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Simplexity

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Simplexity

Hi everyone

I have a question I am new in here but everyone seem to be anonymous? Why is that?

Am I perhaps lacking some kind of membership or something or are people choosing to not show their real faces in here? Not sure what to make of all :)

Regards R

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LucyLevi

Hi and welcome

I am in Europe too! I don't think that there is anything particularly significant about anonymity on here... most support websites (for many reasons)  tend not to include personal details, I have however made a fair few friends on here and we know all about each other and in some cases we have had met up for coffee. I was lucky to meet up with one of my US friends and that was amazing. Hoping maybe to catch up with another in the summer.

So I see it like this.... we are a group of people with somethings in common, but in the face to face world we wouldn't all be best buddies nor would we cross paths on a day to day basis, so maybe we don't need to all 'see' each other. You might prefer to be on one of the facebook pages where people are more open about themselves. The other issue here is that the site is accessible to non members  (albeit with limited access) so you'd be visible to the whole world.

But if you are ever in The UK do let me know, as happy to make new friends irrespective of the whole H thing :)

Take care

Lucy

 . 

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Simplexity

Hi Lucy what is this facebook thing you talked about...?:)

 

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Simplexity

Hi Lucy, thanks for taking your time to write such a long reply, I didn't see it until now not sure yet how this site works.

what is this facebook thing you talked about...?:)

Regards Ralph

 

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LucyLevi

Hello Ralph

There are a number of Facebook sites which are specifically for people with H I don't know a lot about them as I'm not a member, but if you contact JBnATL or catch him in chat , he will be able to tell you more

Take care

Lucy

`

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Herpadoodledoo

I personally have no problem sharing a picture of myself when I get to know people here, usually on different sources like whatsapp/snapchat... But only after I've established a friendship. Anonymity may perpetuate the stigma, but this is a support website for a condition no one wants to go shouting about from the rooftops, and anyone can happen upon this site. Just my opinion! 

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