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Just diagnosed, looking for help


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Hi everyone! I was just diagnosed yesterday with GH. I am in incredible pain presently, both emotionally and physically. So any encouragement would be greatly appreciated.  I am trying to stay strong and think there will be brighter days ahead, but I still have break downs every few hours. Do I tell my parents? What will the future be like? Will this effect my future careers? Can I keep running and exercising? I have so many questions. 

Also, I am currently out of the country with limited access to proper health care. Once I am back, I was going to start taking Valtrex daily. Can anyone comment on their experience with this? Other alternatives? Suggestions?  Thank you 

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Oh no that's terrible. Things will look up soon I'm sure as it does with herpes.

Did you get a positive swab? Note that you partner within the week leading into symptoms is your giver and will have the type you have been infected with.

This need not have any impact whatsoever on any aspect of your life. As to whether yuo need antivirals, well a lot depends on the type, your outbreak frequency and desired repression for partners.

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I did not get a swab yet. I am in another country. I did go to the doctor and he looked at it and said it is herpes, but no tests were done. My partner has never had an outbreak before so I guess he was a dormant carrier? I have no clue how that works.....

Thank you for your kind words. Trying to stay positive about the future   



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What country are you in?

A doctor will have enough trouble identifying herpes and can never tell type.

What symptoms are you having? 

Does your partner get oral cold sores perhaps?

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I am in Nicaragua. 

It started out as a terrible fever, and then what I thought was a UTI. Then like three days later I noticed two ulcer-like spots, and have gotten like four more of them. I would love to think it is something else but the only thing I could find online similar is chancroid. 

My partner said he has never felt or had anything, but obviously feels terrible. He had actually gone and had a test done last week but they didn't test for this.  

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I actually just got ahold of the clinic I went to and just got my results back. You can't tell what type it is just by staring at it, but I would just wait until you get back and can get it properly swabbed, or a blood test. Only downfall is it can heal on its own and they can't always get good results unless it's a fresh sore. Herpes can be tricky like that. Also, your partner doesn't have to have any symptoms to be a carrier of GH. A lot of people can go their whole lives without symptoms and will never know. I had all the symptoms you had before I found out I had type 1. Everyone's outbreaks are different. Mine only lasted a week, while you are waiting to get on the medicine you can try tree oil for the ulcers supposedly helps. Take a lot of Aleve and drink lots of water. After a shower you can blow dry it which drys them out. 

As for how your future will be, it'll be however you want it to be. I actually have been taking this really well. Herpes doesn't define you. You still are you. You can still run and workout and be any person you want to be. You don't need to tell your parents if you don't want too. I told my mom because she's my biggest support system and has been nothing but helpful with trying to make me feel better. Having someone you can confide into is really helpful. It's crazy how people with cold sores walk around with type 1 herpes but it's acceptable because it is on their face. 

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    • WilsoInAus
      I really suggest that the best thing is for both you and your boyfriend to obtain the Westernblot HSV test. He has a 50%+ chance of being positive and you have a 50% chance of being negative
    • WilsoInAus
      Hi @kpn the first thing to note is that it is all OK to have HSV-1 or indeed any HSV type. It is not negligence, it is just being human. Oral HSV-1 is not an STD in the sense that the primary transmission is non sexual and the majority of it occurs between parents to children. If any of your children contracted HSV, you would know it. It wouldn't be a silent infection for children. HSV-2 tends not to shed from the oral region for people who have it there in any event. At age 73, about 80% of the population has HSV-1. There is no reason to believe that your mother isn't one of those people. About half of all carriers of oral HSV-1 do not realise they have it and have no living memory of cold sores as they were infected when very young. The most logical explanation is that your mother has oral HSV-1 from her childhood and that your daughter doesn't have oral HSV. Not that it is relevant to anyone but yourself, but your wife might find she actually has genital HSV-1 having had an untyped swab when she was diagnosed.
    • WilsoInAus
      Hi @Dylan86 and welcome to the website. First note that you cannot pragmatically become infected with HSV-1 from sharing a drink. If you carry HSV-1, it did not come from that episode. As such it is extremely unlikely HSV-1 is the primary cause of your issues. Can the WB miss a HSV-1 infection? Rarely but its feasible in less than 1% of carriers who test with WB. Note that the WB does not have values, it has positive or negative as you say. It is way more accurate than IgG as it looks for all 30+ antibodies that are in your blood for HSV. Could you have HSV-1? Yes it is feasible, but it would be a very old childhood infection. Could HSV-1 be causing your oral issues? No herpes will not cause the burning mouth syndrome you describe. Could some of the lesions be herpes related? It is feasible if you are a carrier. But it is unlikely to be the primary cause of the issues, but its an opportunistic virus that can cause issues when something else is taxing your immune system. The best thing you can do is the PCR test on a oral lesion and that will be pretty definitive. Either way, in summary. I'd suggest there is <1% chance you are part of about 70% of the population that has HSV-1. Further there is less than a 1% chance that herpes is the primary cause of your issues.   
    • kpn
      My wife has had hsv 2 for around 8 years. We have two young children 3 years old and 18 months old. My wife only had one outbreak when she was first infected so we didn't worry too much about passing it on to our children. I understand the risk to be pretty low under those circumstances. I don't believe my wife took antivirals during either pregnancy. My younger child has diaper rashes pretty often and has had what I thought was hand foot and mouth disease. That was going around the daycare a while back. I haven't really given it much concern though.  About a week ago, my mother kissed my youngest on the lips. My kid was congested at the time but they pretty much always are. About 3 days later, my mother developed a cold sore on her mouth. She has never had cold sores in her life and she is 73 and happily married so she is not going around messing with anyone. She pointed to the fact she had kissed my youngest and presumed that is where she was infected. At first I said that's not possible since my child has never had any cold sores but since then I have really started to consider that maybe it is possible she contracted it from my daughter. This has me worried that my daughter does indeed have hsv2 and was shedding in her mouth. Does anyone have any experience with this? I am really losing sleep about this. Two people I care so much about got hsv from my negligence. I am fine if I were to contract it, I am not worried about what others think at this point in my life. I just don't want anyone else to have it. 
    • CHT
      Hello DavidGua.... based on the two pictures, I'm not seeing anything that resembles a typical herpes outbreak.  I am not sure what those spots are on your penis.  Please have a doctor take a look and I'm sure you'll get a proper diagnosis.  Have you ever received an HSV antibody test (IgG)?  Again, I doubt your symptoms are herpes-related but, if you'd like some peace of mind, you could request the IgG antibody test for HSV2.   Best of luck.... let us know if you have any other questions/concerns.
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