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newly diagnosed


rp1331

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I was recently diagnosed with hsv1, tested negative for 2. (2 blood tests and they took a sample off of the private area) Not sure how long it was in my body because I went to the beach, got burned real bad, and didn't drink enough water. 2 days later I had a sore on my lip for a week. Within a couple of days, it appeared in the genital area for about 2 weeks (but could have been there for days without noticing because it was fully in effect). Now it went back strong on the corners of my lips and on my tongue. It's been a month now and all the stress has had me really depressed.

I told my father and he said not to worry, he experienced the same in the private area and mouth at 27 and it never came back. He's 54 now. I feel like the doctors don't know anything because they haven't experienced it.

I've tried everything to keep my mind off and keep myself busy but it doesn't work.

This is my first OB. I am 26 year old male.

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Was the swab test of the lesion in your genital area positive for HSV-1? Or was it the blood test?

I had a blood test with another lab, then I went to the doctor for another blood test and he also took a sample out of the private area. So basically 3 tests.

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Yes but which one was positive for HSV-1? What was the swab result?

There was no swab. I took a blood test at one facility. The doctor had me do another one just to make sure and also a sample of the piece on my skin.

Got tested for both.

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But the conclusion you reach here based on blood tests is that you have had an oral HSV-1 infection since childhood. Hence you will not become infected with HSV-1 on your genitals.

What was the sample of the piece of skin? What was the result of this?

There is a good chance here that your genital issue is not herpes related.

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But the conclusion you reach here based on blood tests is that you have had an oral HSV-1 infection since childhood. Hence you will not become infected with HSV-1 on your genitals.

What was the sample of the piece of skin? What was the result of this?

There is a good chance here that your genital issue is not herpes related.

The skin was supposedly hsv1. Idk but the doctors look lost too. They see anything on your lip and say it's a cold sore...

I'm 100% sure that the sun triggered my mouth sore. I didn't put sunblock or drink water that day and 2 days later it popped up. But the next day I noticed something really bad on my private area. It had to have been there for days. It itched real bad.

But everyone here seems to say there are problems other than itch so I'm confused. That's all I experience.

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Oral HSV-1. All up it doesn't sound right here. I think you're OK to assume that you only have an oral HSV-1 infection.

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Oral HSV-1. All up it doesn't sound right here. I think you're OK to assume that you only have an oral HSV-1 infection.

But then why would it pread to private area?

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    • WilsoInAus
      I really suggest that the best thing is for both you and your boyfriend to obtain the Westernblot HSV test. He has a 50%+ chance of being positive and you have a 50%+ chance of being negative. Only the Westernblot can sort this out for you.
    • WilsoInAus
      Hi @kpn the first thing to note is that it is all OK to have HSV-1 or indeed any HSV type. It is not negligence, it is just being human. Oral HSV-1 is not an STD in the sense that the primary transmission is non sexual and the majority of it occurs between parents to children. If any of your children contracted HSV, you would know it. It wouldn't be a silent infection for children. HSV-2 tends not to shed from the oral region for people who have it there in any event. At age 73, about 80% of the population has HSV-1. There is no reason to believe that your mother isn't one of those people. About half of all carriers of oral HSV-1 do not realise they have it and have no living memory of cold sores as they were infected when very young. The most logical explanation is that your mother has oral HSV-1 from her childhood and that your daughter doesn't have oral HSV. Not that it is relevant to anyone but yourself, but your wife might find she actually has genital HSV-1 having had an untyped swab when she was diagnosed.
    • WilsoInAus
      Hi @Dylan86 and welcome to the website. First note that you cannot pragmatically become infected with HSV-1 from sharing a drink. If you carry HSV-1, it did not come from that episode. As such it is extremely unlikely HSV-1 is the primary cause of your issues. Can the WB miss a HSV-1 infection? Rarely but its feasible in less than 1% of carriers who test with WB. Note that the WB does not have values, it has positive or negative as you say. It is way more accurate than IgG as it looks for all 30+ antibodies that are in your blood for HSV. Could you have HSV-1? Yes it is feasible, but it would be a very old childhood infection. Could HSV-1 be causing your oral issues? No herpes will not cause the burning mouth syndrome you describe. Could some of the lesions be herpes related? It is feasible if you are a carrier. But it is unlikely to be the primary cause of the issues, but its an opportunistic virus that can cause issues when something else is taxing your immune system. The best thing you can do is the PCR test on a oral lesion and that will be pretty definitive. Either way, in summary. I'd suggest there is <1% chance you are part of about 70% of the population that has HSV-1. Further there is less than a 1% chance that herpes is the primary cause of your issues.   
    • kpn
      My wife has had hsv 2 for around 8 years. We have two young children 3 years old and 18 months old. My wife only had one outbreak when she was first infected so we didn't worry too much about passing it on to our children. I understand the risk to be pretty low under those circumstances. I don't believe my wife took antivirals during either pregnancy. My younger child has diaper rashes pretty often and has had what I thought was hand foot and mouth disease. That was going around the daycare a while back. I haven't really given it much concern though.  About a week ago, my mother kissed my youngest on the lips. My kid was congested at the time but they pretty much always are. About 3 days later, my mother developed a cold sore on her mouth. She has never had cold sores in her life and she is 73 and happily married so she is not going around messing with anyone. She pointed to the fact she had kissed my youngest and presumed that is where she was infected. At first I said that's not possible since my child has never had any cold sores but since then I have really started to consider that maybe it is possible she contracted it from my daughter. This has me worried that my daughter does indeed have hsv2 and was shedding in her mouth. Does anyone have any experience with this? I am really losing sleep about this. Two people I care so much about got hsv from my negligence. I am fine if I were to contract it, I am not worried about what others think at this point in my life. I just don't want anyone else to have it. 
    • CHT
      Hello DavidGua.... based on the two pictures, I'm not seeing anything that resembles a typical herpes outbreak.  I am not sure what those spots are on your penis.  Please have a doctor take a look and I'm sure you'll get a proper diagnosis.  Have you ever received an HSV antibody test (IgG)?  Again, I doubt your symptoms are herpes-related but, if you'd like some peace of mind, you could request the IgG antibody test for HSV2.   Best of luck.... let us know if you have any other questions/concerns.
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