you try to talk about the evidence it’s like you’ve done some evil thing! Apparently going against the grain to do what’s right is not worthy of human understanding or support! Expressing human vulnerability also appears to be incredibly evil! Damn! Any weakness or difficulties damn your just not worthy of care, support or respect!  After over a year in the space it’s so clear to me why there has been no progress. You are completely ostracized from the community for speaking out on this topic. How many are voiceless here too scared to speak? Yet we rarely hear from you. When you are successful you just disappear (Of course because we don’t hear from you you don’t exist! You must be a “conspiracy theory”. And even if you did then you would just be anecdotal and oh yeah that publishing evidence when they attempt to discredit it... hmm be interesting to hear the “conspiracy” stories on that one...)and I understand why as no one would listen to you anyhow! I hope for anyone reading this you get out alive lest you become a lost soul in purgatory stamping out hope for others due to confusion weaved in science and medicine.   
    • MikeHerp
      Not directly on HSV, but this general overview of where gene editing is, is a very good read. Recommend at least skimming it. A lot of excitement is building around gene editing.  https://67c5cfaa-bdc0-42a5-95c4-a822adc972c7.filesusr.com/ugd/80a6fd_a53ed12021a54292bb50ed1255e31118.pdf
    • Just a human being
      It s not really possible to ban anyone from this forum. Some people would just get back on and create a reign of terror in their wrath. I’ve seen it before. In the end everyone has to accept them and it teaches the group tolerance. Trust me I’ve been through the same feelings and I don’t want to act like I’m always Mr positive or anything cos I am Just a human being!And honestly we need to consider others welfare. They would be lost without this forum. I think if you took it away they would suffer serious trauma. It just takes a small amount of time to work around it! I have deep respect for @MikeHerp it takes a lot of work to get something like this off the ground! I think genetic research is very valuable and important!  I have duel interests human systems and health and agriculture. In the agriculture realm I’m not a big fan of say Monsanto’s brand of genetic research in application. I am a big fan of genetic research to inform plant breeding!  I think this is good work that will be insightful for humans in the future! Don’t take a few difficult people to heart! Trust me I do know it’s difficult.  I didn’t even read a single comment of theirs! Wow that’s big for me! Back to Fred Hutch....    
    • MikeHerp
      What I find interesting about this trial is that even though half life is 25 days, measurements of shedding and lesions will be done until nearly 4 months.  Maybe they expect the effect to last longer than the half life (maybe the binding effect survives longer than the half life). 
    • MikeHerp
      Message from FHC philanthropy:   “There is a small glitch with the website that we are working on. The page is still live, located here: http://engage.fredhutch.org/site/TR/PersonalFundraisingPages/General?px=1802786&pg=personal&fr_id=1574 I will need to request a new link to "fredhutch.org/hsv" for you on Monday, which is not working right now, but you can access the site from the link above in the meantime. I will let you know when that is fixed”
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ChangeFORVER23

intimate kissing

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ChangeFORVER23

Has anyone gotten H. Rather its 1 or 2 from intimate kissing ? and never gotten a Actual cold sore, but had a ob under the tonge? And no where else? If so where they painful?

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WilsoInAus

This would be exceptionally rare and may not be possible at all.

This is not fully relevant to your situation. Although the symptoms above may have happened to you, testing has confirmed this isn't herpes. Thus the symptoms you describe are attributable to something else, as most every time they are.

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ChangeFORVER23

Yes, i am experiencing this right now.. And i have not has this looked at or swabbed by a doc. So im a bit worried thia may be something.. They dnt hurt or ANYTHING. pretty much i dnt know they are there. Until i look. @WilsonInAus

This would be exceptionally rare and may not be possible at all.

This is not fully relevant to your situation. Although the symptoms above may have happened to you, testing has confirmed this isn't herpes. Thus the symptoms you describe are attributable to something else, as most every time they are.

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thanks_robin

Thats how I got my mouth bumps. Deep, intimate, passionate blah fucking blah kissing :) My OB's are primarily in my oral cavity(roof of mouth, gums, behind bottom teeth) You were on here a few weeks ago. Did you ever get an IGg test ??

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Guest

I get constant ulcers in my mouth now since my exposure to someone HSV1 positive, but then again I had these canker sore type issues prior to this exposure. I just get them in odd places now and much, much more frequent. Like every week which is awful.

My tests are constantly negative for HSV1 so I'm not sure what to tell you personally since I can't even explain my own issues. The only thing I can say is that not everything is herpes. My tests say no, so I have nothing else to believe and if your tests say no as well than it's closer to whatever those bunps are to be unrelated to herpes than it is to it being herpes.

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Guest

I get constant ulcers in my mouth now since my exposure to someone HSV1 positive, but then again I had these canker sore type issues prior to this exposure. I just get them in odd places now and much, much more frequent. Like every week which is awful.

My tests are constantly negative for HSV1 so I'm not sure what to tell you personally since I can't even explain my own issues. The only thing I can say is that not everything is herpes. My tests say no, so I have nothing else to believe and if your tests say no as well than it's closer to whatever those bunps are to be unrelated to herpes than it is to it being herpes.

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Acesheart
Has anyone gotten H. Rather its 1 or 2 from intimate kissing ? and never gotten a Actual cold sore, but had a ob under the tonge? And no where else? If so where they painful?

Again honey get this swabbed /cultured.

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