Not just a skin condition

[Sillybrain2]

So, the whole stigma thing doesn't bother me at all. It is utter BS and so inaccurate. I know how I acquired this and it wasn't through being permiscuois or careless, quite the opposite, so when I hear or read things that imply this virus is passed through that kind of behaviour it's like water of a duck's back for me.

the thing that makes me angry and sad about this rubbish virus is the impact it has had on my body and my enjoyment of sex. While I don't have any physical sores, I have not felt right down there since my diagnosis and have experienced a miriyad of things down there that I have never before in regards to feelings, uncomfortable sensations and other physical symptoms. They are becoming more apparent as time goes on too.

the biggest and most upsetting thing for me is the loss of sensitivity down there during sex. All the feeling and sensation down there has been dulled. My partner and I have a pretty healthy and intimate sex life and the fact I can't experience the sensations of that like I used to is hard. 

Blah to everything associated with this virus, it blows!

[elnino]

I agree with you Sillybrain. I wish it WERE a skin condition. For me it's very rarely a skin condition but almost constantly a nervous system condition. As we have discussed, I've been suffering constant peripheral neuropathy from this virus. The medical community is very misinformed about it.

I've never heard of loss of sensitivity during sex as a symptom, but I'm not surprised at all. Every single day I feel new and uncomfortable sensations in my feet, ankles, shins, knees, thighs, butt, hips, crotch, hands, shoulders, chest, back, and face. 

I hope you get better soon.

[Sillybrain2]

Thank you for your kind words @elnino I am sorry you are having constant nerve issues, I hope they settle soon and you have some relief.

[Guy12]

Elnino have you taken any gabapentin or Amitryptyline?

[elnino]

 @Guy12 , no, I haven't tried those. I have considered it, but am concerned about side effects. Also, I don't even know what type of doctor to seek out for a presription for one of these. I don't currently have a doctor treating me for HSV. I have a stockpile of acyclovir for now from an old prescription when I lived in a different state and I haven't yet found a new doctor in my new state because I haven't needed to. I absolutely dread the process in place to get medical treatment in this country: first find a doctor in my insurance network, then wait 2 weeks for an appointment, then get referred by that doctor to a specialist in my network, then hope that the specialist gets everything right.

Do you use either of these?

Sorry Sillybrain2 for hijacking this thread.

Edited November 30, 2015 by elnino

[Sillybrain2]

No worries at all  hijack away. It's all about sharing thoughts and experiences. Every bit helps 

[Guy12]

Silly the future with Hsv does look very promising. Big things taking place in research.

From what I've gathered things/symptoms tend to wane with time.

as far as the dulled sensation I'd suggest you guys "try" harder!!!

[Acesheart]

Hey elnino welcome. You can try a general practice doctor , then a Neurologist for the prodromes. Where you are located has many good physicians. I've tried 23 different doctors with numerous status like "Infectious disease", "Neurologist", "Internal Medicine", "Immunologist" and the list goes on and on. I've had regular Family medicine doctor's rate better than MOST of my "Specialty" doctor's since they don't seem to hide behind their specialist titles. I've dreaded telling new doctors and recalling back to when, where and how of getting herpes. It gets easier and you can always do like I usually do when consultations with New doctor, bring copies of your medical records to show them, I make copies for New doctor and ask them to read then ask questions. I can tell when they don't fully read my histories. I also keep a few months stockpile of antivirals. After 28years with Ghsv 2 and being married for 26years to a non h man, I can assure you for MOST everyone I've spoken with it does get better  ! I've had several years of experience in coping and I've sacrificed nothing. Hugs Aces xo 

[elnino]

Thanks Aces.