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Es ist immer jetzt

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I do not know whether I have herpes genitalis or not. I surely do have herpes on the lips but I was told only once that I had herpes when an urologist saw my swollen penis. Another doctor saw my penis one week before when the symptoms were the worst and said about the same picture that it was fungus. Once, when I had a brutal swab done on my penis, the days after my penis gland was covered with white pimples. But contrary to herpes on my lips that healed within 3 days. When I scratch my anus it becomes inflamed easily but I do not see any white spots there.

In general, this is not my biggest problem. My biggest problem is continuous pain in the genital area. I have had pain for 16 months now continuously. I try to figure out whether it's coming from a herpes infection or whether pain is only present where there is a white convex sore, like in my mouth. Because this is what I never had on my anus or on other parts of my genitals since then. Except the ending of my urethra has been red all the time no matter what I did.

No tests have ever been done because there have been no white pimples after that anywhere on the genital area. One doctor tested the redness for hpv but it came back negative.

So my topic is not primarily about herpes but about why there is pain and why it doesn't go. If there's pain in the whole genital area and so on continuously, where is it really coming from? I even created a website to find others having the same condition to finally find someone who matched my condition and found a cure.

So many people told me that Herpes does not cause this, but what does cause it? And if it is herpes causing it, what do I do?

Edited by Es ist immer jetzt
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Have you tested for other STD's? I can tell you from experience that fungus does not make your penis or genitals sore so it is unlikely to be a fungus issue that is causing pain

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I was at many urologist's and they tested urine multiple times, sperm 2 times, blood, swabbed from the penis gland, inside the penis gland. Enterococcus faecalis and Enterobacter cloakae were found using the swab in very low, and using 24 hour urine in high concentration.

I was given levofloxacin but that didn't help symptoms. I also presume that I caught the two when I was in the hospital to fight the pain.

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They may be antibiotic-resistant strains. Go back to urologist to try other medications. In addition - try a no-carbohydrate diet for a month. That's your best bet. Look here for a guide: http://www.ketogenic-diet-resource.com/ketogenic-diet-plan.html

Except, I'd recommend keeping carbs at 20 grams or less for your situation. It will only be for a month.

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    • WilsoInAus
      I really suggest that the best thing is for both you and your boyfriend to obtain the Westernblot HSV test. He has a 50%+ chance of being positive and you have a 50%+ chance of being negative. Only the Westernblot can sort this out for you.
    • WilsoInAus
      Hi @kpn the first thing to note is that it is all OK to have HSV-1 or indeed any HSV type. It is not negligence, it is just being human. Oral HSV-1 is not an STD in the sense that the primary transmission is non sexual and the majority of it occurs between parents to children. If any of your children contracted HSV, you would know it. It wouldn't be a silent infection for children. HSV-2 tends not to shed from the oral region for people who have it there in any event. At age 73, about 80% of the population has HSV-1. There is no reason to believe that your mother isn't one of those people. About half of all carriers of oral HSV-1 do not realise they have it and have no living memory of cold sores as they were infected when very young. The most logical explanation is that your mother has oral HSV-1 from her childhood and that your daughter doesn't have oral HSV. Not that it is relevant to anyone but yourself, but your wife might find she actually has genital HSV-1 having had an untyped swab when she was diagnosed.
    • WilsoInAus
      Hi @Dylan86 and welcome to the website. First note that you cannot pragmatically become infected with HSV-1 from sharing a drink. If you carry HSV-1, it did not come from that episode. As such it is extremely unlikely HSV-1 is the primary cause of your issues. Can the WB miss a HSV-1 infection? Rarely but its feasible in less than 1% of carriers who test with WB. Note that the WB does not have values, it has positive or negative as you say. It is way more accurate than IgG as it looks for all 30+ antibodies that are in your blood for HSV. Could you have HSV-1? Yes it is feasible, but it would be a very old childhood infection. Could HSV-1 be causing your oral issues? No herpes will not cause the burning mouth syndrome you describe. Could some of the lesions be herpes related? It is feasible if you are a carrier. But it is unlikely to be the primary cause of the issues, but its an opportunistic virus that can cause issues when something else is taxing your immune system. The best thing you can do is the PCR test on a oral lesion and that will be pretty definitive. Either way, in summary. I'd suggest there is <1% chance you are part of about 70% of the population that has HSV-1. Further there is less than a 1% chance that herpes is the primary cause of your issues.   
    • kpn
      My wife has had hsv 2 for around 8 years. We have two young children 3 years old and 18 months old. My wife only had one outbreak when she was first infected so we didn't worry too much about passing it on to our children. I understand the risk to be pretty low under those circumstances. I don't believe my wife took antivirals during either pregnancy. My younger child has diaper rashes pretty often and has had what I thought was hand foot and mouth disease. That was going around the daycare a while back. I haven't really given it much concern though.  About a week ago, my mother kissed my youngest on the lips. My kid was congested at the time but they pretty much always are. About 3 days later, my mother developed a cold sore on her mouth. She has never had cold sores in her life and she is 73 and happily married so she is not going around messing with anyone. She pointed to the fact she had kissed my youngest and presumed that is where she was infected. At first I said that's not possible since my child has never had any cold sores but since then I have really started to consider that maybe it is possible she contracted it from my daughter. This has me worried that my daughter does indeed have hsv2 and was shedding in her mouth. Does anyone have any experience with this? I am really losing sleep about this. Two people I care so much about got hsv from my negligence. I am fine if I were to contract it, I am not worried about what others think at this point in my life. I just don't want anyone else to have it. 
    • CHT
      Hello DavidGua.... based on the two pictures, I'm not seeing anything that resembles a typical herpes outbreak.  I am not sure what those spots are on your penis.  Please have a doctor take a look and I'm sure you'll get a proper diagnosis.  Have you ever received an HSV antibody test (IgG)?  Again, I doubt your symptoms are herpes-related but, if you'd like some peace of mind, you could request the IgG antibody test for HSV2.   Best of luck.... let us know if you have any other questions/concerns.
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