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Absolutely Devastated

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Absolutely Devastated

I feel like my life is over.  I just got diagnosed with hsv2. Am I the only one that feels like they are trapped and will never be able to live a normal life ever again? 

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SureWhyNot

36yrs of experience tells me, Your life is Not Over! You Will be able to live a normal life. Sorry you found yourself here but there is a great deal of information and amazing supportive people to help you find your way with this. We have been or still are where you are now so know there are people who understand and will do whatever they can to help.

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Lisajd

Its a period of adjustment and education.  Its like anything in life its what you choose to do.  Deal with it or not.  I was may 2015.  For me educating myself and managing outbreaks is key.  Also dont make asdumptions about how others may view you because of h.  Its very common and more pple understand it now a days.  

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BY64

Hi, I'm a newbie also.  Three weeks.  Still struggling with acceptance.  Haven't started with any treatments yet as my IGg was 2.2.  Doc said I have both Hsv1  and 2.   But I will retest soon.  Struggling with emotions but maintaining the outward appearance as everything ok.  No OB yet that I'm aware of.  My question is will my insurance pay for the treatments if I go that route?  Has anyone been denied?

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WilsoInAus

Was this test a combined one for HSV 1/2 or were there separate figures for HSV-1 and HSV-2. 

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WilsoInAus

Greater than 5 though I take it fort HSV-1?

The 2.2 is in the grey range and has a strong probability of being a false positive. Chances of a HSV-2 false positive are also higher for people who already carry HSV-1.

Hence there isn't confirmation of an infection at this time. The Westernblot is the next best step for someone in this position. Print of some information from the UofW website and speak to your doctor about this test.

Edited by WilsoInAus

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Twilightzone

I just found out myself and im just crushed but i have had some nice ppl already comment on my post and glad i looked for a group to unload how i feel...

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BY64

Thank you WilsoInAus, I appreciate it, that gives me some hope for my anxiety.  I'm going to see if anyone here does that Western Blot test.  It still might be positive and I'll have to deal with that then.  Thank you for having the site here.  Lots of good information to ease our minds.

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    • WilsoInAus
      @Talx2520 based on what you say, Im not sure the odds exceed 50/50 that you have genital herpes. If you take a random genital infection from vaginal sex then about 95% of the time it’s HSV-2. How long after the episode was the blood test?
    • Talx2520
      Thanks for the response! My first suspected outbreak was definitely painful. Started with what felt like a UTI, then noticed what looked like ulcers starting 1.5 days after unprotected sex. Never scabbed over, but I had a horrible itch that lasted 2  weeks (didn't feel like yeast). Given my symptoms, I've pretty sure its genital herpes, but I mean it could have been some allergy (I had extremely rough intercourse in the middle of the wilderness, sorry if that is tmi lol and maybe naive of me to think it was a weird plant). Both my mom, sister, and grandma get coldsores and I feel like i've totally shared drinks with them even during their outbreaks. Can't remember if I ever had one though. I am not totally sure how I should go about disclosing in general. Should I mention I had a full panel and hsv-1 came up positive and that I am not sure where it is? I really wish I had just gotten it swabbed, but couldn't afford it without insurance at the time. I was under the impression that if it was herpes, it would come back and I could get it swabbed, but I realize now that with HSV-1 that isnt always the case. 
    • WilsoInAus
      @viralfrog given your symptoms do not react to any known antiviral doesn thatvsuggest these are not herpes lesion?  Lets apply Occam’s razor here.
    • viralfrog
      @Lulupazoola I have tried with a straw but it's difficult to create enough suction if the straw is deep enough in your throat  After drinking 6g from a shotglass I immediately drink a glass of water to dilute it down the throat.  Little update: blisters, redness and lethargy are back today. I'm still off the antivirals completely and my outbreaks are not any worse than usual for now. That's interesting, it seems I don't react at all to Acyclovir.   
    • viralfrog
      Technically speaking, someone with a strong immune system could have a mild initial outbreak. Normally, they would remain mild and decrease over time. However, if you put yourself in a situation later that gives a big hit to your immune system (e.g. binge drinking, other illness, no sleep etc.) you could have a bigger outbreak as a result. 
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