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Destroyedbythis

Burning

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Destroyedbythis

I've had this about 6 months. Not had outbreak since first. But today I'm having burning from my coccyx between my buttocks. Is this right? 

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Seeker1960

Hi DBT, The virus infects the sacral ganglia which are your nerves in that area you describe your burning. I have burning butt also as part of the gift that keeps giving.

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WilsoInAus

This is most unlikely to be related to herpes.

thanks for sharing seeker. Now quickly get to a doctor for a diagnosis. This sounds very serious, good lord man this is terrible yet great news. You may have enough to get an MRI now.

Please try  and get a diagnosis. I know no doctor to date has diagnosed you with genital herpes and this is unlikely, but I recommend you try a new doctor just in case.

Bless my soul I hope you're going to be ok, please don't lose a minute and let us all know the outcome.

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Chin up31

This shit is crazy I also have burning at times when I urinate hope this will be all over someday

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Seeker1960
On 10/28/2016 at 11:44 PM, WilsoInAus said:

This is most unlikely to be related to herpes.

thanks for sharing seeker. Now quickly get to a doctor for a diagnosis. This sounds very serious, good lord man this is terrible yet great news. You may have enough to get an MRI now.

Please try  and get a diagnosis. I know no doctor to date has diagnosed you with genital herpes and this is unlikely, but I recommend you try a new doctor just in case.

Bless my soul I hope you're going to be ok, please don't lose a minute and let us all know the outcome.

Wilso are you a Doctor or do you just play one on the Internet? I don't need your opinion about my DX. I am satisfied with what my Doctors have diagnosed. What gives you the right to judge what HSV can and can't do? If you were such an expert on HSV I would expect you to be working on a cutting edge treatment and cure instead of taking pot shots at people.

You know that the virus infects the sacral ganglia but you deny the fact that it can cause any type of nerve pain on continuous basis. Even the real experts do not go as far as you do in saying that.

Edited by Seeker1960

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WilsoInAus

Yes but have the courtesy to reveal that your doctors have diagnosed you with jock itch. There has never been any evidence presented in your multitude of posts here and with Terri Warren that you have genital HSV-1. It is hence your duty as a member of this forum to ensure that people are informed about herpes and if you are using yourself as an example then present the facts. That is all that anyone asks and that is reasonable isn't it?

 What you believe you have is fine and up to you, people are allowed to challenge you in your beliefs but in the end they are yours.

It is not relevant who or who isn't a doctor and what any of us believe, just facts and information that support people in their own conclusions.

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Seeker1960

So I have "jock icth" Dr. Wilso? My duty is to be honest to myself and to God. I have had jock it and it was quite awhile ago and cleared up with anti fungal cream.

I have never had a cold sore or any form of oral herpes symptoms and never tested positive or HSV 1 until this year. I have had HSV tests since 2007. I have only had genital symptoms and recently have had a blisters appear in the genital area. No, I dont have a swab but it is the third blister in nine months. 

So the facts are I have tested positve for HSV1  via Western Blot and IgG. I have genital irritation that is constant with HSV related symptom that hundreds of others have reported and have I have had blisters that are not pimples in the boxer shorts area. Furthermore, you or nobody else has a right to challenge me on what I have. Either you accept what I say or not and keep it moving. 

I have no idea if you even have any kind of HSV. You don't speak about your own affliction with this virus you only defend what the virus cant do and so on. If you only have OHSV1 then you should not be challenging anyone. Let us know if you have GHSV and what are your symptoms friend!

At least I speak of my own personal struggle with this virsus. You only talk about science  and other theoretical aspects of how the virus affects the body. What about you? How did it affect your personally  mister I know everything there 8s to know about HSV

If anyone doesnt have HSV it is probably you since it doesnt seem to affect you in the least. You never say anything of your struggle. You only play Doctor and Judge here and I'm  frankly quite sick of it. There was a time when I thought what you had to say was useful but that was many months ago and before you revealed your true nature. I see that you are no longer a moderator nd for good reason. 

Try to change and find empathy for people who are suffering with HSV with atypical manifestations of the virus. If Halford and others can recognize this reality maybe you should reevaluate your thinking? How many people have come here for help and have been discouraged by your narrow interpretation? Even people with  confirmed GHSV2 with nerve issues have been told by you that they should look for other causes of back pain and leg pain because HSV doesn't cause such issues. Nobody here who has these issues is buying it!

Even if you dont count me I can give you quite afew on this site who feel the same way about the cause of their constant burning and irritation. Should I begin listing the names? So I am not the first or the last that you are going to have this argument with. The proof that HSV causes these issue will come from Halfords work.

Maybe then we who suffer HSV related nueropathy  wont have to suffer the insults from you any longer. Maybe we will also be liberated from our symptoms and forget that we had to defend ourselves when we were seeking help and understanding on this site.

Edited by Seeker1960

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WilsoInAus

You are very defensive and I do not know why, but I have my suspicions.

Just present the facts:
- you have never swabbed positive for HSV-1
- you have never tested positive on an IgG test for HSV-1
- you have tested positive on Westernblot for HSV-1
- you have been unfaithful to your wife and this causes you enormous anxiety
- you have claimed to have an immune disorder that may be the source of your issues
- multiple doctors have diagnosed you with something other than herpes and do not believe you have herpes

What you believe about these facts is up to you. What others believe is up to them. I can accept that one day you may test positive to HSV-1 genitally, that's a possibility, but that still will not mean your symptoms are caused by herpes.

I choose not to discuss how HSV impacts me physically and mentally, that's up to me.

How dare you lecture me on empathy! You know full well I have a brain disorder that renders me devoid of emotions such as empathy. I hope people are not as narrow-minded and bigoted against the mentally impaired as you are. I hope you can change to recognise this.

It is not relevant if someone feels their symptoms are due to herpes. What is relevant for their health is that they eliminate other serious possibilities. That applies to you. Surely with your superior empathy you would agree this is an appropriate thing to do. 

What is insulting about suggesting to people they consider other causes? Again it is absolutely critical that this be done.

 

Edited by WilsoInAus

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Seeker1960

Iam not on trial here so I am going to say this for the last time. I HAVE TESTED POSITIVE FOR HSV1 VIA WESTERN BLOT AND HERPSELECT IGG TESTS. I HAVE HERPES PERIOD. WHETHER YOU SAY ITS ORAL OR I SAY ITS GENITAL IT DOESN'T MATTER. I AM POSITIVE END OF STORY

SO WHAT ABOUT YOU?

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WilsoInAus

Suggest you re-read my post, I have always acknowledge you have HSV-1. You have a positive Westernblot. That is the end of that story.

That was not the essence of my points above.

I have had lesions since a few months old. I have always tested positive HSV-1. I have had three IgG tests in the past decade.

 

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Seeker1960
39 minutes ago, Free73 said:

why didn't you get your blisters swabbed?

I have spent thousands this year on test. I am not willing to spend more money to prove what my blood tests have already concluded or what my Doctors have diagnosed . Even with a positive GHSV1 swab Wilso and others will never agree that the symptoms that i have are all related to HSV. I know better because I live with this everyday only since my exposure with a person confirmed positive for both types.

I dont have anything to prove to anyone but myself and I have come to believe what I believe concerning the cause of my symptoms . They will be no convincing  me otherwise.  Everyone here is entitled to their own opinion and free to believe what they want. I dont judge anyone on what they believe  and I dont diagnose people. If they believe they have herpes and have good cause to believe such then who am I to say they do or dont have it?

Either way they are looking for answers, emotional support and encouragement. I am not a scientist or a Doctor or a researcher or a priest. I'm just a friend to those who might need one to have a sympathetic ear. I share my story take it or leave it. I sought refuge here on this site but these days I find Judgement and condemnation. 

I was weak when I first came here but now I am stronger and able to withstand the attacks which have been horribly abusive and personal at times from Wilso. I shared I an extramarital relationship during a rough time in my life and now I get it throw back at me as a weapon by someone who practices Internet psychology and medicine.

 

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WilsoInAus

Hey that all looks sensible.

I cannot see how any note I write is judejment and condemnation, I simply deal in facts. It just isn't fair or even safe for people to take another's beliefs as their reality.

Now we are getting to the nub of the issue. I do not launch personal attacks, I hold up a mirror. When Luke asked "What's in there?"", Yoda answers "Only what you take with you. Your weapons, you will not need them."

I am really distressed that you dismiss the impact of extramarital affairs on men. I too have done this and have openly admitted this for some time. I have seen how it destroys men, prays on their delusions. It was after this at least for me, and I know several others, that the black dog dreams commenced. Only those that have had this will know the haunting I am talking about. The health issues are just devastating. Prostadynia, chronic jock itch are the least of it.

I'm sorry if you saw my comments as personal attacks, that was never my intention. The fact that you are now stronger was exactly my intention!

You now have the strength to fulfil Yoda's challenge "One thing remains... Vader. You must confront Vader."

Good luck, I mean that, you know what you need to do.

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Free73
32 minutes ago, Seeker1960 said:

I dont have anything to prove to anyone but myself and I have come to believe what I believe concerning the cause of my symptoms . They will be no convincing  me otherwise.  Everyone here is entitled to their own opinion and free to believe what they want. I dont judge anyone on what they believe  and I dont diagnose people. If they believe they have herpes and have good cause to believe such then who am I to say they do or dont have it?

Relax, I was just curious as to why you didn't swab. A swab would have confirmed whether it is genital or not.

A person who 'believes' they have herpes is no different to a person believing they have cancer or any other illness. But should we encourage people to believe they have cancer and say nothing when they want to jump off the cliff? It's not a sensible way to live.

Most people will have symptoms that can be either swabbed or tested via IGG, it's pretty simple. If both are negative, then life goes on as negative to herpes.

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