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I've had HSV2 for 4 years now. Recently had an unrelated minor spinal injury that caused some severe neuropathy. So instead of taking narcotics for months, my doctor just had me try my first round of Immunoglobulin IVIG treatments (4 days getting the intravenous blood infusion) labeling my symptoms as something called CIPD (google it). (IVIG treatments give you a boost to your immune system). Also note, I can't take steroids long term also because it spikes my sugar and I have Type 2 diabetes.
I wonder if anyone else here has tried IVIG? I have read that some people have taken it to suppress HSV. Love to hear from others. It's too early for me to know if this works - I'll report back in several months. Just so you know my background - I had OBs in the first year about every 8 weeks, which consisted of neuropathy and maybe some small bumps. Then the second year I only got those same symptoms every 4 months or so, then i only get these now about once or twice a year, and it's mostly just some tingling and nerve pain. So we'll see how this works out. There are articles out there too.
Edited to add this link...
https://pubmed.ncbi.nlm.nih.gov/7759773/#:~:text=Since intravenous immunoglobulins (IVIG) proved,%2FKg every fourth week).
I am GHSV2 positive with a full credential--an unequivocal and indisputable blood test with lots of little antibodies in it. I even obtained an advanced degree--a biopsy of the first OB. I've had this nervous system infection for several years...yes, nervous system infection...not a dermatologic infection. It is a widely known fact that GHSV2 resides in the sacral ganglia. Pesky things, them facts!!!
My first OB presented with all the bells and whistles...and sirens. Now, I rarely get OBs. By rarely, I mean that I can go a couple of years or more without one. However, I do frequently suffer from the same identical sacral nerve pain that I experienced when I had my first OB. I did not experience this type of pain prior to being exposed to HSV2. There are two reasons I use Valacyclovir, but I do not take it every day. 1. I want to decrease the likelihood of giving HSV2 to my significant other (I don't medicate daily because it was a LDR) and/or 2. I am in a lot of sacral nerve pain and I don't want to wait it out. In my case, whether or not I use Valacyclovir, I rarely have an OB...I just have nerve pain. The nerve pain is alleviated by taking Valacyclovir. It's like prodrome nerve pain, but without the blisters. Does anyone doubt what I am experiencing as being HSV2 related? If so, please explain why. Make sure you have done significant research and are able to post charts and graphs and multiple sources to back up your statements...because this shit's real 😤
Hey guys for those who struggle with daily nerves pain with doctor saying its not related to Herpes, please have a look on "Elsberg Syndrom" on Google.
It describes exactly what we have, there are few study of it.
It's important that doctors are aware of it, changing the vision they have of herpes, which is not just a "skin condition" for some of us
Hi. Will try to keep it short:
Day 0 - Exposure with HSV2 confirmed female. Exposure = 1-time brief unprotected vaginal. Not sure if she had outbreak/shedding/blisters at that time. She was not on any meds.
Day 5 - Redness and itchiness on the penis head and shaft on and off. Resolved in about a week. No lesions/blisters or other symptoms.
Day 28 - Other symptoms started: tingling and nerve pains in the groin on and off throughout the day, radiating pains in the legs, fordyce spots appeared on the shaft, lower back and neck pain, burning in urethra (occasional), rashes on the body (occasional), diahrrea (occasional), overall nervousness and tiredness, flue like with feverish (occasional). No lesions/blisters.
Day 30 - Tested HSV1 positive (IGG 19.6) (had it since childhood), HSV2 negative (IGG 0.3). All other STDs negative.
Taken antibiotics for 5 days. Taken AV (acyclovir) for 10 days (Days 35-45). No symptoms at that time.
Day 50 - Tested HSV1 positive (IGG 16.4), HSV2 negative (IGG 0.1). I believe AB went down a bit due to AV. All other STDs negative.
Currenty symptoms persist on and off, but less severe: tingling and nerve pains in the groin, radiating pains in the legs. Still no lesions/blisters.
Planning to retest again at Day 90. I am aware that prior HSV1 and AVs may delay HSV2 ABs production.
What are your thoughts/advice? Thank you.