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All over body itch


Meade1981

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Just wondering, I was only diagnosed with hsv2 two weeks ago. I had one sore which is gone but I have constant tingling down there that's not going away. Now I also have a sort of all over body itch but no rashes or sores anywhere. Did this happen to anyone else? 

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It's strange. I was only diagnosed two weeks ago however i also had an outbreak in January and September without realising what it was. in jan and sept, the sore went away and I had no problems afterwards. This time, at same time of outbreak I also had a throat infection which I took antibiotics for. I thought I got thrush from antibiotics so used caneston, which helped a little but ended up back in the doctor getting diflucan instead. This helped a lot but I expected the tingling to go as I thought it was from thrush. It's still here! And now the last 3 days I have the all over body itch. I have a terrible feeling that using the caneston cream for thrush even though the sore was gone at that stage has made me worse  and I may have spread the virus all over down under! I can't think of any other explanation because I didn't have this problem at 1st or 2nd outbreak. The tingle doesn't bother me. But the constant need to scratch my legs arms head etc is driving me a little crackers! Glad I'm not the only one experiencing this! Diagnosed by swab. To be honest, the fact the doctor didn't even have it on my file when I went back (had text me the results) , I'm thinking of trying to give myself another sore and get a second opinion! Sounds crazy I know but when I first showed them pics back in January they said nothing to worry about and I went around oblivious to herpes infection for 11 months so I don't trust them really. So I might whip out the vibrator and wait for the soreand go get tested again (I only seem to get one, and it's only after sex). Thanks guys, nice to know my itch isn't surprising!!! 

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Yes I have almost total body burning/itching.  It's been about 1.5 years since I contracted HSV2 and the burning isn't as bad but it's still there.  I don't even get outbreaks, just the full body neuralgia.  I take valacyclovir for suppressive therapy and it makes it almost completely go away.  The only time it flares up is when I'm sick or stay up late drinking and generally get a bad night's sleep.  As long as I'm healthy and take my valacyclovir I don't have any issues.  Every so often I'll try going off the valacyclovir to see if my symptoms have improved.  Over the last year or so they have, but the burning/itching is still there to an extent when I go off the meds. 

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@herpes454 oh wow. A year and a half :-(   my doc gave me 5 days of antivirals. Said I don't need anymore as it's such a mild case. I will mention the constant body itch when I see her next month and if it's still there I may ask for antivirals again but considering 5 days worth cost 22 Euro, I would be paying out 132 a month, so actually no, maybe I'll just scratch my itch!!!! :-(

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I also developed full body itch. I'm wondering if it has to do with a sudden release of toxins or chemicals in our systems. I know some on here talked about doing an anti histamine diet which I plan on starting tomorrow.  Itching can also be linked to nerve problems so I'm wondering if all of our nerves got messed up. Ugh so many issues.

Do you guys ever get redness where the itch us or any little bumps. I sometimes get both. I read that Hydroxyzine can help too.

Please post any remedies that help!  

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  • 1 month later...
On 12/16/2016 at 3:38 PM, herpes454 said:

Yes I have almost total body burning/itching.  It's been about 1.5 years since I contracted HSV2 and the burning isn't as bad but it's still there.  I don't even get outbreaks, just the full body neuralgia.  I take valacyclovir for suppressive therapy and it makes it almost completely go away.  The only time it flares up is when I'm sick or stay up late drinking and generally get a bad night's sleep.  As long as I'm healthy and take my valacyclovir I don't have any issues.  Every so often I'll try going off the valacyclovir to see if my symptoms have improved.  Over the last year or so they have, but the burning/itching is still there to an extent when I go off the meds. 

This virus is completely different in everyone. Not one person experiences the same symptoms! I read your story and my story is very similar to yours even down to the same month and year that it happened. However, I waited months before telling my husband(stress levels were through the roof so i'm sure the virus was taking over my whole nervous system). Never any outbreaks, him or i, but I knew something wasn't right with my body. I had a blood test done and it came back positive. I really believe it affected my autonomic nervous system. I've been under alot of stress lately and my symptoms are getting worse. The burning happens on my hands and arms more noticeably than any other part of my body. I'm currently seeing a naturopath doctor and she's done lots of tests that conventional medicine wouldn't think about doing. So if I contracted the virus on that encounter i have been over a year and a half without taking antivirals. I just started taking them since I got the burning and it subsided. Unfortunately I got the shakes from taking Acyclivir so I will try Valtrex. How soon did you start the antivirals after your encounter? 

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Appreciate that, but there is no reason to suspect that a virus inside your nerves causes all the symptoms you describe, how can it cause a sore jaw for example?? Please see a doctor for correct diagnosis of your condition that may be serious.

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But that's the point, the topic is about all over body itch and symptoms outside the ones recognised by the experts such as Terri. Please stay on topic!

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I guess my argument here would be that I have neuralgia that refers itself to most of my body.  It's concentrated most heavily around my groin and my face - perhaps indicating that I have both HSV2 orally and genitally.  If the girl I contracted it from had HSV2 orally then it would make sense to me that it would end up in both places given the nature of the encounter. 

Now if one was to argue that this wasn't HSV, then that person would need to explain to me how after 35 years of living on this earth all of this randomly started 3 weeks after a sexual encounter with a random girl, only the second girl I've ever been intimate with.  And also this person would need to explain to me what neurological condition is completely alleviated through the use of daily 500mg valacyclovir.  Completely 100%, all symptoms gone.  If said person couldn't explain this then they should probably be forced to admit that they really don't know as much about the subject as they think they do, and they should probably just be quiet ;-)

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22 hours ago, soressuck said:

This virus is completely different in everyone. Not one person experiences the same symptoms! I read your story and my story is very similar to yours even down to the same month and year that it happened. However, I waited months before telling my husband(stress levels were through the roof so i'm sure the virus was taking over my whole nervous system). Never any outbreaks, him or i, but I knew something wasn't right with my body. I had a blood test done and it came back positive. I really believe it affected my autonomic nervous system. I've been under alot of stress lately and my symptoms are getting worse. The burning happens on my hands and arms more noticeably than any other part of my body. I'm currently seeing a naturopath doctor and she's done lots of tests that conventional medicine wouldn't think about doing. So if I contracted the virus on that encounter i have been over a year and a half without taking antivirals. I just started taking them since I got the burning and it subsided. Unfortunately I got the shakes from taking Acyclivir so I will try Valtrex. How soon did you start the antivirals after your encounter? 

My encounter happened on 7/23/2015.  Randomly about 3 weeks later I felt a strange burning in my lips, I had no idea what it was.  Felt like chapped lips which makes no sense given humidity levels where I live at that time of year.  Gradually the burning spread to my whole facial region and also my groin.  At this point I had no idea about herpes and was randomly googling about burning lips and groin.  Eventually I came across herpes prodrome and it seemed almost exactly like that.  I anxiously awaited a breakout for several weeks but it never came.  Finally I went to my doc who did an IgG test and it came back positive for HSV2.  My wife is negative...and prior to encounter with this other woman I've never been intimate with any other woman other than my wife for my entire life....sooooo......

Anyway, I ultimately started valacyclovir in November of 2015, four months after contracting it.  Been on it ever since.  Just this past week I tried breaking my 500mg pills in half so only 250mg per day.  I made it two days and the burning started coming back.  I suffered through that for four days but just today I gave in and went back to 500mg.  Symptoms already subsiding.  I am suffering from a flu right now so I'm sure that is making my symptoms worse.  Once I'm healthy again I will go back to trying 250mg per day and see if I can get by.  I would love to go off he valacyclovir if I could.  I don't have any side effects that I can identify, but I'd still like to avoid having to take them daily if possible. 

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51 minutes ago, herpes454 said:

My encounter happened on 7/23/2015.  Randomly about 3 weeks later I felt a strange burning in my lips, I had no idea what it was.  Felt like chapped lips which makes no sense given humidity levels where I live at that time of year.  Gradually the burning spread to my whole facial region and also my groin.  At this point I had no idea about herpes and was randomly googling about burning lips and groin.  Eventually I came across herpes prodrome and it seemed almost exactly like that.  I anxiously awaited a breakout for several weeks but it never came.  Finally I went to my doc who did an IgG test and it came back positive for HSV2.  My wife is negative...and prior to encounter with this other woman I've never been intimate with any other woman other than my wife for my entire life....sooooo......

Anyway, I ultimately started valacyclovir in November of 2015, four months after contracting it.  Been on it ever since.  Just this past week I tried breaking my 500mg pills in half so only 250mg per day.  I made it two days and the burning started coming back.  I suffered through that for four days but just today I gave in and went back to 500mg.  Symptoms already subsiding.  I am suffering from a flu right now so I'm sure that is making my symptoms worse.  Once I'm healthy again I will go back to trying 250mg per day and see if I can get by.  I would love to go off he valacyclovir if I could.  I don't have any side effects that I can identify, but I'd still like to avoid having to take them daily if possible. 

Thank you for responding! Well unfortunately my GYN would never test me for herpes because she said I didn't have a lesion. I just knew my body wasn't right. I finally demanded the blood test in July 2016 and it was positive. She prescribed acyclivir and I never took it because I thought it was only to control OB which I never get. Since I got a positive result my stress levels have been awful, I guess just from getting the confirmation is devastating(and so i did get what i think was an outbreak but still not sure. It wasn't what I would've expected to be a herpes lesion. It felt more like a pimple). My digestion has not been right since the encounter in July 2015. I've been to many doctors that were trying to treat me for a bacterial infection or a parasite to improve my digestion. Once I started their protocols to treat a bacterial or parasite infection the burning started on my hands and arms, the neurologist told me it could've been toxins or a vitamin deficiency that triggered it(which the herpes virus is a toxin). Just in the last 2 weeks I finally gave in and started taking the acyclivir...what do you know?!?! My digestion improved and the burning stopped! Now there's only one problem, a week and a half into taking the meds I started to get shaky. My head felt like it was shaking when I would move it certain ways. I looked it up and it is a side effect. UGH! The doctor just switched my meds to valtrex today so I'm praying that I don't get any side effects. I want to avoid the medicine too, but you have to do what you have to do. Just get you some milk thistle to detox your liver periodically. 

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1 hour ago, herpes454 said:

I guess my argument here would be that I have neuralgia that refers itself to most of my body.  It's concentrated most heavily around my groin and my face - perhaps indicating that I have both HSV2 orally and genitally.  If the girl I contracted it from had HSV2 orally then it would make sense to me that it would end up in both places given the nature of the encounter. 

Now if one was to argue that this wasn't HSV, then that person would need to explain to me how after 35 years of living on this earth all of this randomly started 3 weeks after a sexual encounter with a random girl, only the second girl I've ever been intimate with.  And also this person would need to explain to me what neurological condition is completely alleviated through the use of daily 500mg valacyclovir.  Completely 100%, all symptoms gone.  If said person couldn't explain this then they should probably be forced to admit that they really don't know as much about the subject as they think they do, and they should probably just be quiet ;-)

I think some people should spend less time on here and more time surfing the web about how this virus affects everyone in a different capacity. :)

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Soressuck I wish you a lot of luck. I've found that if I do get Sid e effects from a medicine it usually only lasts a few weeks., so maybe wait it out if you can. Hopefully the Valtrex will be better for you though! 

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33 minutes ago, SnowAngel said:

Soressuck I wish you a lot of luck. I've found that if I do get Sid e effects from a medicine it usually only lasts a few weeks., so maybe wait it out if you can. Hopefully the Valtrex will be better for you though! 

The shaky feeling was awful. It made me feel like i couldn't hold my head up. I will try Valtrex and if it does the same then i will try my hardest to wait it out. 

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Valtrex in the first year seemed to give me a side effect. My bladder and kidneys would hurt a lot during urination, Like a kind of cramp.  I think it was the Valtrex because it subside once I got from 2x500 a day, to once 500 a day. I took twice a day first because I was very afraid for outbreaks, it had hurt so very much those first OB's. I think that was just to much.

Now it is ok. I have taken Valtrex for a few years, it got me through. It is not ideal but I feel blessed it exists.

Since december I also take a childrens aspirin daily and a few weeks later I left the Valtrex, just to see wat happens. I often read the HSV seems to get less active after a few years, sooo.....    Untill know (knock wood) nothing happens, even around my menstruation.  

Good luck to all of you and let's hope the great work bij Halford and other scientists will pay off soon!

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8 hours ago, Hansje said:

Valtrex in the first year seemed to give me a side effect. My bladder and kidneys would hurt a lot during urination, Like a kind of cramp.  I think it was the Valtrex because it subside once I got from 2x500 a day, to once 500 a day. I took twice a day first because I was very afraid for outbreaks, it had hurt so very much those first OB's. I think that was just to much.

Now it is ok. I have taken Valtrex for a few years, it got me through. It is not ideal but I feel blessed it exists.

Since december I also take a childrens aspirin daily and a few weeks later I left the Valtrex, just to see wat happens. I often read the HSV seems to get less active after a few years, sooo.....    Untill know (knock wood) nothing happens, even around my menstruation.  

Good luck to all of you and let's hope the great work bij Halford and other scientists will pay off soon!

So you took it everyday for a few years? I do plan to try to take it everyday as I do think it has caused inflammation throughout my body. I'm hoping by taking it I will reduce inflammation.

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I've taken it roughly every day for almost 1.5 years.  So far I haven't noticed any side effects that I can discern.  Every so often I'll try to reduce my dose and go off it just to see if I still need it.  So far every time I've tried quitting the burning/itching neuropathy comes back.  The lowest dose I seem to do ok with is 500mg daily which is what I take.  I'm a 200lb bodybuilder morphotype so it might vary depending on size as well.

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On 21/01/2017 at 10:27 AM, herpes454 said:

I guess my argument here would be that I have neuralgia that refers itself to most of my body.  It's concentrated most heavily around my groin and my face - perhaps indicating that I have both HSV2 orally and genitally.  If the girl I contracted it from had HSV2 orally then it would make sense to me that it would end up in both places given the nature of the encounter. 

Now if one was to argue that this wasn't HSV, then that person would need to explain to me how after 35 years of living on this earth all of this randomly started 3 weeks after a sexual encounter with a random girl, only the second girl I've ever been intimate with.  And also this person would need to explain to me what neurological condition is completely alleviated through the use of daily 500mg valacyclovir.  Completely 100%, all symptoms gone.  If said person couldn't explain this then they should probably be forced to admit that they really don't know as much about the subject as they think they do, and they should probably just be quiet ;-)

You do not have any confirmation that you have a HSV-2 infection at all!

Every thing starts after a sexual encounter! I had sex and Donald Trump became President! How does that happen!

Your testing indicates a 95% chance that you do not have HSV-2. A Westernblot is the only test at this point that can clarify.

Good luck! Believe in belief.

 

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