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Greyster

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I was just diagnosed and have had the most incredible pain for the last 4 weeks now, been through two rounds of antivirals ....aka placebo pills.... And still it hurts to pee, to wear underwear, I have neuropathic pains down the entire backs of my legs....and that's just the physical....this has totally messed up my mind too. The worst part is feeling like I'm dirty and living with this secret that I'm too embarrassed to talk to my friends or family....when in reality I have never needed more support to get through this in my life. That's why I'm here....I didn't know where to turn, who to ask the detailed pointed questions and for someone to not feel sorry for me but to have empathy bc u know EXACTLY what I'm going through!

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I was just diagnosed and have had the most incredible pain for the last 4 weeks now, been through two rounds of antivirals ....aka placebo pills.... And still it hurts to pee, to wear underwear, I have neuropathic pains down the entire backs of my legs....and that's just the physical....this has totally messed up my mind too. The worst part is feeling like I'm dirty and living with this secret that I'm too embarrassed to talk to my friends or family....when in reality I have never needed more support to get through this in my life. That's why I'm here....I didn't know where to turn, who to ask the detailed pointed questions and for someone to not feel sorry for me but to have empathy bc u know EXACTLY what I'm going through!

You will definitely get answers here

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I know exactly how you feel. Emotionally and physically. I was dx'd 3-1/2 weeks ago and feel very much the same way.

Fwiw- I noticed my first sore 5 weeks ago and got 3 more sores after that. One sore stubbornly refuses to heal. It gets nearly better and then starts to hurt again & doesn't close up completely. I think it's the location - it gets friction from my underwear and from where it hits the chair/carseat when I am working or driving. (As I write this - I am wondering if I should try a bandaid over it?) I have no idea when it will finally go away.

Although this is my first known ob - I've given birth 3x and had other perineal issues over the years... (I am 48 years old) Get a water bottle with a squirt top. Fill it LUKEWARM water and irrigate your perineum as you urinate and then blot dry with a cotton pad instead of tp if possible. It will help a lot. If you are really sore - get some overnight maxi pads (fluffy kind, not the thin ones) and soak in witch hazel and refrigerate or even freeze them and wear as necessary to help calm & comfort the area. You can google "peri pops" for various recipes/formulas for making them. Dermaplast or other numbing spray or cream - available in the first aid aisle - will numb the area and provide immediate albeit temporary relief. Take ibuprofen or aleve to eliminate the neuro pains and keep taking for at least a few days (even if the pain is alleviated) to get rid of the nerve inflammation. It will also help with any inflammation & pain from the outbreak itself.

I know you have a million thoughts racing through your head. It's really hard and I too struggle with it. That said - treating the physical symptoms will help A LOT with the emotional side. So, please know you won't feel like this forever and as awful as it sounds - you will get used to the knowledge.

Sending you lots of positive thoughts and healing vibes.

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I know exactly how you feel. Emotionally and physically. I was dx'd 3-1/2 weeks ago and feel very much the same way.

Fwiw- I noticed my first sore 5 weeks ago and got 3 more sores after that. One sore stubbornly refuses to heal. It gets nearly better and then starts to hurt again & doesn't close up completely. I think it's the location - it gets friction from my underwear and from where it hits the chair/carseat when I am working or driving. (As I write this - I am wondering if I should try a bandaid over it?) I have no idea when it will finally go away.

Although this is my first known ob - I've given birth 3x and had other perineal issues over the years... (I am 48) Get a water bottle with a squirt top. Fill it LUKEWARM water and irrigate your perineum as you urinate and then blot dry with a cotton pad instead of tp if possible. It will help a lot. If you are really sore - get some overnight maxi pads (fluffy kind, not the thin ones) and soak in witch hazel and refrigerate or even freeze them and wear as necessary to help calm & comfort the area. You can google "peri pops" for various recipes/formulas for making them. Dermaplast or other numbing spray or cream - available in the first aid aisle - will numb the area and provide immediate albeit temporary relief. Take ibuprofen or aleve to eliminate the neuro pains and keep taking for at least a few days (even if the pain is alleviated) to get rid of the nerve inflammation. It will also help with any inflammation & pain from the outbreak itself.

I know you have a million thoughts racing through your head. It's really hard and I too struggle with it. That said - treating the physical symptoms will help A LOT with the emotional side. So, please know you won't feel like this forever and as awful as it sounds - you will get used to the knowledge.

Sending you lots of positive thoughts and healing vibes.

Awesome tips.. I don't have problems with OBs but do have the perineum issues at times so I will try ... My docs tells me that it isn't H related

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