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YammyTea

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YammyTea

Hello Fellow Honeycombers!

I've taken some time away from Honeycomb as it was necessary for my own growth in this journey. Like many of you, I hope and dream of a cure or vaccine; functional or complete. I recently read a post of Dr. Halford's blogs regarding a mass email campaign. I will feature it below. There are many of us in the HIVE that would love to see change regarding this condition. Should we continue to hide in the hive or demand the change we want to see? Just a thought. See post below:

 D says:

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Have you tried a “call to action” to FDA MASS email campaign? I have participated in many to various senators and government committees to influence votes and opinions. Usually it’s a set letter from an attached link people get who support a cause. They log in and forward to that senator or action committee. If you need to demonstrate support, rally the troops.

Sent from my iPhone

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  • Herpes Vaccine Research says:
    0bf36b89ab4dbabc0223950942286714?s=48&d=

    Hi D,

    I have not considered a ‘call to action” letter, but I think this would be more powerful coming from those involved in Honeycomb and other support groups. Such letters are far more compelling coming from (1) past participants of the first Theravax trial and (2) other sufferers who want to participate in a similar trial. Sounds like a great idea, and I am happy to offer a paragraph in support, but those suffering with the disease are those who have the power to humanize this condition. Most people not in the know assume that the desire to better treat herpes is anchored in a desire to have sex more freely. What they don’t know is that having GH symptoms daily robs people of hope. Most GH sufferers just want the possibility of waking up one day and forgetting they have GH for a day, a week, or God forbid even 3 or 4 months. If government officials understood how hopeless how many GH sufferers felt, YES, that would be the single most powerful bullet in your arsenal to get more governments to not only approve live HSV-2 vaccine trials, but to actively support them as well. This is a WIN-WIN-WIN-WIN for patients, doctors, governments, and insurance providers (who would love a 3-shot preventative vaccine over a lifetime of antiviral drugs….helps their bottom line).

    GH sufferers have a lot more power than they realize. A call to action letter would be a great start.

    – Bill

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