All I have been doing is research over the past three weeks and I still don’t even know where to begin this post because it’s still so shocking. This post might be long but I hope someone will read it and help me. I feel like the doctors don’t really truly know about this topic in depth and I have no one to learn from and I’m so so scared.
My first outbreak was 10 months ago. I had just had sex with a new person and started my period. The doctor said it was BV and a yeast infection. I knew that it couldn’t just be that. My labia was terribly swollen and cut up that it was so painful to go to the bathroom. Got better but then was cut up again about 2 weeks later and I think after antibiotics really had a yeast infection too. About 3 weeks ago I felt really itchy one day and the next day I had a cut on my inner labia and started my period that same day. After closely inspecting it I realized that maybe it could be a blister. I got the doctor to swab it and they confirmed it was hsv2. From the time the doc saw it my labia did get a little more raw but def not as bad as what happened 10 months ago. Of course at that point my stress levels are high and I went back to the doctor a week later to get tested for everything else to make sure I was ok. So of course high stress again. Once my initial cut was healed I shaved and ended up with what I think was another outbreak but this time next to my outer labia. I went back and forth if it was from shaving but I feel like there were two spots and they had itched and were painful. Those spots are not fully healed but no longer hurt. This morning and for most of the day I felt a sunburn type feeling on my right butt. When I’m looking at it now I swear that I can see these small bump patches that might look like little blisters ... I don’t think they look like regular little butt bumps. They are so small and it’s hard to see but it does feel tender. So this makes it seem like the 3rd little outbreak within 3 weeks. I have always had very dry sensitive skin and I have been very super aware of every little thing since this diagnosis. I’m supposed to start my period next week and I’m terrified that with it will come a 4th little outbreak. This is not as painful as that first outbreak but it’s more upsetting cause it feels like it’s lasting longer.
1. Does any of what I’m describing sound normal. Can you get it in 3 different spots within 3 weeks like this? Why does it keep restarting and it didn’t last time. Is it ever going to end!?
2. How can I figure out what this is going to be like for me if every single circumstance has had different symptoms.
3. I thought it was mostly supposed to be in the same place so why does this seem like 3 different places? Also, the spot on my butt if it’s hsv2 is this just a place where it can show up or did I spread it there?
4. If this is a spot on my butt does this mean that I can shed there? I’m so terrified of spreading this to my family. The spot on my butt is in a place that could be potentially touched by someone as it’s on the top and wouldn’t maybe be covered by s bathing suit. If I’m holding my niece on my hips and her legs happen to rub against that part of my butt and I’m shedding could I pass it to her.
5. I went 10 months between these outbreaks and I’m hoping that I won’t have to deal with this often but I’m not understanding why all of the sudden for 3 weeks I’m having something new pop up each week. I’m so scared that this is going to be my new normal. I just want to feel like me again and comfortable in my own skin and for the last three weeks all I’ve felt is uncomfortable in my skin.
I’d appreciate any help that someone who has been through this can help. I feel hopeless
I’ve been taking everyday
b. Vitamin c
c. Vitamin d
have periodically used coconut oil, lavender, rosemary, and have taken lysine a handful of times.
Hey guys, new here as of today. I’m currently 27 weeks pregnant and I’ve been having more days with outbreaks (single lesion, same spot) than not. I’m praying for a vaginal delivery but obviously want to do what’s best for My Baby but the thoughts of not being able to bring baby into the world vaginally wrecks me... At 20 weeks I was diagnosed with HSV2 after requesting testing because I had known for probably 3 years but was too ashamed and was in denial to go to a dr and get the actual diagnosis but wanted to take all precautions for my baby... Anyway, the DR put me on Valacyclovir 3x a day for 7 days and then 2x a day. I noticed absolutely no change. It was like that one lesion would heal for 2 days and then come back for a week. Today I asked her to switch medications and she told me to just keep taking the Valacyclovir for suppression. I guess my question(s) are #1) how long did it take some of you to see suppression? 2) How many of you had to have a c-section because of active lesions and 3) did anyone’s dr miss a lesion during delivery and was your baby ok? I’m so torn because I don’t want my family to know and what am I suppose to tell them in the event of a c-section when they’ll all be there at the time? 😭—
Thank you for any and all comments in advance. I’m so hoping I can find some peace of mind within this forum.
PS: Recently I found that Tree Tea Oil keeps the lesion away longer than the medication did and the dr gave me the ok to continue. Anyone else?
Does anybody have any suggestions on how you deal with pain at work or when you are out? I have hsv2 I am in the beginning of a break out this one is bad. I can’t really afford to call in so if anybody has any tips I would greatly appreciate it! Thanks.
I just got diagnosed yesterday 2/25/2019. I've almost been on meds a full 24 hours. It's been an actual shit show of a week.
This week has been insane. At first symptoms didn't show up until four days after having unprotected sex. I have had chlamydia before (May 2018) and the symptoms looked the same. Wasn't painful until the fifth day. I kept asking my doctor for tests. "You have to set up an appt to get your lab paperwork (they don't do actual testing at my office, you have to go to the local hospital to do them)." So I get in there on the fourth day and nothing had even showed up yet. So I went to the hospital the next morning (Friday 2/22/19) and got my tests done. Nurse told me I could come and get results later that day. I come back and they only have my hiv one done, and I already knew I was negative. They told me to come in the next day and all my tests would be done. At this point the symptoms are getting worse and I'm starting to feel pain and itchiness and the nurse says she can't do jack sh it (it's JUST a hospital, not like anyone knows how to do THEIR job right?). I come in next day- absolutely freaked. I'm hysterical, crying, and I want some fu cking answers. I walk into the main check in area to find a sign that says GO TO ER RECEPTION. I had called the hospital an hour beforehand to set my results aside so I don't have to wait 10 years for some stu pid papers. I walk to the ER, and I'm shaking like h ell. I look like I'm crazy and I ask for my paperwork. "Sorry? We're the ER and we don't take care of that stuff"
Me: LOOK. You guys have been bouncing me around for the past 3 days. Whatever the he ll I have is there and I KNOW I HAVE SOMETHING. All I want are my lab results. I called the front office and they said they set the papers aside and I could grab them. Whoever is manning the main office is on a break or something bc their sign said to come here so don't tell me you cannot help me. I have a physical condition and it's driving me insane. I've been going batsh*t about this since Thursday (at this point it is Saturday).
Nurse: OK we found your paperwork in the lab (didn't even ask for my ID)
Me: Finally. Jesus. (I look at all my tests and they are all negative) WHAT DO YOU MEAN NEGATIVE??? I can't even sit down and I have to cry my own eyes out when I pis s?????? You mean to tell me that I trust the fing system for once and you tell me to go blow myself when I'm in physical pain? I need to be looked at? Where even is the herpes and trichomoniasis tests???? (the basic tests the doc gives you for stds are gonn, chl, syph, and hiv)
Nurse: You have to ask for them
Me: Can I have then please?? What buzz words am I missing? What part about THIS IS AN EMERGENCY I NEED HELP do none of you get?
Nurse: Ask your doctor.
Me: Yeah on a weekend. What help.
Nurse: All your tests came back negative????? What's the problem??
Me: There is clearly something wrong and I am SCREAMING FOR HELP and you, someone who works at the hospital, are going to stand there behind that desk and tell me you can't help me? You're turning me away when I beg for help?
Nurse: The results are negative...
I just storm out at this point and I'm hysterically crying and screaming at the top of my lungs because I'm in full panic and manic mode. I don't know where to turn. I go home for my dad's help and he takes my car away because I'm so upset (we have been on somewhat of a break bc of this whole fiasco and I've been staying with my friend) that I start frantically calling my friend and looking up bus schedules (she lives 20 miles away and such). She tells me to lay low and I'm ready to kill someone, if not myself because of how frantic I am. My dad doesn't understand this and it's absolutely aggravating because I originally went to him to vent and what I got was a lecture and a threat to kick me out of the house. After I left the hospital, I made the even bigger mistake of asking for a hug because he made me come inside and listen to him lecture for a f/ing hour, and then I was stranded and no buses were going at that point (it was like 8pm and hours are shorter on weekends).
Next day I drive out to my friend's and the whole day I'm suffering and trying to work horses (I'm a 3 day event rider and my friend is a horse trainer, I'm her groom/assistant) and move items from farm to farm without passing out or upsetting the sock in my crotch.
Next morning, yesterday (MONDAY 2/25/19) I call my actual doctor's office and demand that I see her today. They fit me in a 2pm spot. I take a shower and 10 minutes later I get a text and call from the reception saying doctor is out because she has the god da mn F L U. At this point I'm ready to give up. I have to put socks on my vagina so that the lesions don't touch each other and leak, I cry when I use the bathroom and I'm still scared to use the bathroom because of the infinite pain.
I have no clue why I didn't do this in the first place, but my friend lives by a Planned Parenthood and so I marched my as s over there and I asked to be physically looked at and such. They fit me in.
Nurse (one that checks you in, not the real doctor) asked me what symptoms were and what I've been taking, if anything. There's a medication that's made for humans but given to horses called SMZ. It's a STRONG antibiotic and my friend has Hashimoto's so her and her mom (her mother is my horse's farrier lol) told me at the very least take SMZ 3 times a day. I figure why the h ell not because it's not like anything will get worse. It just stopped the heavy slippery discharge, nothing else. So she admits me to the scary room with the freaky foot pedals, and I've never even seen a f uc king gyno? I don't know what to do but start hysterically crying. Doctor comes in ten minutes later and she tells me that she has to take a culture swab. The fact that I had just pis sed and disposed of my sock, opening all my lesions, I can barely even wipe my own as s. I'm sitting there crying hysterically telling her not to judge me because I made a stupid decision to have unprotected sex with a sh itty guy. She tells me she's gonna touch me with the testing swabs and the moment she touches me I'm crying and screaming at the top of my lungs PLEASE STOP PLEASE PLEASE STOP STOP STOP IT HURTS.
I don't know why she thought this was a smart idea to tell me this but she straight up told me AND I QUOTE!!!!!
"This is the worst and most severe case of herpes I have ever seen. I've been doing this for 36 years."
Well that's awesome, I'm another statistic. I can't believe me it took 1 second to tell me I had herpes when I had been driving myself clinically insane for the since the last Thursday (this lasted Thursday to Monday). She gave me my medications and gave me a name of some supplements, and told me about socks being a good idea and whatever, pour water on myself when I pee so that it washes everything away, blah blah. Gives me my papers and I go back to my friend to confirm I have this fu cked up incurable disease. All the stress prior was gone. Done with my tears.
I'm almost done with my first day of taking the meds. They feel a bit better. Unfortunately I'm on a time limit because I can't physically ride in this major horse show if I can't even sit on a still object. Hoping this at least stops feeling so painful by Thursday for my dressage test on Friday.
thanks for listening the doctor at PP suggested I find one so I don't feel so alone
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