Jump to content

The 100 million

Rational Vaxxer

By Rational Vaxxer,
in Rant & Rave

 Share

Recommended Posts

Rational Vaxxer Platinum Support Member

Rational Vaxxer

Posted
Posted


The struggle of every day life can be exhausting, like trying to untangle your iPhone earbuds while driving. While it is obvious that many decisions that we make are flawed, it is obviously human to be curious and take chances. If anything, it is in this curiosity that makes us human and also quite fallible. Sometimes life can be hindered by choices or the lack there of. I think this is the main reason why people who have lifelong diseases struggle with every day life. It is the lack of choice and the hindrance of other available choices that can sometimes make life difficult.

When it comes to HSV most people do not even think about it. It is the small percentage of the human population ( about 100 million ) that suffer in a terrible way, that struggle with the lack of choices. It is in that choice that a mistake was made. A mistake that many people are reminded of every day for the rest of their lives. Every time they look in the mirror, and the mirror looks back and says "hey remember that mistake you made?"  It is that constant reminder that many of us have a problem with and must learn to deal.
Many of these 100 million are the worst case scenarios. They are the stories that you hear about on the Internet or in the pictures you see in slideshows discussing the gross to small school children on the dangers of STDs. It is the slap in the face reality of the obvious. While our choices may be limited, we do have a choice on how we look at life, it is not always easy and for many, we struggle to find some light at the end of the tunnel or a glimmer of hope for relief. Being a recipient of the HSV vaccine has changed my outlook and has given me a brighter perspective. The simple fact that it works, has changed my life. My only hope is that many will soon benefit from this vaccine and also benefit and feeling better.  Better about having a choice… One that can give hope to feeling human and whole again.

  • StayingReallyHopeful, Unrequited, RVX Patient and Investor and 5 others
  • Like 8
Link to comment
Share on other sites
Peacepleez Honeycomb Member

Peacepleez

Posted
Posted

Beautifully said. For those of us looking for greater meaning as to why this Is part of our life, you give hope such that the mind will be able to focus on better and more beautiful things in life. 

  • Rational Vaxxer, Hansje, RVX Patient and Investor and 2 others
  • Like 5
Link to comment
Share on other sites
thatsmycat Honeycomb Member

thatsmycat

Posted
Posted

Yeah, Im definitely feeling the looking in the mirror and feeling the mistake that I made and how it has ripped away many prospects of love and family. I am usually good at coping and cheering others up about this but its new years eve tonight and Im feelin' the heaviness.  

Thank you for your optimism and I hope that vaccine becomes available soon, but until I hear Halford give a definite answer about supplying it , I don't know how much I want to hope on it. Its disheartening to see that he cant even get the study published in a science publication because he didn't follow procedures correctly and insists upon insulting other scientists work. 

  • Rational Vaxxer
  • Like 1
Link to comment
Share on other sites
Lisajd Platinum Support Member

Lisajd

Posted
Posted

There are two parts to it.  The vaccine will help symptoms but as you say its the looking in the mirror and beating yourself up for the mistake.  The vaccine wont change the blame or regrets. You still have to work on that aspect.. for me im ok as i do blame myself but i cant change it so i let it go. It doesnt help moving forward. 

#rational vaxxer glad things are improving for you.

  • RVX Patient and Investor, Theblues and Newtothisandscared
  • Like 3
Link to comment
Share on other sites
luvurself16 Established Member

luvurself16

Posted
Posted

Happy New Years to all! My first thought today was to go to the beach. My resolution for this year is to LIVE! My sex life isn't as important to me as motherhood, my profession or my happiness.

  • West end gal, RVX Patient and Investor and Newtothisandscared
  • Like 3
Link to comment
Share on other sites
Brokenforever Established Member

Brokenforever

Posted
Posted
1 hour ago, Peacepleez said:

Feeling incredibly sad and defeated this first day of 2017. In pain. Lonely. First thought as I wake this AM is herpes:(

I think a lot of people feel this way. Despite wanting to live life. The overwhelming crushing feeling of this is immense. Most of us want our lives back without this being on our minds. Not everyone can just put it aside and move on, no matter how much they yearn for it.  

Link to comment
Share on other sites
Neuralgia Inc. Honeycomb Member

Neuralgia Inc.

Posted
Posted (edited)
2 hours ago, Peacepleez said:

Feeling incredibly sad and defeated this first day of 2017. In pain. Lonely. First thought as I wake this AM is herpes:(

As Rational Vaxxer posted above, there are reasons for optimism.  Setting aside the data published in October by RVX, reminder that the following members have posted positive accounts of their experience with Theravax:

@Sweet7One of the first recipients was symptom free for two years, then had three bouts of neuralgia during year 3, and then had an OB three years after receiving the first shot of the vax (this is very encouraging to me)  

@RVX TRIAL #1 MEMBER OB free for 8 months as of mid December

@Norwegian123 Only took one shot but this pretty much cured her neuralgia (which is my worst issue by far)

@RVX Patient and Investor  Has taken the vaccine and thus far had a positive experience.  Yes some people discount him because he is an investor, but I do not.   I very much appreciate his comments on here and his investment.  Where else would angel money come from for RVX if not from current sufferers of herpes? 

Then of course, we have the brave (and public) account by @Rational Vaxxer himself.  Also appreciated.

Yes, there was one negative account from the trial on here, but we have to keep in mind that this is just the beginning with this vaccine and it can be boosted or tweaked in terms of how many shots etc to enhance the effectiveness.  

And in the future we have potential advances in CRISPR with Editas and Excision.  Farther out there and still a lot science to be worked out, but hopefully Theravax is a bridge to reduce symptoms for now.

Not wearing rose-colored glasses, but objectively there is more reason for optimism now than in years past. 

Edited by Bumming
Link to comment
Share on other sites
Peacepleez Honeycomb Member

Peacepleez

Posted
Posted

I'm stuck in the present not a future that is not clear (vax or not). Down about this day b/c how much everything has changed. Can't move on...just being honest

Link to comment
Share on other sites
luvurself16 Established Member

luvurself16

Posted
Posted
19 hours ago, Peacepleez said:

I'm stuck in the present not a future that is not clear (vax or not). Down about this day b/c how much everything has changed. Can't move on...just being honest

It's good to be honest. Especially to yourself. I find solace when I think about other things like my child, career, etc

  • Neuralgia Inc.
  • Like 1
Link to comment
Share on other sites
Rational Vaxxer Platinum Support Member

Rational Vaxxer

Posted
  • Author
Posted
On 1/1/2017 at 0:46 AM, thatsmycat said:

Yeah, Im definitely feeling the looking in the mirror and feeling the mistake that I made and how it has ripped away many prospects of love and family. I am usually good at coping and cheering others up about this but its new years eve tonight and Im feelin' the heaviness.  

Thank you for your optimism and I hope that vaccine becomes available soon, but until I hear Halford give a definite answer about supplying it , I don't know how much I want to hope on it. Its disheartening to see that he cant even get the study published in a science publication because he didn't follow procedures correctly and insists upon insulting other scientists work. 

 I understand your frustration but I also understand Dr. Halford's frustration as well.  I've been lucky enough to have many conversations with him and his explanations of the situation make it pretty clear.  A person can only take so much ignorant pushback. This, along with his personal fight with cancer gives him a unique perspective.   A perspective on realizing that time is short and he's trying to make an  positive impact on people's lives.

 Sometimes things become more important when faced with reality. I can see why he would tend to comment in a not so kind fashion with peers who have fought him most of the time. 

 I could go on but I'm sure you get the picture 

  • Neuralgia Inc., Theblues and thatsmycat
  • Like 3
Link to comment
Share on other sites
OFMDH Acknowledged Support Member

OFMDH

Posted
Posted (edited)
Quote

Yes, there was one negative account from the trial on here, but we have to keep in mind that this is just the beginning with this vaccine and it can be boosted or tweaked in terms of how many shots etc to enhance the effectiveness.  

There is a potential process in T-cells in response to a therapeutic vaccination which may explain my then "negative account" in December which once it’s over may result in a positive result.

What figured out on my own is that what may happen is a bounce effect with older inefficient monofunctional T-cells dying off (temporarily worse) being replaced with more polyfunctional ones and thus ultimately better control of the virus. Accordingly, it is far too premature to judge my comments last month as the vaccine being negative or anyone else potentially being worse as its still on-going what a new normal will be. Albeit my neuralgia relief was off and on generally from sometime about middle of June to until December 6. 

Edited by OhFuckMyDickHurts
  • RVX Patient and Investor and Hansje
  • Like 2
Link to comment
Share on other sites
  • 4 weeks later...

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

×
 Share
Go to topic listing

  • Donate

    If Honeycomb has helped you, please help us by making a donation so we can provide you with even better features and services.

  • The Hive is Thriving!

    • Total Topics
      71.9k
    • Total Posts
      485.2k

  • Posts

    • CHT
      SUCCESS STORY: Herpes is an opportunity to built trust and connection through vulnerability.

      By CHT · Posted

      Hi "Jeremy"..... I agree, the topic of your HSV status does not need to be something you disclose too soon in a developing relationship..... get to know each other first....see how it's going and as it progresses, then the HSV issue will naturally need to be revealed.... it's my personal opinion though that before there is any sexual encounter you ought to disclose your HSV status.... I know some will disagree with me on this but, I think it is morally wrong not to disclose first.  This can be a make/break situation for most people but, again, I feel it is simply wrong not to give the other person the whole story since your decision not to disclose could put their health at risk.... that is simply not an option in my opinion.  Looking back to my "pre-HSV" life I most certainly would want my partner to disclose their HSV+ status before intimacy so that I could make my decision as to whether I want to take that risk or not.... 
    • Jeremy Spokein
      SUCCESS STORY: Herpes is an opportunity to built trust and connection through vulnerability.

      By Jeremy Spokein · Posted

      Thanks, CHT. I appreciate the feedback. The whole trauma of going through this has led me to figure out a lot about myself and my attachment wounds, so I'm taking courses to come out of this better. This girl really was my dream woman in so many ways, it's been the hardest heartbreak to deal with ever. I'm truly in a lot of pain, but using the pain as fuel to launch that new business and work with coaches. I also opened up to my family about HSV, so my parents and sister know now, and they were very loving and accepting of it. Since opening up about it, I feel way better around this thing. After opening up, I also found out that some mutual friends in our family have discordant couples who are married with children, so HSV hasn't stopped them from living a loving life. The thing is... all of these couples I mention did not disclose until 6-8 months into the relationship. So now I'm thinking it might be better not to disclose until I know things are very serious. I'll of course stay on the medication and use protection, but maybe this is a better route than disclosing upfront and scaring women off.
    • WilsoInAus
      Could this be hsv-2?

      By WilsoInAus · Posted

      Hey @Lcj987 and welcome to the website. You can be sure that isn't HSV-2, looks nothing like it. It is much more likely to be folliculitis or inflamed fordyce spots.
    • WilsoInAus
      Unsure if Herpes, awaiting swabs, need help

      By WilsoInAus · Posted

      Hey @JackThrowAway herpes causes an outbreak where it enters the body first and maybe a progressive spread. If it doesn't cause an outbreak at the entry site then it won't cause one elsewhere, it also won't 'jump' upon infection - it would be more likely that the lesions are continuous from the penis to the anus. Nevertheless, testing trumps symptoms or any interpretation of symptoms. The correct conclusive result arises when: you have a positive swab; or An IgG HSV-2 level over 3.5 (Herpeselect test).
    • Lcj987
      Could this be hsv-2?

      By Lcj987 · Posted

      Slept with someone unprotected, roughly 2 weeks ago now. I felt generally unwell the couple of days after but I’d been drinking the whole weekend and didn’t have much sleep either of the days of that weekend so put it down to that. 6 days after I noticed these spots appear on the shaft of my penis. Along with symptoms of discomfort in my shaft in the couple of days prior to them appearing. No pain when urinating at all that I have noticed. They don’t hurt, itch or tingle and they don’t have fluid in from what I can see or feel if I squeeze them and have never burst? I went to a sexual health clinic to get checked up, they took bloods to do a full test and looked at the spots but said they saw nothing that concerned them but I’m not sure about that, any advice? The smaller spots under the shaft are just follicles I had diagnosed years ago and non-sti related.
×
×
  • Create New...

Important Information

We have placed cookies on your device to help make this website better. You can adjust your cookie settings, otherwise we'll assume you're okay to continue.

  I accept