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that one second that changed your life


kayanne

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I recently just found out I am hsv positive and for me I feel like my life is over. I had to break it to my boyfriend that I found this out over one little mistake scared to death I am going to lose him. everyone tells me I'll be okay but the truth is I don't think I will. I wouldn't wish this on my worse enemy but here I am living with this for the rest of my life. I really don't know much just besides the horrible things I have looked up I haven't had an outbreak and I truly hope it never happens I start taking the medicine today a new pill that will be  with my for the end of time hard to think that for one time I was starting to be happy to find out this. i don't where to go from here or what to think 

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There is nothing different about you or the way you live your life.

It sounds like you have just discovered you have oral HSV-1! This is pretty much the most innocuous of the viruses in the world. Over 70% of the population has it. Most likely you have had it since being a few months old.

Hence you have been living with the virus all your life thus far and you'll live with it the same way for the rest of your life, probably not experiencing anything.

Do not take any medicine for HSV-1, you do not need it. The cost and side effects are not worth it.

You're completely OK to simply forget about it and move on wit your life just as it was and just as you want it to be.

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I understand your feeling, overtime you will feel better. The stress is so big it can affect your physical health.

Are there any visible symptons? If not then nothing really matter actually. There is a possibility of false positive, so maybe try to get tested again on different lab to be sure.

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But never had an outbreak? What test did you have and what were the results? Why did you test in the first place? Do you get oral cold sores?

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I have had almost 35 yrs experience with HSV2 and I can tell you for fact your life is NOT OVER! We all make mistakes and I am sorry this is so very hard on you. You have come to a place of knowledge and caring. 

The shock and fear can be debilitating at first but the more you learn about your body and how the virus affects you, and you only, the stronger it will make you mentally and physically. I believe learning how to keep this virus under control helped me fight Hep C I contacted through surgery. Just because others have bad OB's that does not mean you will. Do not let fear of the unknown override your daily life. Read positives about this virus as in what foods or supplements help the body.  Success stories of others, there are many!!!!!

You are still the same amazing person you were before this infection. A virus could never change that! Everything in life is a learning experience and you will learn what is right for you as the rest of us have. There are so many worse things that can happen to us and if you are feeling really down just walk any street in your town and look around. You will pass others with HSV and never know it. I was feeling down about a physical disability that ruined my career. I was at a stop light and a middle aged man walked past my car and he had the most beautiful smile, it made me feel good. When I looked down I saw the 2 silver hooks he had for hands. Life is about our perspective! You are smarter than a virus!!!!!

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I had my yearly check up and I tested positive for for chlamydia so I talked to my mom and my mom said that the best thing to do was to get all of my tests done and then yesterday the doctor called me and told me that the test is positive for type 2. no I haven't had any outbreaks I already knew I would have came back positive for type 1 because I have always had cold sores on my mouth when I would run a fever that was nothing serious about that. but seeing a positive type 2 kills me inside. I look at the mirror and the girl I once knew was gone. I don't understand how this could happen to me. I don't sleep around by fact he was the only person I've been with since I got pregnant with my son 3 years ago. my heart aches and it hurts and I am so stressed out I haven't stopped crying since I found out. my doctor gave me medicine to take everyday but she said I may have a low one and never have outbreaks because I haven't yet. I heard stress is a huge factor in OB but it's like how do I not stress over this. I keep asking what does this mean for my sex life how do I move forward why would I want anyone to touch me and give them this something they will have for the rest of there life. I've gone through a lot and I've always been so strong but for the first time in my life idk if I can than I look at my perfect baby boy and ask why would I want to give up. he helps a lot. I know over time I'll learn to accept this new part of me but right now it seems impossible. I know people have a life worse than me I have so many things to be grateful for. and for a false positive I got blood work done and they said they have never had a false positive in blood work but to retest in a couple months 

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What has your sex life been to this point? There is no need for it to change simply because you may now know you have HSV-2.

What a load on nonsense not having a false positive. It may happen in up to 15% of tests! and especially for people with HSV-1 already, which is why I asked. 

If you get the actual test results, you may not even need to retest at all!

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I had already asked them if there could be a chance it was a false positive and they told me the chances were very low. but I still am going to retest in a couple months regardless I start taking the medicine today that's supposed to help with outbreaks but if I am truly positive I can spread that oral sex being done to be is over if I don't want to spread it

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Just get the test result now, that might answer everything. Doctors notoriously just take anything over 1 as positive, but it actually needs to be over 3.5! You may have had a useless IgM test as well!

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so what should I do go to a different doctor. I looked up a lot of people carry the virus and not show any signs of having any break outs I even asked if it was possible that it would show up positive because I knew I would have the type one because I have had cold sores and she said no because they are too different types than  I asked if I needed to schedule another appointment with her and they said no so I kinda just left it as that. also I talked to my ex ex girlfriend who I found out he still slept with and she claimed she was clean and they have been together for years so either she's lying or I've had this and never knew. 

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Just get the full test results from the tests you have had, that's a good start and too difficult?? We can really help you from there

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on my chart all it says is its positive and than I got negative for hsv ad which i guess is saying it's never reacted. which would make sense since I never had a OB. my doctor sent me over acyclovir which is generic for Zovirax. I have to take that twice a day. my mom said I need to see if there is any specialist and see them and maybe take a test through them 

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What test suggested positive? For what? HSV ab non reactive means you don't have it. You have no antibodies.

Yes I agree, you must have an IgG type specific for HSV-1 and HSV-2 with a specialist and work thoroughly through the results.

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Hey that is excellent, damn, no other information to understand whether this is a low positive.

You say your HSV-1 result is positive too?

With no symptoms genitally, I would seek out a Herpeselect test now with a different doctor and be firm that you need the full results.

 

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so what exactly does the negative hsv ab mean because my doctor didn't explain anything was just like hey this is positive sending you some medicine so you never have any outbreaks. I asked if I should make an appt or something and they said no 

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@kayanne in general, let's assess the situation.

You have never had any reason to suspect a genital herpes infection given no partner has ever told you they have it, neither has you or a partner had an outbreak. 

So at this stage, the only thing that indicates you may be infected is an IgG test that quite often is falsely positive.

Now the IgM ab test you had isn't that useful. IgM antibodies are sometimes detectable from 7-21 days after infection before IgG ab are detected.They can also turn up at random times after IgG antibodies are established. Hence a positive IgM and a negative IgG can indicate a recent infection. A negative IgM doesn't mean very much.

So let's cut to the chase. There is a possibility that you do have HSV-2. You would err toward this conclusion if the following were true:

- you've had genital lesions before but didn't know what they were
- you've been informed that you have been with a HSV-2 positive partner
- you've had sexual relations with populations with a much higher incidence (non-Caucasian for example)

If non of the above is true, then it, appropriate to err toward a false positive.

Absolutely confirmation is required. No one bases any diagnosis on the outcome of a single test, right!?

Two choices:

1. Repeat IgG test but insist on a Herpeselect being applied. All doctors have books of order codes from their labs. Request that they put in the appropriate codes for Herpeselect type specific for HSV-1 and HSV-2.

2. Proceed directly to obtain a Westernblot for HSV. Look it up on the University of Washington website. They have pages that you can print out and take to your doctor. Many doctors unfortunately have no clue and won't order it. If this happens you can become a phone patient of Westover Heights Clinic and they will take care of everything for you.

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thank you for all the information I am extremely confused it would be one thing if I had an outbreak but I haven't I also do not know if any of my partners would be honest and come to me and say they have. I know I haven't had any OB and if I anything unusual down there I would go to my doctor right away. when I got pregnant all my screening and test came back fine and if I came in contact with it it would at least be well over three months the earliest and over a half a year from the person I slept with before that.  

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I am going to see a different doctor because when I called to get my numbers they said there lab doesn't have numbers they also said I only carry the virus and it's doormat no clue what that means

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    • WilsoInAus
      I really suggest that the best thing is for both you and your boyfriend to obtain the Westernblot HSV test. He has a 50%+ chance of being positive and you have a 50%+ chance of being negative. Only the Westernblot can sort this out for you.
    • WilsoInAus
      Hi @kpn the first thing to note is that it is all OK to have HSV-1 or indeed any HSV type. It is not negligence, it is just being human. Oral HSV-1 is not an STD in the sense that the primary transmission is non sexual and the majority of it occurs between parents to children. If any of your children contracted HSV, you would know it. It wouldn't be a silent infection for children. HSV-2 tends not to shed from the oral region for people who have it there in any event. At age 73, about 80% of the population has HSV-1. There is no reason to believe that your mother isn't one of those people. About half of all carriers of oral HSV-1 do not realise they have it and have no living memory of cold sores as they were infected when very young. The most logical explanation is that your mother has oral HSV-1 from her childhood and that your daughter doesn't have oral HSV. Not that it is relevant to anyone but yourself, but your wife might find she actually has genital HSV-1 having had an untyped swab when she was diagnosed.
    • WilsoInAus
      Hi @Dylan86 and welcome to the website. First note that you cannot pragmatically become infected with HSV-1 from sharing a drink. If you carry HSV-1, it did not come from that episode. As such it is extremely unlikely HSV-1 is the primary cause of your issues. Can the WB miss a HSV-1 infection? Rarely but its feasible in less than 1% of carriers who test with WB. Note that the WB does not have values, it has positive or negative as you say. It is way more accurate than IgG as it looks for all 30+ antibodies that are in your blood for HSV. Could you have HSV-1? Yes it is feasible, but it would be a very old childhood infection. Could HSV-1 be causing your oral issues? No herpes will not cause the burning mouth syndrome you describe. Could some of the lesions be herpes related? It is feasible if you are a carrier. But it is unlikely to be the primary cause of the issues, but its an opportunistic virus that can cause issues when something else is taxing your immune system. The best thing you can do is the PCR test on a oral lesion and that will be pretty definitive. Either way, in summary. I'd suggest there is <1% chance you are part of about 70% of the population that has HSV-1. Further there is less than a 1% chance that herpes is the primary cause of your issues.   
    • kpn
      My wife has had hsv 2 for around 8 years. We have two young children 3 years old and 18 months old. My wife only had one outbreak when she was first infected so we didn't worry too much about passing it on to our children. I understand the risk to be pretty low under those circumstances. I don't believe my wife took antivirals during either pregnancy. My younger child has diaper rashes pretty often and has had what I thought was hand foot and mouth disease. That was going around the daycare a while back. I haven't really given it much concern though.  About a week ago, my mother kissed my youngest on the lips. My kid was congested at the time but they pretty much always are. About 3 days later, my mother developed a cold sore on her mouth. She has never had cold sores in her life and she is 73 and happily married so she is not going around messing with anyone. She pointed to the fact she had kissed my youngest and presumed that is where she was infected. At first I said that's not possible since my child has never had any cold sores but since then I have really started to consider that maybe it is possible she contracted it from my daughter. This has me worried that my daughter does indeed have hsv2 and was shedding in her mouth. Does anyone have any experience with this? I am really losing sleep about this. Two people I care so much about got hsv from my negligence. I am fine if I were to contract it, I am not worried about what others think at this point in my life. I just don't want anyone else to have it. 
    • CHT
      Hello DavidGua.... based on the two pictures, I'm not seeing anything that resembles a typical herpes outbreak.  I am not sure what those spots are on your penis.  Please have a doctor take a look and I'm sure you'll get a proper diagnosis.  Have you ever received an HSV antibody test (IgG)?  Again, I doubt your symptoms are herpes-related but, if you'd like some peace of mind, you could request the IgG antibody test for HSV2.   Best of luck.... let us know if you have any other questions/concerns.
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