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HSV-1 and HSV-2 Herpes Cure Poll (Please Complete)


JustHanginginThere

HSV-1 and HSV-2 Herpes Cure Survey  

71 members have voted

  1. 1. What would you pay to be cured of HSV-1 and/or HSV-2 for the rest of your life?



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A small Biotech is conducting market research and asked me to place a survey in the forum.  They are interested in learning the value of a cure to people impacted by HSV-1 and/or HSV-2.  Think about what you would pay to be free of the virus for the rest of your life (no more depression, pain, suffering, etc).  Understand that not all companies and company leaders want us to suffer the rest of our lives with only being able to rely on antivirals and vaccines.  There is an unmet need for better therapies.

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If it were 10k, I'd probably pay for it to be removed from my being.   That's a small fee in the quality of life.   But $3k - $7k would be more realistic and fair, in my opinion.

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So what is the name of the company, if we may ask. Would love to read up on their technology or approach to curing this disease? Are we talking CRISPR?

Another interesting gene editing company (similar to CRISPR) but do not think they are working on HSV.

http://www.bluebirdbio.com/our-focus/gene-editing/

Also, a company is starting Phase 1 trials of a method to prevent herpes and HIV (preventive gel?).

http://mappbio.com/clinical-trials-begin-on-antibody-based-prevention-of-hiv-and-genital-herpes/

 

 

 

 

 

Edited by mcmich
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Hello--just to be clear...

The approach question has been asked many times.  No the company cannot disclose their approach (secret sauce) at this time until they are ready to publically announce their go forward strategy.  Right now they are doing research and feasibility studies.

I know everyone is curious and excited.  This is the real deal.  Everyone will find out soon enough.

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fair enough, more to add to the hope list. Good strong replys... hope it all goes well and we see another company working on it. hsv is being too overlooked these days medically i say. it needs ridding of for good as its gonna get more common imo

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I have mentioned this a couple times through much older threads within this community, but in chronic diseases such as Fibromyalgia, CFS/ME, MS, et al., the Herpes family of viruses are at the forefront of being implicated as a causative (both initial, and persistent) factor and trigger.  So HSV, EBV, CMV, HHV-6, etc.

Bare this in mind: CFS/ME is considered to be a secondary form of AIDS in terms of physical condition and misery.  Rather than dying early, patients live in hell for ages on end.

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Trial details are not yet established as the company has to successfully finish pre-clinicals to get to a Phase 1/2 trial.  However, the trials WILL NOT be happening in the US.  As many of you know cost of trials and speed to approvals happen faster overseas.  Going overseas for trials is a practice that happens from the Small Biotechs all the way to the largest in the industry.  This means you do not have to be a US citizen to participate (only that you meet the trial criteria) for that particular disease HSV-1 or HSV-2. 

Edited by JustHanginginThere
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Hi

Wrote my senator on funding a cure for Herpes and mentioned all the other diseases it cause (fibromylagia, CFS, HIV enabler, etc). No response!!!

Edited by mcmich
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1 hour ago, JustHanginginThere said:

Trial details are not yet established as the company has to successfully finish pre-clinicals to get to a Phase 1/2 trial.  However, the trials WILL NOT be happening in the US.  As many of you know cost of trials and speed to approvals happen faster overseas.  Going overseas for trials is a practice that happens from the Small Biotechs all the way to the largest in the industry.  This means you do not have to be a US citizen to participate (only that you meet the trial criteria) for that particular disease HSV-1 or HSV-2. 

Isnt the FDA in the US corrupt and its hard to get anything to the people?

Edited by fixme1
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@JustHanginginThere This sounds exactly like what @Broken_14 has been posting about creating. I don't mean to be a skeptic but sounds fishy. Is it a real biotech firm or are you gauging how much money is out there for Broken's idea?

Again, I don't want to bash your poll (I voted $10k!)...I just have to ask. If it's a real, existing firm, I thank you for helping them gather information. 

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H

43 minutes ago, elnino said:

@JustHanginginThere This sounds exactly like what @Broken_14 has been posting about creating. I don't mean to be a skeptic but sounds fishy. Is it a real biotech firm or are you gauging how much money is out there for Broken's idea?

Again, I don't want to bash your poll (I voted $10k!)...I just have to ask. If it's a real, existing firm, I thank you for helping them gather information. 

I know Broken wants a cure and is anxious to find people willing to help but this isn't her idea nor is she affiliated in any way with the Biotech I am describing.  The Biotech is a real company. 

 

I understand you are skeptical--but I did not say THE COMPANY HAS A CURE AND IS CURING HUMANS...it is simply a poll to conduct research.  Going for a CURE rather than just a vaccine or pill is a big step forward. Understand that research and preclinicals will take time. Once you see who is involved, any skepticism will go out the window.

Edited by JustHanginginThere
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44 minutes ago, JustHanginginThere said:

H

I know Broken wants a cure and is anxious to find people willing to help but this isn't her idea nor is she affiliated in any way with the Biotech I am describing.  The Biotech is a real company. 

 

I understand you are skeptical--but I did not say THE COMPANY HAS A CURE AND IS CURING HUMANS...it is simply a poll to conduct research.  Going for a CURE rather than just a vaccine or pill is a big step forward. Understand that research and preclinicals will take time. Once you see who is involved, any skepticism will go out the window.

Ok, great! Thanks for the explanation and for helping them in their efforts. 

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2 hours ago, Broken_14 said:

I have NOTHING to do with this. Sorry but there isn't anything fishy about it and it isn't coming from me. 

No need to say sorry...I was just asking, not accusing. I applaud both of your efforts. 

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    • CHT
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