Are we anywhere close?

[Lovelylady1996]

I know this is common question but I wanted to ask anyways. I've been researching herpes vaccines and breakthroughs since I got diagnosed a month ago. I've seen both encouraging and discouraging results. 

However, I wanted yalls opinion. Does anyone know how relatively close we are to a cure or at least a vaccine that prevents it from transmitting to others. I really want my life back. I'm not myself anymore. 

[JBnATL]

Hi there, you have come to the right place.  There are members of this website who keep the "Cure Research" section of this website up to date with the latest information.

Have you read about the Shingles vaccine?  Some say it is also effective against hsv and acts like a functional cure.  

You can get your life back and in fact you can live a great life with herpes.  I have had it a long time and have lived a great life.  I have chatted with thousands here on this website over the years and many people have told me that getting genital herpes changed their lives for the better.  

What helped me the most was meeting other Herpsters.  Seeing other, normal, people who had this really made me feel like I was going to be ok.  Do you have any local support groups you can go to?  Are you aware of the secret Herpster Facebooks out there?  There are dozens of groups, most based on geography.  That is probably your best bet to meet someone near you.  Let me know if you want to learn more about these groups.

Good luck!

JB

[Sanguine108]

It's like waiting for the olympics to come before you get results.  Other countries have vaccines, Italy and Russia.  There's a member here who actually went to Russia, stayed for a month and received their vaccine.  He/She (I don't remember which it was) wasn't overly impressed with the results.  Saying that meditation and breathing exercises helped much more.    The Italian vaccine has questionable efficacy (Lupidon H + G).

 

Then there's all the failed or shoved under the rug attempts at producing a vaccine.   You know, it's really discouraging when you start thinking of how the corruption gets really mighty.  Nobody wants to get sued and people who don't understand vaccines/virology/immunology are in charge, while the wizards who have a great ideas are university professor/researchers with very little funding to really further their work.   

 

You're a month in.  Get comfortable.  Find some people to personally console with.  Most importantly, sit with yourself and talk with yourself. Have your soul self-reflection on your journey in this life so far.  How are you going to live with this?  How can you be happy with yourself?  Because cures and vaccines are like waiting for the results of several olympics in the future.  Things move very slow in the material world but your soul is eternal.  Don't let HSV prevent your soul from growing.   Come the next olympics, maybe you can make the trials?    And that's probably the most realistic shot anyone has in receiving a vaccine in the "near future".

 

There's the scientists up in Einstein med university that have a promising looking vaccine that they've observed really positive results therapeutically for those already with HSV.  ...Not gonna lie, once I find out the door opens for those clinical trials then I'm dashing up there.

 

But don't worry.  It's hard.  Pour your thoughts out.  Write, journal, draw, paint, sing.... transform that anxiety out of you.  Research about HSV if you must.  Take what people say w a grain of salt.    Talk with the Divine, meditate, chant.  Whatever can make you present and not absorbed in worry. <3

[oneday]

@Sanguine108 your post was fantastic to read and extremely realistic. The best part is "your sould is eternal". What hsv has taught me most is this fact, not to worry about the body too much. Your spirit is what matters in eternity's scheme of things. Thanks for your post. 

[Maidenshipwreck]

On 9/14/2015 at 0:59 PM, Lovelylady1996 said:

I know this is common question but I wanted to ask anyways. I've been researching herpes vaccines and breakthroughs since I got diagnosed a month ago. I've seen both encouraging and discouraging results. 

However, I wanted yalls opinion. Does anyone know how relatively close we are to a cure or at least a vaccine that prevents it from transmitting to others. I really want my life back. I'm not myself anymore. 

Look up Einstein college in New York. They have had some real exciting results, crazy thing is it was because of and outside the box completely different approach. Now i emailed them and sadly they say there at least three years away from human trials. However it sounds as if they have a cure. For all version of hepes.

Edited June 22, 2016 by Maidenshipwreck

[LillianPanos]

13 hours ago, Maidenshipwreck said:

Look up Einstein college in New York. They have had some real exciting results, crazy thing is it was because of and outside the box completely different approach. Now i emailed them and sadly they say there at least three years away from human trials. However it sounds as if they have a cure. For all version of hepes.

Please post link. Thanks!

[jjguy79]

The medical community, in general, believes we'll see a "cure" by 2020.  The virus is widespread enough that there is significant interest in eradicating the problem, and multiple attack vectors are being proposed against it.

In the meantime, try to just chill. Once you find the regimen (pharmaceutical, nutritional, or both) that keeps your symptoms at a minimum your life will be normal or, like mine, possibly improved.  My priorities have changed from chasing girls to buying myself the most luxurious and comfortable life I can afford, and I have the virus to thank for that.  

Be one with it.

[Brokenforever]

It's a disgrace it's taking so long... All these years. 

My life is destroyed by it, i want it gone. My lifestyle was healthy enough now I can't eat, sleep focus... I am glad for those who live with this and are at peace. I'm not and I feel let down by the lack of cure. Any other std has treatment. Whilst "they" say it won't kill me physically it has in every other way. I don't know how much more I can take .

[Constant Diplomat]

7 hours ago, jjguy79 said:

My priorities have changed from chasing girls to buying myself the most luxurious and comfortable life I can afford, and I have the virus to thank for that.  

Be one with it.

... and for most people, therein lies the loneliness. But I agree there is a kind of benefit to having more focus on long term goals than short term partners. Still, it can be a lonely journey.

[FireMountain]

I like some many others have dreamed about this for a long time.

I have been following for years now, and I can tell you all that it seems to me

that CRISPR and Bloom's work will be very close to a cure, and there are many

others following in their footsteps. From vaccines, to gene editing to nanoparticles

they will be a very good treatment or close to cure soon, I say by 2020 which if

you just hang in there will be here. We have turned the corner.

[Tuff2deal]

Thanks for this, needed to hear some positivity from someone else, it was a rough day today. 

Constantly dealing with 'prodrome symptoms' my daily and constant reminder of this horrible disease. Sometimes it just gets to be too much - I don't know you but I really needed to know that I am not alone in being desperate for a cure 

[Brokenforever]

I totally agree, for all the "skin condition" nonsense herpes victims have done a disservice to themselves. We need a cure, it's not life threatening... Really I'm that close to ending mine as I can't cope with this forever. Come on Halford... Waiting to book a flight!

[wwdamron]

On 9/14/2015 at 11:59 AM, Lovelylady1996 said:

I know this is common question but I wanted to ask anyways. I've been researching herpes vaccines and breakthroughs since I got diagnosed a month ago. I've seen both encouraging and discouraging results. 

However, I wanted yalls opinion. Does anyone know how relatively close we are to a cure or at least a vaccine that prevents it from transmitting to others. I really want my life back. I'm not myself anymore. 

Everything is in the test phase.  Below are some very conservative figures. And I am including countries that do not have to abide by FDA or European Regulations.

Do not get your hopes up at finding a cure or better treatment, even overseas.

The bottom is minimum guess's, do not expect anything any sooner that will be used on humans :

As far as a vaccine for the ones not already infected, we are at least 15 years away.

As far as a vaccine for the ones already infected to keep from transmitting, Several are in the works but none are 100% foolproof such as in the case of Genocea's GEN-003, the earliest I would expect is at least 8 years away if the trials proceed as planned and this has  not been proven to be 100% effective..

As far as a new drug of any kind better than Valtrex or Famvir which would result in less duration and/or less frequency of outbreaks, again we are looking at probably 8 years away or longer. 

A complete cure for already infected is only in theory now, like Draco and Gene Therapy and others and this will be more than 20 years away at least and maybe more than 50 years away.

CURE MAY EXIST ALREADY - There is a theory in the case of a bone marrow transplant may work already, but the cost and the dangers of this procedure outweigh any realistic benefit.

 

 

 

I

 

 

 

[wwdamron]

On 6/30/2016 at 6:02 PM, FireMountain said:

I like some many others have dreamed about this for a long time.

I have been following for years now, and I can tell you all that it seems to me

that CRISPR and Bloom's work will be very close to a cure, and there are many

others following in their footsteps. From vaccines, to gene editing to nanoparticles

they will be a very good treatment or close to cure soon, I say by 2020 which if

you just hang in there will be here. We have turned the corner.

Add 20 years to that, 2040 is more realistic.

[oneday]

Anyone heard anything from Halford lately? He's gone very quiet on his website despite people posting questions. Hopefully it's because he's flat out getting the vaccines ready. 

[Lisajd]

On Friday, July 08, 2016 at 0:35 AM, Toothfairy said:

I totally agree, for all the "skin condition" nonsense herpes victims have done a disservice to themselves. We need a cure, it's not life threatening... Really I'm that close to ending mine as I can't cope with this forever. Come on Halford... Waiting to book a flight!

I think you have to remember that the medical profession also brush off herpes is being no big deal and I'm quite sure that they would play a role in treatments and cures so you can't blame people who pass it off as a skin condition solely.  And personally I have no problems with having herpes I don't say it's a skin condition I just see that it doesn't affect my life and so like people who feel like it's just a skin condition suggests that it doesn't impact on their life much at all either

[Brokenforever]

Well if the medical profession who brush this off had it themselves it would be a different story.  So when I'm asked why I'm upset, it's not that bad I've started asking if they have it...they don't. 

You are doing fine as you have said no symptoms, not impacting on your life. It's an epidemic which the problems it can cause have been stated over and over.

 

29 minutes ago, Lisajd said:

I think you have to remember that the medical profession also brush off herpes is being no big deal and I'm quite sure that they would play a role in treatments and cures so you can't blame people who pass it off as a skin condition solely.  And personally I have no problems with having herpes I don't say it's a skin condition I just see that it doesn't affect my life and so like people who feel like it's just a skin condition suggests that it doesn't impact on their life much at all either

 

[Lisajd]

On Friday, July 08, 2016 at 0:35 AM, Toothfairy said:

@cantdoit you don't know me and you don't know what I've been through in life and for your information I have been in deep depression in the past and wanted to end my life. But i got strong and realised life is worth enjoying.  I have also had another life threatening illness and I do have  muscular pain because of that so don't tell me that I don't know what it's like and that is why I realise that herpes is not going to let me go into that place again.   sure herprs can have some bad outcomes but not for all.  and what about all the bad things ancer does to people and multiple sclerosis does to people. there ain't no cure for any of those and I don't see you stepping up and pushing for a cure for those sorts of things that actually shortened peoples lives.   

11 hours ago, cantdoit said:

@Lisajd

Edited July 10, 2016 by Lisajd

[Free73]

15 hours ago, cantdoit said:

@LisajdCan you try to step outside your own head for one minute and try to imagine it does affect your life. Try to imagine having constant nerve pain. Try to imagine you are infected and pregnant. Try to imagine you've been sexually assaulted and you have now contracted herpes. Try to imagine you are a small child who's been sexually assaulted and have contracted it. Try to imagine that you have ocular herpes or whitlow. Try to imagine you are HIV positive due to this virus. Try to imagine esophageal herpes. Try to imagine painful ob's every month. Try to imagine such a deep depression due to this virus, so bad you've considered taking your life. Does that help you to see anything other than how it affects you ?

Why don't you lead the campaign for more awareness? Go public and start a campaign. Be the voice and rally the herpes sufferers to make some noise if you feel so passionately that we are being ignored.

And don't do it via the anonymity of this website. Form a movement and be the voice of change.

[Lisajd]

On Friday, July 08, 2016 at 0:35 AM, Toothfairy said:

@cantdoit you are so caught up in your own world you cant even see the link between what you said and my response.  You don't tell me to imagine what it's like to be in a deep depression and waiting to end your life when I've already been there once.   

15 hours ago, cantdoit said:

@Lisajd

[Lisajd]

I did say herpes was not a problem for me. what I said was that I have been into deep depression before and had another life threatening illness before.   Of course I would like to see a cure for people who struggle with this but for me as I said it is not a big issue in my life.  And I know of a lot of people on various support group sites who live quite normal lives with this.  Sure dating is harder for them but apart from that they are moving forward with their lives.

there are treatments for this at the moment and from what i understand is that if you have a really good immune system which can be managed with diet and exercise then you can be free from symptoms.  you should listen to terri warrens q and a on herpesopportunity it might help you.

I hope that in time you can see the light.  

Edited July 10, 2016 by Lisajd

[Lisajd]

On Tuesday, September 15, 2015 at 3:44 AM, JBnATL said:

Hi there, you have come to the right place.  There are members of this website who keep the "Cure Research" section of this website up to date with the latest information.

Have you read about the Shingles vaccine?  Some say it is also effective against hsv and acts like a functional cure.  

You can get your life back and in fact you can live a great life with herpes.  I have had it a long time and have lived a great life.  I have chatted with thousands here on this website over the years and many people have told me that getting genital herpes changed their lives for the better.  

What helped me the most was meeting other Herpsters.  Seeing other, normal, people who had this really made me feel like I was going to be ok.  Do you have any local support groups you can go to?  Are you aware of the secret Herpster Facebooks out there?  There are dozens of groups, most based on geography.  That is probably your best bet to meet someone near you.  Let me know if you want to learn more about these groups.

Good luck!

JB

I thought that I heard Terri Warren in her talk on herpes opportunity say that the shingles vaccine is not effective

[Free73]

41 minutes ago, cantdoit said:

But you told me herpes is not a problem. Did you want to end your life because of it?  If yes then you should understand the need for better treatments.

It has been or is a problem for everyone who gets diagnosed. But some are choosing to try and do the best they can with it and live their lives.

Just because we are trying to be positive doesn't mean we wouldn't rather be free of it or cured. I just don't want to live in a cave for the next 25 years waiting for a cure.

[Voyager2]

@Lovelylady1996

I agree with all the posts. My opinion:

The present: Try to find something to minimize outbreaks, especially if you are having many. One acyclovir (400mg) per day works for me, but everybody is different. This will at least make you feel better. Meanwhile, try not to infect others, and focus on your career, your passions, what you want to do.

The future: There have been no advances in 30+ years, but with vaccines in the pipeline (Genocea, Admedus, Sanofi, Einstein, Halford) and cure research underway (ZFN, TALENS, CRISPR), we're going to have SOMETHING, possibly soon. Many think 2020 for the first vaccine and a bit longer for the first cure.   

 If you are young (does 1996 imply you are 20?), I think you can look forward to being cured and living many years without herpes. I am banking on different vaccine and drug combinations, i.e., a functional cure. 

[wwdamron]

On 7/7/2016 at 1:10 PM, cantdoit said:

@wwdamronChip Clarke has said numerous times their vaccine will be out by 2020. Admedus says the same. So why would I not believe them?  Also, if what people on here say is true Bill Halford's vaccine will be out long before then and I will be on a plane to get it. Thank god for people like Bill Halford who care 

 

Your living in a fantasy world and so is Chip Clark, although I will admit his is probably the closest to a Phase III test.

Let me explain:

To get past the FDA hurdles, which are very close to the same as the European Hurdles.

• Phase 1 trials recruit a small number of patients (up to about 30) to try to find out about drug side effects and the best dose to give
•      This takes about $1-$5 million to complete.
• Phase 2 trials recruit more patients (up to about 50) and look at how well the drug works and what side effect there are.
•        This takes about $5+ million to complete
• Phase 3 trials are much bigger (100s or even 1000s of patients), and compare new treatments to the standard treatments to see which is better
• This takes about $100 million to start  and $200 million to over $1 billion  to complete.

Unless Chip and his company has hundreds of millions of dollars or a big pharmacy partners with him he will never make it to phase 3. ANd then it has to successfully pass phase 3.

There are also phase 4 trials. These are carried out after a drug has a license. They aim to find out more about the longer term risks and benefits. And they also want to find out how well the drug works when it is used more widely in the population.

 

SOme may argue he may get a grant, that is remote, while some grants have been given, the large grants all mainly go towards the drugs needed most, like for HIV, Cancer, Hepatitus and so on, Herpes is way down the list, for obvious reasons.

But this drug does NOT cure herpes either, it only, assuming it is successful, decreases the number of outbreaks and shedding.

In a perfect world it takes a minimum 10 yrs (assuming you have the money and everything works right) to even make it  successfully past a phase III study.. CHip has made it to phase II.

Assuming Gen-003 Phase II is successful, My question is where is he going to get the minimum $100 million just to start phase III ????

 

 

Edited July 10, 2016 by wwdamron